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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2006

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an interesting situation

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Beverley - 13 Dec 2006 16:37 GMT
Yesterday hubby had a check up and a PSA test done. I'm waiting for the
results now and will post them as soon as we know. (Yes, I'm crossing my
fingers!)

Anyway, we're sitting in this huge waiting room that serves quite a few
doctors and the big TV hanging from the ceiling is running with all these
mini-info shows on various types of cancer. Being this is a VA facility it's
predominately males in the waiting area. I noticed as we sat down that most
of the men were watching the TV. These little shows were well done and
interesting. We sat through about two and a half shows when we were called
back to see the doctor. When we came out hubby had to process through the
desk there so my attention went back to the big screen. It was on prostate
cancer.

I would have liked to have sat back down and watched it but hubby had to go
to the lab, etc, and we were both looking forward to a lousy cup of coffee.
But what shocked me was not one single person was watching the show on
prostate cancer. Not one!!! Every person in there before except for the two
men who were cat napping were glued to the TV during the skin cancer show.
What the heck happened? Why weren't they watching?

When are men going to face up to the fact that they chance having prostate
cancer and the more they know the better off they will be? I wanted to
scream, "watch the TV!" But I didn't. I did walk away rather pissed at the
men sitting there. I doubt there was anyone under the age of 45 in that
room, when I came out there was one wife sitting with her husband (don't
know where the other two were), probably 60% of the men were black, and no
one was watching! Damn, it makes me mad.
:-(
Bev
Mary Fisher - 13 Dec 2006 18:01 GMT
> Yesterday hubby had a check up and a PSA test done. I'm waiting for the
> results now and will post them as soon as we know. (Yes, I'm crossing my
[quoted text clipped - 29 lines]
> know where the other two were), probably 60% of the men were black, and no
> one was watching! Damn, it makes me mad.

No use telling us, Beverley, we weren't there.

Mary
Jean - 14 Dec 2006 01:06 GMT
Mary, it seems that Beverley was just venting a little and passing along her
thoughts on a very serious subject.  Your response to her seemed a little
over the top and maybe even hateful.  It's the holidays ... put a smile in
your voice.

Jean

>> Yesterday hubby had a check up and a PSA test done. I'm waiting for the
>> results now and will post them as soon as we know. (Yes, I'm crossing my
[quoted text clipped - 39 lines]
>
> Mary
Steve Kramer - 14 Dec 2006 01:30 GMT
> Mary, it seems that Beverley was just venting a little and passing along
> her thoughts on a very serious subject.  Your response to her seemed a
> little over the top and maybe even hateful.

Imagine that!
Mary Fisher - 14 Dec 2006 10:16 GMT
>> Mary, it seems that Beverley was just venting a little and passing along
>> her thoughts on a very serious subject.  Your response to her seemed a
>> little over the top and maybe even hateful.
>
> Imagine that!

That's rich from someone who suggested that Bev's sister was unfaithful!
Mary Fisher - 14 Dec 2006 10:15 GMT
> Mary, it seems that Beverley was just venting a little and passing along
> her thoughts on a very serious subject.  Your response to her seemed a
> little over the top and maybe even hateful.

<puzzled>

That's your perception, it wasn't intended like that! It was more a
statement of shared frustrations. I wonder why you saw hate in it ...

I'm sorry  you felt affronted, I hope Beverley didn't, I'm sure she knows
that if any of us had been there we'd have been watching the film.

> It's the holidays ... put a smile in your voice.

What holidays? It's not a holiday here ... <puzzled again>

Mary
Heather - 14 Dec 2006 18:33 GMT
>> It's the holidays ... put a smile in your voice.
>
> What holidays? It's not a holiday here ... <puzzled again>

Mary, the last time I checked, the UK also celebrates Christmas and
Hannukah.  Take your pick.  It isn't just ONE day.

Even up in Yorkshire they celebrate the above holidays (G).

Merry Christmas.......Heather
Mary Fisher - 14 Dec 2006 19:51 GMT
>>> It's the holidays ... put a smile in your voice.
>>
>> What holidays? It's not a holiday here ... <puzzled again>
>>
> Mary, the last time I checked, the UK also celebrates Christmas and
> Hannukah.  Take your pick.  It isn't just ONE day.

Ah - well, we're not Jewish and it's still Advent - the time of preparation
for Christmas, for us.

Christmas will begin for us when we get back from the midnight Christmas Eve
service, the house will be transformed and it will be wonderful! Until then
it's all work, not a holiday at all :-)

And Christmas will last through the octave - eight days. Then it's  back to
work ...

> Even up in Yorkshire they celebrate the above holidays (G).

Yes, but we don't all start after bonfire night :-)

Mary
c palmer - 13 Dec 2006 18:57 GMT
From: beverly.brown28@verizon.net (Beverley)

When we came out hubby had to process through the desk there so my
attention went back to the big screen. It was on prostate cancer.  But
what shocked me was not one single person was watching the show on
prostate cancer. Not one!!!

