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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2007Rally in DC June 4!
[I have to put in the disclaimer that I know nothing at all about Provenge. Please come just to support PC.] Patient Advocates Rally for Provenge June 4th in Washington News update 5/23/07: Washington DC walk & assembly When: Monday, June 4th Meet either: 9:30 am Union Station (Red Line) in front of fountain (Join the walk to assembly). Or - 10:00 am, Upper Senate Park, adjacent to Russell Senate Office Bldg (Join the assembly). Upper Senate Park is a shaded area with a few park benches. Purpose: To "Raise A Voice" for our unified dissatisfaction with recent FDA Provenge ruling, and gain news coverage as the largest D.C. prostate cancer rally ever held (350 or more). We are raising a voice for prostate cancer once again, and the unmet need for more treatment options for advanced prostate cancer patients. We are building on what we accomplished together at the March 29th FDA Advisory Committee review meeting for Provenge (see below). Reasons for assembly: We ARE newsworthy! (ABC, NBC, CNBC, Seattle Times, and Wall St Journal so far) We ARE a powerful voice and force! We ARE a larger group of voting taxpayers than the government seems to realize. We WANT better communication and representation! How can an organization claim to be objective when they've totally lost sight of the object? We ARE the object. The rally is being organized by Jan Manarite of PCRI, and Raise A Voice. Jan helped to organize and coordinate the success at the March 29th FDA Provenge review meeting. Our plan is to make this another memorable, meaningful event for men with prostate cancer. To join the walk and assembly, or for questions, email Jan at june4th@comcast.net More details: Attire: Blue shirt, any type Blue jeans, jean shorts, or jean skirt (or something comparable). Those who have a military or law enforcement job, wear your uniform if you can. Those in the medical field, wear your uniform if you like. (we will have blue rain ponchos in case of inclement weather for $1 donation) Wear comfortable shoes. Bring water. Signs: Inquire with Jan on content. There are strict regulations for signs, but signmakers are welcome. Again, you must inquire with Jan at (239) 395-0995 or june4th@comcast.net Visual Ideas: Bring men & women in uniform. Bring a friend, family member. We are working on having music. We are working on trucks (semi's) with blue ribbon, etc. Motorcycles canNOT find a place to park, so not a workable idea. More to come.... Rally location: Upper Senate Park - adjacent to Russell Senate Office bldg North of the Capitol Building on Constitution between Delaware and New Jersey Ave See map: http://dcpages.com/Tourism/Maps/Washington_DC_Map/ Parking - we are told there is no parking for private vehicles near the Rally site More on the Metro: - take the Red line to Union Station Go south on Delaware Ave to Upper Senate Park (0.3 mile walk) - take the Blue/Orange line to Capitol South Station Coming out of Capitol South station, go north on 1st or 2nd St. NE Go west on Constitution Ave, NW to Upper Senate Park (0.7 mile walk) - take the Yellow/Green line to Archieves-Navy Memorial Station Go east on Pennsylvania and Constitution Aves to Upper Senate Park (0.8 mile walk) "Walk the Halls" of Congress on June 5th Provenge Now is a patient advocate initiative created to gain immediate FDA approval for the first-ever Active Cellular Immunotherapy treatment for prostate cancer. Survivors hope to extend their lives with a better quality with this new type of landmark treatment. Provenge is a symbol for a new era in prostate cancer treatment. You can make a difference by: 1. Attending the rally on June 4th to let the public see the faces of prostate cancer 2. Writing your congressman or the FDA Commissioner 3. Signing a petition to the FDA For more information go to www.ProvengeNow.org. callalily posted another's advice: > Those who have a military or law enforcement job, wear your uniform if > you can. Careful with that one, folks. I know it's against the UCMJ (military law) to wear the uniform in public forums, and I'd bet most law enforcement agencies have similar rules. Otherwise . . . have fun. I.P. A brief slightly off-topic follow-up on I.P.'s comment: There's a group of veterans protesting the Iraq war whose discharge status may be in jeopardy due to their wearing parts of their uniform during the event. There are several sources for this story. This one is from the Marine Corp Times: http://www.marinecorpstimes.com/news/2007/06/ap_vfwveteranuniformprotest_070601/ It's very possible that there's some political dimension to this story that would be absent at today's PCa rally. Hope it all goes well for those of you who do get to it. --charlie > Washington DC walk & assembly Anyone have a list of politicians who have prostate cancer? Bob Dole, the ED spokesman? John