That's PARTIALLY off-topic. (POT)
Four days ago, had the start of what I thought was a bout of Sciatica. It
wasn't.
The pain got worse in time and last night it made my eyes water - a lot.
Pain originated in left hip area and radiated down to perhaps the knee.
Couldn't sit or sleep - wasn't quite as bad when standing or walking.
Two x 10 mg Fast acting morphine had no impact and neither did
DiHydrocodeine.
Anyway, my lad phoned an Emergency Doctor at 2 AM, who after an exam gave me
two injections that took twenty minutes to kick in with not quite complete
relief, but enough to allow a light sleep in my big chair.
GP this AM has upped my MST Morphine to 100 mg x each 12 hours and told me
to use as much Breakthrough as needed, in addition to Tramadol and Voltarol.
However, HE is concerned now as to WHY I have not been given targeted
Radiotherapy to relieve these bone pains and had a nice little conversation
with my Onco while I was in the surgery. I was sent down to the Beatson and
Mr Mahmoud (Onco) saw me.
I have to have another bone scan on Tuesday coming - results of the last
scan on 17th July have "Gone Missing" (This is entirely laughable and makes
me want to scream at someone) From that, says nice Mr Liar Onco - they'll
determine hot spots for Radiotherapy.
Hip f.cking Hooray. At last. I need to get off this morphine. The side
effects of using it are rotten - constant trembling, dry tinny tasting mouth
that ruins food, feeling weak and "not quite there" Can't concentrate and
trying to read a book - ten or so pages and you haven't a clue what you just
read. Rotten. Also constipation is a BIG issue. Like you dont go for a whole
day and then when you do, It's like giving birth to a log. Agony! Robs you
of appetite too, can go two days with nothing solid - just drinks of tea and
Soya milk. and no sense of feeling hungry till your Tummy eventually yells
at you that it thinks your throat's been cut.
My youngest brother bought me a 6 x bottle case of "Naturally Pomegranate"
30 mls contains the equivalent of 15 pomegranates. It costs £14 a bottle (1
litre) from Costco and it's the most disgusting stuff I ever tasted. It
needs to be mixed with something else to make it more palatable. I use
soda-water with a little peppermint cordial. Not too bad.
Walked back from the Beatson at almost a trot (4 miles) and feeling whacked.
Alan did the paper round for me this morning. I was just too sore and
tired - like now I reckon I'm about to have a mug of malted chocolate and
hit the sack.
Regards to all.
Hughie.
Just - 03 Aug 2007 15:51 GMT
>Four days ago, had the start of what I thought was a bout of Sciatica. It
>wasn't.
snip...............
>I have to have another bone scan on Tuesday coming - results of the last
>scan on 17th July have "Gone Missing" (This is entirely laughable and makes
>me want to scream at someone) From that, says nice Mr Liar Onco - they'll
>determine hot spots for Radiotherapy.
snip................
>Hughie.
Hi Hugh!
Regarding what you thought was a bout of Sciatica, I have a friend
that had similar symptoms - which were in fact caused by some pca he
had on the spine.
It seems that (besides any standard treatment) he should have used
some type of vest to protect the spine and minimize any collapse. He
realized this too late
Please keep this in mind if your bone scan shows something in the
spine.
Good luck.
Just

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Alan Meyer - 03 Aug 2007 16:51 GMT
Hugh,
In addition to the radiation, ask the doctors about taking
bisphosphonates - if you aren't already doing so.
There are a bunch of them, including Zolendronate, Alendronate,
and others. Apparently they have shown some capacity
to reduce and prevent bone pain. For cancer pain, they
may infuse heavy doses right into the blood stream, though
there are also smaller dose pills.
Like everything else, they too have side effects. My wife
used to take a Fosamax (Alendronate) pill once a week for
osteopenia. It would give her a slightly upset stomach for
a couple of hours, but otherwise she had no problems.
In your case, I suspect the side effects are small compared
to the bone pain.
Alan
J - 03 Aug 2007 18:16 GMT
> Hugh,
>
[quoted text clipped - 16 lines]
>
> Alan
RT can mend bone [1] and palliate.
[1] unless it's too far gone, fracture.
With them (UK) if he gives them choices, they'll choose the path of least
resistance.
Oral meds. So Hugh, fight for RT.
J
Clarence Crow - 07 Aug 2007 00:50 GMT
>That's PARTIALLY off-topic. (POT)
>
>Four days ago, had the start of what I thought was a bout of Sciatica. It
>wasn't.
<snip>
Hughie
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