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Medical Forum / Diseases and Disorders / Prostate Cancer / November 2006

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TonyPA - 23 Nov 2006 16:49 GMT
It's been 11 weeks since prostatectomy and I'm not
just leaking, I'm flowing at times.

Every time I sit down, bend over, stand up, you know
it's going to happen and it does..... I can't seem to
stop the flow.

Before surgery, I pee'd 3 or 4 times a day, including
before bed and when I woke, but this is ridiculous.

When I carry something, exert force, fart, sneeze,
laugh..... the leakage happens.

When, on average, could I expect this to slow and
even stop?

One person I spoke to, told me it was over 8 months.

HELP! This is driving me crazy!
Justin Case - 23 Nov 2006 18:41 GMT
: It's been 11 weeks since prostatectomy and I'm not
: just leaking, I'm flowing at times.
[quoted text clipped - 15 lines]
:
: HELP! This is driving me crazy!

I can appreciate your concern.  Most of us men here wear pads for several
months and then we seem to learn (as the gals have learned since childhood)
to apply the Kegel muscle for control.  In short, when urinating
intentionally, try as hard as you can to cut off the flow in mid-stream.
The muscle you will be using is the Kegel (look it up) and in time it will
come normally.

For months in my case after surgery anything like bending, lifting,
squatting, climbing -- all provoked spontaneous leaking.

I know it seems like this condition will never stop, but it will, it will.

Ken Bland
gary.miller12@comcast.net - 23 Nov 2006 21:48 GMT
Ken
i am having the same problem as Justin.
did Justin have both nerve bundles spared like i did?
which surgery technique did he have?
i am over 3 weeks since surgery, oct 31st, and am still struggling with
it.
i think i see some improvement since i seem to have something in my
bladder to pee in the toilet, even after standing.  it's not anywhere
near perfect especially when i see uncontrollable dripping in the
shower.  i have to wear depends, not just pads.  if i wore pads, my
pants would be wet.
i don't do the kegel while i am urinating.  i did it initially to see
what the muscles were but i now pee first in the toilet then do it.
should i still be stopping my pee like you indicated?  i focus on both
sphincter muscles, the one at the tip and the one in the rear.  should
i foget about the one in the rear since it is supposed to be non
functional?
i'm embarassed to tell anyone about my incontenence since i imagine
they will be sniffing when they are around me.  i did not expect this
to last so long. i have to change the depend  when i go to movies and
find the bathroom toilets unsanitary.  it's really an inconvienence but
it's better than the alternative.  i also can't figure out how i am
going to masterbate with this depend on.
gary

> : It's been 11 weeks since prostatectomy and I'm not
> : just leaking, I'm flowing at times.
[quoted text clipped - 29 lines]
>
> Ken Bland
tchtic@yahoo.com - 24 Nov 2006 02:07 GMT
> i don't do the kegel while i am urinating.  i did it initially to see
> what the muscles were but i now pee first in the toilet then do it.
> should i still be stopping my pee like you indicated?  i focus on both
> sphincter muscles, the one at the tip and the one in the rear.  should
> i foget about the one in the rear since it is supposed to be non
> functional?

I think they take the rear sphincter with the prostate.   I'm not sure
but I've been looking at pictures to figure out why I can't squirt
semen like I used to.  It looks like it's right up where they do the
cutting.

Can one of you surgery dry guys give Gary tips.  I recall reading that
some docs tell their patients to kegel before the surgery and then keep
exercising and experimenting until they get it under control.

I know that it can take time because I know a guy in real life who was
in diapers for over 2 years.   Some unfortunate guys never get dry and
have a mechanical valve emplanted.

As a rad-grad, I had the opposite problem.  For rad, at the inflamation
peak, which happens about a month after treatment, some guys have
"stoppage".  In extreme cases, they need to catheterize to go.

I was lucky.  At the worse, I was taking 2 Flomax a day and had a weak
stream.

-kh
dave perry - 24 Nov 2006 03:13 GMT
A little lesson in anatomy.  There are originally three sphincters, one
at the top between the bladder and prostate, one within the prostate
itself, and one below the prostate.  The first two are yanked in
surgery leaving the one at the bottom.  This is the one you do the
Kegels with if you think they will be of use.

Is it my imagination or has there been an unusually high number of guys
recently whining about leaking anywhere from a few days to a few months
post surgery.  I know I'm supposed to be politically correct and offer
support, blah, blah, blah, but as a leaker well over three years now,
get over it.  You'll probably dry up sometime in the next few months,
almost certainly within a year.  If you don't, so what?  You put a pad
on in the morning just like putting on your socks.  Getting old ain't
for sissies as they say.  What are you going to do if something really
bad happens?  And now some guy wants to know how to masturbate with a
pad on.  Take the damn thing off and get your hand wet.
Dave Perry

> > i don't do the kegel while i am urinating.  i did it initially to see
> > what the muscles were but i now pee first in the toilet then do it.
[quoted text clipped - 24 lines]
>
> -kh
tchtic@yahoo.com - 24 Nov 2006 13:51 GMT
>.....  I know I'm supposed to be politically correct and offer
> support, blah, blah, blah, but as a leaker well over three years now,
> get over it.  .... And now some guy wants to know how to masturbate with a
> pad on.  Take the damn thing off and get your hand wet.

