Medical Forum / Diseases and Disorders / Prostate Cancer / January 2007
Health-Food Store Trauma
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callalily - 17 Jan 2007 00:20 GMT Dear All,
I have been really down for a couple of days because I felt like I got scammed at the health food store. It wasn't so much about money as a loss of trust. I have no choice but to tell this story in detail, because I don't think it'll come across in an "abridged" version. Anyway, if you don't want to read it, please let me indulge myself. This is a rant, vent or whatever you call it.
I had decided that the time had come for me to check out potential vitamins and supplements for my husband, and so I did a lot of research on the subject. I kind of dreaded plunging into this netherworld, by which I mean nothing is certain. I put the most credibility in the last article I read, which claimed to have assessed all the major nutrition and pca studies that had been done to date. The authors were 2 docs at St. Lukes/Columbia U. Hospital here. They cited 85 references, all from respectable journals. Anyway, Dr. Franklin Lowe and his colleague concluded that *nothing* had been proven according to their scientific standards to be effective in "changing the course of pca". They suggested that men who are basically healthy need only take a multivitamin once a day.
Well, I thought these two were party poopers, because although they had said that none of the supps had met their exacting criteria, a lot of the studies had seemed very suggestive of some benefit. I thought to myself, "If Dr. Lowe were a pca patient, he'd be putting tomato sauce in his coffee. And eating cruciferous vegetables with pomegranate dressing."
So I decided I would look into buying some dietary supplements that could "do no harm". I looked online and found some good deals at Costco and filed that away in my mind. However, I felt like I needed some immediate gratification, so I picked myself up and went to a local food store, Fairway Market, which had recently expanded and added a health food section. Fairway is an icon in this neighborhood, known for good quality and prices and as a store you could trust.
Based on what I had read here and elsewhere, I put on my shopping list items like pom extract (article strongly suggests a "synergy" in having pom juice together with pom oil or other part of the fruit), omega 3, Vit. E., Selenium, Green Tea Extract, lycopene, etc. But I saw this outing as just preliminary, so I "left the checkbook at home", mentally, anyway".
In the store I looked for some of these items and wasn't making much progress, and I found I was carrying so many bottles I couldn't even get around! So it occurred to me to look for something that Steve K. had mentioned here called Theraflex Prostate 2.2. I thought that might do in the meantime and at least I could carry it home.
The only person around was a woman who was standing on a stepladder stocking items on the shelves. I approached her and asked if they had Theraflex. She looked somewhere briefly and then said, "No". Then she asked me if the problem was prostate-related, and i proceeded to tell her everything. Spilled my guts.
Well, this woman immediately took charge. First, she told me that she would give me (absolutely free) a book by an expert in prostate health and nutrition. I didn't show much interest, because frankly, I didn't care what some boob had to say about health food I am just not into supplements myself. (I used to take calcium, but I even gave that up because a study had said it didn't work.) So I was kind of skeptical.
Well, the woman started pulling off bottles from the shelves at breakneck speed. She told me that the "expert" who had written the Prostate nutrition book particularly favored this brand of supplements. I looked at them and said to her, "I don't think I'll take these because I never heard of New Chapter vitamins. So, of course, she said they'd been around forever.
At that point, she kind of stuck the pca and nutrition book in front of me, and when I looked closer I saw that it had been written by one Aaron Katz, MD, Assoc. Prof., Clinical Urology, Director, Center for Holistic Urology, Columbia University.
Well, immediately my attitude changed, because I considered Columbia U. to be a venerable institution that I could trust. Especially because it's local and I am familiar with it.
Anyway, I inspected the book closely to see if it was genuine or some kind of promotional item. No, everything checked out. The book, "Prostate Health", had a price-tag on it, $15.95. On the cover there was a blurb by Dr. Mehmet Oz, a holistic doc whom I knew to be respectable (and I believe he had even operated on Bill Clinton).
So, on the basis of the endorsement by the Columbia uro dept, I ended up buying almost $90 worth of vitamins (mostly new chapter brand).
the list included:
Every Man's One Daily $15.37 Zyflamend 20.97 E & Selenium Food Complex 15.37 LycoPom 20.95
[Above all by New Chapter]
Omega 3 oil 12.71
When I got home I looked at the book right away and saw that it had a reference to the supplement co's website, www.newchapter.info. I had never seen a suffix like that and I thought maybe this was a non-profit enterprise or something. It wasn't, and I would not be surprised if that name was intended to confuse or mislead.
Anyway, that's when everything started to go downhill. When I looked thru the book, I realized practically all of it was an advertisement for New Chapter supplements and a few other brands. All of these were patented supplements and were made by companies that had "sponsored" the book. There were 4 of them: New Chapter, Natural Source, Amino Up and QOL Labs.
Well, I just hit the roof because I felt like I'd been deceived. I had bought all this stuff based on it being "recommended" by this doc. But what I hadn't known was that this was a paid endorsement. And it turns out New Chapter gives this book out to everybody as a freebie to plug their supps., and it is not even available commercially (for the most part). I looked up the publisher and saw that it was a vanity press, not a known name.
I really hate this sort of huckstering and taking advantage of cancer patients. I believe the salesperson should have had some integrity and had let me know, up-front, that the book had been subsidized by some vitamin companies. And the doc should not have pretended that his book was unbiased, because it was "bought and paid for" by others.
I can't describe how betrayed I felt, because I although I had gotten a free book, I had lost my faith in just about everything. I couldn't believe that the esteemed Columbia Pres. Hospital would associate itself with such schlock. BTW, I have always recommended Columbia as being the #1 Hosp. in New York and I had really believed it. So for me, it was like an icon had been shattered. I was also angry at Fairway Market, a well-known company, which I had also trusted completely.
You have to appreciate just how commercialized this book was. In it Dr. Katz recommends, among other things":
New Chapter 5LX Zyflamend, also by above company, (which he himself is researching and is inconclusive) Holy basil, which is supposed to bring "perfect health, long life and enlightenment."
Then he adds a laundry list of items, all patented products by new chapter, as part of a daily "zyflamend" protocol. This included Supercritical DHA 100, Supercritical Holy basil, Turmericforce, Anti-Aging Formula, Every Man One Day Multivitamin,, etc.
