Medical Forum / Diseases and Disorders / Prostate Cancer / March 2007
Does/should a man hide incontinence?
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Alan Meyer - 30 Mar 2007 03:35 GMT Paul's inquiry (Hennenfent...) raised a question about incontinence in my mind. For those of you who are incontinent, do you try to hide it from everyone, or are you open about it, at least to friends and family?
On the one hand, your urinary troubles may be nobody's business but your own. On the other hand, there must be times when you are with others that you must change a diaper or pad and would find convenient to not have to hide what you are doing.
I have a suspicion that if a man tells his friends that he has this problem, and proceeds to make light of it, they will too. If it's not a big deal for him, it won't be a big deal for them. They won't think the less of him in any way.
Is that a viable strategy? Does it make things easier? Or is it psychologically too difficult to do?
The same question can, of course, be asked about impotence, though the considerations there are different in several ways.
Alan
I.P. Freely - 30 Mar 2007 06:52 GMT > Paul's inquiry (Hennenfent...) raised a question about > incontinence in my mind. For those of you who are incontinent, [quoted text clipped - 18 lines] > > Alan I joke with my friends and some acquaintances about my incontinence; opportunities abound. Heck, my pad is even convenient sometimes. For example, I got a massage Monday to try to cure some ailments, and when she asked whether I would be comfortable in my underwear, I said, "Sure" quickly and easily because a) I've had CANCER; things have changed forever; b) dozens of strangers stared at my *naked* crotch in the recovery room; heck . . . at least I had on Spandex boxer briefs this time; c) my pad presented a pretty nice bulge in those skin-tight shorts, if I do say so myself; and d) I wasn't worried about getting a visible boner while she worked on me because I *can't*.
I change pads in the gym locker room, discretely when convenient or less so if surrounded; it's little more than a quick sleight of hand in my lowered drawers, and anyone watching closely enough to notice it is watching me way too closely. Many men there have far greater problems than I do. One's leg was mangled while he was looking for Bin Laden in Afghanistan (10th Mountain Division). Many are limited by age or infirmities, others by obesity (but at least they're in the gym working on the problem, so no one faults them). I'm sure many have medical issues we can't see; the most fit guy there exercises like a racehorse on speed several hours every day because he'll die from his *next* heart attack if he doesn't. Hell, I'm one of the healthiest guys there; I just happen to dribble. BFD. And there are many smaller pointers than my little three-incher in there, and they have no excuse.
Any male can get PC, wear pads, point south, etc. It takes a man to accept it, get over it, quit feeling sorry for himself over it, and maybe even talk about it if and when appropriate [such as a PC talk, strange looks in the locker room (I haven't seen one yet), or explaining to a masseuse why I've got something stuffed in my boxer briefs]. (Actually I felt no compunction to explain it; I just happened to mention my prostate cancer and assumed she could add two and two.)
Many people know I wear diapers/pads; the only comments any one has made have addressed my great attitude, not my "disability". And I'm in the best physical condition I've been in since about the '70s, because I chose the gym and sports over just-in-case, preemptive, unwarrented ADT.
A few months in diapers (it was 15-18 months for me) and a lifetime in pads is a slight nuisance. I far prefer it to more serious problems, like being in poor physical shape, a chronically sore knee, smoking, having to work for a living, living in the eastern half of the U.S., or not having a good cook in the house. And I never *expected* to be a horny teen-ager walking around on three legs all my life.
Last but not least, who else gets to carry a concealed weapon even in gym shorts? I'd bet that many an aggro dude wanting to play tough guy would back down real fast if his mark pulled a smelly wet cat out of his pants and shoved it towards the smartass. I'd far rather shove a piss-soaked pad in a guy's face than risk breaking a knuckle on his jaw. (Not totally unrealistic; the most musclebound guy I've seen in two years in the gym was threatened just today by some average-sized idiot with a chip on his shoulder. The big guy -- an ex-collegiate wrestler and fullback -- backed down rather than go to jail for tearing the idiot limb from limb. He got a HUGE laugh out of MY wet cat solution . . . and I'd never met him before.)
