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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2007

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Leakage Advice Please

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TonyPA - 24 Jan 2007 05:18 GMT
I had surgery 4 1/2 months ago.... I'm still leaking at a good
clip. I leak mainly if I don't empty my bladder frequently, which
I could understand.

I also leak when I am sitting in my chair and bend over to tie
my shoe or lift my leg onto a chair to tie my shoe.

I leak, at times, I when I sit in a chair.

I leak when lifting things, coughing, sneezing, etc.

I use a few pads a day.

Question.... Am I overreacting on this or should I still be patient?
I hear a lot of guys clear up 6 to 8 months after surgery.

Any imput out there?

Thanks,
Tony
I.P. Freely - 24 Jan 2007 06:26 GMT
> I had surgery 4 1/2 months ago.... I'm still leaking at a good
> clip. I leak mainly if I don't empty my bladder frequently, which
[quoted text clipped - 13 lines]
>
> Any imput out there?

Yep; Two words: Kegels and patience.

My surgeon was very surprised I wasn't dry within a few months. I still
use a couple of pads a day at 27 months, but then I haven't tried Kegels
consistently yet, thinking time would solve the problem by itself.
Wrong, in my case. One of these months I'll get serious about the
Kegels; in the meantime there only one pad I'd even CONSIDER using:
Serenity Pads for Men.

I.P. Freely.
Steve Kramer - 24 Jan 2007 13:54 GMT
>I had surgery 4 1/2 months ago.... I'm still leaking at a good
> clip. I leak mainly if I don't empty my bladder frequently, which
[quoted text clipped - 11 lines]
> Question.... Am I overreacting on this or should I still be patient?
> I hear a lot of guys clear up 6 to 8 months after surgery.

You are not overreacting.  Incontinence is one of the leading pschological
issues for men.

However, your concern, while understandable, is unwarranted.  There was a
lot of cutting in your surgery and it takes months for it all to heal, let
alone for you to relearn how to use your muscle.

It took me 6 months before I was padless.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA  .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
PSA <0.04
Non Illegitimi Carborundum

Buttercup's Dad - 24 Jan 2007 17:14 GMT
It has been a long time for me now since the surgery, but if I recall
correctly they used to say that it could take as long as 18 months to
regain continence.  So you have a way to go.  I guess the bad news is
that you may have to wait, but the good news is that there is still
hope.  You can try the Keegle exercises (there is mixed opinion on the
effectiveness of those), and perhaps you can investigate the
biofeedback therapy.  I only know one person that tried that, and it
did not work for him, but at least it may be an option.  Locally, North
Carolina, the insurance companies do cover that service.

Looking longer term, if you end up without significant improvement look
into the surgical options, e.g., the AMS 800 artificial sphincter
implant, the collagen injections (not sure of the effectiveness of
that), or the sling procedure.  I am going in a couple weeks to be
evaluated for new variation of the old sling procedure that has just
been approved for general use.  I cannot give you specifics as to how
this is different, but the urologist told me that the has done this on
six men so far and all are dry.  This procedure was developed in Europe
and has been in use for a couple years or so.  The doctor I am seeing
here was the principal investigator for the clinical trials here in the
U.S.   So there are alternatives to pursue if you do not get better.  I
think a lot of guys took six months or more to get to where they were
either fully continent (you may always leak when lifting heavy objects,
sneezing, coughing, etc.) or down to wearing one pad a day.

Good luck to you!

David S.

> I had surgery 4 1/2 months ago.... I'm still leaking at a good
> clip. I leak mainly if I don't empty my bladder frequently, which
[quoted text clipped - 16 lines]
> Thanks,
> Tony
glassman - 25 Jan 2007 01:24 GMT
>I had surgery 4 1/2 months ago.... I'm still leaking at a good
> clip. I leak mainly if I don't empty my bladder frequently, which
[quoted text clipped - 16 lines]
> Thanks,
> Tony

  4 years later and I consider myself dry, even though I may ocasionally
leak doing some of the activities you mentioned above.  It looks like a
permanent part of my life now, but my cancer is gone!

Signature

JK Sinrod
www.SinrodStudios.com
www.MyConeyIslandMemories.com

Russ Davies - 28 Jan 2007 03:16 GMT
> Question.... Am I overreacting on this or should I still be patient?
> I hear a lot of guys clear up 6 to 8 months after surgery.
[quoted text clipped - 3 lines]
> Thanks,
> Tony

I had my prostatectomy Dec 05 . It took 6 nearly 7 months for me to be
somewhat leak free. Even today, over a year later I still leak a few drops
sometimes.

Russ

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