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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2006freezing as a treatment for pca
a friend in toronto just told me he saw a show on tv several days ago about freezing the prostate as the new treatment for pca with minimal side effects. does anyone have info on this? gary > a friend in toronto just told me he saw a show on tv several days ago > about freezing the prostate as the new treatment for pca with minimal > side effects. > does anyone have info on this? > gary Cryoablation of the prostate has been around for some time. Third-generation equipment is now in wide use, but results from most practitioners are not impressive. Recurrence rates are significantly higher than with RT or RP, so are side effects with ED occurring in 80+% of the patients and incontinence levels are in the 5-10% range. On the other hand, cryo is well tolerated (often an out patient procedure), so it can be an effective treatment for the elderly, or those less fit. Also, if you suffer a recurrence after an initial cryo treatment you can simply be retreated. One of the current cryo areas of interest is targeted ablation, the male equivalent of the lumpectomy. So the entire prostate need not be initially destroyed. Dr. Gary Onik is one of the recognized cryo "artists." I suspect that his side effect and recurrence rates are much lower than the ones from the multi-institutional study I noted above...Best wishes and good health, ron >> a friend in toronto just told me he saw a show on tv several days ago >> about freezing the prostate as the new treatment for pca with minimal [quoted text clipped - 18 lines] > the multi-institutional study I noted above...Best wishes and good > health, ron Dr. Duke Bahn, of Ventura and Marina Del Rey, California, best known as an expert in color doppler ultrasound, is also a leading proponent of cryo, including treating only the cancerous areas of the prostate in certain cases. There's more info on cryoblation at http://www.pioa.org/c_cryo.html. Alex From: oitbso@yahoo.com (ron) gary.miller12@comcast.net wrote: a friend in toronto just told me he saw a show on tv several days ago about freezing the prostate as the new treatment for pca with minimal side effects. does anyone have info on this? gary Cryoablation of the prostate has been around for some time. Third-generation equipment is now in wide use, but results from most practitioners are not impressive. Recurrence rates are significantly higher than with RT or RP, so are side effects with ED occurring in 80+% of the patients and incontinence levels are in the 5-10% range. On the other hand, cryo is well tolerated (often an out patient procedure), so it can be an effective treatment for the elderly, or those less fit. Also, if you suffer a recurrence after an initial cryo treatment you can simply be retreated. One of the current cryo areas of interest is targeted ablation, the male equivalent of the lumpectomy. So the entire prostate need not be initially destroyed. Dr. Gary Onik is one of the recognized cryo "artists." I suspect that his side effect and recurrence rates are much lower than the ones from the multi-institutional study I noted above...Best wishes and good health, ron =====> of the two cyro patients that i have kept in touch with and recurrence has happened, the doctor did NOT suggest another round of cyro for them. so, the question is........ is the point about being retreated a selling point because of the procedure or it is practiced if it happens......... does anybody at the newsgroup know of anyone who has had recurrence after being treated with cyro and had it done again???? ~ curtis knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc On October 20, Gary inquired: > a friend in toronto just told me he saw a show on tv several days ago > about freezing the prostate as the new treatment for pca with minimal > side effects. > does anyone have info on this? > As noted elsethread, cryotherapy/cyrosurgery/cryoablation has been around for years. I had the procedure on a date that I shall never forget, November 20, 2003. My PCa was T2a, PSA 5.7, Gleason 4+5=9 in five of six specimens on one side. There was a Gleason 8 on the other side that was not discovered until several months later. The uro recommended against RP because I have a somewhat leaky aortic valve. I do not believe that it would have posed a danger, but the uro did not wish to take what he perceived as a gamble. The procedure (as learned in a later biopsy) transformed the Gleason 9 tumor into an "acinar mass" suggestive of but not diagnostic of PCa, per Bostwick. It also disclosed the