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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2007Recently diagnosed, looking for info on DaVinci and/or integrative
Hi I'm wife of recently diagnosed prostate cancer patient. Thanks to all for the valuable info you are posting! A 12 point biopsy was performed with sections H and L having comments. Paperwork shows 15% cancer cells in the right lateral apex (this is section L) Paperwork also indicates 'Part H shows crowded simplified glands that are positive for P504S and negative for P63/CK- HMW...insufficient for a diagnosis of carcinoma'. This is section H. The urologist described several options. He indicated that due to the proximity of the cancerous cells to the nerve bundle that radiology seeds are not good. He suggested we do further research in surgical option and/or wait and see. After our search on the internet and watching a video online recommended by someone on this post (THANKS!) of the DaVinci surgery by Doc from Columbia Presbyterian NYC (with another Doc), we would like to find out as much as possible about this option. We are approximately 1 hour from the PA hospital where the video was captured and 2 hours from NY City. We are looking for information on the Da Vinci robotic surgical tool and, if available, more specifically, Docs and Hospitals who practice integrative medicine. We have had excellent results with acupuncture and massage therapy, including reflexology in the past. We would like to hear from anyone who has had surgery with the DaVinci robotic assist. We are in the north east part of Maryland, near Delaware and Pennsylvania. Thanks again! Hello: I am sorry to hear about the results of the biopsy, but it sounds as if you are educating yourselves about your options and that's good. It also sounds as if you could use any of the big cancer centers in your area: Memorial Sloan-Kettering in New York City, Johns Hopkins in Baltimore, Fox Chase in Philadelphia ... My surgery was done at Johns Hopkins last November; the surgeon was Christian Pavlovich. He used the robot to position the scope and the lights, but manipulated the cutting instruments himself. The results are pretty much what I expected, and I'm pleased so far ... awaiting the results of my second post-op psa. Good luck, and please keep us posted on how it all goes. All the best, charlie On Mar 5, 9:30 am, <quih...@yahoo.com> wrote: > The urologist described several options. He indicated that > due to the proximity of the cancerous cells to the nerve > bundle that radiology seeds are not good. He suggested we > do further research in surgical option and/or wait and see. Hi, You probably watched OR-live.com for that RLRP (robotic prostatectomy) which has several videos available to review by different medical centers. The one I'm concerned about your comment is the "urologist" suggestion to have surgery. I think you need to have second and third opinions on other forms of treatment (I chose a new treatment protocol, still considered a study), and reseearch, research and research. Once you have done this, then choose the poison you want, and don't look back. I've not regretted my SBRT procedure, and except for 2 weeks of unconfortable rectal urgency, I am now fine, and functioning normally, in all department. My first PSA test is coming up in a couple of weeks. > Paperwork shows 15% cancer cells in the right lateral apex > (this is section L) Just 15% of one lobe? That a good sign. > The urologist described several options. He indicated that > due to the proximity of the cancerous cells to the nerve > bundle that radiology seeds are not good. He suggested we > do further research in surgical option and/or wait and see. With a skilled surgeon and the saving of one both nerve bundles, impotence is likely to be less permanent. > We are looking for information on the Da Vinci robotic > surgical tool and, if available, more specifically, Docs > and Hospitals who practice integrative medicine. > We would like to hear from anyone who has had surgery with > the DaVinci robotic assist. We are in the north east part > of Maryland, near Delaware and Pennsylvania. These are the men (and occasional SO) who have gone with robotic laparoscopic surgery. These are from all over the world, not just from the northeast US. Many would be happy to hear from you, I believe. Some emails are faked and others my have expired. sellmeacar2002@yahoo.com Bluedove3 bobantho@bellsouth.net Bob Anthony tobynbob@rochester.rr.com BobS ElkBuck02@hotmail.com Buck lfcjjk@aol.com callalily catherine@colorwashcreations.com catherine chrisp@seanet.com chrisp sentochnikl@optonline.net corey cpflanagan3@aol.com Cpflanagan3 d4stones@baymoon.com d4stones dklr@nospam.net dklr smithtrim@comcast.net Don Smith doubleowseven@theplacecalledyahoo.com doubleowseven earlhend@comcast.net E. Hendrix eddiegr@aol.com eddiegr equine1953@yahoo.com ejoey Fred.Schw@gmail.com Fred Schwartz g.gunnerson@comcast.net Gary G> gary.miller12@comcast.net gary.miller12 eddiegr@aol.com HMG hopehowie@webtv.net Howard and Hope hwitter11@gmail.com hwitter11 poca_hontas5@nospam.yahoo.com jenniferb jerswick@comcast.net jerick jhlms@sbcglobal.net jhlms kabrahamsen@comcast.net KenA kenerrey@aol.com Kenn Errey lonnieand@cox.net lonnieand@cox.net roblrp@nospam.yahoo.com makingprogress michael@kiely.us Michael Kiely mikeintexas@excite.com mike mikeddy@hawaii.rr.com mikeddy b2828ob@yahoo.com motownbob mrbill@misterpond.com MrBill oregoncatlover@yahoo.com OCL elizabethbodley@sbcglobal.net Paul & Lisa cliffordhayes@rogers.com Prospector r.mcnamara@bigpond.com ray rml@nospam.net RML smw30342@yahoo.com smw30342 egnarts7@xxxhotmailnospamxxx.com Steve smu53@aol.com Steve U sailor@ruaturtle.com TampaSailor or TS timeastonpa@yahoo.com Tim drbillstevens1@msn.com wasone2 emeraldkr@aol.com wife black@EMAILPROTECTED yelnats bluth@cox.net bluth@cox.net otfiddler@hotmail.com otfiddler  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04, <0.05 Non