There's no need to take this PC $#!+ seriously until it actually gets serious.
I.P.
cognite tute - 30 Mar 2007 15:08 GMT > Paul's inquiry (Hennenfent...) raised a question about > incontinence in my mind. For those of you who are incontinent, [quoted text clipped - 18 lines] > > Alan I do not think it is anyone's business.
And, like most physical problems, which are very important to the afflicted, other people are not that interested.
j.
I.P. Freely - 30 Mar 2007 16:28 GMT > I do not think it is anyone's business. > > And, like most physical problems, which are very important to the > afflicted, other people are not that interested. I find just the opposite. People I see only once or twice a year ask me right away how I'm doing, and they're referring specifically to my cancer. I get many extra hugs, including from straight guys, as shows of support, and some people pump me with questions ranging from how I'm managing it to how the men in their lives can avoid or manage it to how it's affected my sex life, yet no one has yet asked me a question in a manner I felt was prurient, invasive, or in pity. Everyone knows someone fighting PC, so most people want to know more about it. I'm happy to help them. and I think I do help them.
I.P.
dave perry - 30 Mar 2007 16:26 GMT I'm an almost four-year dripper and only my spouse and one or two close friends know I wear pads - except for those on this newsgroup. I don't hide the fact I wear these things, the subject simply never comes up. The only consessions I make to pads are: I always wear dark/black pants, I always have a couple of spare pads in my pocket, I always have a few more stashed away in my car, and finally, if I'm going to be at someone's house for the better part of the day or overnight, I carry along a couple of ziplock plastic bags to stash a pissy pad which I then jam in my pocket and dispose of in their garbage can or in the back of my car or in my luggage for disposal later. Unless they have a diaper pail full of disposable diapers, and none of our friends do, I don't want to throw a pissed up pad in their wastebasket. Nobody has asked about any of these things and I doubt anybody has noticed anyway. There has been only one limitation on my life and that has to do with playing a musical instrument in a local community band. This particular band wears khaki pants and often goes some distance to play taking up much of the day. An "accident" in khaki could be a disaster so I don't play in this group - never did very often anyway since the director is a moral basketcase. The two other groups I play in wear black pants/white shirt which is perfect for me.
So, in a nutshell, I don't go very far out of my way to hide it but I don't wander through someone's house waving a full pad around. Then again, neither did I ever do that with dirty underwear or even used socks. It's basically a non-issue. Dave Perry
> Paul's inquiry (Hennenfent...) raised a question about > incontinence in my mind. For those of you who are incontinent, [quoted text clipped - 18 lines] > > Alan I.P. Freely - 30 Mar 2007 23:34 GMT > There has been only one limitation on my > life and that has to do with playing a musical instrument in a local [quoted text clipped - 4 lines] > other groups I play in wear black pants/white shirt which is perfect > for me. Some of my gym shorts darn near light up when I get a few drops on them, such as at the urinal. Solution: throw on some more water so it looks like a sink splatter instead of a dribble.
Even though I sometimes fill a pad, I wear khaki or light blue pants any time I want, because in a year now my Sereneties haven't spilled a drop except maybe when I'm working in the yard for hours and just don't bother going inside soon enough to change a swamped pad, which is pretty obvious because it really does feel like the proverbial wet cat.
