Hello Peter Headland,
   We met while I was working at Heritage House in Mendocino..area
That was a terrible job, and I left that soon after our visit.
I am John Loomis, had RP 1999 with Dr. James D Brooks.
I know it is your Dr. too.
I drip, but not bad at all....just leftover after peeing....
I usually stretch it out, and drain...
In the ED dept....Never give up!  I am serious.  I did not get an erection
for 2 years unless using a pump, or injections....They work...they hurt too.
not the shot the medication...
Viagra made me headaches, and stuffy nose, and nothing...
Finally after using injections from Dr. Brooks (Prostaglandin) I diddled
with pump, viagra, etc......I was ready to give in.
I decided to cut the pills in small pieces.  I had 100mgs....
Two years later, I took my wife for a walk in the woods.
I took a little piece of viagra.....1/4 of a 100mgs pill.
Funny, I started to get a reaction /erection...Hum. I did not get a
headache, or stuffy nose.
Now, I can split a 100mgs pill in 1/4rs.  use it in the a.m. Put it under my
tongue, and in 15 minutes to 20, with stimulation, I can have an erection
that is quite nice.....
Trouble is wives do not like to be troubled when sleeping.
Trouble is the pill works best on empty stomach.
Sex happens in the a.m.  The time my wife loves to sleep.
Anyway, keep trying, do not give in.
Yes, pornography was helpful....I admit, It was eye and brain connections...
Nerves actually got excited, and found a way to connect....
Anyway, one nerve spared, used pumps, viagra, injections, and now with 1/4
of a Viagra Pill (100 mgs) I am up and running.
I have no secret.....Keep trying.
John Loomis  RP 1999   7 years PSA undetectable.
Erection best with small pieces of viagra....
Wish You well.
Never give in.
Your Friend, John Loomis

Braggart! ;) I'm hitting the 24 month anniversary. I can get about half
mast with 20mgs of Levitra. The side effects are not too bad with the
usual "seeing blues" more vividly, and a bit of a stuffy nose. I've
tried the injections and they do work for me, but then again I've only
taken 4 or 5 of them. I'd rather swallow a pill anyway than prick my,
well, you know. Erections certainly are not what they were like before
the RP, as far as I can tell. I'm 55 now but have always been in very
good physical condition and had no previous problems achieving and
maintaining an erection. I'm hopeful that there will be improvements in
that department by new pharmaceuticals and/or more time. I guess the
main thing is what was once trying to cause our demise is now gone. Try
keeping a stiff upper lip, or a stiff, well, you know!

B.A.

Peter,

I'm glad your treatment still seems to have worked.  That's
certainly good news.

I understand why you feel discouraged by the ED problem.
However, the fact that you have any response at all is a
very good sign.  I seem to remember reading that the guys
who suffer permanent ED are men who have _no_ response.
The men who have some capability, even if slight and of
short duration, still have some intact machinery that can
and does continue to gain function.

I believe that there are also significant psychological
factors that affect many of us.  Once you begin to regain
a little more function, your confidence will increase and
that, by itself, may be of significant help.

I predict that one night you and your wife will experience
a pleasant surprise.

Good luck.

   Alan

Congratulations, Peter.  Not a bad little Christmas gift.

...

For a year or so after seeding, while on Lupron and for months
afterward,  that's what it was like for me.  I'm at 25 months
post-seeding now and erections and orgasms are almost back to normal.
Almost.

While on Lupron, there was no stirring.

For 6 months after Lupron, it was "touch and no-go".

After a year,  there was improvement (firming up of the shaft, better
orgasms) but my testosterone was at 300, which is the low end of
normal.   Vitamin-V helped and there was progress.  It was gradual.

At 25 months post-seeding, I'm just under 2 years after the last Lupron
shot should have worn off, erections are better and longer lasting.

9 months ago I was good for 1 or 2 minutes of activity.   Now it's
maybe 4 or 5.  Sometimes, there is spontaneous stirring.

I have other side effects from the radiation, the IMRT and PD-103
seeds.  Several times a week, I drip a tiny amount of blood when I
start to pee.   I mentioned it to the rad-doc 3 months ago and he
wasn't concerned.   This started about 6 months ago and I'm guessing
that it's normal/common at the 2 year mark for radiation.  Anyone else
see that?

I have to potty about twice as often as I did before treatment.  There
is some urgency but there haven't been any accidents so I'm counting
myself as lucky.

-kh

I also had to wait 18 months for erections to return.   I am still doing
reasonably well at age 73, 6 years after surgery.   I can sometimes
manage with nothing but i ordinarily use Viagra.   I haven't really
noticed much decline over the past 4 years.

So don't give up hope yet.