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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2007Going frequently
I think the doctor is stumped. I have many health problems. I don't know where to start. I guess the start would be that I have had a liver transplant because of Hepatitis C. The transplant went fine, but the drugs for HepC caused me to have drug induced lupus which caused kidney problems. I think they have also got this under control. My current problem is I am having trouble going frequently. The symptoms I have are almost to the letter the symptoms listed for BPH on the Flomax site. I took Flomax for about 3 weeks and it did not seem to help. I was also having dizziness and sexual sides so I quit taking it. I take blood pressure meds. I have had a bladder ultrasound and it shows my bladder is emptying like it should. I had an MRI that came back unremarkable. I also had a prostrate biopsy that came back benign. Everything showed negative but it also says....Right Apex. Stroma with focal acute and chronic inflammation The doctor did another PSA test (last was 4.6) today (no results yet) and my urine sample showed protein in my urine and also blood. My nephrologist is aware of this and he says it is left over from my kidney damage. The protein in my urine was very high and it is down now to only double what it should be. Anyway......My urologist has scheduled me for a Cystoscopy. From what I have read they rarely find anything when doing these. I also understand that it is very uncomfortable. I get the feeling he is only doing this because he can not pinpoint why I am having troubles. He wants me to ask my nephrologist when I go to him if he thinks perusing the Cystoscopy is worthwhile. I see my nephrologist again in another 3 weeks. He has kind of came out and said that his job was to check out my urinary tract and he has found nothing so far, but I don't know what to do next. I really dread going through a Cystoscopy for nothing. Comments? Thanks for your time. >I think the doctor is stumped. I have many health problems. I don't >know where to start. [quoted text clipped - 37 lines] > >Thanks for your time. They can do the cystoscopy with you completely under so you at least don't know what's going on. The first few pisses afterward will burn pretty good though. They can give you some meds for that too. Have they tried the usual meds for "going frequently"? Oxybutrin, Enable, Vesicare, Ditrophan??? They will sometimes help a bit. 007, Haven't heard from you in awhile. I don't think we even heard about your post op reports, let alone your PSAs. How are you doing?  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04 (06/12/2007) Non Illegitimi Carborundum >007, > >Haven't heard from you in awhile. I don't think we even heard about your >post op reports, let alone your PSAs. > >How are you doing? Still kicking. A couple bouts of depression. RLapRP Dec 05, all PSAs since then have been zero. Not the sensitive tests, just the regular ones. I thought they would do sensitive but I asked two uro's I go to and both said they just use regular tests to monitor. The post op was everything clear, only 2% of the prostate showed cancer yet somehow they got that in the original biopsy. Gleason unchanged at 6. Significant penile shrinkage (or is it failure to expand???) and continuing ED. Not much helps but injections. Very discouraging.... I read the newsgroup almost everyday. Thanks to you, and the other regular contributors, for all the good info and your positive outlook. > RLapRP Dec 05, all PSAs > since then have been zero. > Gleason unchanged at 6. That's a great report! > Significant penile shrinkage (or is it failure to expand???) and > continuing ED. Not much helps but injections. Very discouraging.... Yeah, hormone therapy has one positive side effect. I don't care about my penal failure anymore. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04 (06/12/2007) Non Illegitimi Carborundum > >I think the doctor is stumped. I have many health problems. I don't > >know where to start. [quoted text clipped - 43 lines] > they tried the usual meds for "going frequently"? Oxybutrin, Enable, > Vesicare, Ditrophan??? They will sometimes help a bit It would not be as bad if it were done while I was under. He said it would be done in the office. I am a firm believer in getting pain meds. I sometimes think they are saving them for themselves. >I think the doctor is stumped. I have many health problems. I don't > know where to start. [quoted text clipped - 33 lines] > urinary tract and he has found nothing so far, but I don't know what > to do next. I really dread going through a Cystoscopy for nothing. I am sorry you are going through this, Terry. How did you contact Hep C? How long did you have it and how bad was it. It may be something related to that. I am thinking that your uro doubts that it's prostate cancer, but you haven't told us of any digital rectal exams, so I don't know how he would come to that conclusion. If you are worried about the cysto, I would go to another uro for a second opinion. But, in the end, it sounds like that is the next logical course of action if your uro thinks you have something other than cancer. > >I think the doctor is stumped. I have many health problems. I don't > > know where to start. [quoted text clipped - 45 lines] > opinion. But, in the end, it sounds like that is the next logical course of > action if your uro thinks you have something other than cancer I got HepC like half of the people in the transplant center. I was an IV drug user. It was back in the late 70s early 80s. I think all this is related to HepC, but the HepC doctors still expect me to see specialists for everything. I guess I will go ahead and have the Cysto done. He did give me prostrate exam that checked out OK I just forgot to mention it. (How could I have forgotten that :) > I got HepC like half of the people in the transplant center. I was an > IV drug user. It was back in the late 70s early 80s. As I suspected. I was trying to find out as delicately as possible. Based on that fact, there is a plethora of problems that you might experience with many of your organs, including the prostate. Agent Orange, for example, has been indicated in prostate cancer. But, IV drug usage would, I think, point to some condition other than cancer. Good