Medical Forum / Diseases and Disorders / Prostate Cancer / December 2006
erectile stirrings post RRP
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mountainguy1958 - 09 Dec 2006 16:56 GMT After a nerve-sparing radical removal of prostate on 11/17/2006, there have been a few occasions when I've had partial erections; not adequate for intercourse, but better than nothing - at least in terms of progress.
Can anyone who's been through this procedure confirm for me whether the fact that I've had "partial" erections on a few occasions since surgery means that as healing continues that I will, in all likelihood, be restored to my former glory?
According to the surgeon, both nerve bundles appeared to be intact at the conclusion of the operation. I am 48 years old and pre-surgery erections were satisfactory. I know that these factors weigh in my favor.
My question is, does the fact that I'm getting *some* response now mean that it *will* continue, or is there an equal likelihood that this might be it for the next few months to a year at best?
Thanks.
Tom
RML - 09 Dec 2006 17:07 GMT I think each of us is so individual your questions can not be answered, despite them being a great source of anxiety. I can only give my example:
I had the same surgery 9/18, age 54. While the cath was in I was able to get some response. After removal I was on Viagara 100mg every other day/2 weeks, and tried to work Willie out close to every day. Erection size grew slowly, where currently they get about 75-80%. With 50mg Viagra I am just as before surgery, 100%. Pleasure sensations are at least as good if not better than prior surgery.
>After a nerve-sparing radical removal of prostate on 11/17/2006, there >have been a few occasions when I've had partial erections; not adequate [quoted text clipped - 18 lines] > >Tom Steve Kramer - 09 Dec 2006 18:02 GMT > After a nerve-sparing radical removal of prostate on 11/17/2006, there > have been a few occasions when I've had partial erections; not adequate [quoted text clipped - 14 lines] > that it *will* continue, or is there an equal likelihood that this > might be it for the next few months to a year at best? Tom,
I was 46 when mine was removed. I had varying luck with Viagra and shots. After 2½ years, I had a usable erection without assistance.
However, I never had that "former glory" thing.
Note: I recently posted a 1½-year erection. I just checked my records and it was May 12, 2003, not 2002.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum
Glassman@work - 09 Dec 2006 19:02 GMT > After a nerve-sparing radical removal of prostate on 11/17/2006, there > have been a few occasions when I've had partial > [quoted text clipped - 5 lines] > > Tom You are very early to be seeing anything substantial. I saw very real & constant small improvments up to 3 years after the surgery. My guess is that with response this early, you'll be using it for the real thing, with vitaminV, in a matter of months.
 Signature JK Sinrod www.SinrodStudios.com www.MyConeyIslandMemories.com
mountainguy1958 - 09 Dec 2006 22:02 GMT Thanks. I just read through the similar thread initiated earlier this week by Gary, which I had missed.
As I mentioned in a post a week or two back, the nurse who counseled me following the removal of my cathetar instructed me to "stimulate" myself regularly between now and mid-January when I'll see my surgeon again, in order to "have something to talk about." That day, on the first attempt, I had an unusually intense (even for pre-surgery) orgasm which left me out of breath for a few minutes afterward.
Since then, I haven't had another intense orgasm like that, but I have had a few partial erections and one less intensive orgamsm. Unfortunately, I haven't been able to get any physical response "down there" with my wife yet, though I hope to soon. At least something. At the same time, my incontinence is also improving and, once I'm completely dry (I'm being optimistic), I think I'll have more sexual confidence in bed. As it is, I feel self-consious, since my wife is a very clean and hygienic person, about leaking urine on her. (I know all about urine ostensibly being sterile, as long as there's no bladder infection. Still, she does not find urine appealing or sexy.)
By the way, one thing that I think may be helping reduce my leakage is that I started taking Cymbalta this week, which is not only approved as an antidepressant (replacing the Lexapro which I've been on for a few months), but also for urinary incontinence and relief of chronic pain.
