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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2007burning, bleeding 18 months aft. Rad
I am at 18 months after radiation and seed implants for prostate cancer. My PSA is now down to .19. Doctor says all looks good. The bad side is that for now 3 months I burn every time I urinate. And if it burns bad enough, I have a little blood at the end of urinating. The burning seems to be in the urthea tube from the prostate out, but most burning is right beneath my penis toward the end of it. I think also this is where the blood is coming from. Is there no relief? I have tried flomax again to my rad doc instructions, urologist gave me some more pills that turn your urine yellow, but nothing relieves the burning, and ultimate a little bleeding. I have read all these cases just like mine, but I have yet to read one where anything helped but holding on, spitting, and groaning. Anything out there at all...how long is this going to go on? Thanks >I am at 18 months after radiation and seed implants for prostate cancer. >My PSA is now down to .19. [quoted text clipped - 10 lines] > where anything helped but holding on, spitting, and groaning. > Anything out there at all...how long is this going to go on? Thanks He did rule out a bladder or kidney infection, didn't he?? I see he gave you pills for one (turn your urine orange ones)......but I would ask him if he did a simple lab test for a more resistant infection. Guessing doesn't count!! They can be quite painful. Cheers......Heather >>I am at 18 months after radiation and seed implants for prostate >>cancer. My PSA is now down to .19. [quoted text clipped - 11 lines] >> one where anything helped but holding on, spitting, and groaning. >> Anything out there at all...how long is this going to go on? Thanks > I am at 18 months after radiation and seed implants for prostate cancer. My > PSA is now down to .19. > Doctor says all looks good. The bad side is that for now 3 months I burn > every time I urinate. Burning and a hint of bleeding started for me at 18 months after IMRT and Pd-103 seeds. This is still going on at 26 months. It is slightly improved. I would not call this a bad side effect but it is noticeable. -kh >I am at 18 months after radiation and seed implants for prostate cancer. >My PSA is now down to .19. [quoted text clipped - 10 lines] > where anything helped but holding on, spitting, and groaning. > Anything out there at all...how long is this going to go on? Thanks You reported this awhile ago. I can't imagine what it must be like to have it going on this long. I have no answers for you, other than drinking more water -- which you have probably already tried.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum I'm not sure you will find this helpful or hopeful but you are not completely alone. My hubby takes a pill every day so that he can get his stream started without gripping the towel bars, falling to his knees, and acting as if he's trying to pass a kidney stone where his prostate used to reside. He's 4 years and 8 months out of treatment; he too had 5 weeks of radiation and then seeds. The good news is that he can urinate normally if he's taking something for it. Recently his doc took him off of hytrin and had him try ALFUZOSIN HCL 10 MG SA TAB. I can't tell you much other than this has worked better for him than anything else. And it is time released so he only takes one per day. He has never had blood in his urine. I'm not a doctor but I suspect you have a little blood vessel involved and that would cause a burning sensation. I think a urologist might be the one who could "fix" the problem but I'm almost positive that a urologist is going to try everything else first such as different medications. Bev > I am at 18 months after radiation and seed implants for prostate cancer. My > PSA is now down to .19. [quoted text clipped - 10 lines] > where anything helped but holding on, spitting, and groaning. > Anything out there at all...how long is this going to go on? Thanks After listining to the other comments; would there be a slight reddish rash? If so, grab some Desinex and apply. That will keep the area dry and comfortable. All sounds normal..... Gourd Dancer >I am at 18 months after radiation and seed implants for prostate cancer. >My PSA is now down to .19. [quoted text clipped - 10 lines] > where anything helped but holding on, spitting, and groaning. > Anything out there at all...how long is this going to go on? Thanks > After listining to the other comments; would there be a slight reddish rash? > If so, grab some Desinex and apply. That will keep the area dry and > comfortable. All sounds normal..... Burning while urinating is _normal_? Maaaann, that just doesn't get the message across; let me rephrase it: Burning while urinating is *NORMAL*? Yeah . . . THAT feels better. <:-) And how, pray tell, do we get the Desinex inside the urethra? ROTFL? I don't think so. VBG I.P. pain free "... but most burning is right beneath my penis toward the end of it." Tsk, tsk. IP, I guarantee you that diaper rash caused by leaking and/or indirect flow of urine dripping from the urethra opening onto the head of the penis ((below) will cause a sensation of burning. And, unfortunately there are not alot of men who without a self examination of the area can tell the difference as to exact location or PCa aged men who remember what it was like to change a diaper.... Ease up my friend, read; and then, offer constructive comments. Gourd Dancer >> After listining to the other comments; would there be a slight reddish >> rash? If so, grab some Desinex and apply. That will keep the area dry and [quoted text clipped - 9 lines] > > I.P. pain free > "... but most burning is right beneath my penis toward the end of it." > IP, I guarantee you that diaper rash caused by leaking and/or indirect flow > of urine dripping from the urethra opening onto the head of the penis [quoted text clipped - 3 lines] > of the area can tell the difference as to exact location or PCa aged men who > remember what it was like to change a diaper.... I'm at radiation+27 months. From radiation+18 months, I've had a slight urethral burning or stinging and hint-of-pink at the first pee in the morning. This is definitely not diaper rash. The burning is about mid-way up the inside of the tube to an inch in from the opening. The outside looks fine, smooth skin, veins, shiny head; stunningly attractive, I'd call it. -kh not that I've had independent review by art critics Gee, kh, I did not know that you and William are one and the same person. GD >> "... but most burning is right beneath my penis toward the end of it." > [quoted text clipped - 22 lines] > > -kh not that I've had independent review by art critics kh on a more serious side of the discussion, in your case I would expect three possible long-term side effects: 1. chronic bladder outlet obstruction. 