When are men going to face up to the fact that they chance having
prostate cancer and the more they know the better off they will be? I
wanted to scream, "watch the TV!" But I didn't.

======
hi bev - you are not alone on this one.  i've seen it too.

even when i talk to men about the prostate and it's problems,  i get
that deer in the headlight look.

guess that's the difference between men and women - i don't know.

all i do know is that it seems that AFTER a man gets prostate cancer, he
is VERY much aware of this and wish he knew MORE before he developed
pca.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Mary Fisher - 14 Dec 2006 10:19 GMT
> From: beverly.brown28@verizon.net (Beverley)
>
[quoted text clipped - 18 lines]
> is VERY much aware of this and wish he knew MORE before he developed
> pca.

Indeed. But if Bev HAD screamed at the non-audience she'd have been
considered a bossy harriden :-(

On the other hand, we can't know about everything in life before it happens.
And some men - and women - might not WANT to know, it's their right. I
believe it's known as 'denial'

<sigh>

It's the same the whole world over ...

Mary
I.P. Freely - 13 Dec 2006 19:42 GMT
> I would have liked to have sat back down and watched it but hubby had to go
> to the lab, etc, and we were both looking forward to a lousy cup of coffee.
[quoted text clipped - 6 lines]
> cancer and the more they know the better off they will be? I wanted to
> scream, "watch the TV!" But I didn't.

I promoted and presented an open, friendly, even humorous talk on PC to
our homeowners' association of 300 families, mostly middle age and
seniors. Three people -- two wives and a man -- showed.

I.P.
callalily - 14 Dec 2006 23:21 GMT
Dear IP,

> I promoted and presented an open, friendly, even humorous talk on PC to
> our homeowners' association of 300 families, mostly middle age and
> seniors. Three people -- two wives and a man -- showed.
>
> I.P.

I have seen the pca show and the skin cancer show, several episodes of
it in fact.  First JJ had the melanoma, then the squamous cell and a
couple of weeks ago a basal cell (not the first).  In our house we have
a kind of skin ca "du jour".

Then there is that beaut of a melanoma my mother had when she was
pregnant w/me ages ago.  And let's not forget sister-in-law Lori's
black beauty mark.

Just so you know, there is no such thing as a "sexy cancer".  If you
invite me to your home to watch ANY ca show I will tell you flat out,
"I would love to attend but I have all this ironing I am just dying to
do".

Otherwise, send me an invite and I will be right over.

The sad thing is that my husb's doc and maybe your doc, too, didn't
bother to watch the right "shows".   They are the ones who you hope
will be "aware" of things, cross your fingers, anyway.

A man wrote in another NG the other day: "I have an unsupportive wife.
She is always telling me what a dufice I am for not having known what a
PSA test was.  Even at age 64."

I wrote back:   Well, yes, I can relate (to her) but you (and my husb)
are only SO dumb.  Bottom line is the buck stops with the doc.  Not
you."

> I promoted . . . humorous talk on PC

Reminds me of what I went thru here trying to master netlingo.  The
hardest thing was, "O.T. Humor".  Each time I saw that tagline I would
say to to myself, "I was raised on the Old Testament and I never found
it in the least bit funny.  More like scared me to death."

Now what exactly do you find humorous in ca?

Miss ya.

LFC
I.P. Freely - 15 Dec 2006 00:26 GMT
> Dear IP,

> Now what exactly do you find humorous in ca?

In Officer's Training School we got 4-5 auditorium lectures most days,
on a huge variety of topics. All the instructors were very good to
excellent, but one really stood out. He kept us laughing so hard we had
tears running down our cheeks as we wrote furiously to keep up with the
subject information he was firehosing us with. I've never laughed that
hard or continuously at any professional stand-up comic, and have seldom
recorded such densely packed notes. When we learned we were his last
class before his three-year teaching stint ended (he had a "real" Air
Force job normally; this was a sideline), we leaped to our feet and gave
him a rousing, heart-felt, long ovation.

The time was Oct, 1968. Most of us were going to Viet Nam at its peak.
His topic was survivors' care and benefits . . . all about what happens
to and for our widows.

Humor is all in the presentation.

I.P.
Beverley - 16 Dec 2006 04:45 GMT
So at what base were you stationed?

> > Dear IP,
>
[quoted text clipped - 18 lines]
>
> I.P.
I.P. Freely - 16 Dec 2006 05:56 GMT
> So at what base were you stationed?

Lackland Air Force Base, Texas for training; then Rome AFB in upstate
New York; then Holloman AFB in southern New Mexico; then Hill AFB near
Salt Lake City, Utah; then Kirtland AFB in Albuquerque, NM.