Kerry, Rudy Giulianni. Who else? Also what treatment did they choose and when? Figure that any guy over 60 who's not on the list will probably join the club in 5 or 10 years. This has gotta be an easy sell to a politician. You know how they love to wave it around and stick it to people. -kh - A 5 inch, 80% firm, wee among the rich, powerful, and famous. >> Washington DC walk & assembly > [quoted text clipped - 10 lines] > politician. You know how they love to wave it around and stick it to > people. Celebrities/Musicians with advanced PCa..... Dan Fogelberg  SignatureJK Sinrod www.SinrodStudios.com www.MyConeyIslandMemories.com > > Washington DC walk & assembly > [quoted text clipped - 12 lines] > > -kh - A 5 inch, 80% firm, wee among the rich, powerful, and famous. Dole and Kerry - surgery, Giulianni - seeds. Dave Perry > Dole and Kerry - surgery, Giulianni - seeds. Name, Occupation, Treatment, Year Treated Bob Dole, Senator, S, 1991 John Kerry, Senator, S, Rudy Giulianni, Mayor, R, Dan Fogelberg, Musician, Frank Zappa, Musician, Norman Schwarzkopf, General, S, 1993 Colin Powell, Secretary of State, S, 2004 Robert Mueller, FBI Director, S, Robert De Niro, Actor, Michael Milken, Racketeer, ,1993 -kh seems like there should a couple hundred names. On June 1, kh permitted his enthusiasm to overrule his judgment and wrote, in pertinent part: (snip) > Michael Milken, Racketeer, ,1993 "Racketeer???" That is defamatory. Milken was never convicted of racketeering. In fact, that charge was dropped when he was sacrificed by his employers (the investment firm Drexel Burnham Lambert) to satisfy the appetite of prosecutors. But he certainly seems to have skated close to the line between legal and illegal. Nineteen years have passed since his last encounter with the Feds at the SEC. See: http://www.bartleby.com/65/mi/Milken-M.html Whatever: Fourteen years ago, he (a PCa survivor) established The Prostate Cancer Foundation, which funds research into the disease that all of us know might kill us. See: http://www.prostatecancerfoundation.org/ kh should take care about labeling people. Regards, Steve J "There is nothing sadder than the brutal murder of a beautiful theory by a gang of ugly facts." --Francois, Duc de la Rochefoucauld > On June 1, kh permitted his enthusiasm to overrule his judgment and > wrote, in pertinent part: > > Michael Milken, Racketeer, ,1993 > [quoted text clipped - 4 lines] > investment firm Drexel Burnham Lambert) to satisfy the appetite of > prosecutors. Wikipedia has a slightly different take on the events: ======================= Start ===== In 1989, Rudy Giuliani, the U.S. Attorney for the Southern District of New York, charged Milken under the RICO act with 98 counts of racketeering and fraud. Milken was indicted by a federal grand jury. He agreed to a plea bargain after the U.S. Government froze his and his family's assets and threatened to pursue charges against his family. This was one of the first times RICO was used against an individual outside of organized crime. Milken pled guilty to six securities and reporting felonies in 1990[1]: 1. He planned or thought to engage in a series of unlawful security transactions. 2. He engaged in tax fraud. The charge relates to Ivan Boesky's false 13-d statement. 3. He advised Ivan Boesky to buy MCA stock in order to hide the fact that Milken's client Golden Nugget Companies was selling MCA, and to assure him no loss in a sale to Drexel. 4. He helped a client reduce his income tax liability by selling the client two investments and then buying them back at a lower price. 5. He failed to make a written disclosure of an agreed-upon adjustment in transaction prices between Drexel and a client. At Milken's sentencing, Judge Kimba Wood told him: You were willing to commit only crimes that were unlikely to be detected.... When a man of your power in the financial world... repeatedly conspires to violate, and violates, securities and tax business in order to achieve more power and wealth for himself... a significant prison term is required. Wood recommended a 10-year prison sentence, of which, in her opinion, Milken should have served at least 36 to 40 months. However, Milken served only about 22 months (from March 1991 until January 1993) before being released. ======================= End ===== My understanding, and it might be my error, is Rudy charged Mike with 98 counts of racketeering and fraud. When Mike pled guilty to the 6 felonies, these included the racketeering, for which Judge Wood gave him 10 years in the slammer. Mike got out in 22 months. It all sounds very serious and hardly a wrist slap. > kh should take care about labeling people. When someone defrauds billions from a bunch of people, he's a crook. I know many folks who work long hours to provide for their families. A few thousand dollars makes a big difference in their lives. A white collar crook can bring misery to millions. -kh Would be interesting to see