I.P.
dave perry - 31 Mar 2007 03:01 GMT While my accidents have been minimal and while I almost always can change the pad before it becomes a "swamped cat," there could be a time when I'm in my khaki "uniform" carpooling a two to three hour drive, no time to get to a restroom because we're late, doing an hour- long performance sitting down, and then featured up front standing on the stage with a soccerball-sized soak mid-khaki. All of that has happened pre-op (except for the soaked pants) so there's no reason to think it couldn't happen now. Hence, my one and only behavior modification due to pads. Sure, I could avoid the carpool and let Winkie hang out the open window but really, I'm glad to have a reason to not go. Dave Perry
> > There has been only one limitation on my > > life and that has to do with playing a musical instrument in a local [quoted text clipped - 16 lines] > > I.P. Buttercup's Dad - 30 Mar 2007 17:05 GMT Interesting question. After all I have been through with various medical problems and surgeries I have more or less lost all modesty when it comes to talking about such things. However, the reception I get from others varies widely. My boss, a guy with children, does not want to hear any details. Some of the post menapausal women, and some premenapausal who have had children, suffer from minor incontinence and some of them are very sympathetic and they actually ask me about how I am doing (to be clear I am talking about my incontinence, there is no one at work that I talk to about the impotence).
I now keep a 52 pack of Depends Guards under my desk because I am leaking a lot more since the recent sling surgery (not exactly the result I expected). Also there are some in my brief case and car. I use the plastic sandwich bags at home in an attempt to control odor, but at work I just wrap it up in toilet paper and put the soiled pad in the trash. That is emptied every day, so I do not see a problem there. At someone's home I use the plastic bag and sometimes, especially when the trash container in the bathroom is small, I will walk it out to my car and dispose of it when I get home.
One more comment. Because there is no way, that I can figure out anyway, to handle the AMS 800 without dropping my pants I always go into a stall to urinate at work (the AMS control device is implanted in the scrotum and there is no way to get to it through the fly, plus it is a slippery little devil so it takes two hands to operate). I often wonder what some of the men think, i.e., am I a sissy or something because I won't pee with the big boys? Now some know of my problem, but most do not so that does bug me (yes Curtis, I do know what they can do with it).
One other thing too please. I very seldom wear anything but dark pants. Too damn many accidents over the past four years so I try to play it safe.
Thank you for the question Alan. This was interesting.
David S.
P.S. Hello Dave Perry, fellow veteran of the leaking wars.
> Is that a viable strategy? Does it make things easier? Or is it > psychologically too difficult to do? > > Alan dave perry - 30 Mar 2007 20:29 GMT Hello David S., Have you entertained any thought on undoing the sling and at least getting back to where you were pre-sling? I understand the installation is reversible. Also, are you a candidate for a smaller cuff for the AMS 800? Any thoughts on getting that done? Can they do both at one time? Dave Perry
On Mar 30, 9:05 am, "Buttercup's Dad" <friendofcur...@yahoo.com> wrote:
> Interesting question. After all I have been through with various > medical problems and surgeries I have more or less lost all modesty [quoted text clipped - 42 lines] > > - Show quoted text - I.P. Freely - 30 Mar 2007 23:40 GMT Uros and Kegels haven't helped me much yet, so I've asked a couple of other sources about it. A highly regarded massage therapist recommended our gym's Pilates instructor, who has great deal of experience in treating a group with a very high incidence of urinary incontinence. You may know someone in that high-incidence group: women who have borne children.
I'll talk to the Pilates instructor next week. Maybe she can help me.
I.P.
kh - 31 Mar 2007 04:29 GMT On Mar 30, 12:05 pm, "Buttercup's Dad" <friendofcur...@yahoo.com> wrote: ...
> often wonder what some of the men think, i.e., am I a sissy or > something because I won't pee with the big boys? Now some know of my > problem, but most do not so that does bug me (yes Curtis, I do know > what they can do with it). ...
Don't worry about it. For the last 6 weeks, I've had the "flu" and my stomach has been gurgling. It's like I picked up a 3rd world disease. The good news is that I've lost 10 pounds. The bad news is that I've been in the stall 5 or 6 times a day.
No ones noticed. No one cares. Just do your thing.
I think it's the same with handling the Depends. No one cares so don't even give it a thought. Just wrap it up and pitch it when it's convenient. I'm always carrying a bag or two in and out of the office. Daytimer, calculator, snacks, kleenix, drink, lunch half the time, no one has ever inquired as to why I use a cloth sack and not a briefcase. (I use a sack because it's easier to toss across the seat than a briefcase. Easier to get a kleenix, cough drop, out while I'm driving.)