Only three moves (after training) in 20 years, and every one
hand-picked. Contrast that to a friend who moved 21 times in 20 years,
none of them his choosing. Average runs more like 5-6 moves, I suppose,
few by one's own choosing.

I.P.
Beverley - 16 Dec 2006 16:12 GMT
I'm sorry I meant to ask what base you were at in Nam (if you were there)?

> > So at what base were you stationed?
>
[quoted text clipped - 8 lines]
>
> I.P.
I.P. Freely - 16 Dec 2006 17:40 GMT
> I'm sorry I meant to ask what base you were at in Nam (if you were there)?

I was never assigned there, and even though I contributed directly to
our efforts in that war and the larger Cold War, I try to make it clear
to people that I am not among the elite group known as combat veterans.
Most of those who went to war involuntarily are a special class of
soldier, and today's volunteer forces are off the chart.

I.P.
Beverley - 16 Dec 2006 19:40 GMT
My husband knew he was about to be drafted so he chose to join the Air
Force. He spent his tour in Cam Ranh Bay. He was home based at Langley AFB.

He served his country with pride just as his father had done (WWII -Pearl
Harbor) and his grandfather (WWI). His father was career Navy and his
grandfather was disabled during WWI and later died of his injuries.  His
father survived Pearl Harbor and later was on a ship in the Pacific that was
bombed and towed back sans sailors. It's an interesting family military
history.
Bev

> > I'm sorry I meant to ask what base you were at in Nam (if you were there)?
>
[quoted text clipped - 5 lines]
>
> I.P.
I.P. Freely - 16 Dec 2006 21:46 GMT
> My husband knew he was about to be drafted so he chose to join the Air
> Force.

Same here. I couldn't imagine then anyone going into the military
voluntarily, especially during that war, but my tune has changed since
then.

I.P.
Tom Cular - 14 Dec 2006 00:15 GMT
Hi Bev,

The following is a link to an Us Too effort to raise Pca awareness.
http://www.prostatecancerrunwalknroll.org/site/PageServer?pagename=Sneakers_at_W
ork_Involved&printer_friendly=1&JServSessionIdr011=h56qtfa903.app7a


I'm going to do my best to get participation within our Co. (we have
approx. 100 male employees in the "Mature Age Group", that should be
somewhat interested in pitching in. I know of at least of 6 that I speak to
on a regular basis that have had a personal experience with Pca.

I believe that most men (not those who participate in this forum) would
choose to sit tight and be silent and suffer,  rather than openly discuss
issues that they deem to be a private or personal issue. Can you imagine
this scenario? Two Ironworkers, working 30 floors above the ground and one
says to the other, "Gee, I couldn't get it up last night, or "I don't know
what happened, but I just wet my pants". It's a macho / stupitity thing.

Tom

> Yesterday hubby had a check up and a PSA test done. I'm waiting for the
> results now and will post them as soon as we know. (Yes, I'm crossing my
[quoted text clipped - 31 lines]
> :-(
> Bev
kh - 14 Dec 2006 13:17 GMT
> I believe that most men (not those who participate in this forum) would
> choose to sit tight and be silent and suffer,  rather than openly discuss
> issues that they deem to be a private or personal issue.

Well, what would you have them do?

pre-diagnosis, I had an annual physical with a full blood screen,
cholesterol, cell counts, obscure chemicals, sugar, and PSA.  The doc
also gave me the finger, did that every year since I was 40.  He took
my BP, listened to my breathing and every 3 or 4 years did an EKG.

Of course, I never gave prostate cancer a thought.  Why should I?  Why
should anyone?

There's a thought in this newsgroup that "We need to build awareness."
and "talk about it."

Why?

If you don't have it, don't worry about it.   It should not rise above
the 5 minutes-a-year check-up, where your doc says, "PSA's OK, but
let's take a feel."

It's the same as him saying, "BP and cholesterol's OK, but I want you
to go for a cardiac stress test."

You do it, and, it's done.

It is different after diagnosis.  Then there's a LOT to think about.
Until then, other than the annual physical, the only other time that I
was even aware that I had a prostate was 30 years ago, a woman said
that she wanted to give me a special treat.

"First, we'll take a shower together, get soapy clean everywhere, and I
mean everywhere."

I can still feel those soapy slippery breasts rubbing my back while she
reached around and between to suds up.

We got dried off and snuck into her bedroom, fortunately her roomate
had her door shut.

She said, "lie back, I'll get this K-Y all over my finger and suck on
you while I slide my finger right in ...."

Ho!

Whoa!

What!   What!   What are you doing??!!!!

"-mmmffff-  You just enjoy yourself.  -mmmffff-  Come in my mouth when
you feel like it."

That gal could be demanding but sometimes she felt like playing the
submissive, total woman.