Gleason 8. Reason for second biopsy was rising PSAs post-cryo. It is quite evident that the cryo did not substantially affect the Gleason 8 tumor. One thing it succeeded in doing was to make me permanently and hopelessly impotent. I had been warned of this and accepted it as making the best of a poor bargain in exchange for a (futile) hope of a cure. The uro recommended salvage RT, which I had. That's another story. Knowing what I now know, would I do it again? No. And I'm very suspicious of the curative potential of the so-called partial or targeted cryo. I admit that this suspicion is not based upon clinical evidence. Warning: The above is no more than anecdotal and should not be considered to be predictive of anyone else's outcome. Regards, Steve J >a friend in toronto just told me he saw a show on tv several days ago > about freezing the prostate as the new treatment for pca with minimal > side effects. > does anyone have info on this? The following tried it. Most learned to regret it. Dan B. was doing well, however, when last he checked in. robert01942@hotmail.com Canada Bob dubosky@DELETETHIS.earthlink.net Dan Dubosky ewnowak@adelphia.net Ed Nowak vinge3@cox.net Frank jsshp@earthlink.net Jack in Phoenix RobertBob@Att.Net Robert Austin scrapiro@comcast.net scrapiro mycroft@cox.net Stephen Jordan  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 Non Illegitimi Carborundum > ... > The following tried it. Most learned to regret it. Dan B. was doing well, however, [quoted text clipped - 9 lines] > mycroft@cox.net Stephen Jordan > ... Steve, I am constantly impressed with how useful your compilation of patient histories is. Good work. Alan >> ... >> The following tried it. Most learned to regret it. Dan B. was doing [quoted text clipped - 16 lines] > > Good work. Thanks, Alan. I spend less time that you do researching and relating and less than others here, but it's a niche and I'm happy to fill it. Hi, I've had a request to drop by to say my bit on cryo... Looks like I made top of the list in something finally, grin... > > The following tried it. Most learned to regret it. Dan B. was doing well, however, > > when last he checked in. [quoted text clipped - 6 lines] > > scrapiro@comcast.net scrapiro > > mycroft@cox.net Stephen Jordan I have no idea of how these other guys have gone on, or where they had their cryo done, but here's my history... I was diagnosed in May 2004, went for HIFU as Plan A, but due to a build up of calcium in the prostate HIFU wasn't an option. Plan B was cryo, and I had tha done at Sunderland Royal, England {from whence I came}. Have to say that the Op {if you can call it that} was a breeze, the only immediate side effect being that 3-4 days later my scrotum swoll up to the size of a grapefruit, that caused amusement at "show and tell" in the pub though... The Op they did was a partial freezing, seems that on the spur of the moment the surgeon decided {taking my youthful 56 year appearance into account} that he wanted to give me the best chance of maintaining an erection, even though we had spoken at length about this, and I'd told him in no uncertain terms that "I could care less" my life was far more important to me than maintaining an erection. I'm one of those guys that thinks more of himself than the ability to have a rush of blood into an appendage. Anyway, they didn't even mention this for almost 2 years, until they asked me to complete a {sort of } survey... one of the questions being about ED. Here's my experience on that... woke up after the cryo with an erection, so I was sort of glad about that, {thinking they done a total freeze}, I was mentally prepared to lose it, but I wouldn't throw it away fro the sake of it. Anyway, when my scrotum started to expand faster than the Universe, the pain that went with that cooled my "desire" so to speak... The better part of 6 months went by without as much as a glimmer, then one morning I woke up with the compass pointing north again... I was more curious than anything, as I said I full well expected to become impotent, but I'd no intention of letting that affecting me ego, self worth or self confidence. It's bad enough coping with cancer without tormenting or torturing yourself over stuff like that... Enough of the trivia though... except maybe I should say that at some of the meetings I've attended in the UK I've talked to men who had the full cryo and seen the flag fall on the empire, then just when they'd given up the ghost, as much as 2 years later they have regainded usefull use of the appendage... Now for {at least to me} the more important part... what's the track record for the cryo done at Sunderland