luck with the rest of your life. >I think the doctor is stumped. I have many health problems. I don't >know where to start. [quoted text clipped - 21 lines] >kidney damage. The protein in my urine was very high and it is down >now to only double what it should be. Are you a diabetic? >Anyway......My urologist has scheduled me for a Cystoscopy. From what >I have read they rarely find anything when doing these. I also [quoted text clipped - 11 lines] > >Thanks for your time. SignaturePSA @ 45 yrs. = 4.7 02/06/2007 Biopsy 03/16/2007 G7(3+4),T2c RLRP 06/12/2007 G7(3+4),T2cN0M0 Neg margins >Are you a diabetic? I am not a diabetic but my labs have been showing my sugar count high. Without eating my score was 120 >>Are you a diabetic? >> >I am not a diabetic but my labs have been showing my sugar count high. >Without eating my score was 120 My wife is a dietitian specializing in the renal area (aka dialysis patients). Protein in the urine can be an early indicator of diabetes. Additionally, increased thirst along with frequent urination can be indicators as well. My last sugar count was 93 and she was not happy with that number. 120 sounds outside of the normal range by about 10 or so points. I'm no doctor but it may not hurt to investigate with your physician. Best of luck to you. SignaturePSA @ 45 yrs. = 4.7 02/06/2007 Biopsy 03/16/2007 G7(3+4),T2c RLRP 06/12/2007 G7(3+4),T2cN0M0 Neg margins > My last sugar count was 93 and she was not happy with that number. 120 > sounds outside of the normal range by about 10 or so points. 120 is alllllmost diabetes (125, by definition), but all by itself is more than a warning sign; it means it's time to take whatever steps are necessary to reduce it, because permanent damage starts well before any symptoms appear. 93 wouldn't alarm me, but my recent 105 does. I'm workin' on it and watchin' it. I.P. >> My last sugar count was 93 and she was not happy with that number. 120 >> sounds outside of the normal range by about 10 or so points. [quoted text clipped - 6 lines] > >I.P. Yes, precursors to diabetes are not to be ignored. In my case, there is quite a lineage of diabetics in my history, starting once again with my Dad, who just abused himself for decades with his diet. I half jokingly told him he would've been better off being a drinker than eating the way he did for all those years. SignaturePSA @ 45 yrs. = 4.7 02/06/2007 Biopsy 03/16/2007 G7(3+4),T2c RLRP 06/12/2007 G7(3+4),T2cN0M0 Neg margins I really dread going through a Cystoscopy for nothing. > Comments? > > Thanks for your time. Terry, It's not painful. I've had two Cystos, the last one was two days ago, and they didn't hurt at all, either during or after. A pain killer is injected directly into the urethra before the Cysto scope goes in and you really don't feel it. The worst part is the embarrassment of the procedure as the nurse grabs your thing and inserts the pain killer. Ed > I really dread going through a Cystoscopy for nothing. >> [quoted text clipped - 11 lines] >grabs your thing and inserts the pain killer. >Ed That makes me feel a little better. Why were yours done? Why did you have to get two? > > I really dread going through a Cystoscopy for nothing. > [quoted text clipped - 19 lines] > > - Show quoted text - The first one was right after the catheter was removed after robotic surgery. I had trouble urinating and they wanted to be sure there was no blockage. There wasn't. They put the catheter back in for a couple of days and that seemed to help. The second was this week, 10 months after surgery. I'm still incontinent (about 1 pad per day) and get up 3 -4 times at night. Again, they found no blockage. I'm now doing bio feedback with Kegals to see if that helps. Ed > My current problem is I am having trouble going frequently. > ... [quoted text clipped - 3 lines] > but it also says....Right Apex. Stroma with focal acute and chronic > inflammation Well, I'm no doctor but sometimes I play one on the Internet :) If your bladder is emptying okay, then I suppose the problem isn't an obstruction. I would think another possibility is that something is irritating the nerves, causing you to want to urinate even though there is little or nothing to come out. Perhaps there's an infection of some kind. I presume the docs did a urine culture but it didn't show anything. If they didn't, I'd rather have them do that then a cystoscopy. I'm guessing that you might have some low grade urinary tract infection. It might be some bacteria or virus that didn't show up in the culture. Maybe the thing to do is to try drinking lots of cranberry juice every day, which is said to be beneficial for urinary tract infections. Alan > > Anyway......My urologist has scheduled me for a Cystoscopy. From what > I have read they rarely find anything when doing these. I also > understand that it is very uncomfortable. I get the feeling he is I really dread going through a Cystoscopy for nothing. Terry, the procedure is not that bad, with the anticipation being the worst part of it. Seeing the scope tube freaked me out, but the numbing agent pretty well took care of any discomfort outside of having some pretty young thing doing it!! The doctor wanted a look at a stricture before scheduling surgery, plus the cancer was known to have been on the bladder surface when the surgeon did the RP and he wanted to see the interior of the bladder after going through EBRT. He handed me the scope for a look when he was done and before pulling it out. Pretty interesting. So, uncurl your toes and relax, it's not a difficult procedure at all. .............. > Anyway......My urologist has scheduled me for a Cystoscopy. From what > I have read they rarely find anything when doing these. I also [quoted text clipped - 11 lines] > > Thanks for your time. Terry, I too have had 2 cystoscopies - both were uneventful and one was interesting as I could watch the progress on the screen. One caution is that your Uro should be using the new flexible scope - the old ones were rigid and they were responsible for the pain. Prior to scoping, a jelly lidocaine is used to to lubricate and anesthetize the urethra. During the procedure they may also use sterile water to flush for a better view - it will clarify if there is real BPH. Important note - RELAX - it will be fine. Lud |
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