-kh  30 years ago???
Bill - 14 Dec 2006 15:25 GMT
It's very simple. Many/most men don't want to be seen intently watching
because they will assume, perhaps correctly, that the others are
looking at them thinking, "Poor guy; he probably can't get it up."  PCa
= ED = loss of manhood. No man wants to be perceived that way.
Sometimes when I tell people I had my prostate removed I can almost
hear the wheels turning in their heads.

Bill Denton
RP 2/12/02
PSA 1.10
Memphis
Mary Fisher - 14 Dec 2006 16:36 GMT
> It's very simple. Many/most men don't want to be seen intently watching
> because they will assume, perhaps correctly, that the others are
> looking at them thinking, "Poor guy; he probably can't get it up."  PCa
> = ED = loss of manhood. No man wants to be perceived that way.

What makes you think they're assuming that? Prostate cancer can = death =
loss of everything.

> Sometimes when I tell people I had my prostate removed I can almost
> hear the wheels turning in their heads.

All the more reason why you should continue :-)

Mary
Bill - 15 Dec 2006 15:43 GMT
Mary Fisher wrote: "What makes you think they're assuming that?
Prostate cancer can = death = loss of everything."

Mary, you have to understand the male psyche. Before you get PCa you
don't think you will, and even then you don't think you'll die of it.
But you do fear that it will be the loss of your manhood. And, until
actually faced w/ the prospect of death, that seems a fate was worse
than death.

Bill Denton
RP 2/12/02
PSA 1.10
Memphis
tomrue - 15 Dec 2006 16:15 GMT
Bill,

Without questioning your point about the importance of sexuality in
"manhood", it seems to me inaccurate to say that most men, or even many
men, would view the loss of erections as "a fate worse than death."
Maybe a few, but when the possibility of death seems remote, such a
tangible potential loss, which is far easier to imagine than the
harder-to-fathom idea of not existing, may certainly seem worse than
the alternative that doesn't seem real. As you say, "Before you get PCa
you don't think you will die, and even then you don't think you'll die
of it." I'm sure we agree that it's a choice that no man wants to have
to make, and one which most healthy men (as far as they know) would
rather not think about. For that reason it's certainly a less
comfortable topic for discussion (or TV viewing) than, say, skin
cancer.

Tom

> Mary Fisher wrote: "What makes you think they're assuming that?Prostate cancer can = death = loss of everything."
>
[quoted text clipped - 8 lines]
> PSA 1.10
> Memphis
Mary Fisher - 15 Dec 2006 17:14 GMT
> Bill,
>
[quoted text clipped - 7 lines]
> you don't think you will die, and even then you don't think you'll die
> of it."

I think that my having breast cancer might have made a difference to
Spouse's attitude - but we were both matter of fact about that too so I'm
not sure.

Mary
Mary Fisher - 15 Dec 2006 17:13 GMT
> Mary Fisher wrote: "What makes you think they're assuming that?
> Prostate cancer can = death = loss of everything."
[quoted text clipped - 4 lines]
> actually faced w/ the prospect of death, that seems a fate was worse
> than death.

I don't understand anyone else's psyche :-)

But I don't believe that all men think like that. I'm married to one who
didn't.

After RRP in September he's gradually gaining his EF to the pleasure of both
of us but only last night he said if he had to choose he'd rather be
continent and impotent than the other way round. He's been 100% continent
since a few days after the catheter came out. We've had more than our fair
share of lovemaking for the last fifty years :-)

The general trend isn't right for everyone :-)

Mary
kh - 16 Dec 2006 00:01 GMT
> After RRP in September he's gradually gaining his EF to the pleasure of both
> of us but only last night he said if he had to choose he'd rather be
> continent and impotent than the other way round.

I've seen that sentiment expressed in other posts.

The thing about being impotent is that, there are ways to cope.

>From my VERY limited experience, about a quarter to a third of women
aren't that eager to have a hard weenie plunging in and out of them.

About half prefer a tongue lashing, as in, "Yes-yes, run the tip up the
left side again but slower. brrrrrr, Oh yes, slower.  Tell me again how
delicious I am."

Even if willie is limp, here's a technique that MAY restore intimacy.
I call it the KH #6.

Get yourselves all fresh and relaxed.   A romantic track on the iPOD.
Fresh flowers.  A scented candle, the lights are off.

Have her lie back, you take the time to remove her remaining garments,
kiss her breasts and pay special attention to her nipples.  Take a few
minutes to admire them, kissing them over and over, but slowly and
mutter things like "perfect" and "gorgeous".

Reach down and touch her between her legs, use a very light touch.
Using your fingertips, outline her lips through the cotton. Smooth her
thighs.   Then bend over and kiss her lightly through her panties.

You may feel like panting or inhaling her perfume, go ahead.  The sound
of your breathing should fill the room.  Say something like, "I feel
like I'm 19 again." or just groan.

