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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2007

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It's Been 12 years

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Lon - 18 Jan 2007 06:12 GMT
It's been 12 years since I had a Radical Prostatectomy and life is
good. I have been 100% continent since 6 weeks post op and sexually
active since 10 weeks post op. When I was first dx'd I started to
participate in this alt.support.cancer prostate group and credit it
with being of great help in determining just what course to take. I
haven't checked in since 10 years ago and do not see any familiar
names.  I hope all of you that are undergoing treatment of various
kinds have as good an outcome as I and beat the beast. I am 72
Steve Kramer - 18 Jan 2007 13:14 GMT
> It's been 12 years since I had a Radical Prostatectomy and life is
> good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 4 lines]
> names.  I hope all of you that are undergoing treatment of various
> kinds have as good an outcome as I and beat the beast. I am 72

It is very kind of you to report in with your success.  I invite you to
check in more often, especially in that you beat the bastard at a Gleason 8
(if I have the right "Lon").  I think there are a few people here with 8s
that would be emboldened by your success.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA  .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
PSA <0.04
Non Illegitimi Carborundum

Lon - 18 Jan 2007 18:32 GMT
Yes Steve, you are correct. My Gleason was an 8 at surgery, but
fortunately the cancer was just at the margins. My PSA was only 2.4
when first diagnosed but my primary care doc was concerned about the
velocity of increase from the prior year of 1.2. , plus he thought he
felt something with the digital rectal exam. On this basis he referred
me to a urologist.
How well I remember the devastating phone call from the urologist
telling me I had cancer. I was crushed, and felt my life was over.
After mentally settling down, my wife and I set out to learn all we
could about treatment options. My main concern was not incontinence
(heard lots of bad stories about this one) or impotence (likewise, bad
news), but getting cured. Treatment options, I believe have much to do
with our individual personalities. The thought of a fried prostate via
radiation was not appealing to me, plus, it seemed to rule out future
surgey if unsuccessful. Watchfull waiting? Not with an agressive cancer
as indicated by biopsy.  Cyro? Too new at that time. No, I wanted that
cancer out, and surgery was the way to go for me. I asked my diagnosing
urologist who he would have do the procedure if it were he that had
prostate cancer. He immediately gave me the name of a doctor at
Stanford University. I was fortuante  to be able to secure a
appointment with him and have him do my surgery.
The only advice that I can give those of you that must make treatment
decisions is get the best person you possibly can to do the job. Ask
nurses and other med people who is the best in the field. Ask the doc
about his success rate. Be assertive, it's your life were talking
about.

> > It's been 12 years since I had a Radical Prostatectomy and life is
> > good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 21 lines]
> PSA <0.04
> Non Illegitimi Carborundum
Steve Kramer - 18 Jan 2007 19:47 GMT
> Yes Steve, you are correct. My Gleason was an 8 at surgery, but
> fortunately the cancer was just at the margins. My PSA was only 2.4

Ha!  You're right, of course.  I misread 24.

> The only advice that I can give those of you that must make treatment
> decisions is get the best person you possibly can to do the job. Ask
> nurses and other med people who is the best in the field. Ask the doc
> about his success rate. Be assertive, it's your life were talking
> about.

Great advice.  Thanks again.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA  .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
PSA <0.04
Non Illegitimi Carborundum

colophony - 18 Jan 2007 13:14 GMT
Lon
congratulations! My seniority in this grp is of one year only. Tell the
unfamiliar names something more about your 12 years beating the beast.
Thanks
Colophony
> It's been 12 years since I had a Radical Prostatectomy and life is
> good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 4 lines]
> names.  I hope all of you that are undergoing treatment of various
> kinds have as good an outcome as I and beat the beast. I am 72
Ron B - 18 Jan 2007 13:46 GMT
That's great news Lon.

Nice to meet you.

Ron B.
Chicago
Bob C. - 18 Jan 2007 13:51 GMT
> It's been 12 years since I had a Radical Prostatectomy and life is
> good. I have been 100%  
Many thanks for the update. It is really good to hear from one who has
beat the beast on all fronts. Here's to many more years of the same. Bob C
Maui Mike - 18 Jan 2007 17:38 GMT
>It's been 12 years since I had a Radical Prostatectomy and life is
>good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 4 lines]
>names.  I hope all of you that are undergoing treatment of various
>kinds have as good an outcome as I and beat the beast. I am 72

Lon

I am a new member of this group and I find your story encouraging.
Thank you for sharing. I wish you continued good health and happiness.