Rudy and Mike at a Prostate Cancer Support meeting. Get their spin on it. On June 1, kh replied to me: (snip) > Wikipedia has a slightly different take on the events: (snip) I would be very careful about taking anything on Wikipedia as Gospel. Anyone can post anything there, without any review of its factual content. Under "Disclaimers" this is what Wikipedia itself has to say: "WIKIPEDIA MAKES NO GUARANTEE OF VALIDITY Wikipedia is an online open-content collaborative encyclopedia, that is, a voluntary association of individuals and groups working to develop a common resource of human knowledge. The structure of the project allows anyone with an Internet connection to alter its content. Please be advised that nothing found here has necessarily been reviewed by people with the expertise required to provide you with complete, accurate or reliable information." And kh cites the judge's dictum when sentencing him. Such dicta are absolutely not evidence of anything at all other than the judge's current emotional state. Moreover, the judge said not one word (in kh's quote) about racketeering. I suggest that kh take a few minutes to read the Bartleby citation I posted. He might find it instructive. And Rudy's charging documents are not evidence, either. (snip) > It all sounds very serious and hardly a wrist slap. Oh, it was serious, all right. but one should hot push the envelope of facts. >> kh should take care about labeling people. > > When someone defrauds billions from a bunch of people, he's a crook. > I know many folks who work long hours to provide for their families. > A few thousand dollars makes a big difference in their lives. A white > collar crook can bring misery to millions. That's true, if that is what Milken did. It is not my purpose here to defend Milken's actions, merely to place them in the perspective of many many years. And of his PCa support work. Regards, Steve J > judge's dictum .. sentencing ... Such dicta ... not evidence ... judge's > current emotional state ... judge said not one word ... racketeering. ... > Bartleby citation ... instructive. ... charging documents ...not evidence ... > It is not my purpose here to defend Milken's actions, merely to place > them in the perspective of many many years. And of his PCa support work. Whoa there big guy, you're wasting your time slicing and dicing, finessing, duckin' and weavin'. This is not a court of law and using legalese does not sway me. In fact, it puts me to sleep. Do this. Go to Wikipedia. "Correct" the article. Done. -kh Take your time. I'm busy figuring out if I can get over to the Provenge march on Monday. > >>> Michael Milken, Racketeer, ,1993 >> "Racketeer???" >> >> That is defamatory. How does one defame a crook? Racketeer, con man, thief, inside trader . . . the man ripped people off; I couldn't care less what label is attached to him. "Criminal scum" pretty well sums it up for me. I.P. Adding Tiger Woods father (Earl)....not sure what his initial treatment was in 1998. And Harry Belafonte who had surgery. And the following....Sidney Poitier, Marion Barry, Archbishop Desmond Tutu and Kwame Toure (Stokely Carmichael) Heather >> Dole and Kerry - surgery, Giulianni - seeds. > [quoted text clipped - 19 lines] > > -kh seems like there should a couple hundred names. > Patient Advocates Rally for Provenge > June 4th in Washington > > You can make a difference by: (1) Giving more notice. It is totally unreasonable to expect anyone to drop everything and rush to D.C. on 5 days notice. Don't know if a cross-country train or bus ride can be made in the length of time - IF reservations could even be made in that short period of time. > > Patient Advocates Rally for Provenge > > June 4th in Washington [quoted text clipped - 9 lines] > length of time - IF reservations could even be made in that short > period of time. You can help by sending email, letters, calling your senator or representative. Especially if you tell them why you, personally, want them to support Provenge. -kh "I'd like to be there for the rally but I'm fighting this fatal disease so I'm a little occupied with my own stuff these days." > > > Patient Advocates Rally for Provenge > > > June 4th in Washington > You can help by sending email, letters, calling your senator or > representative. > > Especially if you tell them why you, personally, want them to support > Provenge. Because of good, unique people like you, kh, not the celebrities. > -kh "I'd like to be there for the rally but I'm fighting this fatal > disease so I'm a little occupied with my own stuff these days." I wish you well. I think about you a lot. (Don't have your email.) Leave the fighting to others. Leah > ... not the celebrities. A list of the politicians who have faced Prostate Cancer might help the effort. If nothing else, they already understand the issue. I don't think that Provenge is THE silver bullet but as someone on Lupron and Casodex after seeds and IMRT