Then the doc got around to advertising his other "sponsors", like GCP (Amino UP Co), AHCC, Prostabel (Natural Source), Garlicforce (NC), Genikinoko (QOL Labs), etc.
Anyway, I was just disgusted that what was supposed to have been an independent book by an expert in pca nutrition at one of the top hospitals was nothing but a long commercial. It really grossed me out. Likewise, my husband, and he does not get upset easily.
We decided that we were going to give back all the supps, because I would not have bought them in the first place had I known all of this.
Then, to top it all off, the doc gave some plugs for the Life Extension Foundation (a "supposedly" nonprofit coop for purchasing vitamins) and PCRI, both of which orgs. I have some problems with. And last but not least, he thanked Dr. Stephen Strum for having reviewed the book.
Aside from it promotional material, the book read like a term paper that had been written by a college student in haste. The doc made a whole lot of claims but didn't substantiate anything. Everything he mentioned was "in the works", "promising", the paper is on the way, etc. In fact, he touted Provenge (which was mentioned here today) as "really promising". Apparently it is not. So altogether the book was really shoddy. That was very disappointing to me, too.
The best part is that I went to Fairway market afterwards and complained to the manager, he informed me that the woman who had sold me all this stuff was not even an employee, but a *sales rep* for New Chapter vitamins. Of course, she hadn't told me any of that. And the regular clerk had been absent. Well, to me, this sort of sleazy behavior reflects not just on the sales rep, but on the company itself.
I intend to write to some people at Columbia U. about this, if I ever get around to it. This is no way for a "top" doc at a top hospital to behave, IMO.
Anyway, my husb. is just now going out to return all of the supps (because I don't even want to set foot in the store) and he and I are both disappointed that nothing had come out of this shopping trip. We had hoped to get him started on a regimen. It would have made us feel better.
Thanks for listening.
Leah
alva36@gmail.com - 17 Jan 2007 02:28 GMT Leah-
Shortly after being diagnosed and I started collecting books on the subject, I bought a book (sorry, can't remember author's name) about nutrition for PCa. I read a little of it and, for some reason, Googled the author (a doctor). Turns out he had been put on probation and fined for doing exactly what you're describing.
Is it Dr. Strum who says to remember that MD doesn't stand for "medical deity"?
-Gordy
Steve Kramer - 17 Jan 2007 15:24 GMT > Leah- > [quoted text clipped - 8 lines] > > -Gordy I'm curious, Gordy. As I recall, as your primary treatement, you had ADT, RT and Brachy. That was two years ago. How did it all end up?
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum
alva36@gmail.com - 17 Jan 2007 23:54 GMT > <alv...@gmail.com> wrote in messagenews:1169000935.532589.168670@l53g2000cwa.googlegroups.com... > [quoted text clipped - 25 lines] > PSA <0.04 > Non Illegitimi Carborundum Steve-
I'm impressed - thanks for keeping track. Had my last Zoladex shot in October and took last Casodex pill this past Friday (total of 2 years). Have had PSA checked every 2 or 3 months since HDR in August 2005. PSA has been undetectable each time (<0.1). Am anxious to see the readings now that I'm off the ADT.
-Gordy
Steve Kramer - 18 Jan 2007 07:06 GMT > Steve- > > I'm impressed - thanks for keeping track. Had my last Zoladex shot in > October and took last Casodex pill this past Friday (total of 2 years). I got lucky on the timing. I forgot that you were on a two-year regimen with Casodex.
> Have had PSA checked every 2 or 3 months since HDR in August 2005. > PSA has been undetectable each time (<0.1). Am anxious to see the > readings now that I'm off the ADT. That is fantastic. It's a shame to have to wait two years to find out, but your treatment seems very good for a high PSA and 4+3 Gleason.
I wish for you continued < 0.1's
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum
callalily - 17 Jan 2007 16:31 GMT Dear Gordy,
> Leah- > [quoted text clipped - 3 lines] > the author (a doctor). Turns out he had been put on probation and > fined for doing exactly what you're describing. It must have been very upsetting for you to find that out. But at least the doc got what he deserved.
> Is it Dr. Strum who says to remember that MD doesn't stand for "medical > deity"? As many times as I hear it, it just doesn't sink in. We are all brought up to respect, even venerate, doctors. It was only after my [father's and] husband's illness that I started to realize that docs are not perfect. Far from it. One of the hardest things I did here was to post a msg. directing newbies to a website (prostate-help.org) where they would get the "lowdown" about docs, be told how they lie, mislead, confuse, abuse statistics, put their own interests ahead of yours (like doing a procedure you don't need), etc And worst of all is the the rampant cronyism that seems to pervade this business.
Still, this loss of innocence is painful. Very painful.
Best to you.
Leah
alva36@gmail.com - 17 Jan 2007 23:59 GMT > Dear Gordy, > [quoted text clipped - 27 lines] > > Leah- Before I made my final decision on treatment method, I had a urologist and a radiation oncologist each calling the other a liar; and I had 2 docs referring to 2 other docs as recommending the treatments they recommended, because "that's where he makes his money". Very discouraging.
-Gordy
I.P. Freely - 17 Jan 2007 02:39 GMT > I have been really down for a couple of days because I felt like I got > scammed at the health food store. That's far enough. I doubt that surprises anyone. The rest is just details. The morale of the story? We must do our research at a) authoritative sources b) that sell nothing.
I.P.
sculptrock@gmail.com - 17 Jan 2007 11:00 GMT Your experience in the health food store is not that unique. The template for marketing prescribed drugs predicts how supplements are sold. One look at a current medical journal reveals numerous ads for drugs followed by studies sponsored by drug companies. Some of the results are legit and some have been tampered with. Couple this with direct TV marketing to consumers and bribing doctors your experience with supplements looks benign.
The fact is our food chain has been messed with and personal diet choice is terrible. Somehow we need to get the right things in our stomachs. Years of poor diet and ingesting pesticides and DNA modulators will not be fixed by a pill bottle. The placebo effect of supplements is probably worth more then the contents. Most of us want to try to undo past harms and most of us want to take back some control of our health from the HMO and the clinic:taking a fistful of over the counter pills is our way of unconsciously telling them to go to hell.