Royal. To the best of my knowledge they have been doing cryo for at least 3 years now, the surgeon Damien Greene is a great guy, as are all the folks at Sunderland Royal. They use Albatherm 3rd generation stuff, and have done in the region of about 100 men, could be more now, just guessing on that. Of the 40-50 men that I have met or exchanged e-mails with just one has had repeat cryo, he like me received the partial freeze. I'm not privvy to their records, but I know the case nurse well enough to say with confidence that in the 3 years they've been treating men, no one is dead yet., and of the 40-50 men that I have had contact with from time to time, the worst PSA is 0.86 but steady at around that for over a year, and seeing as he's 72 it looks like he'll clock off with something else, before the cancer does him any harm. What do I think of it... well unlike the folks who pronounce "the only way to go is the way they went", I differ on that count, I wish I'd have been able to have HIFU, the results I've seen again in the UK {from Stepping Hills Hospital, in Stockport, 8 miles south of Manchester} are equal to, if not better than RP et-al. Cryo was Plan B for me, yet I'd promote it to anyone. I've spoken with quite a few guys who had HIFU at Stepping Hills, and they are all doing well, no deaths there yet, and belive me I ask for the sake and benefit of others treading across this mine field... One thing you have to BE AWARE OF in this game though is... Dead Men don't speak, so no matter what option folks took, and finish up "swearing by" they are the lucky ones, if that's the right terminology. It's easy to listen to someone who had an RP and become persuaded that's the best way to go, well, maybe it was for him, but I know of two blokes who had RP's around the same time as I had cryo, both are dead now... nothing to go off statistically, just anecdotal. I also know one guy in the UK who had radiation treatment only to find himself doubly incontinent, he soiled himself almost ever hour, 24/7, this was the most tragic case I came across for any treatment, but it can happen... Looking back on how Plan B worked out for me, well, I'm doing fine, still get the odd scare as the PSA bounces around, took me a while to figure out that was due to me still having the remnants of a prostate. I still wish Damien had froze the whole damned lot, but I can't fault a man who at the moment gave me what he thought was the best option for me. If I could swap my erections for zero PSA I'd do it in a heart beat... but as is, I have a bit of this, and a bit of that, my preference would be to have none of either. All in all though I am happy with how things are, never had any incontinence, nor have I heard of any of the group I've met with having such problems, but you can't go off that, men don't always tell the truth about stuff like that, not even on blind surveys. To be honest the thing I feared the most was incontinence, I could have lived quite contently without an erection, but I'd have had a bad time coping with hissing down my leg for the rest of my life. I hope this gives a balanced review of my experience with cryo, I'd have no reservations at all promoting HIFU or Cryo to anyone with PCa. Both Cryo & HIFU are offered free to folks living in the UK, but these two hospitals will take patients from abroad, the cost of HIFU being around ?4000 and Cryo being around ?9000, it aint cheap, but neither is a funeral... Good Luck & God Bless you all... Canada Bob. <I hope this gives a balanced review of my experience with cryo, I'd <have no reservations at all promoting HIFU or Cryo to anyone with PCa. Hi, Bob! That was a great accounting. I didn't know that about prostate tissue. I assume you are considered potentially cancer free? At what point did your PSA level off? The last I heard, I think, was 0.27. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum Hello Steve... It's an odd group this one aint it... Most of us get dx'ed and then think our sky is falling, we find our way into here, seek advice, chose what we think is best for us, then no matter what we chose, one way or another we are still here years later chewing the fat over it. I guess this alone must give the guys who are still in shock something to take into account. Having said that, dead men don't talk, so we don't hear from them, nor is it easy to even count them, but it does seem to be the same brigade in here that it was a couple {or more} years ago... > That was a great accounting. I didn't know that about prostate tissue. I > assume you are considered potentially cancer free? At what point did your > PSA level off? The last I