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Medical Forum / Diseases and Disorders / Prostate Cancer / May 2007

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Prostate Cancer Patients Act Up - www.malecare.com

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ProstateCancerGuy - 22 May 2007 14:24 GMT
An Update on the Prostate Cancer Action Letter to the FDA

Several thousand people have added their names to the sign-on letter
at http://www.malecare.com  With May 31 as our dead line, many more
names will be added.  Please add yours, too. Our prostate cancer
community is showing its size and cohesion. As Lance Armstrong so
brilliantly advocates, we are living strong.

We've also received about 45 emails of extraordinary passion. So, you
all have given us an idea. Please consider writing an email about your
experience with prostate cancer and your desire for a cure. A few
sentences or paragraphs...write with facts or just from your heart....your
choice. In fact, if you disagree with the sign-on letter on the
malecare.com website, please write about that as well.

We will include all of your emails in our presentation to the FDA,
along with the thousands of your signatures. If we have time, we'll
try to create an easy to read presentation rather than just hand in a
stack of emails. Let's show the face of prostate cancer from our grass
roots level.

In many ways, the FDA is doing brilliant and life saving regulation
and we are not at all out to do general bashing of their work. But,
they have yet to see the large face of us. They need to know we are
alive, but, not complaisant. We want carefully vetted treatments, but
we want them before we or our loved ones die.

Send your emails to: cureprostatecancer@malecare.com

Darryl Mitteldorf, LCSW
Malecare
california_chief - 22 May 2007 18:41 GMT
> In fact, if you disagree with the sign-on letter on the
> malecare.com website, please write about that as well.

(1)  Government agencies trash multi-signiture and form letters/petitions.

(2)  Peoople who post 3, 4, 5 copies of a message turn others off to the
cause.
 
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