-kh
rosbif - 31 Mar 2007 14:15 GMT > I >often wonder what some of the men think, i.e., am I a sissy or >something because I won't pee with the big boys? I wouldn't worry about this at all, although I know exactly what you mean having suffered from 'bashful bladder' for 25+ years. It wasn't until my first biopsy, on being asked if I have any difficulty peeing, that I realised there was even a NAME for the condition - and it's apparently not uncommon. So there are many, you and me amongst them, who for various reasons won't/can't use a urinal. I began to rationalise it - or at least put myself more at ease - by treating my concern about how others might see me, as being a form of vanity. I think most of us have self-conscious foibles of one kind or another and are too busy nursing these to get overly interested in anyone else's.
On the broader question of admitting or closeting incontinence, this must surely be at the whim and according to the nature of our relationships with others and it would be weird if we didn't all have to face a varied mix of these in life and work, irrespective of our own determination to shape them. In my line of work, freelancing, now reduced to a negligible trickle, experience has always vied with youthfulness of spirit and I know without a doubt I'd have been instantly overlooked had anyone the slightest suspicion of my condition. No option but to hide. Family and friends are different entirely but even then, some will be curious others embarrassed, maybe interested or not, or genuinely concerned, the 30-something kids of my partner far too involved with themselves to even wonder. A lot depends on sensitively measuring the tolerance of others, of those with whom you have to, or want to, interact.
I.P. Freely - 31 Mar 2007 18:25 GMT I've never understood why some men simply unzip and "whip it out" (hence the term) to pee -- as I always have -- while others unbuckle, unzip, drop their pants a bit and open them up completely. I can only assume it's just how they were trained and it passes down through the generations.
But with diapers/pads, merely unzipping is no longer practical for two reasons, so now I open everything up, drop the pads or diaper out of the way, and take care of bid'ness. Any bystander who notices my sponge is observing me much too closely. But early in this, the second diaper learning curve of my life, I was standing there beside several guys and in front of a line of many more after a movie, proud that my stream was the loudest of the bunch. No one could see my big, bulky, early-post-op honkin' DIAPER . . . until, of course, my pants dropped to my knees.
Good thing nobody laughed; I'd have been tempted to turn around and write my name on his chest, and I don't mean with a pen.
I.P. Differently Now
chasjac - 31 Mar 2007 00:06 GMT Hello, Alan:
It's a very interesting question. I have hid nothing about my condition from anyone at my college; I even spoke about it to a group last week, and I freely admit to whoever asks that, at the moment, I am incontinent and impotent.
My sentiments are somewhat along the lines of I.P.'s. This cancer, and my reaction to it, has never been just about me. If I continually whined and sulked about it, what kind of message would that be to send to my two sons and to my wife? IIt's more manly (to me anyway) to have it out in the open.
And while I do get a lot of good wishes -- even from campus enemies -- the more important thing to me is that there are men who feel free to ask me questions, not only about my own cancer, but about some of the things that they are going through. I've already been approached by at least two of my colleagues who got the diagnosis and were overwhelmed, just as I was back in July -- and there are other men and women on campus who have asked me other things about symptoms, treatments, other prostate troubles, and so on. I'm not sure they would have felt as comfortable discussing such things with me if they hadn't sensed that I was being pretty open about it.
On the other hand, I do not like the feeling of making it someone else's problem. No one empties my diaper pail but me. I buy my own pads, and I usually do it when I'm shopping by myself. It has made for an awkward but amusing moment or two for some of my younger female colleagues when they happen to be getting their tampons when I'm getting my Depends at the local supermarket.
I try to be as discreet as I can be about changing. The restrooms I use on campus lock, so that's good. The only time I've had to change at a social event was at my sister-in-law's, and she and her husband were very kind about it. And while I do not like the Depends guards, the briefs seem to work pretty well for me.
--charlie
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