Reach under her panties and very slowly feel for her womanhood.  Stop.
Stop and take another breath.  Take your hand out and begin sliding her
panties down.   She'll raise her hips for you.

Toss them away.

Kiss her inner thighs, kiss her tummy.  Run your fingertips along side
her outer labia.

She's still on her back.  Have her bend her knees forming an arch.  Lie
under the arch with your hips and front against her bottom.

Curl around her on one side and kiss her breasts and nipples.   While
sucking on her nipples, reach between her legs and take willie by the
scruff of his neck.   Very slowly rub his head up and down her labia.

If he's still limp, fine.  Just rub him up and down like a big slippery
tongue,  up and down.

For you, that'd be side to side.  Don't worry about being less than
stuffable.  You're just lapping at her with willie, no need to try for
the plunge if you're not ready yet.  

Take your time.

-kh
Beverley - 16 Dec 2006 04:48 GMT
So are you ready to write a full romance novel? You are certainly capable of
writing the dirty parts. LOL
Bev

> > After RRP in September he's gradually gaining his EF to the pleasure of both
> > of us but only last night he said if he had to choose he'd rather be
[quoted text clipped - 56 lines]
>
> -kh
kh - 16 Dec 2006 12:03 GMT
> So are you ready to write a full romance novel? You are certainly capable of
> writing the dirty parts. LOL

If people want, I'll keep working on these "action scenes".  I tried
writing a full novel about the Civil War but it was exhausting.
Between the research and the character development, I gave up several
times.

This prostate cancer is a, er, ah, ball buster, so to speak.   The
threads about "why don't guys want to learn about it", coping with side
effects, the tragedies, deaths, and that's probably the tip of the
iceberg.  Who wants to learn about that?

I find it frustrating when the docs, nurses, and books talk around the
subject, "oh, you can maintain intimacy" -cough-.

Best I can tell, every one experiences impotence.  I had it for about a
year.   If my PSA keeps rising, I'll have it again.  The doc's talking
Casodex and Lupon in my future.

Some men avoid treatment because they fear the side effects.  That
billionaire, Lamar Hunt, diagnosed in 1998, was it.  Surgery in 2003?
What was he doing for 5 years?  My guess is having as much penetrative
sex as possible.  His father, H.L., had 3 or 4 wives at the same time
so maybe he was following the family tradition.

Impotence is a big deal to most men and some women.

I don't know the percentages but I'd guess that while many women enjoy
penetrative, wet sex,  an equally large percentage, if not the
majority, would be just has happy with a half hour, hot oil back and
foot massage, followed by a session of licking, nibbling, sucking that
brings them to 2 or 3 orgasms.

Especially if their guy gets into it with imagination, heavy snorting,
and bellowing.

Then the next day, he cooks and serves her breakfast, 3 flowers on the
tables, "one for each orgasm last night."  

-kh
JerryW - 16 Dec 2006 15:23 GMT
> If people want, I'll keep working on these "action scenes".

I dunno. I suspect there are plenty of porn sites and newsgroups dedicated
to this sort of thing where one could get his/her fill, and where kh could
exercise his literary skills. Do we really need these "action scenes" here?
Seems like we visited this issue a couple of years ago...lost some members
over it.
Signature

JerryW

Please respond to group; email address is not valid

2/11/04 PSA 2.6, Suspicious DRE (age 62)
2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe
5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes
Fully continent by 9/04
PSA <0.1 since

Beverley - 16 Dec 2006 16:21 GMT
I've always tried to be careful when asked about something or commenting and
so far I've been successful. But yes, I remember when another female wrote
something that was honest but explicit and she got blasted over it. So I
have been surprised that no one has said anything to KH about what he has
written. Maybe they are all too busy enjoying it?

Probably half the guys here either don't have a partner or they have
disinterested partners. The other half already knows how to use their
fingers and tongue so they don't need any directions. LOL
Bev

> > If people want, I'll keep working on these "action scenes".
>
[quoted text clipped - 3 lines]
> Seems like we visited this issue a couple of years ago...lost some members
> over it.
Claude - 16 Dec 2006 16:58 GMT
I'm not at all a prude, and I didnt take any offense at that lady who upset
some of the posters.  I also am grateful that we can be open and honest
here.  That said, I agree with Jerry that this kind of graphic detail is a
bit over the top for this kind of forum.

> I've always tried to be careful when asked about something or commenting
> and
[quoted text clipped - 19 lines]
>> members
>> over it.
Mary Fisher - 16 Dec 2006 17:39 GMT
> I've always tried to be careful when asked about something or commenting
> and
> so far I've been successful. But yes, I remember when another female wrote
> something that was honest but explicit and she got blasted over it. So I
> have been surprised that no one has said anything to KH about what he has
> written. Maybe they are all too busy enjoying it?

Or bored?

A couple of lines and I closed, I'm not interested in second hand sex.

