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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2007update
Hi all, just thought i would pop in with an update. John very weak and sleepy HB levels 7. So John having another transfusion of 3 units of blood. The cancer has ravaged his bone marrow and causing the low blood counts. He had 4 units 8 weeks ago when his HB was 6.5 and it perked him up a bit. Johns PSA is 1800 (yes... one thousand eight hundred!) he has facial muscle weakness down one side of his face caused by bone mets in the base of his skull, he is also quite confused and says odd random things his memory is also very bad, he forgets everything. The Doctors say he might start to have fits because of the raised pressure in his brain so he is to start steroids tomorrow to see if they help. Johns weight is now 120lbs 2 years ago he was a strapping biker, its gut renching to see such a good and true man fade away in front of you. John's pain control is very good the morphine sulphate he has in a syringe driver 24hrs a day is brilliant. John also has a drug called Nozinan to stop sickness. John still has a good sense of humour and is always my loving husband. His courage is amazing and the docs are dumbfounded as to how he is keeping going. They gave him weeks to live months ago and the stubborn bugger is still here! Well i must be gone, things to do! Take care and keep fighting Love Carolyn, John Preston xxx > Hi all, just thought i would pop in with an update. John very weak and > sleepy HB levels 7. So John having another transfusion of 3 units of blood. [quoted text clipped - 16 lines] > going. They gave him weeks to live months ago and the stubborn bugger is > still here! Sounds like John's being well cared for. Are the MacMillan Nurses helping out? The steroid should help the brain pressure but may make him hungrier and difficulty sleeping. A "wired" jitteriness sometimes happens I think My thoughts will be wiith you both, Carolyn. You're also welcome on alt.support.cancer. Alayne, from UK, whose husband died around the same age as John of a brain tumor, might be watching for posts such as yours. She's a wonderful soft place to land (for support). J Hello, Carolyn: Our thoughts and prayers are with you and John. This is by far the toughest road he has ever traveled, and it must be a comfort to him to know that he has you at hand to help him through it. --charlie  Signature6/2006 PSA 5.2, DRE suspicious 7/2006 Biopsy: 2 of 10 positive, Gleason 7(3+4) 11/2006 LRP: Clear margins PSA < 0.01 on 1/2007, 3/2007, 6/2007 so far, so good ... > John still has a good sense of humour and is always my loving husband. His > courage is amazing and the docs are dumbfounded as to how he is keeping > going. They gave him weeks to live months ago and the stubborn bugger is > still here! As always, Carolyn, our prayers are with him... and you. My dad was the same way. He was a former Marine Sergeant in the Korean War, then a cop. He was tough as nails. He was diagnosed in '74 at 42 years of age. He was given "about 5 years". Seven years later, he was given six months. A year later he was given weeks. Months later he was given days. Three times I was called to the hospice when he had "less than 20 minutes". The first time, we all gathered round and talked to him. By then he had been in a comma for days. His breathing got shallow; then there were minutes before each breath, then he stopped. Quiet sobs started, then louder sobs, the crying. Then, suddenly, his right hand and leg jumped up, fell back to the bed, and he started breathing again. Three days later, he finally died. Something Kubula Ross (or some such sounding name) says that when person is in that state, he probably feels he has to stick around for all concerned. That we who love them have to tell them, "it's okay to go. I'm going to be okay." I'm not saying that it's time now, but you might want to think about it when they say he's got 20 minutes left. I wish I had. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04 (06/12/2007) Non Illegitimi Carborundum > Something Kubula Ross (or some such sounding name) says that when person > is in that state, he probably feels he has to stick around for all > concerned. That we who love them have to tell them, "it's okay to go. I'm > going to be okay." Just some background. The author's name is Elizabeth Kubler Ross and her best book (per my wife) is Wheel of Life. Dear Carolyn I read this with great sadness. My thoughts and prayers are with you both at this difficult time. Words are inadequate to express how you must be feeling. > Hi all, just thought i would pop in with an update. John very weak and > sleepy HB levels 7. So John having another transfusion of 3 units of blood. [quoted text clipped - 23 lines] > Carolyn, John Preston > xxx God Bless You Carolyn..........and John My prayers are with you Dave P |
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