2. urethral ulceration 3. urethral necrosis with resultant pelvic pain With the most logical being, urethal ulceration. One would expect in this case, increased urinary urgency and a burning or stinging sensation during urination, similar to that of a bladder or prostate infection. In my case after 57 months of Pd 103 seeds te closest I get is the chronic bladder outlet obstruction. Normally I am only able to completely empty my bladder 2-3 times a day and partial emptying the balance..... I drink 64 oz of water a day.... To combat this I take 4.0 mg of Flomax twice a day. It was a known side effect and one that I was willing to live with. GD > Gee, kh, I did not know that you and William are one and the same person. > [quoted text clipped - 26 lines] >> >> -kh not that I've had independent review by art critics > Gee, kh, I did not know that you and William are one and the same person. > > GD I guess I didn't have permission to mention my experiences? OK. I'll be quiet. -kh Let me know when it's my turn. lol, the diaper rash thing was a last ditch try at helping him understand possible causes based on his symtoms and what others had written. So it wasn't necessarily applicable to you. This path that we are all on is unique with experiences differing for patient to patient. I think the support group is more about sharing the unknown.... We are all guessing based on our own personal experiences which may or may not apply to us. Good luck with the stinging, only a specialist in Urology will know how to approach your symptom.. GD >> Gee, kh, I did not know that you and William are one and the same person. >> [quoted text clipped - 4 lines] > > -kh Let me know when it's my turn. > lol, the diaper rash thing was a last ditch try at helping him understand > possible causes based on his symtoms and what others had written. So it > wasn't necessarily applicable to you. As you say, our own experiences and perceptions sometimes helps others in their journey. Thanks for taking my comments as I intended, with humor. (I've seen newsgroup flame wars turn into death threats, which would be a pretty odd idea in a cancer support group, now that I think about it.) Anyway, I'm fairly certain that a largish percentage of rad-grads end up with burning, stinging, and a little bleeding. 10%? 30%? I don't think anyone knows as this snuck up on me and for a long time, I didn't realize I was bleeding. -kh writing less here because I'm writing a couple books. >> Gee, kh, I did not know that you and William are one and the same person. >> [quoted text clipped - 4 lines] > > -kh Let me know when it's my turn. I think he was kidding. I sure as hell hope you are. >>> Gee, kh, I did not know that you and William are one and the same >>> person. [quoted text clipped - 9 lines] > > I sure as hell hope you are. Oh no......two more posters with Steve Kramer's offbeat dry sense of humour......and he didn't get it??? Shame on you, Kramer. (G) > Shame on you, Kramer. (G) Comone Heather. We've known each other for years. You can call me "Steve". > Comone Heather. We've known each other for years. You can call me "Steve". Translation: "The champagne is cold and I'm in room 205." -kh I can get away with anything in the group. >> Comone Heather. We've known each other for years. You can call me >> "Steve". > > Translation: "The champagne is cold and I'm in room 205." > > -kh I can get away with anything in the group. No thanks. Nothing against Heather, but if I ever get this thing working again, any extramarital activity with a Candadian will be with Shania. >>> Comone Heather. We've known each other for years. You can call me >>> "Steve". [quoted text clipped - 6 lines] > working again, any extramarital activity with a Candadian will be with > Shania. Nothing against you, sweet cheeks, but Shania is way too young for you. You couldn't keep up...........bwa ha ha. (gotcha) >> No thanks. Nothing against Heather, but if I ever get this thing working >> again, any extramarital activity with a Candadian will be with Shania. > > Nothing against you, sweet cheeks, but Shania is way too young for you. > You couldn't keep up...........bwa ha ha. (gotcha) Yeah. You're right. There is that 10-year spread between me and Shania. You and I are much closer in age. ;-) SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum >> Shame on you, Kramer. (G) > > Comone Heather. We've known each other for years. You can call me > "Steve". LOL.....Ok, Little Stevie Wonder....but I refuse to drink champagne!! CC & Pepsi would be good. LOL :) >>> Shame on you, Kramer. (G) >> [quoted text clipped - 4 lines] > > CC & Pepsi would be good. > LOL.....Ok, Little Stevie Wonder....but I refuse to drink champagne!! > > CC & Pepsi would be good. Translation: "Room 205? I'll be there as soon as I ditch my husband." -kh more material for my romance novel! Yippee! Steve is in room 205? Hey, guys, it's parteee time! WooHoo! Okay, that's Steve, Heather, kh, ... are you going to be there, Gourdy? Bev (Wouldn't it be fun to get everyone together?) > > LOL.....Ok, Little Stevie Wonder....but I refuse to drink champagne!! > > [quoted text clipped - 3 lines] > > -kh more material for my romance novel! Yippee! > The bad side is that for now 3 months I burn > every time I urinate. William, I just finished my treatment, iodine seeds 10/23, 35 IMRTs ended 1/3. I had no serious problems but I did get a little urinary urgency with a slight burning sensation. My doc said to take an Advil a couple of times per day. He also said some showed improvement with cranberry pills and saw palmetto. I did all three and my problems are almost nil. My doc used to work at RCoG where they did over 10,000 seedings. He personally did over 2,300, so he has had a lot of experience in this area. Hope this helps. John |
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