Mary
I.P. Freely - 16 Dec 2006 17:51 GMT
> I've always tried to be careful when asked about something or commenting and
> so far I've been successful. But yes, I remember when another female wrote
> something that was honest but explicit and she got blasted over it. So I
> have been surprised that no one has said anything to KH about what he has
> written.

It's been said; you simply missed it. And stuff far less blatant drove a
father away in a big huff a year or so ago because his 14 yo daughter
read -- past tense -- the forum. I feel it denigrates the forum because
it is obviously prurient and explicitly goes beyond dispensing
information, and is likely to deter newbies from joining the group
and/or attract a whole new group of newbies we don't need. I have
magazines and catalogs for the purpose these stories serve.

Oh, crap; see you guys in half an hour.

I.P.
rosbif - 16 Dec 2006 19:42 GMT
>If people want, I'll keep working on these "action scenes".

Keep up the fine work - and book me a front seat when you start the
master classes..
Claude - 16 Dec 2006 17:20 GMT
"Mary Fisher" <mary.fisher@zetnet.co.uk> wrote in message
news:4582d79e$0$763$

> After RRP in September he's gradually gaining his EF to the pleasure of
> both of us but only last night he said if he had to choose he'd rather be
> continent and impotent than the other way round. He's been 100% continent
> since a few days after the catheter came out.

One of the doctors I have read (it may have been Walsh) discussed this.  He
said the impotency is something a man has to deal with intermittantly (sp?),
but the incontinence is a daily and continual inconvenience.  Obviously not
a great choice, but I would be surprised if most men wouldnt agree with your
husband.
Mary Fisher - 16 Dec 2006 17:43 GMT
> "Mary Fisher" <mary.fisher@zetnet.co.uk> wrote in message
> news:4582d79e$0$763$
[quoted text clipped - 9 lines]
> Obviously not a great choice, but I would be surprised if most men wouldnt
> agree with your husband.

I would have thought so too but rsome of the recent posts here have
suggested that erections are THE most important thing to a man.

When I joined the breast cancer support ng I was saddened at the reaction of
women who had to lose a breast. I'd rather lose a breast - or both - than a
hand ... few agreed with me.

When I had brain surgery there was a beautiful young woman in the ward who
had an operable tumour, like mine. She refused surgery because she couldn't
bear the thought of having her head shaved. She discharged herself. I'd like
to think that she changed her mind, if not she'll be dead now :-(

Mary
Bill - 15 Dec 2006 17:14 GMT
Mary Fisher wrote: "What makes you think they're assuming that?
Prostate cancer can = death = loss of everything."

Mary, you have to understand the male psyche. Before you get PCa you
don't think you will, and even then you don't think you'll die of it.
But you do fear that it will be the loss of your manhood. And, until
actually faced w/ the prospect of death, that seems a fate was worse
than death.

Bill Denton
RP 2/12/02
PSA 1.10
Memphis
callalily - 14 Dec 2006 22:43 GMT
Dear Bill,

> Sometimes when I tell people I had my prostate removed I can almost
> hear the wheels turning in their heads.
>
> Bill Denton

Yes, especially my sister.  When she asks me, "How is he"? I know what
it is she REALLY wants to know.  And I won't give her the satisfaction
of hearing it.

The other day a woman mentioned the name of a website where you can
order blue ribbons from.  I will get myself one and one for my mother
but don't expect Him to be wearing one anytime soon.

Happy holidays.

Leah
Beverley - 14 Dec 2006 23:40 GMT
I have a great blue ribbon enamel pin (tie tack) that I bought through our
local hospital's gift shop. Since I hardly ever wear anything other than my
rings and remembering to put it on would be impossible for me I have it on
my purse. No one has ever said a word about it.

My hubby is not going to wear a blue ribbon or bracelet. As a kid he wore a
St. Christopher's medal. His mom tried to give him a beautiful gold chain
necklace for Xmas a couple of years ago. (Dummy, he gave it back to her; he
could have just said thank you and given it to me. LOL) He wears a pen in
his pocket and occasionally a watch. So I'm the one with the blue!
Bev

> Dear Bill,
>
[quoted text clipped - 14 lines]
>
> Leah
Steve Jordan - 15 Dec 2006 23:05 GMT
On December 14, Beverley wrote, in pertinent part:

> My hubby is not going to wear a blue ribbon or bracelet. As a kid he wore a
> St. Christopher's medal. His mom tried to give him a beautiful gold chain
> necklace for Xmas a couple of years ago. (Dummy, he gave it back to her; he
> could have just said thank you and given it to me. LOL) He wears a pen in
> his pocket and occasionally a watch. So I'm the one with the blue!

FWIW, I wear a blue ribbon pin everywhere I go. No man has ever asked me
about it, more's the pity.