heard, I think, was 0.27. The lowest my PSA ever went {3 months after the cryo} was 0.18, I was hoping for non detectable, but that in itself varies in what it means from Lab to Lab. I've also seen my PSA jump around a bit, sometimes up, then back down again, taken every 3 months. Not sure {for certain} why it went up, or really why it went back down, few certainties in this game. The highest my PSA has been was around 0.43, caused me a bit of concern at the time, until I found out that they hadn't actually frozen the whole of my prostate, even though I'd requested that option. I was more concerned about maintaining life than a stiff appendage. Turns out that they froze approx 85% of the gland, a decision made by the surgeon at the time of the Op. This is done {in the UK at least} for the guys a bit on the younger end of the scale, to preserve their ego/sex life/self confidence. So like them I was left with around 15% residual prostate tissue, hence with this option you'll always have some PSA. Hopefully what's left are healthy prostate cells, but the PSA output of these will vary day to day, month to month, for all kinds of reasons... The probability is the fluctuations I've seen simply mirror those that could be observed in a healthy prostate, yet when they go up 20-30% it can make you sweat. When I started to sweat I would start on a course of Celebrex {I'm still a BIG FAN of Celebrex}. Then the next test would show the PSA down to 0.25 or so, down say 10-15 points {nothing in the scheme of things, except when it's YOU it's happening to}. So... chances are high that I don't have any prostate cancer, anywhere, could be that the Celebrex was no more than the Rosary to hang on to.. if I don't have any cancer cells for it to kill off, then how could it help ? other than letting me feel that I had some control. These days I'm more curious than concerned... I don't sweat it at all, except on one of dark days when the sky really does look like it's falling. Being of the curious type, I'm keen to know if I should be having a fPSA test, rather than just the bog standard PSA test, but seeing as how my PSA is so low I'm not sure if they could determine the % of fPSA, hence the question I've just posted... Anyone had fPSA tests done ??? Other than that, did I mention that I had a PET Scan done almost a year ago... That came back clear as a bell, odd stuff that Technicium... did you know it was the stuff they added to the paint the USS Eldridge ! really odd to drift back and forth between one Universe and another... mind you, the jury is out on that one too, seems it could have been the draught Guinness I had before the test, grin. All the Best, Canada Bob. > Hello Steve... > > It's an odd group this one aint it... Hey Canada Bob, Good to see you back again, albeit only sporadically so far. Also, good to hear you're doing well. SignatureJerryW Please respond to group; email address is not valid 2/11/04 PSA 2.6, Suspicious DRE (age 62) 2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe 5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes Fully continent by 9/04 PSA <0.1 since Hello Jerry... > Good to see you back again, albeit only sporadically so far. Also, good to > hear you're doing well. Thanks for the above Jerry... I get the odd e-mail now and again from a few folks in here asking for updates and thoughts looking back on how things went for me, so I nip back in now and again to say my bit about Cryo & Celebrex. If there's one thing I've learned over the last 31 months {since I was dx'ed} it's that what I thought at the time was a death sentence is {for many of us} more a cronic disease, something we can learn to live with. The toughest part for me was regrouping after the dx, put me on my knees for 3-4 weeks, and I mean that literally, I just couldn't cope. Well over 2 years later most days I don't even give it a thought. PCa may well get me in the end, but it doesn't play on my mind 24/7 anymore. I just hope that folks passing through this fire will gain hope and confidence from hearing that. I guess Churchill was right, "we have nothing to fear, but fear itself". Glad to hear from you, hope that you're in good shape... Signing off again, but wishing all of you well. Canada Bob. > hearing that. I guess Churchill was right, "we have nothing to fear, > but fear itself". Actually, I think it was Franklin D. Roosevelt. Of course, Heather will probably come up with a Canadian who said it first. :-) > Signing off again, but wishing all of you well. Hope to see you again, Robert! SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum > "Canada Bob" <bob.norburn@pei.sympatico.ca> wrote in