Mike

Diagnosed with PCa 11/2006 at age 55
PSA 13.8  Gleason 6 (3+3) T1c
da Vinci RLRP planned for Feb 2007
c palmer - 18 Jan 2007 19:30 GMT
When I was first dx'd I started to participate in this
alt.support.cancer prostate group and credit it with being of great help
in determining just what course to take. I haven't checked in since 10
years ago and do not see any familiar names.

=====> hi lon - i remember you.  :))
i also remember that the newsgroup only had about 20 to 50 posts as
compared to the 800+ of today.

here's some names that might ring a bell.

you had beth, who was a vet and her husband had pca.  and she checked
into the newsgroup to say 'hi' last year.

then you had dr. david casey, but he dropped out to study for his board
test.

and there was berky, and robert young, just to name a few.

glad you are doing well.......

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
John Loomis - 19 Jan 2007 01:36 GMT
Hello C Palmer.....
I saved many internet connection from many folks.
Maynard Berkowitz was a friend of mine. "Berky"
I have this "News Group" from 1999 saved in a file...
I have many that have come and gone.
I can name many........Berky was a help, Fernando...wonderful, David
Gunn....I could go on, or make a list of names from that time forward...
I am just a "NewBie"  only since 1999.
Good wishes to all my friends, and best years are forward.
Keep it Up!
John Loomis
> When I was first dx'd I started to participate in this
> alt.support.cancer prostate group and credit it with being of great help
[quoted text clipped - 23 lines]
> invariably fatal. Prostate cancer is only sometimes so."
> http://community.webtv.net/PALMER_ENT/doc
Beverley - 19 Jan 2007 03:27 GMT
Congratulations! It's wonderful to see someone really beat this thing.
Please stop by a little more often.
Bev

> It's been 12 years since I had a Radical Prostatectomy and life is
> good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 4 lines]
> names.  I hope all of you that are undergoing treatment of various
> kinds have as good an outcome as I and beat the beast. I am 72
Paul & Lisa - 19 Jan 2007 14:27 GMT
Lon,

Thank you for sharing. It is very encouraging.  My husband is about
nine weeks out from surgery. It is wonderful to hear your success
story.

Lisa

> It's been 12 years since I had a Radical Prostatectomy and life is
> good.
chasjac - 19 Jan 2007 22:14 GMT
> It's been 12 years since I had a Radical Prostatectomy and life is
> good.

As another person who is new to the group, it is most encouraging to
hear from people who have a good life after treatment.  I hope you have
many more years.

--charlie
Unquestionably Confused - 20 Jan 2007 04:41 GMT
>> It's been 12 years since I had a Radical Prostatectomy and life is
>> good.
>
> As another person who is new to the group, it is most encouraging to
> hear from people who have a good life after treatment.  I hope you have
> many more years.

It's unfortunate that many of us tend to drift away from this great
group as the memory of our battle with the devil fades.  I stuck around
for probably a good three years chiming in where I thought I had
something to add and then sorta backed away to let the newer, more "up
to date" folks share their experiences with the newest crop of members
in the "club no one wants to join."<g>

Still, I tend to gravitate back here now and then on at least a yearly
basis as do many others.  If more of us did so, we might provide more
hope to those just beginning this journey of, hopefully, conquest.

One of the things I think I can add that really isn't changing all that
much is that there are many more success stories among us than there are
failures.  Then again are they really failures?  Even a recurrence after
treatment has garnered that individual additional years.

Well, maybe it IS changing.  I suspect there may be fewer problems
post-op as more and more patients are finding more and more competent
surgeons, radiation oncologists, etc.  Practice makes perfect.

Bob
RRP 03/2000 and PSA's <0.1 ever since.
I.P. Freely - 20 Jan 2007 18:24 GMT
> It's been 12 years since I had a Radical Prostatectomy and life is
> good. I have been 100% continent since 6 weeks post op and sexually
[quoted text clipped - 4 lines]
> names.  I hope all of you that are undergoing treatment of various
> kinds have as good an outcome as I and beat the beast. I am 72

Usually we hate braggarts, but in this encouraging case it gives us
hope. Brag on, Lon; it's good for all of us.

Now, about those 6 weeks and 10 weeks numbers . . . SCREW YA!!  ;-)
They must be a record combination; sure that surgery wasn't a placebo?

27 months and still I.P.2. Freely and Point West at Best, but agree that
life is great. We can't let half of one tenth of one percent of our body
weight determine our well-being or our attitude.

I.P.
 
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