A few women have, and I give them the PCa Lecture, short or long form as
appropriate. And whenever I meet a woman who is wearing the BCa pink
pin, I consider her a sister and speak to her accordingly.

The pins and related paraphernalia are available at:
http://www.pcaawareness.net/pins_ribbon.html

Regards,

Steve J
james_wv@hotmail.com - 14 Dec 2006 18:33 GMT
> There's a thought in this newsgroup that "We need to build awareness."
> and "talk about it."
[quoted text clipped - 40 lines]
>
> -kh  30 years ago???

I love a story with a happy ending.....almost makes me miss my
prostate.....

Not really - I didn't want it any more...it was full of cancer, and I
can live without that.
I.P. Freely - 15 Dec 2006 00:37 GMT
> There's a thought in this newsgroup that "We need to build awareness."
> and "talk about it."
>
> Why?

For starters, because most men and their SOs don't know squat about it,
many men don't go to doctors, many doctors don't check PSA, the vast
majority of doctors don't start PSA checks early enough, and many people
think it's not a risk until they are doddering old geezers.

I.P.
kh - 15 Dec 2006 01:32 GMT
> For starters, because most men and their SOs don't know squat about it,
> many men don't go to doctors, many doctors don't check PSA, the vast
> majority of doctors don't start PSA checks early enough, and many people
> think it's not a risk until they are doddering old geezers.

I don't know a whole lot about coronary heart disease, strokes,
Alzheimer's, ulcers, or most health considerations.

Even stranger, folks who consider themselves "buffs" or "health-fans"
know even less.  I'm not talking about body builders abusing steriods,
I mean, the mucus-food people, the colon-cleansers, macro-biotic-types,
Choir-practers; there's even a "raw-meat-is-good" movement.

All a guy needs to know is what I knew, go to a good primary care doc
once a year.

I don't know about the "early enough", my doc was running what he
called the "full panel" which included PSAs when I was 40.    200 bucks
a year, a couple tubes of blood, and 15 minutes of his time.  No extra
charge for the teaspoon of K-Y and the kleenix.  A bargain.

It's different if you're diagnosed.  Then, yes, do your homework.

Until then, I have lots to do.  

-kh
I.P. Freely - 15 Dec 2006 04:27 GMT
>> For starters, because most men and their SOs don't know squat about it,
>> many men don't go to doctors, many doctors don't check PSA, the vast
[quoted text clipped - 3 lines]
> I don't know a whole lot about coronary heart disease, strokes,
> Alzheimer's, ulcers, or most health considerations.

So how do you know what works -- and doesn't -- to help protect yourself
from them, and how do you make informed choices about which lifestyle
changes are worth the effort?

> All a guy needs to know is what I knew, go to a good primary care doc
> once a year.

You're way ahead of most American men already, on two counts: "good
primary care doc" and "once a year". The odds are that my PCP killed me
by ignoring my rapidly increasing PSA for three years, the "stupid
doctor tricks" others here relate are equally alarming, and many, maybe
most, men don't get annual checkups anyway, especially the dreaded FUTA.

I.P.
Beverley - 14 Dec 2006 20:42 GMT
Well, 40 years ago the reason people wore hard hats was because of the iron
workers. (For those unaware of the construction industry back then, hard
hats kept the pee from running down the back of your neck. Okay that's an
inside joke.) Those iron workers were crazy, no safety harnesses, no
nothing, no unions, but the pay was very good for those insane enough. They
were some of the toughest men around, foul-mouthed, strong, well-muscled,
Catholic boys (I think it required a great deal of faith to do what they
did) with names like Malone and Giovanni. (OMG were they gorgeous specimens
of testosterone!) To them safety harnesses were for sissies as were the
safety nets that began to go up. Nope, they would never admit to a problem
then or probably even now.
Bev

> Hi Bev,
>
> The following is a link to an Us Too effort to raise Pca awareness.

http://www.prostatecancerrunwalknroll.org/site/PageServer?pagename=Sneakers_at_W
ork_Involved&printer_friendly=1&JServSessionIdr011=h56qtfa903.app7a


>  I'm going to do my best to get participation within our Co. (we have
> approx. 100 male employees in the "Mature Age Group", that should be
[quoted text clipped - 45 lines]
> > :-(
> > Bev
tomrue - 15 Dec 2006 14:16 GMT
The description of hard-hat workers reminds me of some members of my
own family a couple of generations back... emigrants, factory workers,
stoic about their health, brimming with denial. In contrast, it also
brings to mind the bumper sticker you've probably seen, at least on the
web, "Real men know their PSA."

The other day I filled out a quality of life questionnaire for a woman
in the UK who was engaged in a pilot study in conjunction with the NHS
of the emotional impact that prostate and breast cancers have on
people, and the social sources from which related attitudes eminate
(mass media, family, friends, etc.) One of the items on the male
version of the form, which respondents were asked to rate on a
five-point Likert scale, was "I am able to feel like a man."

