 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Prostate Cancer / July 2007A call for help
My name is Vasilis Papamikos and I am a clinical dietitian from Greece. The thing is that I desperately need your help. The reason is one 24 year old girl, with known uterus neck cancer (since 2-3 months) and metastasis at the upper part of the body. The doctors here in Greece say that she has 3-5 months of life. My question is as follows: Is there a research protocol, in any country, to enroll ths girl as a last hope for life? I have recently read that in 7 US research centres new vaccines with mutant viruses are being tested. These viruses are supposed to kill any kind of cancer cell. I have found an example of this work here: http://ceidr.lsu.edu/staticpages/index.php?page=20060920161120892 With respect, Vasilis Papamikos PhD candidate in Nutrigenomics, Xarokopio University of Athens, Greece MSc in Clinical Nutrition, University of Glasgow, Scotland MSc in Health Care Management, University Of Athens, Greece On July 26, Vasilis wrote: > Is there a research protocol, in any country, to enroll ths girl as a > last hope for life? Here is the clinical trials section of the US National Institutes of Health website. Many of the listed trials are carried out in other countries as well as the USA. The individual trial page will list the locations and other details. Hope this helps. http://www.clinicaltrials.gov/ct/action/GetStudy Steve J > My name is Vasilis Papamikos and I am a clinical dietitian from > Greece. [quoted text clipped - 21 lines] > MSc in Clinical Nutrition, University of Glasgow, Scotland > MSc in Health Care Management, University Of Athens, Greece Vasilis, Hello to you. Although a more pertinent group might have been appropriate, I nonetheless offer my sympathy (I know of no group that offers support for uterine cancers) My throat tightens and my lip quivers to think of a young girl who's life may soon be ended by disease. No man knows the mind of God, what's in store for any of us, but - please will you send us her name, so that we can at least pray for her? May the Grace of Almighty God be with her. My Best hopes, Hugh. > Although a more pertinent group might have been appropriate, I nonetheless > offer my sympathy (I know of no group that offers support for uterine > cancers) That's a strange comment Hugh, alt.support.cancer supports most of the ones listed here http://en.wikipedia.org/wiki/Category:Types_of_cancer and end stage cancers of any type. The types covered by alt.support.cancer probably number ~100. I refer people with prostate cancer here and breast cancer to the breast cancer newsgroup. I also refer people with the following: to a special place leukemias - because it's best they compare their bloodwork (complex) with others who have the same cancers. lymphomas - because it's best they compare their bloodwork (can be complex) with others who have the same cancers. mesothelioma - because their time is usually very short and there tended to be "lawyer" type "ambulance chasers" looking for customers to sue asbestos companies pestering the patients so I refer them to a quieter place. I sure hope you aren't spreading that misinformation to others, please. If you have any questions, please ask. Thank you. J Misinformation_ = I NEVER intended that Maybe shoulda kept my big gob shut. Just felt so SAD for the giirl. O - I'm a yobbo. Ignorant f.ck - doesnt stop me having tears and caring and praying for innocents - does it? My King said "Blessed are the Meek, for they shall inherit the Kingdom of Heaven" >> Although a more pertinent group might have been appropriate, I >> nonetheless [quoted text clipped - 24 lines] > Thank you. > J > Misinformation_ = I NEVER intended that > Maybe shoulda kept my big gob shut. Just felt so SAD for the giirl. > > O - I'm a yobbo. Ignorant f.ck - doesnt stop me having tears and caring and > praying for innocents - does it? My King said "Blessed are the Meek, for > they shall inherit the Kingdom of Heaven" Don't be so hard on yourself, Hugh. I know how much you're caring about her. I just wanted to make sure the wrong information, about alt.support.cancer, isn't floating around various newsgroups, or other places. Thanks for your patience and understanding. J > My name is Vasilis Papamikos and I am a clinical dietitian from > Greece. [quoted text clipped - 21 lines] > MSc in Clinical Nutrition, University of Glasgow, Scotland > MSc in Health Care Management, University Of Athens, Greece Vasilis, I am sorry to hear of this young woman's condition. There is some information available about uterine cancers on the U.S. National Cancer Institute (NCI) website. The endometrial form of the cancer (95% of uterine cancers) is discussed at: http://www.cancer.gov/cancertopics/types/endometrial/ Click "Endometrial Cancer Treatment ... health professional" for technical information about the cancer. There are also links under "Clinical Trials" that may help you find something. I recommend that you and the young woman read all of the clinical trials listed for this type of cancer. There are 41 treatment protocols for Stage IV endometrial cancer listed at NCI. If you see some of interest, call one of the phone numbers listed for the trial and explain the woman's condition and discuss whether the trial is appropriate, what results may have been obtained so far, and so on. Unfortunately, the chances of a cure with experimental therapies are relatively low. Metastatic endometrial cancer is "rarely curable" according to the NCI. In looking through a few of the clinical trials, the most common hoped for outcome is some prolongation of life rather than a cure. Hormone therapy provides some life extension for some patients and some combination chemotherapies have shown some benefit. The woman will be taking a chance. It is likely that participation in a foreign trial will add some travel, expense, stress, and time away from home, friends and family to the last months of her life, perhaps with little benefit. That must be considered. However if she wants to try anyway, there is always some chance that one of the therapies will work for her. Whether or not it works, by participating in a trial, she will be helping the researchers who are trying to find a cure. All of us here wish her the best of luck. Alan It occurs to me that what you have called "uterus neck cancer" might be what we call "cervical cancer". The NCI web page for that is: http://www.cancer.gov/cancertopics/types/cervical/ I see you have also posted your query in alt.support.cancer but no one has responded yet. Perhaps someone there who knows more than we do will be able to give additional advice. Good luck. Alan > My name is Vasilis Papamikos and I am a clinical dietitian from > Greece. [quoted text clipped - 21 lines] > MSc in Clinical Nutrition, University of Glasgow, Scotland > MSc in Health Care Management, University Of Athens, Greece You might try posting your query at the major email discussion list for gynecologic cancers: http://www.eyesontheprize.org/list/index.html Charles Clausen Sorry about your troubles. An excellent site for finding clinical trials is emergingmed.com It is easy to use. You plug in certain info and they give you specific results. Good luck. Leah > My name is Vasilis Papamikos and I am a clinical dietitian from > Greece. [quoted text clipped - 21 lines] > MSc in Clinical Nutrition, University of Glasgow, Scotland > MSc in Health Care Management, University Of Athens, Greece Take a look at this. It worked for me. http://kocancer.blogspot.com/
|
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.