Medical Forum / Diseases and Disorders / Prostate Cancer / March 2007
Recent Diagnosis Of Prostate Cancer -- Have a couple of questions.
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ahab@angelescity.net - 24 Feb 2007 07:18 GMT I was diagnosed as having prostate cancer about a month ago. I have had the three usual scans and all have come back indicating that there has been no detectable spread of the cancer to lymph nodes or bone. I saw a specialist from a well known cancer clinic in Houston Texas that has a branch clinic in Orlando, Florida, today. He has suggested that I undergo an eight week (five days a week) radiological treatment followed with two hormone treatments. I feel very comfortable about the doctor and he seems highly professional and above trying to get me to buy something I don't need. I guess what I'm looking for in a response is does all this seem like a reasonable approach to dealing with prostate cancer and am I taking this too lightly -- is there anything that I should be paying attention to. I don't like the idea of surgery and what comes form it and the doctor says it's really not required based on the current conditions and the radio-active seeding also gives me the willies and again the doctor says that is likely more than I need at this point. Am I leaving any bases untouched here? Is there any aspect of the treatment that I should be paying more attention to? As for the numbers I haven't paid much attention to them other than the PSA which was 16.
I'm 71 have some stents in my heart though I've never had a heart attack and I'm in reasonably good condition for my age.
Thanks for any advice anyone may give me.
Don
Steve Jordan - 24 Feb 2007 08:02 GMT ahab wrote:
> I was diagnosed as having prostate cancer about a month ago. (snip)
> Am I leaving any bases untouched here? > Is there any aspect of the treatment that I should be paying more > attention to? As for the numbers I haven't paid much attention to them > other than the PSA which was 16. It would be prudent to pay very close attention to the numbers, as survival likely depends upon what they are and what they lead to.
> I'm 71 have some stents in my heart though I've never had a heart > attack and I'm in reasonably good condition for my age. > > Thanks for any advice anyone may give me. There is homework to do.
I recommend:
(1) Consult the authoritative and objective website of the Prostate Cancer Research Institute (PCRI) at:
http://prostate-cancer.org/index.html
.....and start with the section "Newly Diagnosed." A great deal of essential information is to be found there.
(2) Study the text _A Primer on Prostate Cancer_ 2nd ed., subtitled "The Empowered Patient's Guide" by medical oncologist and prostate cancer specialist Stephen B. Strum, MD and prostate cancer warrior Donna Pogliano. It is available through the PCRI website and any bookstore.
(3) Attend meetings of the local chapter of UsToo! International, where meeting brothers and sisters in this battle can be very helpful and informative. Local chapters and much other useful information will be found on their website at: http://www.ustoo.com/
Good luck.
Regards,
Steve J
"Empowerment: taking responsibility for and authority over one's own outcomes based on education and knowledge of the consequences and contingencies involved in one's own decisions. This focus provides the uplifting energy that can sustain in the face of crisis." --Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled "The Empowered Patient's Guide."
chasjac - 24 Feb 2007 16:50 GMT Hello, Don:
I am sorry to learn that you've been diagnosed with this disease. Steve Jordan's recommednations are a good start. You should also consult _The Prostate Book_, by Peter Scardino. A visit to the National Cancer Institute's site at http://www.nci.gov is wise, as well as the American Cancer Society at http://www.cancer.org. And don't stop there; read a lot.
To make the best possible decision for yourself, make sure you've read enough so that you understand: 1) the 'industry-wide' success rates for surgery, for beam radiation, for seed radiation, and for other treatments you may be considering; 2) the success rates for the particular surgeons or oncologists you're considering; 3) the side effects for each treatment and their chances of occurring.
Beam radiation is one of the standard treatment options. It is often accompanied by some hormone treatments. The use of the hormones locks the cancerous cells into a phase (teleophase?) in which they are more susceptible to the effects of the radiation.
I had a laparoscopic prostatectomy in November last year, and it has gone pretty well so far. But that's just my story; yours will be unique to you. Good luck, and please let us know how it all turns out.
All the best,
charlie
Alan Meyer - 24 Feb 2007 19:27 GMT Don,
I'm sorry about your diagnosis of prostate cancer.
The only thing about the treatment proposed for you that surprises me is that hormone therapy is usually given for eight weeks, more or less _before_ the beginning of radiation, rather than after the end of radiation. The HT shrinks the prostate, producing a smaller radiation target, and, supposedly, weakens the tumor cells, making them more susceptible to radiation damage. I suggest you check with the doctor to find out if that's what he meant and perhaps you misunderstood.
