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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2007update-recent 1st post not showing
Hi all, just thought i would pop in with an update. John very weak and sleepy HB levels 7. So John having another transfusion of 3 units of blood. The cancer has ravaged his bone marrow and causing the low blood counts. He had 4 units 8 weeks ago when his HB was 6.5 and it perked him up a bit. Johns PSA is 1800 (yes... one thousand eight hundred!) he has facial muscle weakness down one side of his face caused by bone mets in the base of his skull, he is also quite confused and says odd random things his memory is also very bad, he forgets everything. The Doctors say he might start to have fits because of the raised pressure in his brain so he is to start steroids tomorrow to see if they help. Johns weight is now 120lbs 2 years ago he was a strapping biker, its gut renching to see such a good and true man fade away in front of you. John's pain control is very good the morphine sulphate he has in a syringe driver 24hrs a day is brilliant. John also has a drug called Nozinan to stop sickness. John still has a good sense of humour and is always my loving husband. His courage is amazing and the docs are dumbfounded as to how he is keeping going. They gave him weeks to live months ago and the stubborn bugger is still here! Well i must be gone, things to do! Take care and keep fighting Love Carolyn, John Preston xxx Carolyn, sorry to read your update. I missed your previous posts: how old is your husband? when all started?. Take care Colophony > Hi all, just thought i would pop in with an update. John very weak and > sleepy HB levels 7. So John having another transfusion of 3 units of [quoted text clipped - 27 lines] > Carolyn, John Preston > xxx Hi just a brief rundown for you. My husband is 52yrs old. Diagnosed 4 years ago age 48 yrs PSA 639 Extensive spread to bones on diagnosis. Had zolodex and casodex PSA initially came down to 14 , hormone refractory within 9 months. Clinical trials of Taxatere and Omnitarg for 13 months kept him stable. Strontium 89 for bone pain plus spot radiation. 30 months of zolidronic acid (bisphosphernates). Slow rise of PSA and bone pain. Steady weight loss over last 18months. Tumour on jaw has rendered him unable to open his mouth wide enough to eat, so a gastrostomy tube was inserted early last year. For the first two and a half years John was very well, still riding his motorbike, flying power kites, working ect however he is very poorly now and putting up a vallient battle. Please feel free to ask any questions just have it in mind that we live in the united kingdom and things may be done a little differently than round your neck of the woods. Hope this is helpfull. Although do remember that the vast majority of people with this cancer have a good outlook and will not get to the unfortunate place my husband is in. Love Carolyn xx > Carolyn, > sorry to read your update. I missed your previous posts: [quoted text clipped - 35 lines] >> Carolyn, John Preston >> xxx Carolyn, Just love him! My heart goes out to you. My husband beat the cancer, but still lost his life. Bev Thanks Carolyn, you have used this expression quote" things may be done a little differently than round your neck of the woods." Please note that I am italian and here too things are done a little differently. With love Colophony > Hi just a brief rundown for you. My husband is 52yrs old. Diagnosed 4 > years ago age 48 yrs PSA 639 Extensive spread to bones on diagnosis. Had [quoted text clipped - 59 lines] >>> Carolyn, John Preston >>> xxx |
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