Illegitimi Carborundum On March 5, quihana wrote: > Hi I'm wife of recently diagnosed prostate cancer patient. > [quoted text clipped - 5 lines] > Paperwork shows 15% cancer cells in the right lateral apex (this is > section L) (snip) I wonder how much research was done before selecting the da Vinci procedure. For authoritative and objective information, I recommend consulting the Prostate Cancer Research Institute at: http://prostate-cancer.org/index.html Go to the section entitled, "Newly Diagnosed." It will prove educational, and help to assure that the selected treatment is the optimum for this tumor and this patient. Considering the lack of details such as age, PSA, Gleason score, clinical stage, prostate size, patient's overall health, this is the best I can do. I don't blame "quihana" for this; we all began in ignorance, which is curable. Regards, Steve J "Empowerment: taking responsibility for and authority over one's own outcomes based on education and knowledge of the consequences and contingencies involved in one's own decisions. This focus provides the uplifting energy that can sustain in the face of crisis." --Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled "The Empowered Patient's Guide." On Mar 5, 10:30 am, <quih...@yahoo.com> wrote: > Hi I'm wife of recently diagnosed prostate cancer patient. > [quoted text clipped - 5 lines] > Paperwork shows 15% cancer cells in the right lateral apex > (this is section L) Referring to laparascopic surgery, Touijer et al (2005) of MSK say "eradicating positive margins at the distal prostatic apex remains a challenge." See: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&list_uids=15711265&cmd=R etrieve Since you are considering robotic I would speak with a surgeon who does a lot of open surgeries as well as robotic so you can get a fair assessment for your particular case. --- The Palpable Prostate http://palpable-prostate.blogspot.com I can't tell you anything re the robot vs. open but FWIW I recently had the opportunity to tour a local surgical suite including the OR where they have their da Vinci. They are using it primarilly for prostatectomies and heart valve jobs. The uro-surgeon who uses it and his surgical nurse demonstrated it and answered questions. There are 4 laparoscopic arms, one of which has the camera, light, and gas, 2 for the actual instruments and 1 that can be used to hold things in place. They are about the diameter of my little finger. The surgeon sits at a console off to the side (I suppose it could be anywhere - even a continent away as long as there is no communication link lag) and views through what is like a fixed set of stereoscopic goggles. It takes a little getting used to but the 3D effect is very good. He puts each thumb and forefinger through flexible loops on what is like a pistol grip. The fingers can be moved in any plane and the intruments follow precisely his movements. Of course, there is absolutely no shaking or sudden movements of the instruments. There are also foot pedals that control other functions. I actually got to take the controls and it really isn't unlike a cross between a video game and one of those booths at the fair where you try to pick up a toy w/ a clamshell. I got the nurse over to the side and asked her privately if she thought the robot was better and why. She mentioned the gas that inflates the abdomen and the precision in dealing w/ small bleeders that make for a clearer field. But the main thing is the magnification and the precise movements of the instruments. After playing w/ it a bit I can see that the experience of the surgeon is paramount - you will have to work w/ this thing enough to develop a "feel" for it. It does not have force feedback so you have to use visual cues, and you can't pick that up w/o a lot of practice. Bill Denton RP 2/12/02 PSA 1.6 Memphis I had the Da Vinci surgery 3 weeks ago. Unlike most people I had some complications. Large hematoma on my side, swollen about an inch and a half from below my arm to my waist, some minor secondary infection. Low fever etc. That was the bad part. The good part is at 3 weeks I am almost completly continent.97%, only had to get up twice last night. Also the hematoma is completly gone and I'm feeling pretty good. Check everything out and then you'll have to make up your mind. I think the surgery is going to work out great for me but some other treatment might have worked just as well. I wish you the best of luck. Don > Hi I'm wife of recently diagnosed prostate cancer patient. > [quoted text clipped - 36 lines] > > Thanks again! Hello. I had Robotic Prostate Cancer Surgery on February 9, 2007 with Dr. David Samadi at Columbia Presbyterian Hospital, NYC. I am now home recovering. I had an excellent experience with both the Doctor, and the Hospital. Both were stellar, and my outcome to this point is beyond my expectations. If you want to read the details of my journey from diagnosis through recovery, I've created an online Journal at- http://journals.aol.com/kennfightscancer/journal/ The earliest entries are Archived in February, 2007. Please take a look, and feel free to let me know any questions you may have. Best Regards, Kenn PS- Steve, I see you included me in your list. Thanks. [This followup was posted to alt.support.cancer.prostate and a copy was sent to the cited author.] Good morning Kenn...thanks so much for your website and your postings. I am the wife of Quihana. On your journal website, you mention hospitals where one can hear docs go toe to toe on different treatments. We would like to have that option. Do you mind telling us which hospital it is? Thanks! In article <1173325436.561908.14500@ 30g2000cwc.googlegroups.com>, kenerrey@aol.com says... > Hello. > [quoted text clipped - 17 lines] > > PS- Steve, I see you included me in your list. Thanks. SignatureDiagnosed PCa March 2007 at age 49 PSA 12.0 Gleason 3+3=6 T1c Asymptomatic No Incontinence/ED
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