failed, when it's quiet, I can hear the wings of the angel of death. The good news, and this is for Steve K, the data king, Three weeks ago, I clocked a PSA 60, started on Casodex. Two weeks ago, they gave me Lupron. This week my PSA came in at 21.6. It's dropping like a rock. I'm the one-in-a-thousand exception with soft tissue mets in the chest as opposed to bone mets. The tumor was pressing on my windpipe and an artery, restricting both air and blood flow. After 3 weeks of treatment, the airflow and bloodflow are noticeably improved. Mild hot flashes have started, Libido is off but I still have erections w/o Vitamin-V. > (Don't have your email.) Private email, m a k i k i (at) a t t g l o b a l (dot) n e t > The good news, and this is for Steve K, the data king, Three weeks > ago, I clocked a PSA 60, started on Casodex. Two weeks ago, they gave > me Lupron. This week my PSA came in at 21.6. It's dropping like a > rock. You held out a long time kh. It sure is good to see such a quick drop in only 2 weeks. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05 Non Illegitimi Carborundum > > The good news, and this is for Steve K, the data king, Three weeks > > ago, I clocked a PSA 60, started on Casodex. Two weeks ago, they gave [quoted text clipped - 3 lines] > You held out a long time kh. It sure is good to see such a quick drop in > only 2 weeks. On the graph, it's going straight down. Well, it was a convergence of events. About a year ago, my PSA started rising again. You have those numbers. They sent me for a bone scan and a PET-scan, both negative. That was followed by a Prostascint at Baltimore, also negative. Without a confirmation by symptoms, an electronic test or biopsy, the rising PSA is just a number. A troubling number but just a number. In December, the Rad doc ordered a 2nd bone scan. That showed a hot spot on my spine but the MRI identified it as a "mild compressive fracture." In parallel with that, I got the flu in November, my asthma kicked in in January. My internist, who is another of these wizard types, had been tracking "something, I don't like it", in my lungs. He first saw it last year on a "calcium, enhanced CAT scan" that he ordered to check my heart. No problems there, 5% in one artery, the others were perfect. In December, the Rad doc's MRI confirmed the "something", get it checked out but Prostate Mets don't usually show up there. 2007 January, February, the Internist-wizard and his pulmonary-doc gang up on me and send me to a cardiac surgeon to get the "something" biopsied. At that point, I was in respiratory distress and going into oxygen debt by climbing 2 flights of stairs. March, the biopsy comes back positive for the carcinoma. April, the Rad doc bucks me over to another wizard, a Medical Oncologist. This guy is *good*. Well, they're all good but this guy is *scary*, he's so good. He orders his own CAT-scan, gets the biopsy slides, reads the chart, and pours over my PSA Excel graph but he also does the listening, looking, prodding the nodes in the neck with his fingertips. It's like Spock and the Vulcan mind-meld but he's *sensing* the cancer, taking it's measure, an enhanced interrogation as they say. 1. It's metastatic. 2. It's not the most aggressive type. 3. You don't need more than Casodex and Lupon at this point. 4. I can drive your PSA to undetectable. 5. When you need something more, we'll do that, but not yet. 6. You'll feel 100% better in a week. (this was right). 7. The tumor was pressing on your windpipe AND the artery that carries blood from the heart to the lungs for oxygenation AND possibly a nerve. This was the reason for the oxygen debt. 8. The tumor is shrinking, responding to the Casodex and Lupron. 9. This is an unusual case. I've only seen a couple others. (I'm guessing that this is a 1 in a 1,000 manifestation.) Soft tissue mets usually are in the groin. My assessment- Although better this than, say, a lymphoma or lung cancer, this would have killed me this year or next. -kh - think I'll break out a blue-pill to celebrate. > > Patient Advocates Rally for Provenge > > June 4th in Washington [quoted text clipped - 9 lines] > length of time - IF reservations could even be made in that short > period of time. I'm really sorry you all were not told about this event. But PCRI is sponsoring it, not me. I had just assumed it had been prominently listed here. The woman who is in charge has said she is not experienced with organizing rallies, but what about Malecare, Provengenow.org and others. What is "reasonable" when the issue is saving your own life (not singling you out in particular). I cannot go myself but I am beating myself up real good about it. People are coming in from Hawaii, California, etc. 350 is not aiming very high. Maybe we can have a gathering by videoconference. If you are anywhere near DC you should go and bring your friends. And as kh pointed out there are other options. Now about the dress code: just