My internist (a woman) suggested I wear a condom if I'm worried about leakage during, but wearing a condom generally requires an erection first. She's usually right on target with suggestions, etc., but she sort missed the mark on this one.
I've also decided to give acupuncture a try, specifically for sexual potency, continence, depression, and whatever else ails me. But I told the acupuncturist (an MD who is board certified in internal medicine and pathology) that the main issues that brought me to her office were the first two I just issues listed. She expressed confidence. We'll see. Might help; can't hurt, I figure.
Like Gary and others here, I suspect, the reason for my post in this thread is hoping for anxiety relief and perhaps some reassurance. I really do appreciate the supportive and informative replies.
Tom
> You are very early to be seeing anything substantial. I saw very real & > constant small improvments up to 3 years after the surgery. My guess is that > with response this early, you'll be using it for the real thing, with > vitaminV, in a matter of months. I.P. Freely - 10 Dec 2006 02:48 GMT > once I'm > completely dry (I'm being optimistic), I think I'll have more sexual > confidence in bed. As it is, I feel self-consious, since my wife is a > very clean and hygienic person, about leaking urine on her. (I know all > about urine ostensibly being sterile, as long as there's no bladder > infection. Still, she does not find urine appealing or sexy.) Get a jacuzzi and fugheddaboutit. The solution to pollution is dilution.
> My internist (a woman) suggested I wear a condom if I'm worried about > leakage during, but wearing a condom generally requires an erection > first. She's usually right on target with suggestions, etc., but she > sort missed the mark on this one. Then she might be even more surprised to learn that some surgery pts squirt ounces of urine with a great deal of force during orgasm. It hits the mark, all right -- the opposite shower wall -- but the resulting splatter hits MANY marks.
I.P.
mountainguy1958 - 09 Dec 2006 22:02 GMT Thanks. I just read through the similar thread initiated earlier this week by Gary, which I had missed.
As I mentioned in a post a week or two back, the nurse who counseled me following the removal of my cathetar instructed me to "stimulate" myself regularly between now and mid-January when I'll see my surgeon again, in order to "have something to talk about." That day, on the first attempt, I had an unusually intense (even for pre-surgery) orgasm which left me out of breath for a few minutes afterward.
Since then, I haven't had another intense orgasm like that, but I have had a few partial erections and one less intensive orgamsm. Unfortunately, I haven't been able to get any physical response "down there" with my wife yet, though I hope to soon. At least something. At the same time, my incontinence is also improving and, once I'm completely dry (I'm being optimistic), I think I'll have more sexual confidence in bed. As it is, I feel self-consious, since my wife is a very clean and hygienic person, about leaking urine on her. (I know all about urine ostensibly being sterile, as long as there's no bladder infection. Still, she does not find urine appealing or sexy.)
By the way, one thing that I think may be helping reduce my leakage is that I started taking Cymbalta this week, which is not only approved as an antidepressant (replacing the Lexapro which I've been on for a few months), but also for urinary incontinence and relief of chronic pain.
My internist (a woman) suggested I wear a condom if I'm worried about leakage during, but wearing a condom generally requires an erection first. She's usually right on target with suggestions, etc., but she sort missed the mark on this one.
I've also decided to give acupuncture a try, specifically for sexual potency, continence, depression, and whatever else ails me. But I told the acupuncturist (an MD who is board certified in internal medicine and pathology) that the main issues that brought me to her office were the first two I just issues listed. She expressed confidence. We'll see. Might help; can't hurt, I figure.
Like Gary and others here, I suspect, the reason for my post in this thread is hoping for anxiety relief and perhaps some reassurance. I really do appreciate the supportive and informative replies.
Tom
> You are very early to be seeing anything substantial. I saw very real & > constant small improvments up to 3 years after the surgery. My guess is that > with response this early, you'll be using it for the real thing, with > vitaminV, in a matter of months. I.P. Freely - 10 Dec 2006 02:13 GMT I began stirring within weeks of my surgery 25 months ago (nerves spared on one side, if I remember correctly). It's still improving very slightly, but will never be the stuffable swizzle stick it was 26 months ago. I perceived no improvement with Viagra, so my stirring days are probably over. But my orgasms are better than they were a decade ago, so there are tradeoffs.