> calla lily wrote: > [quoted text clipped - 6 lines] > > I.P. callalily - 17 Jan 2007 16:43 GMT Dear IP,
> > I have been really down for a couple of days because I felt like I got > > scammed at the health food store. [quoted text clipped - 4 lines] > > I.P. The problem is that I did all that. I thought I was too street-smart to get scammed.
And by the way, don't throw out the baby with the bathwater.
I am planning to order some of these very same supplements at Costco (they have some good pom products, including a liquid supplement) for a fraction of the price.
I believe you're already eating tomato sauce, IP, but I think you yourself could benefit from taking some supps. For example, I thought this business about Vit. D3 was a lot of hooey, but the pc foundation says that it isn't, and they're not selling everything.
I don't think people should torture themselves by eating what they don't like. But I bought my husband some watermelon (polyphenols) which he loves, and the pizza is no problem at all. The only confounding thing is soy; we both eat a lot of it He eats veggie "burgers" and I snack on edamames, which are actually delicious-tasting Japanese soybeans.
So, dang-it, who to believe?
Leah
I.P. Freely - 18 Jan 2007 03:59 GMT > Dear IP,
> I believe you're already eating tomato sauce, IP, but I think you > yourself could benefit from taking some supps. For example, I thought > this business about Vit. D3 was a lot of hooey, but the pc foundation > says that it isn't, and they're not selling everything. I take several supplements and/or have changed my diet slightly in some ways. The vast majority of us need more Vit B12 (probably sublingual) and Vit D3, extra potassium ended my leg cramps overnight, I now eat even less soy (thanks, Ed), glucosamine chondroitin seems to help my knee, we learned how to cook broccoli and even freaking *BRUSSELS SPROUTS* so they taste pretty good, I am gobbling CoQ10 in the desperate advised hope that it will help alleviate the pain my statin initiated last winter, I eat some supplementary protein after serious workouts, and, of course, there's always the ubiquitous $12/year multivitamin multimineral. I'd love to take an enteric coated baby aspirin daily, but cannot tolerate them.
I'm not even convinced of all of those, am even less convinced of most other supplements, but most importantly, could be very wrong.
I.P.
Vincent Paul - 19 Jan 2007 00:27 GMT Have you checked out the procedure known as cryotherapy.....the freezing of the cancerous area of the prostate? It is minimally invasive, and has produced positive results.
callalily - 19 Jan 2007 02:38 GMT > Have you checked out the procedure known as cryotherapy.....the freezing > of the cancerous area of the prostate? > It is minimally invasive, and has produced positive results. Dear Vincent,
I don't know if this is addressed to me, but if it is, then I can tell you that my husband had surgery for PC 14 mos. ago and he is now in remission. We are just trying to do everything in our power to keep it that way, including making any dietary and nutritional changes.
It's interesting that you mention cryotherapy, because this Dr. Katz, who advertises the vitamins, is an expert in cryotherapy -- or maybe cryosurgery. I think I might have mixed up the two.
Anyway, I will keep this info.
Thanks.
Leah
Bob C. - 17 Jan 2007 15:40 GMT > Dear All, > > I got scammed at the health food store. It wasn't so much about money as a > loss of trust. Surprise, surprise! Join the club, been there done that, and I am sure that most of us have been at least temporarily been taken in by one scam or another.
Early on in the battle against my own cancer, I researched everything under the sun assuming that I, a half way intelligent individual, could find some obscure drug/supplement/food/treatment that would help me do battle. In answer to one of my questions directed at my doctor, he chuckled and said that there are a huge number of specialists far more intelligent and knowledgeable than either of us trying to answer that very question. In other words, stop spinning my wheels. He did not say to stop thinking for myself, just stop looking so hard.
Early on, I also discovered that sometimes you had to look really deep to find the connection between what someone was trying to sell you, and how he would profit from your purchase. Unfortunately there always seemed to be a connection. One particular leg of the medical profession, locally anyhow, seems to be good at coming up with proven supplements, available only from company xyz. A good friend of mine has twice now been really bent out of shape because he had the cure to my disease and I would not buy it. He strongly recommended the stuff, approved by an accredited doctor, and how could I dispute all these testimonials, and so on. "Look at this doctors credentials, how can he be wrong?" Now, more than ever, I think that he believes I am an idiot.
Look at the controversy within the established medical field over soy, and many other supplements and treatments and procedures. I suspect that many of us take lycopene, for example, and maybe pomegranate, and other supplements, in the assumption that they may help, probably will not hinder, and do not cost too much.
> This is a rant, vent or whatever you call it. I enjoy reading an intelligent and legitimate rant. Who of us has not been there. More than once. You did your reading and research but were still taken in as a result of deception, misrepresentation, and maybe even out and out lies, but you did discover the truth and here you are.
> They suggested that men who are basically healthy need only take a > multivitamin once a day. Even here, somewhere in the past I have come across something suggesting that a couple of the components in most multivitamins may be detrimental to a prostate cancer patient. And my memory might not be real good here and I sure would not want anyone to stop taking something because of anything I might say, I admit freely to knowing nothing.
I thought tomyself, "If Dr. Lowe were a pca patient, he'd be putting tomato sauce
> in his coffee. And eating cruciferous vegetables with pomegranate > dressing." I'll bet money that you are right.
> Anyway, that's when everything started to go downhill. Actually, that's when things began to get better, you saw the light. What would have been unfortunate would have been to have continued on down this road believing that you were helping fight off the beast. A couple hundred dollars a month would have well worth a benefit. Imagine how unhappy you would have been to have finally seen the light some years down the road. There would be a new definition for Road Rage.
> Thanks for listening. Thanks for writing. For me, this newsgroup is very beneficial in that it is a good source of diverse opinions, and venting, from people of all walks of life who have been put into the same boat fighting the same beast. Living in the boondocks, and not seeing my doctors too often, this is an important source of prostate related news for me. Without the Internet, I'd be really uninformed. As you know, there are some really intelligent men and women who post here as well as a bunch of us average john doe's, but we all do have some thing to contribute now and then.
