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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2006having trouble with orgasms after RLRP
i had nerve sparring RLRP on oct 31st and still have incontenence where i have to wear a pad (3 per day), which is an improvement over initially wearing the diapers (8 per day) for 2 weeks. i have been taking 50mg viagra since oct 10th (4 days after removal of the catheter) and will be trying 75mg soon. i have been achieving orgasms daily since dec 1st but barely feel it. is it because there is more recovery still required or is that what i am stuck with? gary > i had nerve sparring RLRP on oct 31st and still have incontenence where > i have to wear a pad (3 per day), which is an [quoted text clipped - 7 lines] > am stuck > with? I'll bet you a cup of coffee that a year from now, you'll be much, much improved. Strictly based on the published odds, it's a sure thing. -kh Just keep pullin' >>and will be trying 75mg soon. >> i have been achieving orgasms daily since dec 1st but barely feel it. [quoted text clipped - 9 lines] > > -kh Just keep pullin' ~~~~~~~~~~~~~~~~~ Almost certainly correct, but leave out the cofffee! PM > >>and will be trying 75mg soon. > >> i have been achieving orgasms daily since dec 1st but barely feel it. [quoted text clipped - 12 lines] > > Almost certainly correct, but leave out the cofffee! For now. Yes. I remember that the docs told me to avoid caffeine right after the radiation. For 6 months to a year, I was Mr Natural, basic wholesome foods, moderate exercise (when I wasn't exhausted from the Lupron), and doing everything I could to give myself an edge. At 25 months, I'm drinking 2 mugs of coffee a day. I'm sticking to my improved diet but I am enjoying a few sinfully good treats; occasional (like once a month) quality chocolate, bakery pastries, hot Thai food, etc. This needs to be emphasized. Gary is improving fast. It's been, what, less than two months and he's drying up. Although I went radiation and Lupron, for a year or more, I'd take Vitamin-V, fantasize about my college adventures and that time in the 70's after the divorce, and it would be like, "Is this all?" A little twitching, and then, nothing. Sometimes, It reminded me of the descriptions of non-orgasmic women, "I can take it or leave it", "I don't know what everyone is so excited about", and "It's a lot of work and mess, for what?" I kept at it and have improved to the point of almost fully recovering. It took a couple years to get a quality of life back. Either rad or surgery is an affront to your sex infrastructure, the nerves, the muscular bulb, the source of semen, the erectile passages. -kh keep pullin' I'm surprised that you are even having orgasims at this early date so soon after surgery. Didn't your Doc tell you to wait about six weeks or so. You could mess things up by not waiting for things to heal before you start? I'd be talking to your surgeron and not us. Ron S. >I'm surprised that you are even having orgasims at this early date so soon >after surgery. Didn't your Doc tell you to wait about six weeks or so. You >could mess things up by not waiting for things to heal before you start? >I'd be talking to your surgeron and not us. > >Ron S. OTOH, this is surely also a meeting place for comparing notes, acknowledging advice when it agrees, probing further when it diverges. Gary, I had my LRP the day after you I think, and my surgeon and his nursing staff advised me to get those orgasms coming ASAP. Maybe rapid rehab is the norm with LRP rather than open surgery? Just a guess. > I remember that the docs told me to avoid caffeine right after the > radiation. kh When you say "right after the radiation", did you mean after the daily treatments or after the conclusion of radiation or both? What is the problem with caffeine? I've never heard anything about its relation to radiation. I am almost half way through my 35 IMRT treatments. I drink a couple of cups of gren tea every day, mainly to wake up in the morning. Should I reconsider this? Thanks, John > I am almost half way through my 35 IMRT treatments. I drink a couple of > cups of gren tea every day, mainly to wake up in the morning. Should I > reconsider this? What, and stay asleep? :-) Mary > When you say "right after the radiation", did you mean after the daily > treatments or after the conclusion of radiation or both? [quoted text clipped - 5 lines] > cups of gren tea every day, mainly to wake up in the morning. Should I > reconsider this? I dug through my papers and can't find the dietary instructions except for one note that said to cut down on caffeine because it "could" interact with the cipro and form crystals. I took cipro for a while after the seeding, so this might be a seed thing only. -kh I think they are more concerned with the guys who drink two pots of coffee a day not two cups! Also be aware that one Mountain Dew is loaded in caffeine. Green tea has much less caffeine than a cup of coffee. I think the average black tea would take two cups to equal one cup of coffee for caffeine (there are teas loaded in caffeine) but green tea tends to have less caffeine than the average black tea. Also some