message > > I guess Churchill was right, "we have nothing to fear, > > but fear itself". > > Actually, I think it was Franklin D. Roosevelt. Correct. Of course, he was translating the immortal words of the great Soviet thinker Popov. ;-) SignaturePeter Headland >> "Canada Bob" <bob.norburn@pei.sympatico.ca> wrote in message >> > I guess Churchill was right, "we have nothing to fear, [quoted text clipped - 4 lines] > Correct. Of course, he was translating the immortal words of the great > Soviet thinker Popov. ;-) PSSSST!!! Tell Steve K that Popov is an Inuit name and he was Canadian....ROFL!! OTOH, Roosevelt's heart was Canadian and he had a home up here in New Brunswick....snicker. See http://www.pc.gc.ca/voyage-travel/pv-vp/itm4-/page9_e.asp Heather Hi Steve... > > I guess Churchill was right, "we have nothing to fear, but fear itself". > Actually, I think it was Franklin D. Roosevelt. Of course, Heather will > probably come up with a Canadian who said it first. :-) FDR was it, I just remember my Dad quoting it for many a year. He {and all his brothers} were in WWII, in Europe & N. Africa, all of them survived the war, but they are all long gone now, 37 years since my Dad died {of pca that had spread to his liver}. Just one of my Dad's buddies left now, Owd Gordon, age 90 now, still going strong though, gets out for a pint near every day. He was only 53 when he died, and like a bad cricket score it was an age that I approached with some trepidation. Odd things was, I didn't even get a PSA test until I was 56, and except for changing my Dr I probably wouldn't have had one then. By the time they did the test they reckoned I'd already had pca for years ! what a shocker that was, thought I was in the clear only to find the rot was already established. Not sure if I ever mentioned this but... I never had any symptoms at all, so the PSA test was a real bombshell to me. Right now I'm in as good a shape as any of us can expect to be in, but I keep an eye open for any new treatments, especially research being done on vaccines etc, looking forward to the day when a simple shot in the arm might do the trick for us. All the Best, Canada Bob. > He {and all his brothers} were in WWII, in Europe & N. Africa, all > of them survived the war, but they are all long gone now, 37 years > since my Dad died {of pca that had spread to his liver}. My dad was in Korea. His and my mom's brothers were in WWII, all at the end. I wish I knew my dad's buddies from Korea. I knew he had three Purple Hearts (US award for being wounded), but at his funeral (killed by PCa 24 years ago), his cousin told me he was "put in" for a Silver Star or something like that. He only knew that it involved an action where he held a hill and was the only one to live through it. I'd like to know the whole story. > He was only 53 when he died, and like a bad cricket score it was an > age that I approached with some trepidation. My dad probably was 40 when he started having problems with cancer. He was diagnosed at 42. He died at 50. I worried at the approach of all three ages. Damned bastard caught up with me at 46, but I hope to live past 60. > Odd things was, I didn't even get a PSA test until I was 56, and except > for [quoted text clipped - 3 lines] > was, thought I was in the clear only to find the rot was already > established. Yup. Same here. One check, in 1998. Then, another in 2000 and found it was a 16 PSA and quite possibly not curable. > Not sure if I ever mentioned this but... I never had any symptoms at > all, so the > PSA test was a real bombshell to me. Yup. Same here. Asymptomatic. > If there's one thing I've learned over the last 31 months {since I was > dx'ed} it's > that what I thought at the time was a death sentence is {for many of > us} more > a cronic disease, something we can learn to live with. We might not want it but that's something that's struck me too. I have several pals who have heart disease, you know the situation, you probably have pals like that too. N-way bypass surgery, doc wants to give them a pacemaker, on blood pressure meds for years. One guy said that he's afraid every time he exercises because he might trigger an attack. So what do we have? A slow, treatable disease, where most guys are cured. There's lots to dislike about this. I don't like being less than 100% potent, I don't like the side effects of the Lupron. I don't like the burning and stinging while pee'ing. But it's a lot better than a heart attack, stroke, or metastatic skin cancer. -kh > One guy said that he's afraid every time he exercises because he might > trigger an attack. Tell your friend about Jim, who was medevaced off a ski