There, you had your rant, I did my babble. Have a good one. Bob C
callalily - 17 Jan 2007 17:09 GMT > > Dear All, > > > > I got scammed at the health food store. It wasn't so much about money as a > > loss of trust.
> Surprise, surprise! Join the club, been there done that, and I am sure > that most of us have been at least temporarily been taken in by one scam [quoted text clipped - 8 lines] > very question. In other words, stop spinning my wheels. He did not say > to stop thinking for myself, just stop looking so hard. I am going to follow my own advice and look at endotext.org, which is directed toward practicing docs and is really "a no-spin zone". My own doc looked up "preventing pca" in some medical encyclopedia, and I think all they had listed was "cruciferous vegetables".
> Early on, I also discovered that sometimes you had to look really deep > to find the connection between what someone was trying to sell you, and > how he would profit from your purchase. Unfortunately there always > seemed to be a connection. One particular leg of the medical profession, > locally anyhow, seems to be good at coming up with proven supplements, > available only from company xyz. That is exactly my story. It is insidious when doctors are selling stuff to the general public, because we trust them so much. In the book I got, the only reference to all these "sponsors" was buried in the "Acknowledgements" section. And it was less than one line.
A "Look at this doctors credentials, how can he be wrong?"
His credentials were stellar. And I still can't believe Columbia U. Hospital would get involved in such deception. What really bothered me is that that the university came crashing down. I can't believe they're down to peddling vitamins. They are one of the richest nonprofits in this country.
I really am going to *make myself* send a letter, certified, to the head of the hospital and (maybe cc. the head of uro, the famous Dr. M. Benson). I will include a copy of the "advertisement".
> Look at the controversy within the established medical field over soy, > and many other supplements and treatments and procedures. I suspect that > many of us take lycopene, for example, and maybe pomegranate, and other > supplements, in the assumption that they may help, probably will not > hinder, and do not cost too much. I am going to order these supps myself (for him). And if they have a psych effect, that's enough for me. I read that lycopene by itself doesn't work. "Tomato powder" has been shown to work, but have you ever heard of that?
> > This is a rant, vent or whatever you call it. > I enjoy reading an intelligent and legitimate rant. Who of us has not > been there. More than once. You did your reading and research but were > still taken in as a result of deception, misrepresentation, and maybe > even out and out lies, but you did discover the truth and here you are. Well, I have to tell myself that I learned something from this experience. I feel a lot better knowing that other people can relate to it. I'll probably be writing a letter to the next person...
> > They suggested that men who are basically healthy need only take a > > multivitamin once a day. [quoted text clipped - 3 lines] > and I sure would not want anyone to stop taking something because of > anything I might say, I admit freely to knowing nothing. I think multivitamins must be pretty safe because everyone takes them. My only concern was seeing calcium on the label, it is supposedly bad for pca patients. There was an article in the NY Times about this subject yesterday, and they said that last year in the US, 15 people died from taking supplements vs. 235,000 from over the counter painkillers.
> > > Anyway, that's when everything started to go downhill. > Actually, that's when things began to get better, you saw the light. [quoted text clipped - 3 lines] > how unhappy you would have been to have finally seen the light some > years down the road. There would be a new definition for Road Rage. Yes, these patented vitamins were really expensive. One of them consisted of a whole lot of spices. But I admit, part of me still thinks they were really the best thing that's out there and would have been good for him in exactly those combinations (synergy).
> > Thanks for listening. > Thanks for writing. For me, this newsgroup is very beneficial in that it [quoted text clipped - 8 lines] > > There, you had your rant, I did my babble. Have a good one. Bob C Thanks for this long letter. I feel so much better now.
Leah
Alex - 17 Jan 2007 23:34 GMT > I still can't believe Columbia U. > Hospital would get involved in such deception. What really bothered me > is that that the university came crashing down. I can't believe > they're down to peddling vitamins. They are one of the richest > nonprofits in this country. The hospital of Columbia University is "Columbia University Medical Center," also known as "Columbia Presbyterian Hospital." If you saw vitamins being peddled with an endorsement of "Columbia University Hospital," that's probably a pretty good indicator that the manufacturer is scamming you.
callalily - 18 Jan 2007 00:43 GMT Dear Alex,
> > I still can't believe Columbia U. > > Hospital would get involved in such deception. What really bothered me [quoted text clipped - 6 lines] > peddled with an endorsement of "Columbia University Hospital," that's > probably a pretty good indicator that the manufacturer is scamming you. You're right for catching that. But I was just being brief. There is no Col. U. Hospital. But unfortunately, this doc does work at that hospital. Everything I wrote is true. The book, "Prostate Health" says that the author, Aaron Katz, MD, is Associate Professor, Clinical Urology and Director, Center for Holistic Urology, Columbia U. I think they just left out Med Ctr.
I looked at the hospital website and he and his "holistic" center are all there. It makes me feel even worse because he works under one of the most highly-reputed pca doctors, Mitchell Benson.
These hospital mergers are confusing everybody.
Forex, I have a paper on nutrition in front of me from a doctor who lists himself as Dr. Franklin Lowe, Dept of Urology, St-Lukes-Roosevelt Hospital, and Dept of Urology, Columbia U., College of Physicians and Surgeons.
This was really confusing and surprising to me I had no idea that St. Luke's (the closest hosp to me) was now part of Columbia. I asked my own doc, "How can this man be in 2 hospitals at the same time"?. I know the guy works full-time at St. Lukes, and my doc said that the Columbia part is just a prof'l "appointment". It means that he is listed as part of Columbia's Uro Dept. But I'm not sure.
Also, I'm not even sure that Columbia Presb. even exists anymore. It became New York Presb. when it merged with NY Hospital. But I still use the old name.
What always gets me muddled is New York Hospital and Weill-Cornell. (One is the hosp, second is the med school). Also, I am starting to wonder if NY Hosp. has some connection with MSK. They are right next door to one another. Plus, I'm curious because there is a doctor of "sexual medicine", John Mulhall, who works at both places. It wouldn't surprise me if those two had gotten hitched.
Boy, I feel like I need some Omega-3 for my Brain.
Best to you.
