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Medical Forum / Diseases and Disorders / Prostate Cancer / November 2006

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HDR // BRACHY THERAPY

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wild bill - 01 Nov 2006 17:52 GMT
To the group:  5 years ago this group was a life saver for me. Now I am
trying to help a friend who has joined our club.
He has had two biopsies that show 4+3 totalling 7. His PSA is 7+. In my
case I chose the RRP operation. He is considering, HDR High dose
radiation or also called Brachy Therapy. He has done reading and
research. If anyone in the group has any info on this treatment please
post to the group OR contact him
at  red95wing@aol.com --   I will forward any posts here to him. He is
having a problem finding this group on his P/C.
Thanks --   Bill
Heather - 01 Nov 2006 20:04 GMT
I think you are limited to just two people......probably because it is
quite expensive in the US.  Bev's husband had straight seeding.

Anyway, my husband had HDR + 25 EBRT done in August of 2003 in Toronto
at Sunnybrook Hospital's Cancer Care Centre, and Alan Meyer had it done
a bit later in the US.  (I can't tell where you are because you use Web
TV.)

My husband (Ron) had a 4+3 Gleason and a PSA of 10 or 11 (two different
doctors).  But I will write him directly, if he would like that.

Heather.....

> To the group:  5 years ago this group was a life saver for me. Now I
> am
[quoted text clipped - 8 lines]
> having a problem finding this group on his P/C.
> Thanks --   Bill
wild bill - 01 Nov 2006 20:29 GMT
Thank you Heather.. He would like to hear from you or anyone else.
As for myself, my PSA tests have all been
0.04 since the operation. The 10th of this month will be 5 years.  Yes I
do dribble on occasion and erections are things I had before the
operation. BUT I feel great and do whatever I want so no complaints.
Bill
Alan Meyer - 01 Nov 2006 20:39 GMT
> ... and Alan Meyer had it done a bit later in the US. ...

Yes.  I had two HDR brachytherapy treatments of 10.5 greys
each, separated by 25 3DCRT external beam treatments.  I
also had Lupron treatment starting 6 weeks before the first
HDR.  My PSA readings before treatment were variously
recorded from 6.0 to 10.3, and my Gleason (one biopsy
interpreted by three different pathologists) was variously
reported as 3+3, 3+4, and 4+3 - the last by the National
Cancer Institute.

The treatment was done as part of a clinical trial at the National
Cancer Institute in Bethesda Maryland - entirely free by the way.

The treatment was in December 2003 - January 2004.  There
were some big PSA bounces afterward, but my last PSA
reading was low (.25) and (knocking on wood) it's looking like
the treatment was successful.

Had I not qualified for the clinical trial, my next choice would
have been a combination of external beam therapy plus
permanently implanted seeds.

I belive that there are quite a few centers around the U.S.
where HDR brachytherapy is offered.

Clarence Crow also had a treatment like mine in Australia,
also as part of a clinical trial.  He had hormone therapy for
a longer time than I did and has had more problems with it.

If Wild Bill's friend has any questions, I would be happy
to answer them by email or phone.

   Alan
Steve Kramer - 01 Nov 2006 22:02 GMT
> To the group:  5 years ago this group was a life saver for me. Now I am
> trying to help a friend who has joined our club.
[quoted text clipped - 6 lines]
> having a problem finding this group on his P/C.
> Thanks --   Bill

Hey, Bill!!!  It's been over a years since you let us know how you're doing.
You didn't even stop by for your 5th anniversary!  Is your PSA still
registering in the thousandths?

As to your friend, his age is a factor as is Gleason and PSA.

I think he is talking about a combination of therapies, but soon other rad
experts will fill in the blanks.

Good to hear from you.

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA  .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
PSA <0.04
Non Illegitimi Carborundum
wild bill - 01 Nov 2006 22:49 GMT
Hi There Steve,  Yes I have been negligent. And I do apologize for it.
But I have lurked in the group off & on.
Since my surgery all my PSA's have been
0.02 or 0.03. I will only say I am in remission. But this N/G is a life
saver for guys. I am on a webtv system & when I give Pete this address
he can't find it the way I can. So as you all helped me I am helping
him. Stay healthy and be good. Bill
Alan Meyer - 02 Nov 2006 00:12 GMT
> I am on a webtv system & when I give Pete this address
> he can't find it the way I can.