slope 13 years ago at 53 (his family's cholesterol runs upwards of 600) and woke up with a quad bypass. Now, at 66, he windsurfs in overhead waves and gale force winds year 'round, and spends the calm days in the gym. His closely monitored health has improved every year since his near-death helicopter ride. One key, for him, is his diet: he eats zero fat (I can't convince him that he needs certain healthy fats). And there's a crew of 50-something heart patients in my gym who are the fittest, hardest-working guys in there, just flat non-stop dynamos hanging from, pulling on, jumping over, and pedaling virtually every piece of gear in the gym, sweat-soaked like lathered horses, for hours 5-6 days a week. (When not in the gym, one of them is racing a kayak miles up the Columbia River, mountain biking, snowboarding, etc.) Their choices are to live like that for many years that or die sooner in a recliner. I.P. The toughest part for me was regrouping after the dx, put me on my knees for 3-4 weeks, and I mean that literally, I just couldn't cope. Well over 2 years later most days I don't even give it a thought. Canada Bob Having just been dx'd I am now investigating my treatment options. My fear of the unknown has been overwhelming, and reading your post this morning gives me comfort. Thank you. Mike Hi Mike... > Having just been dx'd I am now investigating my treatment options. My > fear of the unknown has been overwhelming, and reading your post this > morning gives me comfort. Thank you. Thanks for the comments above, the least I can do is try to take some of the heat out of the situation. Feel free to drop me a pvt e-mail, looks like I screwed up signing in from my regular e-mail address, up to my neck in spam now, sigh. So I'd appreciate it if you'd edit your reply to me to remove my e-mail address. Thanks, Canada Bob. Canada Bob wrote...snip... > Hello Steve... > > It's an odd group this one aint it... Yep, kinda like the rest of the world :) ...ron Hello Ron... >> Canada Bob wrote...snip... > > It's an odd group this one aint it... > Yep, kinda like the rest of the world :) ...ron Aye, true enough, but coping with PCa can make our world a gloomier one. Hope you're in fine fettle Ron, all the best... Canada Bob. > Hello Ron... > [quoted text clipped - 5 lines] > Aye, true enough, but coping with PCa can make > our world a gloomier one. Only if you let it. Maybe because I'm still working full time in an exciting job, or because I'm surrounded in history books, or because I have a good family and five grandkids, or because I have this newsgroup. I've always got something to bring me 'round when I've hit a slump. I see it for what it is and I head toward something that will alleviate it. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum Hi, Looks like I signed in from my regular e-mail account, and that's causued me a problem, with over 80 spam e-mails already, sigh... So I need a favour if you don't mind, I'd appreciate it if you'd delete my e-mail address from the replies that you have posted to me. Thanks, Canada Bob. >Hi, > [quoted text clipped - 9 lines] > >Canada Bob. I am new to newsgroups and regretfully don't know how to make changes to items already posted. My initial post to the group also had my personal e-mail address. Let me know how you would like me to proceed. Mike Hi Mike... > I am new to newsgroups and regretfully don't know how to make changes > to items already posted. My initial post to the group also had my > personal e-mail address. Let me know how you would like me to proceed. I guess the easiest way is to hit the "show options" tag alongside the earlier post and then when that comes up hit the "delete" oor is it "remove" option, that should do it... I've sent you a direct e-mail, hope it arrived, feel free to drop me a line Mike. Hope that today is a good day for you, rather than the nerve wracking days we can have when first dx'ed. All the Best, Canada Bob. >Hi Mike... > [quoted text clipped - 18 lines] > >Canada Bob. Bob I think that any changes I make to previous posts will only apply to my machine. Information already sent to the server remains unchanged. Secondly, I have not received an e-mail from you and I don't know how to provide my correct e-mail address without opening a whole new can of worms. The spammers have certainly made things difficult. My apologies to the group for the OT post. Mike Hi Mike... > I think that any changes I make to previous posts will only apply to > my machine. Information already sent to the server remains unchanged. I'm pretty sure that it will remove it Mike, give it a whirl and we'll find out... > Secondly, I have not