As others have said, external beam radiation is one of the well considered treatments. It is often prescribed for men over 70 or so, who may have more difficulty recovering from surgery than younger men. I myself had it, in combination with HT and high dose rate brachytherapy three years ago. Even though I was only 57, like you, I was leery of surgery.
So far I am doing well with it.
Radiation is very easy to take. First there is some preliminary imaging, possibly a CT scan, possibly and MRI, and a number of x-rays. That takes a couple of hours or more. Then the treatment itself begins. It's very quick, about 20 or 30 seconds of actual radiation per day with about 10 or 15 minutes of positioning and setup. It is entirely painless. You don't feel a thing.
For the first 4-5 weeks, you may experience no side effects at all. But side effects may then begin to slowly build up. I experienced some mild skin burns - no worse than sunburn. I had blood in my semen and a bit in my urine. Eventually, due to the brachytherapy rather than the external beam, I had difficulty urinating. The prostate swells up somewhat and clamps the urethra. I had to take Flomax for about five months, and got up frequently at night to urinate. I also had some aggravation of pre-existing hemmorhoids. You may also experience some tiredness and there may be a negative effect on potency. More rarely, other, more serious side effects are possible. Fecal incontinence is one of the worst of heard about. I think it's relatively rare, but at least one man in this newsgroup got it.
The HT also has side effects - night sweats, complete loss of libido, tiredness, weakness. I thought the HT had more side effects on me than the radiation.
How long the HT is continued depends on the patient and the doctor. Some doctors give it for just 4-6 months, believing that that does the most good for the least harm. Others give it for 12 or 24 months, believing that if you're going to pay the price of taking HT at all, you should pay the full price and get the maximum benefit.
Unfortunately, cancer is a serious, life-threatening disease. All the treatments for it - surgery, radiation and hormone therapy, do some significant violence to the body to get rid of it. None of the treatments, including the one proposed for you, is a sure cure.
Nevertheless, if I were in your shoes, I'd probably opt for the treatment you were offered, or something like it.
As others have said, doing research will give you much more information about what to expect and what your options are.
Best of luck.
Alan
ahab@angelescity.net - 25 Feb 2007 07:59 GMT >Don, > [quoted text clipped - 65 lines] >more information about what to expect and what your >options are. The doctor that I spoke with, Patrick A. Kupelian, MD, who discussed the various options available to me for treatment is with the Orlando, Florida Branch of the M. D. Anderson Cancer Clinic which is associated with The University of Texas M. D. Anderson Cancer Center in Houston.
Dr. Kupelian's qualification are listed below as is the web site for the M.D. Anderson Clinic in Orlando. I would greatly appreciate any comments about the Clinic or the doctor's qualifications from anyone in this group.
"Patrick A. Kupelian, MD ----------------------------------
Dr. Kupelian joined the M. D. Anderson Cancer Center Orlando staff in 2002 as the section leader for Genitourinary Cancers. He completed his residency at The University of Texas M. D. Anderson Cancer Center in Houston and a fellowship in genitourinary malignancies at the Cleveland Clinic Foundation. Following his fellowship, he was the section head of genitourinary malignancies in the Department of Radiation Oncology at the Cleveland Clinic for eight years, concentrating his efforts nearly exclusively on the treatment of prostate cancers. He also served as the clinical research director of the Department of Radiation Oncology at the Cleveland Clinic. His current interest is in the development of newer technologies in the treatment of localized prostate cancer, particularly intensity-modulated radiotherapy and brachytherapy.
He is board certified in Radiation Oncology and is a member of the American Society of Therapeutic Radiation and Oncology, American Society of Clinical Oncology, the American Urological Association, and the Florida Medical Association.
He is a reviewer for several medical journals including International Journal of Radiation Oncology Biology Physics, Urology, Cancer, and Journal of Clinical Oncology. He is active in national and international lecture series.
http://www.mdandersonorlando.org/about/
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Many thanks to all who responded to my initial post -- your comments and recommendations have been very helpful as well as comforting.
Thank you, all.
Don
>Best of luck. > > Alan Steve Kramer - 25 Feb 2007 00:14 GMT >I was diagnosed as having prostate cancer about a month ago. I have > had the three usual scans and all have come back indicating that there [quoted text clipped - 18 lines] > I'm 71 have some stents in my heart though I've never had a heart > attack and I'm in reasonably good condition for my age. Hi, Don. Sorry to welcome you to the club none of us wanted to join.
Since I have been in this newsgroup, 48 septuagenarians have crossed our paths and 12 (25%) chose surgery. Of the remaining, 8 chose brachy (seeds), 2 cryo (freezing), 5 radiation (burning), 3 watchful waiting, and the rest hormone therapy or some combination.
In other words, if you're in good shape, you have the whole gamut from which to choose. You need to research, research, research and get a second opinion -- or a third.