I.P.
Glassman@work - 19 Dec 2006 20:02 GMT >I began stirring within weeks of my surgery 25 months ago (nerves spared on >one side, if I remember correctly). It's still improving very slightly, but [quoted text clipped - 3 lines] > > I.P. I had perceptable improvements up to almost 4 years, so you still have plenty of time for "growth".
 Signature JK Sinrod www.SinrodStudios.com www.MyConeyIslandMemories.com
kh - 10 Dec 2006 12:29 GMT > After a nerve-sparing radical removal of prostate on 11/17/2006, there > have been a few occasions when I've had partial erections; not adequate > for intercourse, but better than nothing - at least in terms of > progress. ...
> My question is, does the fact that I'm getting *some* response now mean > that it *will* continue, or is there an equal likelihood that this > might be it for the next few months to a year at best? I don't think anyone knows. It sounds like a good sign to me. This is not to say that we haven't heard of guys who have been limp as an overcooked noodle and then after 6 months or a year, began to perk up.
My guess is that most of us have to expect a year to two years to heal.
Since I had radiation, I'd like to hear from the radiation gang.
Diagnosis, treatment, QOL situation. How long and what happened?
For me, the two 4 month Lupron shots took away both libido and erections for 8 months plus another 6 months making a total of just over a year of mycox-a-floppin'.
What was weird was standing around in social situations near dressed-to-impress women, and thinking, "I hope they don't look my way."
At about 6 months after the Lupron, if I imagined real hard, pulled hard, I could get up enough to piffle-piffle-drip. Not very satisfying.
I'm at 25 months past the seeding (I had IMRT 3 weeks before the seeds) and at 22 months after Lupron.
Erections without Vitamin-V are 80%, nothing to brag about but a little more than stuffable.
With Vitamin-V, I have both the ability and the confidence. Last week, I managed about 9 minutes of penetrative sex, It was almost like old times again. This was after sucking a crumb off a 20 mg Levitra.
So, what's it like for everyone. How are you doing. I especially wonder about those who went radiation. I'm hoping to keep improving. I'm 59 and there is a lot of living to be done.
-kh
Peter Headland - 20 Dec 2006 18:16 GMT > Can anyone who's been through this procedure confirm for me whether the > fact that I've had "partial" erections on a few occasions since surgery > means that as healing continues that I will, in all likelihood, be > restored to my former glory? Sorry, but early stirrings are not really a reliable indicator of final outcome. I had good response after my surgery almost 1.5 years ago, but progress since then was slow at first and recently non-existent (I can get enough of an erection to manage intercourse with a "cock ring", but it's marginal - I plan to try the injections in the new year). Others are totally limp at first then get great results after a year. Some have to wait well over two years. Often guys make progress in a series of steps rather than a steady improvement from one week to another. You just can't tell where this will go in any individual. No reason to be pessimistic, but don't be disappointed if progress is erratic.
 Signature Peter Headland
dave perry - 20 Dec 2006 18:48 GMT I too had stirrings early on, in fact I recall a 2/3 erection while having one of my first bm's post catheter removal. Since then, now over three years, I've had a couple of full-blown erections during and after an erotic dream so at least the electrical system works, one or two with vitamin V, lots of limp orgasms, but rarely enough response when I need it for intercourse although I was having some problems along these lines pre-op. I think your progress will be unique to you and looking on the bright side, most guys eventually return to some usable function although our "former glory" might be just out of reach. Don't forget about the psychological components too. A lot of this is in your head (the one on your shoulders) and an eager partner helps too. Dave Perry
> After a nerve-sparing radical removal of prostate on 11/17/2006, there > have been a few occasions when I've had partial erections; not adequate [quoted text clipped - 18 lines] > > Tom
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