I had to think for a minute. This wasn't something that I ever remember
asking myself. Since turning 18 or so, I guess I've just taken it for
granted that I'm a man. I ended up replying in the affirmative,
reasoning that PCa hasn't made me feel "not" like a man. But I
can't easily define what being "a man" is. I can tell you what it
isn't (i.e. a woman), or subsets of men (father, brother, son, etc.)
But more than that it's hard to narrow down.

Last night I came across an essay by Australian Mark Christensen,
entitled "So what does it mean to be a man?" at
http://snipurl.com/14zqx . Reading Christensen's article, my mind
returned to the questionnaire item, which in the context of PCa seemed
to suggest a possible feeling on the part of some that blood flow to
the penis or control of urine are necessarily elements of being "a
man." To accept this at a rational level suggests that what makes a
man is the structure and neurological function of his erectile tissue,
his hormones, or the tightness of the neck of his bladder.

As Tom Cular observed earlier in this thread, "I believe that most
men (not those who participate in this forum) would choose to sit tight
and be silent and suffer, rather than openly discuss issues that they
deem to be a private or personal issue. Can you imagine this scenario?
Two Ironworkers, working 30 floors above the ground and one says to the
other, 'Gee, I couldn't get it up last night,' or 'I don't know
what happened, but I just wet my pants.' It's a macho / stupidity
thing."

Maybe machismo stems from old hunter/gatherer roles. I don't know.
But I do know that it loses any survival value that it might have ever
had for men or the species when it results in denial that leads to
illness and death.

The famous old poem "If" (one of my late father's favorites, read
aloud in his own amateurish voice at http://snipurl.com/14zpp),
doubtless known to most posters in this newsgroup) concludes: "If you
can fill the unforgiving minute with sixty seconds' worth of distance
run - yours is the Earth and everything that's in it, and - which is
more - you'll be a Man my son!"

Kipling's conclusion that being "a Man" (a mensch, I guess)
involves running life's course and not wasting it, but seeking to
extend and find meaning in it, seems right. But ironically, this
definition is really a gender-neutral true "quality of life"
measure suggesting a willingness to face fears, frustrations, failures
and stumbles, regaining one's footing and continuing the run.

So what does it mean to be a Man? Or a Woman for that matter? How do
they differ, characterologically or otherwise, from simply being human?

My apologies for running off at the fingertips. These questions have
been on my mind lately and this thread brought it to the fore again.

Does anybody have better answers?

Tom

--
http://vitruvian.tomrue.net
http://tomrue.net

> Well, 40 years ago the reason people wore hard hats was because of the iron
> workers. (For those unaware of the construction industry back then, hard
[quoted text clipped - 8 lines]
> then or probably even now.
> Bev

[snip]

> > I believe that most men (not those who participate in this forum) would
> > choose to sit tight and be silent and suffer,  rather than openly discuss
> > issues that they deem to be a private or personal issue. Can you imagine
> > this scenario? Two Ironworkers, working 30 floors above the ground and one
> > says to the other, "Gee, I couldn't get it up last night, or "I don't know
> > what happened, but I just wet my pants". It's a macho / stupitity thing.

[snip]

[snip]

> > > When are men going to face up to the fact that they chance having prostate
> > > cancer and the more they know the better off they will be? I wanted to
[quoted text clipped - 4 lines]
> > > one was watching! Damn, it makes me mad.
> > > :-(

[snip]
I.P. Freely - 16 Dec 2006 17:57 GMT
> I can't easily define what being "a man" is.

To me, it's a person of any gender or persuasion who stands up for
what's right and against what's wrong, especially under fire. The rest
-- genitalia, hair length, shape, muscles, voice, clothes, bling, etc.
-- is just details. (And the more hung up on the details, the less the man.)

I.P.
tomrue - 16 Dec 2006 23:32 GMT
Good definition.

I went to sleep last night thinking about this and awoke dreaming about
it. I wove my post from last night together with a piece I wrote this
morning into a blog entry. Kind of an odd combination, but they fit
together:  http://tomrue.net/?q=gender

Tom

> > I can't easily define what being "a man" is.To me, it's a person of any gender or persuasion who stands up for
> what's right and against what's wrong, especially under fire. The rest
> -- genitalia, hair length, shape, muscles, voice, clothes, bling, etc.
> -- is just details. (And the more hung up on the details, the less the man.)
>
> I.P.
Beverley - 14 Dec 2006 20:12 GMT
You guys are funny!
Mary, I wasn't offended by your remark or Steve's other comment.
Then Heather jumps in. ROTFL
Bev

> Yesterday hubby had a check up and a PSA test done. I'm waiting for the
> results now and will post them as soon as we know. (Yes, I'm crossing my
[quoted text clipped - 26 lines]
> :-(
> Bev
 
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