To get to this group using the web, he can try:

http://groups.google.com/group/alt.support.cancer.prostate

Or he can use a mail and news reader like Microsoft's
Outlook Express or Mozilla Thunderbird and contact a
news server.  He'll need to call his Internet Server Provider
to find the details for how to connect to their news server.

    Alan
Steve Kramer - 02 Nov 2006 09:03 GMT
> Since my surgery all my PSA's have been
> 0.02 or 0.03.

That's great news!

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA  .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
PSA <0.04
Non Illegitimi Carborundum

I.P. Freely - 01 Nov 2006 22:20 GMT
> [ My friend] is considering, HDR High dose
> radiation or also called Brachy Therapy. He has done reading and
> research. If anyone in the group has any info on this treatment please
> post to the group OR contact him

Bill, caution your friend to be careful of his sources. I am very
encouraged that he has "done reading and research", and urge him to
weight that much more heavily than he weights anecdotal experiences from
real or virtual buddies, especially if they are obtained privately and
thus are not subjected to peer review such as this forum can provide.
All your friend has to do to get hooked up with this forum is call his ISP.

Open and laparoscopic surgery and seed or external radiation are all
solid, well-studied treatments heavily documented in the literature
based on scores of thousands of patients tracked over 5, 10, 15, even
close to 20 years. This huge body of evidence provides by far the best
data we have for choosing our treatment based on expected benefits and
side effects. What some dude or ten dudes experienced means nothing to
your friend's likelihood of good or bad results, and he must realize
that some patients' or families' claims differ dramatically from what
their DOCTORS would say about the same case.

Your friend's reading (PC books, websites such as universities and
hospitals and similar recognized institutions, and studies uncovered by
Google but taken with blocks of salt) and circumstances (e.g., PSA,
PSAV, rectal exam results, Gleason grade, clinical stage, age, health,
side effect priorities) will help him rule out some treatments and favor
others to narrow down the options. I decided I had studied enough when
-- and not one hour before -- my circumstances clearly narrowed my
options from the 5-6 listed above to one very specific treatment, and I
suspect that many other patients can reach that same point with a
reasonable amount of study. Each treatment has its own suite of benefits
and SEs which often provide some optimal match with the patient's suite
of circumstances. Joe Blow's outcome, good or bad, shouldn't override
that, and Joe Blow's OWN LAYMAN'S OPINION of his outcome and prognosis
matters even less to your friend.

I.P.
ron - 01 Nov 2006 23:22 GMT
I.P. Freely wrote...snip...

> Open and laparoscopic surgery and seed or external radiation are all
> solid, well-studied treatments heavily documented in the literature
> based on scores of thousands of patients tracked over 5, 10, 15, even
> close to 20 years.

I don't think there are any long-term (>= 5 years) biochemical
recurrence studies for lap RP...Ron
callalily - 01 Nov 2006 23:31 GMT
Hope this is not too elementary for you all but this topic is new to
me.  I looked in malecare.org and they seem to have a couple of
reliable articles on the subject (re 2 types of bcr).  Apparently the
chairman of intel had this done back in 1996 and wrote about it in
Fortune Mag.   Also, prostatecancerfoundation.org (Michael Milken site)
is a good reference site because they have more money than any pca
charity.  Just went by there and they have a free booklet on nutrition
and pca that you can download, btw.  Above org. has supported 1200
researchers in 100 diff. institutions and I am hoping that any day now
they will find the Cure. --  Also, the above 2 orgs. do not accept any
money from drug/healthcare-related companies although PCF is sponsored
by Major league Baseball.

Go Cards.

LFC

> To the group:  5 years ago this group was a life saver for me. Now I am
> trying to help a friend who has joined our club.
[quoted text clipped - 6 lines]
> having a problem finding this group on his P/C.
> Thanks --   Bill
 
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