yesterday on CNN it said that some military folks had attended an antiwar rally in uniform and now face being demoted. But it's hard for me to imagine them court-martialing a bunch of aging vets. There would be a riot! I know of 2 soldiers on active duty who have just lost their father to PC as was chronicled by a faithful wife in an online diary. The most poignant image of pc I have ever read about was of these young men of exquisite character (boys, really) crying over their dead father. The younger one is only 20 and apparently was inconsolable. Does the world know that this boy's father had been diagnosed with pc when he was 46 and the son only 10? This family deserves a lot better. The only way to make progress with pc is to humanize it, put a face on it. This disease has been "sanitized" to the point that nobody knows the truth about it: the impotence, castration, bone cancer, etc. A true hero of the pc movement is Prof. Richard Wassersug who wrote in a couple of major newspapers what it's like to live with advanced PC. As a castrati. Luckily, he is living a good life overall. The other day I read a statement by a doctor that said: "Prostate cancer is not a trivial disease". The only reason he had to say such a thing is because that's what the world believes, i.e., that PC only hits old folks, it's easy to treat (just put in a couple of seeds) and "nobody dies of it" (exact quote from husb's uro). LFC > [I have to put in the disclaimer that I know nothing at all about > Provenge. Please come just to support PC.] > > Patient Advocates Rally for Provenge > June 4th in Washington ... > For more information go towww.ProvengeNow.org. I looked for web-cam coverage of the Rally area but didn't find any, sorry. Then I saw this in the paper, -------------------- Quote ---------- Study: Liver Cancer Breakthrough Found By LINDSEY TANNER The Associated Press Monday, June 4, 2007; 1:54 AM CHICAGO -- For the first time, doctors say they have found a pill that improves survival in liver cancer, a notoriously hard to treat disease diagnosed in more than half a million people globally each year. The results in a multinational study of 602 patients with advanced liver cancer are impressive and likely will change the way patients are treated, cancer specialists including the study authors say. ... Patients got either two tablets daily of a drug called sorafenib or dummy pills in the study, which started in March 2005. Some patients are still alive, although on average, sorafenib patients survived 10.7 months versus almost 8 months for those on dummy pills. ... ------------------------------- 8 months to 10.7 months over a placebo is "impressive" and a "cancer breakthough"?????? "Taxotere clinical trial data showed a 2.3 month survival benefit, compared to 4.5 months for Provenge. Provenge is much safer and has fewer side effects." ...www.provengenow.org Provenge shows 4.5 months over 2.3 months from a known "treatment" but Provenge isn't proven effective so it isn't approved? Something funny about this. -kh I'm sitting here with Lupron in my veins, trading my libido and erections for life. > On May 30, 9:00 pm, callalily <lfc...@aol.com> wrote:> [I have to put in the disclaimer that I know nothing at all about > > Provenge. Please come just to support PC.] > > > Patient Advocates Rally for Provenge > > June 4th in Washington FYI: [Passing this on, don't vouch for accuracy] > ...Jan Manarite of Raise a Voice Campaign writes: Prostate cancer patients have been watching for the prostate cancer/Provenge story on ABC World News with Charles Gibson. I just got a call from Dr Moyad that ABC called the prostate cancer patient who was interviewed for that story, and informed him that it would air Monday night, June 4th. This appears to be a commitment. Just went to provengenow.org and emailed my congresspeople. It was easier than I thought. Good health and Livestrong! L. > [Passing this on, don't vouch for accuracy] --------------------------------------- Report found on Yahoo- Financials -- From: "brusky100" who says he attended DC Rally Ok folks, Not 300, but about 50 people and good coverage by press. Dr. Mark Moyed, Thomas Farrington, and US TOO head made presentations as well as Jan from FL. I had the only "Approve Provenge Now" sign. Couldn't believe that. Other signs, though. I also taped the Moyed presentation and will put up on Goggle video on Wed. They are meeting with Von E this afternoon and I got the feeling a compromise is in the works. A real surprise was Brent Blumenstein was there and I talked extensively with him. He is Dendreon's biostatistician consultant. Early in the morning, he said the company told him not to be concerned about money. Guess we know why now. Lot's of action is apparently taking place behind the scenes on Provenge approval. Keep up the pressure. IN PARTICULAR, call you Congressman/Senator and ask that their "HEALTH" staffer attend the presentation TOMORROW at