Leah
Beverley - 19 Jan 2007 03:05 GMT It is not unusual for doctors to be associated with more than one hospital. Often a group may have more than one location and therefore "the group" uses the hospitals in that area but rather than apply as an individual to practice in that hospital they apply as a group. Also in our area there are two big hospital groups: Sentara probably owns about 7 hospitals and Bon Secours owns several in our area and more in Richmond, VA . I'm not positive about Bon Secours but any physician with Sentara can use any Sentara hospital. Our own rad-onc is at MCV Hosp. in Richmond and at McGuire Med. Center in Richmond. He bounces between the two daily. Bev
<SNIP>
> I asked my own doc, "How can this man be in 2 hospitals at the same time"?. <SNIP>
> Leah callalily - 19 Jan 2007 03:31 GMT Hi,
> It is not unusual for doctors to be associated with more than one hospital. > Often a group may have more than one location and therefore "the group" uses [quoted text clipped - 6 lines] > Center in Richmond. He bounces between the two daily. > Bev I need a translator to understand this! You must be a lot smarter than I am. I think it's even more complicated than that. Forex, a doctor can have admitting privileges at several hosps but may not actually work in any of them.
What is especially confusing in NYC is that there have been so many hospital mergers in recent years. They are all doubling and tripling up, maybe for the synergy. For example, when NY Hospital merged with Columbia Presb., the new name was New York-Presbyterian. However, I still see the old name used by the hospital itself. Apparently, Columbia Pres.has become the "Columbia Campus" of NY Hospital. I don't think there's a soul that knows that.
O.T: My husb. just showed me a cartoon in New yorker mag. A patient is sitting on an examination table. The doctor hands her a prescription and says, "Try this. I just bought 100 shares".
I am on a writing binge because the TV is broken.:-))
Leah
Bill - 17 Jan 2007 16:02 GMT "So it occurred to me to look for something that Steve K. had mentioned here called Theraflex Prostate 2.2. I thought that might do in the meantime and at least I could carry it home."
It's Theralogix Prostate 2.2 and is available only from the manufacturer. www.theralogix.com I have been taking it for several years on the rec of one of my uros. It is $65 for a 3-mo. supply.
So what you will about supplement huckstering but Strum for one highly recommends them and specifically recommends Life Extension products. I don't know if that says something about supplements, about Strum, or both.
Bill Denton RP 2/12/02 PSA 1.10 Memphis
callalily - 17 Jan 2007 17:35 GMT Dear Bill,
> "> It's Theralogix Prostate 2.2 and is available only from the > manufacturer. www.theralogix.com I have been taking it for several > years on the rec of one of my uros. It is $65 for a 3-mo. supply. Thanks so much! I looked at the website and am going to order it right away. It says $70 for 2 mos., which is a lot, but it contains a whole lot of stuff. It's better than taking 100 pills a day.
You wouldn't believe how anxious I was to get him on *something* immediately, like yesterday. I felt like I should have done this a year ago. But then we were concerned with ED and other things. The timing of this was not a coincidence. The dreaded psa test results were supposed to have arrived a few days ago and I was nervous. So I tried to "empower" myself in some way.
I don't see why the surgeon hadn't told him, "You know, it wouldn't hurt to eat tomato sauce twice a week". It might help and it won't harm. But I guess they don't venture into this turf, and they are too lazy, anyway.
I'm a little nervous about the 1600 mg of Vit. D, but the pc foundation (40-page book on nutrition) implies that it's good for you. And its got the vit. E and selenium (more synergy) and I think it also has lycopene. That's very convenient. And if you say it's good quality i'll take your word for it. I feel relieved that I don't have to start from scratch again.
> So what you will about supplement huckstering but Strum for one highly > recommends them and specifically recommends Life Extension products. I > don't know if that says something about supplements, about Strum, or > both. I have nothing against Dr. Strum, but wouldn't it be so easy for him to add a few words say, in his advice to a patient (and a whole ML readership), when recommending LEF products, specifically, to just say that he's on their Board, they market his book and they sponsor the PCRI newsletter.. I think this "appearance of impropriety" is maybe what alienates certain member of the med. profession and it is a shame because I believe, more than ever, that he has something unique to contribute. I am planning to download his "diagnostics" form and I have seen some of his "weird" tests discussed in endotext.org, a website for doctors.
LEF bothers me because its so patently for-profit, so why don't they just say so. It's bilking the taxpayers. If you read their mission statement, it says the foundation was started as a "vitamin co-op", presumably to enable members to get discounted supps. Well, the supps don't seem cheaper to me than what I see on other sites. And the research they sponsor is bogus. They earn a whole lot more money than the $2 million a year they claim to donate for "research". So somebody is getting very rich off us, which is perfectly okay, but they don't need to claim to be virtuous.
Leah
Ron B - 17 Jan 2007 18:27 GMT Leah, I'm so sorry for your experience.
I had a RRP in March of 2005 by Dr. William Catalona of Northwestern Memorial Hospital in Chicago, where I live.
Thank God, and him...things are OK so far.
The foundation publishes a quarterly (?) newsletter called 'Quest'...and in one issue he speaks on supplements.
His thought at the time:
30mg of Lycopene daily (I get it at GNC cuz most supps are 10mg...)
200mcg Selenium daily...which is easy to find.
And Vitamin E 30mg daily (That's 100% of the MDR and he feels that's enough...but 100 or 200 probably is safe.)
So I take them all...the Vitamin E in a 'One-a-day.cholesterol formula vitamin' which has a variety of generics at CVS etc.
Being diabetic...I don't drink the Pom juice (which I LOVED)...(too much sugar)
and the Lycopene 30mg in capsule form cuz Tomatoes have a lot of sugar...if you want to get enough Lycopene.
I eat Soy Burgers daily...due to the diabetes.
And...thoughts of broccoli is no problem cuz I eat that also.
I know MY case is different than your dear hubby...and I should have URL's to show this stuff...but I just wanted to tell you..
and...you can go to www.drcatalona.com and look around in his Quest articles to find the exact words.
All my best,
Ron B.