It's not just PC.  This diaper thing is a big deal for many guys.
Maybe Depends can be a fashion statement, a 21st century version of the
codpiece.

As for the second part, google for "golden shower" for tips.

-kh
I.P. Freely - 24 Nov 2006 06:51 GMT
>  i focus on both
> sphincter muscles, the one at the tip and the one in the rear.  should
> i foget about the one in the rear since it is supposed to be non
> functional?

You DID get detailed Kegel instructions from your doc, right? If not, go
pee on HIM and Google urinary incontinence here and on the net. There
are many Kegel exercise regimens.

> i'm embarassed to tell anyone about my incontenence since i imagine
> they will be sniffing when they are around me.  i did not expect this
> to last so long.

Again . . . what did your doc say? It can take weeks, months, or even
longer to dump the diapers and switch to pads or go commando.
My friends don't WANT to sniff around me, especially after having seen
me twirl a heavy diaper around my finger as I walked towards the park
dumpster last summer.

> i have to change the depend  when i go to movies and
> find the bathroom toilets unsanitary.

Office phones or keyboards or desktops have many times more germs on
them than public toilet seats do.

> i also can't figure out how i am
> going to masterbate with this depend on.

Take it all off, sit on the side of the tub with your feet in the tub,
and raise hell.

I.P.
Justin Case - 24 Nov 2006 21:21 GMT
: Ken
: i am having the same problem as Justin.
[quoted text clipped - 20 lines]
: going to masterbate with this depend on.
: gary

<Remainder snipped>

I didn't intend to confuse you, Gary, but it appears that I have quite
unintentionally done so.  Justin Case and Ken Bland are one and the same
person.  I adopted Justin Case as my pseudonym solely as an eye-catcher; Ken
Bland is my real, legal name.

As for Kegel-ing, I recommend that you practice this each and every time you
urinate.  The best procedure, not available to you now but for those who
will have this radical surgery at a later time, is to practice using the
Kegel muscle long before it is necessary.  I have not investigated this
myself but I had a dentist friend tell me that a man's Kegel muscle is much
longer than a woman's and can be used every bit as effectively as the women
(who never had a prostate) to control urination.  (Yeah, I know, even among
the women there are occurrences of incontinence, often under the same
circumstances that you and I describe.)

Please exercise patience.  We are all different but we have the same goals
in mind.  Remember Winston Churchill's advice to a classroom of students
during WW II:  "Never, never, never give up."

(The records seem to support the fact that Churchill's speech was actually
more like "Never...give in," but most people remember it otherwise.)

Ken Bland aka Justin Case
Steve Jordan - 24 Nov 2006 23:21 GMT
On November 24, Justin Case wrote, in pertinent part:

(ka-snip)
> Remember Winston Churchill's advice to a classroom of students
> during WW II:  "Never, never, never give up."
>
> (The records seem to support the fact that Churchill's speech was actually
> more like "Never...give in," but most people remember it otherwise.)
>  
I dunno about most people, but this is the history and correct quotation:

"The speech was made 29 October 1941 to the boys at Churchill's old
public [private] school, Harrow--not Oxford or Cambridge: 'Never give
in--never, never, never, never, in nothing great or small, large or
petty, never give in except to convictions of honour and good sense.
Never yield to force; never yield to the apparently overwhelming might
of the enemy.'''

Source: The Churchill Centre http://www.winstonchurchill.org

England (and the Commonwealth) had been defending itself against fascism
for some two or three years at that point. America had yet to enter the
war (note the date).

I use the quotation from time to time when dealing with PCa.

Regards,

Steve J
Charlie Leo - 24 Nov 2006 18:24 GMT
>It's been 11 weeks since prostatectomy and I'm not
>just leaking, I'm flowing at times.
>
>Every time I sit down, bend over, stand up, you know
>it's going to happen and it does..... I can't seem to
>stop the flow.
(snip)
>HELP! This is driving me crazy!

It's been 28 months for me.  After 2 years, my original surgeon said
that I would not improve, and the constant drip (and sometimes flow)
was driving me nuts! I figured that the surgeon knew what he had cut -
and knew something he didn't want to tell me. But I had a sphincter
implant on Halloween. Monday the doc is going to activate the thing.
I'll let you know.

Charlie
 
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