the Rayburn HOB, Independence AV, ROOM 2247. THIS THE MOST IMPORTANT THING YOU CAN DO THIS AFTERNOON IF YOU WANT TO GET MORE INFO OUT. Keep up the COI pressure on Scher and Hussein. Did any of you recall that Taxotare was only approved 3 years ago and LOTS of oncology DRs have spent lots of money on getting clinics, RNs, etc in place for using this chemo regimen? Humm. More later after I get together my thoughts. I feel good about this and my investment in DNDN. ------------------------------------- End report from "brusky100" --- -kh - I didn't get over to the rally myself. Sorry. > [Passing this on, don't vouch for accuracy] Here's another report, sorta. ------------------------ from: jp11576 -- My DC Adventure.... There was none for me. I was scheduled on an early am flight to BWI (Baltimore). The flight didnt get in until several hours late around 1pm due to bad weather in the North East. I suspect it might have only been a small rally if any at all becuase i would imagine most would have been in the same situation as me. Most flights were delayed or cancelled going to the northeast since last night. I was going to drive to DC from BWI and than drive back to baltimore later this afternoon as I have a meeting unrelated at my baltimore office. I will not attend any rally tomorrow as i have meetings all day in baltimore. Wish i have better news to report but I am out of the loop today due to the weather.... Sorry ------------------------ End Report -- > > On May 30, 9:00 pm, callalily <lfc...@aol.com> wrote:> [I have to put in the disclaimer that I know nothing at all about > > > Provenge. Please come just to support PC.] [quoted text clipped - 20 lines] > > L. Just watched the PC Provenge story on ABC. ABC made the statement like "usually we hear complaints that the FDA approves a drug too soon" and then the lead into the story of the FDA approval going to slow. Some key statistics aired are also on www.provenenow.com. One statistic stated on the news was the "4.5 month extention", but this result was from the first trial and later trials shows lifespan was extended 2-3 years. Hope I'm re-telling the this right -- didn't record the news. The story was excellent. I wrote a senator and represenative last week to take another look at saving lives (like mine some day I hope). I'm still curious where ABC came up the the 2-3 year statistic. Only other news I've seen, from 2nd hand internet sources, is 36 percent in the trial are still living. > > > On May 30, 9:00 pm, callalily <lfc...@aol.com> wrote:> [I have to put in the disclaimer that I know nothing at all about > > > > Provenge. Please come just to support PC.] [quoted text clipped - 35 lines] > other news I've seen, from 2nd hand internet sources, is 36 percent in > the trial are still living. I read a report that said some guy apparently was "cured" (my word). His tumors shrank and vanished, his PSA went undetectable,and he was alive years after the treatment. This was during a small early trial. He was the one out of (maybe, I don't have the report here) 20 or 30. It might have been a fluke. The ABC video is here http://video.yahoo.com/video/play?vid=617207 -kh Even if it's only 4 or 5 months, it's like, your execution is tomorrow, the Governor signs the stay of execution until a court date in 4 months. OK. I'll take the 4 months and maybe my guys can get me off. What the hell is the FDA thinking? > 8 months to 10.7 months over a placebo is "impressive" and a "cancer > breakthough"?????? > I'm sitting here with Lupron in my veins, trading my libido and > erections for life. By the same measure -- expected longevity increase -- ADT gives you only 6-8 months (OK, a year or so in certain cases by one study). 8-10.7 is an improvement. I.P. > [I have to put in the disclaimer that I know nothing at all about > Provenge. Please come just to support PC.] > > Patient Advocates Rally for Provenge > June 4th in Washington I just checked www.WashingtonPost.com, did their 60 day search. There is NO mention of Provenge or today's rally. The WaPo is the big local newspaper, covers the DC area. If they had pre-rally coverage, many people might take a couple hours off work and join in. No pre-rally coverage!!! -kh They're killing us. They are literally killing us. (I'm not saying that I believe Provenge is the silver bullet.) > [I have to put in the disclaimer that I know nothing at all about > Provenge. Please come just to support PC.] [quoted text clipped - 111 lines] > > For more information go towww.ProvengeNow.org. > 9:30 am Union Station (Red Line) in front of fountain (Join the walk > to assembly). > Or - > 10:00 am, Upper Senate Park, adjacent to Russell Senate Office Bldg > (Join the assembly). Upper Senate Park is a shaded area with a few > park benches. Pictures of the rally. http://www.karenleffelmassengill.com/id392.htm I pushed send too soon. Ignore the previous. -kh |
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