Chicago
callalily - 18 Jan 2007 17:29 GMT Dear Ron,
> Leah, I'm so sorry for your experience. > [quoted text clipped - 39 lines] > > Chicago Thanks for the info. I do agree with you that Dr. Catalona is someone we can trust who knows what he's doing. He did brachy on my father-in-law, so FIL sent me a copy of Quest newsletter, which I found really impressive. Also, the website seems very useful. Somebody in one of these groups wrote that he sent Dr. C. an email and the doc responded, which is nice.
I must say that you and I are probably the only people in the world who *love* pomegranate juice. (I steal from his.) You hear a lot of complaints about the taste; my husband has to mix it with grape juice or orange juice for it to be palatable.
Leah
Claude - 18 Jan 2007 18:44 GMT > I must say that you and I are probably the only people in the world who > *love* pomegranate juice. (I steal from his.) You hear a lot of > complaints about the taste; my husband has to mix it with grape juice > or orange juice for it to be palatable. > > Leah Havent been following this thread closely, but just picked up on this. I wonder if the difference in affection for the taste of pom juice has to do with whether or not one drinks pure juice (I have and hate it.) or the drink you see on the shelves that has other juices (probably apple) mixed with it. I can't see the general public liking the taste of the pure juice. I ended up mixing it with orange-flavored metamucil and water.
callalily - 19 Jan 2007 03:12 GMT Hi Claude,
> "callalily" <lfcjjk@aol.com> wrote in message >> >> Havent been following this thread closely, but just picked up on this. I [quoted text clipped - 3 lines] > I can't see the general public liking the taste of the pure juice. I ended > up mixing it with orange-flavored metamucil and water. Well, I'm the exception, I like the pure juice. I just take a little of it and put it in a pitcher of water and it is adds a lot of flavor. Maybe it tastes better because it's less concentrated. I actually prefer pom juice because I find that a lot of other fruit juices are cloyingly sweet and pom has a nice tart taste.
To make it even worse, I love the pomegranate fruit. I used to eat it occasionally back home. I would just cut open the fruit and eat the seeds. Yum-yum.
But the normal people are on your side. My husband will only drink pom mixed w/grape juice or orange juice. When I told him before that somebody else in this group likes pom juice, he asked: "Is there something wrong with him"? It really offends me to hear things like that. In some cultures pomegranate was considered a sacred fruit.
At Christmas time at my food store there was a display of at least 10 different kinds of pom juice together with all kinds of gourmet goodies, special for the holiday. Apparently, a lot of people consider pom juice a delicacy. And you probably couldn't afford it anyway.
On the subject of poms, I have an important msg to convey to everybody. I mentioned that I had read a paper on nutrition and pca written by a doctor at Columbia who had very exacting standards. Well, one thing he did say was that laboratory studies have shown that pomegranate juice works best *when combined with pom extracts*. Here's the text (by Drs. Santillo and Lowe):
"Studies in breast cancer have demonstrated the juice to have significant potential for the downregulation of angiogenesis. Certain fractions, especially the seed oil, are known to have estrogenic activity . Also, as with Vit. E, the punicic acid in pom *seed oil* inhibits prostaglandin formation."
**In vitro studies have also show a synergistic inhibition of prostate cancer cell invasion from the appplication of *a combination* of pom extracts. Recent research has shown that the beneficial effects of the various extracts of pom juice are enhanced when combined with the other polyphenols found in juice."
Well, folks, I am just going to order pom softgels and a special pom liquid supplement from Costco. It is the only place that is affordable. Spouse does not want to pay $1.50 for 8 oz.of pom juice. The pom supplement contains 32 oz. for 18.99? and the daily dose is 1 oz. So this is a heck of a lot cheaper.
Anyway, I think everybody should combine the two and go for the synergy. What's the big deal.
Best to you.
Leah
Alex - 17 Jan 2007 23:56 GMT > Dear Bill, > [quoted text clipped - 5 lines] > away. It says $70 for 2 mos., which is a lot, but it contains a > whole lot of stuff. It's better than taking 100 pills a day. If you are going to use supplements (I do, but many here believe them to be essentially worthless), you might want to do some comparison shopping. The recommended dosage of two capsules per day of "Theralogix Prostate 2.2" contains: 100 units of Vitamin E 1,600 units of Vitamin D3 200 mcg of Selenium 30 mg of lycopene 50 mg of soy isoflavones
Each of these can ingredients easily be purchased separately, over the counter in capsule form, at any neighborhood healthfood store, and in the supplements aisle of many supermarkets and drug stores. My guess is that buying locally would save you some money, avoid the hassle and delay of mail order, and allow you to modulate the dosage as you prefer -- perhaps more lycopene, less Vitamin D3, no soy, for example. And if you are going the supplement route, you might want to add in garlic, calcium and other couldn't-hurt-and-might-help ingredients. Buying a pre-compounded capsule means you put all your faith in the quality control of one manufacturer, and have little ability to adjust the dosage to your own preferences.
I have a similar concerns about "Prostosol," a widely-promoted and quite costly (over $100 per bottle) product marketed as a prostate cancer treatment. It is a simple mixture of half a dozen or so Chinese herbal remedies -- not items you are likely to find on the shelf at Safeway, but certainly available in any major city or online, at a tiny fraction of the cost. Some pre-compounded versions of Prostasol had to be pulled off the market because they were contaminated with estrogen. A blend-it-yourself mixture would be less susceptible to accidental or deliberate contamination.
Beverley - 19 Jan 2007 03:25 GMT Leah, do a quick search and you may find that you don't need Vit D added to the diet unless you live someplace such as Alaska. Something like 10 minutes of exposure to the sun (even on a cloudy day) per day is equivalent to (?) mg of Vit D. Bev
> Dear Bill, > [quoted text clipped - 52 lines] > > Leah I.P. Freely - 19 Jan 2007 05:50 GMT > Leah, do a quick search and you may find that you don't need Vit D added to > the diet unless you live someplace such as Alaska. Something like 10 minutes > of exposure to the sun (even on a cloudy day) per day is equivalent to (?) > mg of Vit D. Only in the southern U.S. or its lateral equivalent on other continents, only in the warmer months, and only for lighter skin. The rest of us usually need extra D, and it's critical to many body systems and functions.
