Hello all,
Lots has happened since I posted last. The board seemed to be down for a
while. We saw a medical oncologist (Dr. Beer - pronounced Bear) who was a
reference from this site. Thank you - he is wonderful! From there we got
referred to a radiation oncologist (Dr. Albert Hung) at Oregon Health
Sciences University. Allen has Crohns Disease which had everyone
concerned as to whether he is a candidate for radiation. Does anyone else
on the board have that condition? We finally decided to go ahead although
the risk of permanent side effects may be greater. We had our set-up
appointment on Thursday and treatments begin on this coming Wednesday.
I've taken a leave-of-absence from work while he is going through the
treatments. The doctors looked at the post surgery lab reports and I
guess there is some question as to whether he had a positive margin. We
had been told capsular penetration but negative margins, but the lab
report doesn't actually say that. That was a shocker. Neither doctor was
concerned about the rate of his PSA rising - they said at this level (0.1,
to 0.26, to 0.3) it can't really be used to calculate doubling speed.
They took blood for one last PSA on Thursday. So, that's the update.
We're both a little more upbeat after meeting with the healthcare
professionals that'll be in charge of his treatments. As always, folks on
this board have been very helpful with advice and support!
Regards, Debbie
Prostate Surgery 8/2004, 3+4=7, [capsular penetration, clear margins???]
Undetectable PSA until:
12/06 0.1
4/07 0.26
5/07 0.30
Start radiation on 7/11/2007.
Steve Kramer - 08 Jul 2007 00:51 GMT
> Hello all,
> Lots has happened since I posted last. The board seemed to be down for a
[quoted text clipped - 5 lines]
> on the board have that condition? We finally decided to go ahead although
> the risk of permanent side effects may be greater.
I hope all things go well. Radiation Treatment is generally well tolerated,
but I don't know what it will do to the Crohns. I'd say his Cohn's doc is
going to have an interesting time re-assessing his medication.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04 (06/12/2007)
Non Illegitimi Carborundum