caffeine is good for you because it is a natural diuretic. Bev > > I remember that the docs told me to avoid caffeine right after the > > radiation. [quoted text clipped - 14 lines] > > John > i had nerve sparring RLRP on oct 31st and still have incontenence where > i have to wear a pad (3 per day), which is an [quoted text clipped - 3 lines] > catheter) and will be trying 75mg soon. > i have been achieving orgasms daily since dec 1st but barely feel it. I had a similar problem, but with time that improved signficantly. It is hard to compare because I no longer ejaculate, but I think my orgasms now are not very different from before surgery, at least when you take into account my age, which is 73. I would advise being patient. Part of the problem is that if you are anxious about the strength of your orgasms, you may end up having the equivalent of a weak premature orgasm, which will preclude another full orgasm for some period of time. So try to relax, and get lots of practice, mostly with your partner. > is it because there is more recovery still required or is that what i > am stuck > with? > gary one reason i am concerned is that someone who had RP about 10 yrs ago warned me before my surgery that he has the problem i think i am experiencing. he described it by saying that he can feel it coming on and then it happens but he misses the feeling of it. last night was a little different then the night before. i didnt feel it between my legs but i kind of felt it in my spine a lilttle. the night before i didn't feel much anywhere. that sounds like a little bit of an improvement but not anywhere near a touchdown. is the problem more mental than physiological? is it a feedback to the brain problem (missing erection or ejaculation, an anticipation problem, a brain processing problem, or a physical healing of the nerves problem or a combination? does practice make it better or do i need professional help? your feedback suggests that practice will make it better over time. i wonder why it didn't help my friend? gary > > i had nerve sparring RLRP on oct 31st and still have incontenence where > > i have to wear a pad (3 per day), which is an [quoted text clipped - 19 lines] > > with? > > gary > one reason i am concerned is that someone who had RP about 10 yrs ago > warned me before my surgery that he has the problem i think i am > experiencing. he described it by saying that he can feel it coming on > and then it happens but he misses the feeling of it. > last night was a little different then the night before. 10 years ago? Did he have "nerve sparing"? Did you? Hey guy, you are early in your recovery and it sounds like you'll do great. -kh > > one reason i am concerned is that someone who had RP about 10 yrs ago > > warned me before my surgery that he has the problem i think i am [quoted text clipped - 8 lines] > Hey guy, you are early in your recovery and it sounds like you'll do > great. I just reread your original post. Nerve sparing, drying up, and orgasms since the 1st. A bunch of guys are giving you the "palms up, what are you complaining about" sign. You are doing great. Just keep pullin', kegeling, taking your Vitamin-V, and if you can get a 40-something, bleached blonde babe with pouty lips to work on the tip, all the better. Fur Santa bikini, red stiletto heels, french nails. -kh Whatever floats your boat! ROTFLMAO Bev > > > one reason i am concerned is that someone who had RP about 10 yrs ago > > > warned me before my surgery that he has the problem i think i am [quoted text clipped - 22 lines] > > -kh > one reason i am concerned is that someone who had RP about 10 yrs ago > warned me before my surgery that he has the problem i think i am [quoted text clipped - 10 lines] > professional help? your feedback suggests that practice will make it > better over time. i wonder why it didn't help my friend? The urologists keep pointing out that the orgasm actually takes place in your brain, but I've never been quite sure what that means. Obviously, it is true, but since you are missing a prostate, any sensations that originated in the prostate will not now happen. My guess is that the absence of ejaculation is probably the main factor in what you are experiencing. It may turn out that instead of having a sudden release, you will just build up to a high point and then relax. That is what happened to me early on and still does happen on some occasions. But I do now also have old fashion orgasms. Even without them, the activity is still worth the effort, so I don't worry about it that much. Each of us is different and don't jump to conclusions about what will happen to you on the basis of what happened to your friend. It is still pretty early for you, and you have lots of healing to do. As I suggested, the more you worry about it, the more trouble you are likely to have. > gary > [quoted text clipped - 20 lines] >>> with? >>> gary I had nerve sparing RRP in 2003 and at first the orgasm was along the lines of blink and you would miss it. That certainly did get better over time. However, it takes a very long time for me to reach orgasm now. I am talking 90 minutes or more. The feeling down there is just not the same as