I.P.
callalily - 17 Jan 2007 18:29 GMT Dear All,
A final word on nutrition and pca:
I don't want to be scolded ever again by some doctor or food evangelist for not having been born Japanese (but lucky for some of us, not afro-american either, that's even worse). The truth is that the touted Japanese diet may not cause pca, but the Japanese also have sky-high rates of stomach cancer! I know which I'd pick in a minute. In fact, the famous Japanese film director, Kurosawa, made a film about a man dying of stomach ca (Ikiru), and that's not a very "sexy" topic for a movie, so it had to have resonated with some folks.
Maybe it's time for the Japanese to try some red meat (grilled!!) and french fries..
Then we are told that we had brought this all upon ourselves by following the infamous "Western Diet". For example, according to the author of this book, I am supposed to be eating at Macdonald's all the time, and when I'm not gorging myself there, having "huge platters of fried chicken and mashed potatoes". Then, there are all the "Hungry Man" frozen dinners (red meat, oversized portions), hot dogs, hamburgers and deli meats. Not to mention butter, sugar, "cheez-doodles", whole milk and Wonderbread. And all those snacks! Empty calories.
Add to this a whopping dose of saturated fats, trans-fatty acids and pesticides, and you've just about got the "Western Diet" right.
Well, this doc is eating too many of the wrong kind of mushrooms, in my opinion. The truth is, the food puritans have been on our case for decades, and we have all been converted, to whatever extent. My husband and I are not on any special diet, but nevertheless, we buy:
Lean Cuisine, veggie dogs, veggie burgers and even veggie pastrami. Brown rice instead of fluffy potatoes. Then there's the 7-grain bread, sweet 'n low, I can't believe it's not butter (he has switched to olive oil), skim or 1% milk and even diet potato chips. Crystal Light for me and Diet iced-tea (green) for him
,,,,, and we almost always eat at home, not at Burger King.
There's plenty more but I have to go.
Leah
I.P. Freely - 18 Jan 2007 04:16 GMT > Lean Cuisine, veggie dogs, veggie burgers and even veggie pastrami. Oops; *soy*! Bad for PC pts. The man eats PIZZA; a little red meat ain't gonna hurt him. '-)
> Then there's the 7-grain bread. Not good enough; most of it is not whole wheat. Gotta watch for at least 3 gms of fiber per slice and a first ingredient of "whole wheat".
> sweet 'n low, I can't believe it's not butter (he has switched to olive > oil), skim or 1% milk and even diet potato chips. Crystal Light for me > and Diet iced-tea (green) for him > > ,,,,, and we almost always eat at home, not at Burger King. The Mediterranean "diet" opens up a huge variety of foods of most ethnicities, because it's a basic eating concept, not a rigid diet. You can incorporate it into almost any cuisine. It's also the only diet proved to prolong lives, and is the most common way of eating in a huge study of people who lost weight and kept it off for years.
I.P.
WhiteSoxFan - 18 Jan 2007 15:43 GMT Omega-3 this and omega-3 that! From what I've gleened from various articles in this group and others, there are two types of Omega-3. One from fish and the other from flax seed. A few studies recommend eliminating the flax seed. Which now causes me to have to read the fine print to the multi-grain foods. And while were on the subject of the yin-yang of cancer treatment we can't forget Dr. Shakespeare's famous line "to soy or not to soy, that is the question! Actually, reading the fine print is the bottom line lesson to all this. Just one more little tidbit of wisdom to Leah who started this whole wonderful thread, You had a bad experience that has blossomed into a huge tree of knowledge. You now know not to take anybody's suggestion at face value, and that includes your own Onc, your neighbor, your personal trainer, hell even your dog walkers advice may be as good as anybody elses. It's just advice that you have to research too. You have to research it. And you have to decide for yourself the 49% that is BS and sally forth on the 51% that you feel is reasonably acceptable for your condition.
WhiteSoxFan
Alan Meyer - 17 Jan 2007 20:21 GMT Leah,
Sorry you had such a horrible experience with all this.
My take on supplements is probably the same as yours. There is no hard, incontrovertible evidence that any of them work. There is some possible evidence that some of the may do some little good, including some such as tomato juice, green tea, pomegranate, and others that are based on foods that millions of people have eaten for years and are probably as safe as anything else we eat.
So I take some of those. But I won't take megadoses of anything, won't buy expensive stuff, and won't take exotic supplements that are not based on foods we have all eaten for years.
Am I doing myself any good? Very possibly not. I do it as much as any other reason because it makes me feel like I'm doing _something_ and not just being completely passive in the face of health problems. But I'm not optimistic that they are really helping me.
As for Columbia University, remember, the doctor you are dealing with is a proven liar. He may very well not have any association whatsoever with Columbia. He may not even be a doctor, though I expect he probably is since there is no honesty filter that the med schools have to filter out the dishonest rascals that walk in their doors. At any rate, his association with Columbia, even if there is one, might be that he once attended a lecture there or managed to get in a few times to treat one of his patients who was hospitalized there.
Unfortunately, I believe there are many doctors who really know hardly anything about medical science, don't really know what cancer is and, although they managed to get degrees, are not qualified to treat anybody. How many of them crammed for their classes and managed to pass the exams, then promptly forgot whatever they might have temporarily memorized? How many of them learned some formulas by rote in order to parrot them back on exams, but never understood them at all?
It wouldn't surprise me if 10% or 20% of people with MDs are totally unqualified to practice medicine, and an equal percent are totally unethical.
Alan
Beverley - 19 Jan 2007 03:12 GMT You know what the call the guy who graduates at the bottom of his class from med school? Doctor.
<SNIP>
> Unfortunately, I believe there are many doctors who really > know hardly anything about medical science, don't really [quoted text clipped - 11 lines] > > Alan NICK - 17 Jan 2007 22:39 GMT Leah wrote:
> I got scammed at the health food store. These are a very few of more than 4,000 sayings I've collected and used in FidoNet the past 17 years. <g>
Forget the health foods. I need all the preservatives I can get.
Life a clean, healthy life and you will soon die of boredom.
Health is merely the slowest possible rate at which one can die.
When I die, I'm leaving my body to science fiction.
Health nuts are going to feel stupid someday, lying in a hospital dying of nothing.