received an e-mail from you and I don't know how > to provide my correct e-mail address without opening a whole new can > of worms. The spammers have certainly made things difficult. I'll try again to send a pvt, give me a couple of minutes... Canada Bob. > Secondly, I have not received an e-mail from you and I don't know how > to provide my correct e-mail address without opening a whole new can > of worms. The spammers have certainly made things difficult. I think the best way would probably be to tell him you have RoadRunner account in Hawaii and that you use your first name and, for some reason the initials to "dead dog yapping" as you name at that account. No way a bot can pick up on that! SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum >> Secondly, I have not received an e-mail from you and I don't know how >> to provide my correct e-mail address without opening a whole new can [quoted text clipped - 4 lines] >initials to "dead dog yapping" as you name at that account. No way a bot >can pick up on that! Steve Looks like you have done it for me. Thank you from hawaii.rr.com Mike >>> Secondly, I have not received an e-mail from you and I don't know how >>> to provide my correct e-mail address without opening a whole new can [quoted text clipped - 9 lines] > > Looks like you have done it for me. Thank you from hawaii.rr.com No problem. But, some day, you're going to have to tell us about the dead dog thing. :-) SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 PSA <0.04 Non Illegitimi Carborundum >>>> Secondly, I have not received an e-mail from you and I don't know how >>>> to provide my correct e-mail address without opening a whole new can [quoted text clipped - 12 lines] >No problem. But, some day, you're going to have to tell us about the dead >dog thing. :-) First name and last name combined. :-) Mike Eddy > Hi, > [quoted text clipped - 5 lines] > delete > my e-mail address from the replies that you have posted to me. If you mean the ones already posted, it can't be done, my friend. The 'bots now have your Island address. Rather like closing the barn door after......etc. Won't work. The 'bots comb the news groups looking for email addresses, which is why mine is NEVER used. I will write you privately with some suggestions, like Mailwasher, etc. Best bet is to change your email address with Sympatico. You get 7 or so. PITA, yes......but trust me, you are now on a path to a gazillion spammers lists. I tested this theory out with a Hotmail account set up to be used ONCE on two different news groups back when Klez was jamming up stuff. Within 24 hours, it was totally jammed and probably still is, lol. I never bothered with it again. Cheers......Canada Heather PS......if this Hotmail account is real, you will get spammed there as well. Make it "spud@hotmail.invalid" or some such. IOW, totally munge it. HF > Hi, > [quoted text clipped - 10 lines] > > Canada Bob. Hello Heather > PS......if this Hotmail account is real, you will get spammed there as well. Thanks for the advisory Heather, it's not a fake address but one that I rarely use. I keep it live so that folks can drop me a line, but as you say it's does get a lot of spam, some of it filtered out, but when I check for e-mails there's often 3-4 pages of junk, I just do a quick check them delete them. Thanks again for the heads up, appreciated... Canada Bob. Hello Steve... > > Aye, true enough, but coping with PCa can make our world a gloomier one. > Only if you let it. Very true Steve... I have to say though that when I was dx'ed I learned what "Shock & Awe" meant. >Maybe because I'm still working full time in an > exciting job, or because I'm surrounded in history books, or because I have > a good family and five grandkids, or because I have this newsgroup. I've > always got something to bring me 'round when I've hit a slump. I see it for > what it is and I head toward something that will alleviate it. In a battle like we have on our hands it helps to know that we can call on the cavalry, and that they are there for us.They can arrive in all sorts of ways, as you mention above and even little things like walking the dog, or just going for a days fishing, it all helps. As they say back home about Steeple Chasing, "the first fence always seem bigger than it really is", once you clear that one you gain confidence with every stride. No guarantee's in this or any other game, some of us may well fall at a later stage in the game, but chances are we will have got over the initial terror/fear by that time, and made the best of life until then. All the Best, Canada Bob.
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