What was your Gleason and Stage numbers? Those will be important criteria in your decision tree.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum
NICK - 27 Feb 2007 05:52 GMT Don wrote:
> I was diagnosed as having prostate cancer about a month ago.
> He has suggested that I undergo an eight week (five days a week) > radiological treatment followed with two hormone treatments.
> As for the numbers I haven't paid much attention to them > other than the PSA which was 16.
> I'm 71 have some stents in my heart though I've never had a heart > attack and I'm in reasonably good condition for my age. Welcome, but sorry you had to come into the group.
Wish we knew what the other numbers were, to give you better answers.
Usually, hormone treatment begins BEFORE radiologial treatment.
Is the PCA confined to the prostate? One lobe or both?
Has the doctor explained ALL of the side effects? Impotency? Incontinence? Rectum problems? Any others? Did he refer you to a support group? Most doctors (in this field) try to keep patients in the dark. They don't woant you to go to the internet and gain knowledge about prostate cancer. They'll try to keep you in the dark and continue covering you with that stuff that's used growing mushrooms. <g>
I discovered that the 3 doctors I visited between 1001 and 2006 downplayed side effects- actually mentioned only impotency - when pushing radiation for me. One outright lied and stated my extra 40 pounds excluded a choice of seed implants.
I feel lucky that the treatment center screwed up appointments in January 2003 and I never returned to the bastards.
I found this group, I found 3 support groups in my city (after a doctor lied and stated there were none - zero), I found too many URL's to scan through. But I'm going to list a few.
http://www.ustoo.org http://www.prostatepointers.org/prostate http://www.phoenix5.org http://www.phoenix5.org/articles/Fortune96Grove.html http://www.webmd.com/diseases_and_conditions/prostate_cancer.html http://www.cancer.gov/cantertopics/types/prostate http://www.prostatecancerdecision.org http://www.malecare.com
My "favorites" folder has 3 dozen more, but I don't want you to go into "overload" at this point. Those above will fortify you with some basic information and arm you for your next appointment with that doctor who's pushing radiation at you. Hopefully you'll have questions to ask and he'll realize that he can't snowball you into making a decision.
Maui Mike - 27 Feb 2007 20:31 GMT > I discovered that the 3 doctors I visited between 1001 and 2006 WOW! Here's wishing you good health and continued longevity! :-)
I.P. Freely - 27 Feb 2007 20:42 GMT >> I discovered that the 3 doctors I visited between 1001 and 2006 > > WOW! Here's wishing you good health and continued longevity! :-) But think about it . . . I *did* visit scores of doctors between 1001 and 2006. Didn't we all? ;-)
I.P.
Maui Mike - 27 Feb 2007 20:54 GMT >>> I discovered that the 3 doctors I visited between 1001 and 2006 >> [quoted text clipped - 4 lines] > >I.P. Hmmmmm...You are absolutely right!
Mike
NICK - 01 Mar 2007 01:15 GMT Nick wrote:
>> I discovered that the 3 doctors I visited between 1001 and 2006 And Maui Mike replied:
> WOW! Here's wishing you good health and continued longevity! :-) No one remembers a certain skit by Bill Dana, a.k.a. Jose Jiminez?
Russ Davies - 28 Feb 2007 04:05 GMT On 27 Feb 2007, you wrote in alt.support.cancer.prostate:
Nick wrote: <snip> I found too
> many URL's to scan through. But I'm going to list a few. > [quoted text clipped - 13 lines] > Hopefully you'll have questions to ask and he'll realize that > he can't snowball you into making a decision. Bob Young, founder of Phoenix5, has, I have heard, passed away from his PCa. He had an excellent site that is extremely helpful.
However, you can still access the information thanks to http://www.archive.org/index.php . I tried about 15 different phoenix5 things thru archive.org and all worked, so if you wish to still access Bob's material just go to archive and type in phoenix5.org in the 'Take Me Back' box. It will list everything Bob created by year.You need to hunt a little and it takes a little bit of time, but it's all there! Good luck to ahab!
Russ
xuvt99@gmail.com - 28 Feb 2007 04:58 GMT > My "favorites" folder has 3 dozen more, but I don't want you > to go into "overload" at this point. There is a list of free downloadable PC documents ranging from 16 to 380 pages that I found around the net here:
http://palpable-prostate.blogspot.com/2007/02/free-downloadable-materials-on-pro state.html
Its organized into three groups: the main PC group of documents, a group of documents on nutrition for PC and a group of documents with less detatiled patient-oriented PC handouts.
Also in the right hand column of my blog under Links are a couple of good PC link collections.
--- The Palpable Prostate http://palpable-prostate.blogspot.com
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