Beverley - 19 Jan 2007 03:21 GMT Reminds me of the old joke about the elderly couple that were killed in a car crash. They get to heaven and they were given the grand tour. The dining room was filled with all the of the man's favorite foods, potatoes stuffed and overflowing, every meat imaginable, breads, cakes, candies, pies, you name it, and it was there. The man asks if they can really have anything they want and they are assured that they can. Then they are taken out to view the many golf courses, beautiful beaches, secluded lakes, etc. Everything is magnificent! The man asks his host if all of this can be used and he is assured that everything here is free to be used. Along their way they run into old friends that passed away before them and everyone is happy in heaven. The man looks at his wife, shakes his head, and says, "You know if it hadn't been for you and your damn bran muffins we could have been here ten years sooner!" Bev
> Leah wrote: > [quoted text clipped - 13 lines] > Health nuts are going to feel stupid someday, lying in a hospital > dying of nothing. callalily - 19 Jan 2007 21:35 GMT Dear All,
> Dear All, > [quoted text clipped - 4 lines] > Anyway, if you don't want to read it, please let me indulge myself. > This is a rant, vent or whatever you call it. I just wanted to thank you all for your being so understaning and for giving me a whole lot of useful info. You were really wonderful. And also the people who helped me with some research.
I finally made my purchases and I am going to list the things I bought because they might be useful to somebody. I think I can say I bought what each and one of you suggested, because I spent $200. I guess I am wanting to throw the kitchen sink at him. .
Maybe he will need all this help. He got a PSA reading today of .12, up from <.01 last time.:-)) Could this be a fluke?
Here's my list. (Don't Laugh)
[First I want to say something about Theralogix Company. They are not an ordinary vitamin co! Everything about them is absolutely great. The most impressive thing about them is their list of "medical advisors". It reads like a "who's who" of medicine. Nobel prize material. Seriously, the doctors who consult for them are *the very best* and so I am willing to believe that the formula they put together is good. They also reevaluate it every three mos. so that it conforms to the latest research. You are supposed to take 2 pills a day, so that's a lot of Vit. D, but I read that vit. D does not work in doses under 1500 IU, maybe more. About soy, the jury is still out.]
Anyway, if you want a good supplement made by a good company, check this out.
Theralogix Prostate 2.2. $74.95 1 mo. 2/day, 60 tabs
100 IU vitamin E (as mixed tocopherols) 1600 IU vitamin D3 (as cholecalciferol) 200 mcg selenium (as selenomethionine) 30 mg lycopene (as Lyc-O-Mato?) 50 mg soy isoflavones (as Novasoy
Costco
Pomegranate softgels 18.29 120 caps 1040 mg seed oil 60% Ellagic Acid (fruit extract)
Nature Made Omega 3 13.29 1200 mg, 300 caps Blueberry Concentrate 8.69 500 120 Odorless Garlic 12.29 500 mg 300 c.
Lucky Vitamins
Source Naturals Broccoli Sprout Tablets 19.24 60 tabs Nature's Way Turmeric Extract 7.90 60 tabs
I must say I thought the broccoli sprout pills were a miracle. You can't expect someone to eat 5 servings of cruciferous vegetables in one week. I hope it works.
And don't forget: You "significant others:" remember to get yourself a treat. I bought myself a lavender eye pillow and an aromatherapy essential oil called "relax". I think I'll need it.
Have a good weekend.
Best to you all.
Leah
I.P. Freely - 20 Jan 2007 02:57 GMT > I must say I thought the broccoli sprout pills were a miracle. You > can't expect someone to eat 5 servings of cruciferous vegetables in one > week. I usually do, and enjoy it, even though I won't go near cauliflower. A serving is very small, just a few ounces; I eat close to 8 servings (4 ounces is a serving) of veggies just as a part of breakfast almost every day. And we've seen repeatedly that extracts, pills, etc. don't match the benefits a whole source food may have shown in studies and even cause harm in some cases such as Vit A. Extracts don't provide anywhere near the micronutrient balance of their parent food (biologists have been amazed over the decades at the clever balancing acts nature provides).
I cannot fault your approach, as long as you two can afford it and research shows you're doing no harm. If your husband lives happily ever after, you'll be glad you threw the kitchen sink at it. If he doesn't, you'll be glad you did everything you could. *That* may be its primary benefit, with no SEs other than the cost or the possibility of people substituting that approach for mainstream treatment.
I.P.
NICK - 19 Jan 2007 23:11 GMT Leah wrote:
> Dear All, > > I have been really down for a couple of days because I felt like I got > scammed at the health food store.
> Aaron Katz, MD, Assoc. Prof., Clinical Urology, Director, Center for > Holistic Urology, Columbia University.
> On the cover there was a blurb by Dr. Mehmet Oz, a holistic doc > whom I knew to be respectable (and I believe he had even > operated on Bill Clinton). He was on the team, but did not himself operate on Clinton.
Everyone, I sent Leah 7 pieces re: this. 3 bios (there are TWO "Dr. Katz", and 3 stories of Oz's appearance on Oprah's show where he says:
When it comes to figuring out if you're digesting things properly and eating healthy, Dr. Mehmet Oz says that you should rely on your senses in the bathroom. For starters, have you ever thought about the importance of what your bowel movement sounds like when it hits the water? Listen up!
"You want to hear what the stool, the poop, sounds like when it hits the water. If it sounds like a bombardier, you know, 'plop, plop, plop,' that's not right because it means you're constipated. It means the food is too hard by the time it comes out. It should hit the water like a diver from Acapulco hits the water [swoosh]."
The next thing Dr. Oz recommends is looking at your stool -c'mon, you've done it before! You should look twice- look at the shape and then, the color.
"It should be an S shape and you want to make sure the color's normal because the color of the poop tells you a lot about how you made it," Dr. Oz says. "You don't want [pieces]. Food is a medicine for you. It helps you. [If the stool is in pieces] by the time you finished digesting your food, you don't have enough of it left to poop out in the right way and probably it's hurt the colon that has to process it. At the end of the day you can analyze your body really effectively by looking at what comes out of your body."
Methink the doctor has a fettish, and it ain't bras or shoes. <g>
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