before. After the surgery I am both impotent and incontinent of urine btw. I think you will be fine, just give it time. But unfortunately, in my case at least, things are just not the same so there is a possibility that you will continue to have problems. But you don't know that now, too soon to tell. Keep working on it. I suscribe to the "use it or lose it" philosophy. Good luck Gary! > i had nerve sparring RLRP on oct 31st and still have incontenence where > i have to wear a pad (3 per day), which is an [quoted text clipped - 8 lines] > with? > gary Many a woman would enjoy 90 minutes! Sure beats the two minute quickie. :-) Bev > I had nerve sparing RRP in 2003 and at first the orgasm was along the > lines of blink and you would miss it. That certainly did get better [quoted text clipped - 21 lines] > > with? > > gary > Many a woman would enjoy 90 minutes! Sure beats the two minute quickie. > :-) > Bev I prefer something in between. Not that I think I've ever had 90 minutes, I suspect I'd have fallen asleep ... Mary > I had nerve sparing RRP in 2003 and at first the orgasm was along the > lines of blink and you would miss it. That certainly did get better > over time. However, it takes a very long time for me to reach orgasm > now. I am talking 90 minutes or more. 90 minutes??? I've had complaints after 20 minutes, as in "What's the matter, don't you find me exciting?" Another was a lady who said, "Well, I think 3 orgasms is enough for me. I gotta work tomorrow, let's call it quits here." Oh no, we're goin' another couple minutes. I'm not taking THIS home. There. There, aaaah. Practice, practice, practice. Do the best you can. -kh I did not mean to imply that I was the Lance Armstrong of the bedroom when I mentioned the 90 minute thing. Believe me, I get plenty excited (I'm getting excited right now just thinking about getting excited). It's just that the equipment is just not in the same shape as before the RRP. In all seriousness, the sensitivity, the feeling down there is not the same. I've said here before that I may as well be rubbing my elbow for what good it does trying to get Willie to wake up. I suspect this has to do with nerves. Trust me, it is not "in my head", if you know what I mean. I had nerve sparing surgery, Walsh trained guy for that matter who has done lot's of these surgeries, and his comment to me was that "I did the best for you that I could". Apparently in some cases the nerves just kind of peel off the prostate. Mine liked where they were at and wanted to stay. I was prepared for impotence, but the incontinence came as a big surprise. I see the uro that put in the AMS 800 in a couple weeks. It is not working as expected so it looks like my two week vacation next year will be to recover from surgery again. :(( BTW, if some guy tells you that he is good for 90 minutes in bed he must have the AMS 700! HoHoHo gang. You heard it here first! > > I had nerve sparing RRP in 2003 and at first the orgasm was along the > > lines of blink and you would miss it. That certainly did get better [quoted text clipped - 15 lines] > > -kh >... In all seriousness, the sensitivity, the feeling down there > is not the same. I've said here before that I may as well be rubbing > my elbow for what good it does trying to get Willie to wake up. I > suspect this has to do with nerves. Trust me, it is not "in my head", ... > HoHoHo gang. You heard it here first! I know. Believe me I know. The last couple years were, er, "touch 'n go". I'm doing better now. I can get up to 80% just by myself and a tiny amount of Vitamin-V takes me to 90%. I'm hoping to get back to 100% but that might not be in the cards. -kh I did not mean to imply that I was the Lance Armstrong of the bedroom when I mentioned the 90 minute thing. Believe me, I get plenty excited (I'm getting excited right now just thinking about getting excited). It's just that the equipment is just not in the same shape as before the RRP. In all seriousness, the sensitivity, the feeling down there is not the same. I've said here before that I may as well be rubbing my elbow for what good it does trying to get Willie to wake up. I suspect this has to do with nerves. Trust me, it is not "in my head", if you know what I mean. I had nerve sparing surgery, Walsh trained guy for that matter who has done lot's of these surgeries, and his comment to me was that "I did the best for you that I could". Apparently in some cases the nerves just kind of peel off the prostate. Mine liked where they were at and wanted to stay. I was prepared for impotence, but the incontinence came as a big surprise. I see the uro that put in the AMS 800 in a couple weeks. It is not working as expected so it looks like my two week vacation next year will be to recover from surgery again. :(( BTW, if some guy tells you that he is good for 90 minutes in bed he must have the AMS 700! HoHoHo gang. You heard it here first! > > I had nerve sparing RRP in 2003 and at first the orgasm was along the > > lines of blink and you would miss it. That certainly did get better [quoted text clipped - 15 lines] > > -kh and no, I do not know why this posted twice??? |
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