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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2007

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Can you help with a research project in to ED and its impact?

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belinda.shale@thepatientconnections.com - 10 Aug 2007 11:06 GMT
Can you help with a research project in to ED and its impact?

Hi

We are running a research blog into some aspects of the private lives
of people with ED and their partners

Looking in particular at uses of medication and their social life.  It
would be really great if you could spare a few minutes to have look
and share your thoughts

http://www.thepatientconnections.com/blog.asp?uid=6zz7l9

Please remember that all responses are completely anonymous

Thanks

Belinda
Belinda.shale@thepatientconnections.com
The Patient Connection
california_chief - 10 Aug 2007 15:47 GMT
> We are running a research blog

Who is "we"?

"research blog" does NOT sound very scientific.  More like a scam to cull
private information.
assure@nospam.net - 10 Aug 2007 18:36 GMT
Thanks, CC.  That's about what I thought, too.  Let's see what
response, if any, you get.

>> We are running a research blog
>
>Who is "we"?
>
>"research blog" does NOT sound very scientific.  More like a scam to cull
>private information.
Heather - 10 Aug 2007 19:48 GMT
I ran an IP check and got London, England.  Which is also the address on
the website.  But those can be forged, so thought I would check via
RIPE.

As to whether it is kosher, I can't tell, but I do have the ISP's
address and phone number.

Cheers......Heather

>> We are running a research blog
>
[quoted text clipped - 3 lines]
> cull
> private information.
Alan Meyer - 10 Aug 2007 20:14 GMT
>I ran an IP check and got London, England.  Which is also the address on the website.
>But those can be forged, so thought I would check via RIPE.
>
> As to whether it is kosher, I can't tell, but I do have the ISP's address and phone
> number.

I presume this is legitimate in the sense that the company
is a genuine survey company and that they're not lying
about their name.  I accept at face value their statement
that they will not violate people's privacy.  I can't see why
they would or how they could profit from that.

What they aren't revealing is who is funding this.  From looking
at the company's website, it appears that they're business is survey
oriented research.  They obviously have a client.  It might be
Pfizer or one of the other impotence drug manufacturers, or
some other drug company planning to enter the market and
trying to figure out more about what people want and how
they use the drugs.

I don't think any of that is too nefarious.  If you accept that
private enterprise is the right way to make drugs (and I believe
there are significant pros and cons of that - but it is clearly
a fact of present day life) then it doesn't seem bad to me
for companies to try to learn more about what their
customers want.  ...  For the most part.

On the other hand, research like this probably has nothing
whatever to do with drug development and everything to
do with drug marketing.  It will probably be used to develop
more effective advertising which we, the consumers, will
pay for, along with Ms. Shale's salary and all the other
costs of this survey.

Sometimes I get wrought up about these issues and
sometimes I don't.  I don't really mind that a private company
makes toothpaste, makes a profit on it, and spends money
on advertising it.  As long as the toothpaste does what the
company says it does, and doesn't make people sick or
pollute the earth, why not?  And if it's okay for toothpaste,
why not for impotence pills?

I guess my bottom line is, let's not try to drive the drug
companies (or their survey research contractors) out of
business.  Let's just do our best to keep them honest,
keep their activities transparent, and insure that they
make their profits by helping people and not by harming
them, gouging them, engaging in price collusion with
other companies, or lying to them.

   Alan
Alan Meyer - 10 Aug 2007 18:35 GMT
> Can you help with a research project in to ED and its impact?
>
[quoted text clipped - 16 lines]
> Belinda.shale@thepatientconnections.com
> The Patient Connection

Dear Ms. Shale,

Would you please tell us who is funding the study and what
its goals are?

I am not opposed to private drug companies doing studies
like this.  It's probably a good thing.  But I believe it's important
to have transparency on things like this.  When a doctor gives
a lecture or writes an article for a medical journal these days he
is required to state what his financial connections are with the
drug companies involved in the issues to be discussed.  When
a company runs a clinical trial, they reveal who they are.

I presume that you can't say who is funding this study without
their permission.  Would you either get that permission and
reveal who it is, or tell us that the funders refused to reveal
who they are?

Thank you.

   Alan
 
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