It has been close to seven years since I've posted here. When I first
came here for support and suggestions, I had been diagnosed and came
back with a Gleason score of 7. Today, I had a checkup and things
look good. My PSA has been holding at 0.2 for the past four years, up
from 0.0-0.1, five-six years ago. My doctor has said that it looks
like I may have beaten this. How you chose to deal with the problem
is clearly open to options. What worked for me might not for you, but
I want to share what my choices were and still remain:
My uro is a surgeon. During the consultation when the diagnosis was
announced to me and family members, I had a note pad and took notes.
I knew in advance that he had bad news because family members were
urged to attend. What struck me was his quick admission that he would
not spare nerves.
After about a month of daily internet searching and Q&A's, I chose to
go with radiation therapy (3d conformal radiation). The Wouldn't
spare nerves, thing did bias me. Prior though, my uro remained
heavily involved in the clinical testing of a new drug, so I opted in
to their test program. It was a new drug by a company, as I recall,
called Praxis Pharmaceuticals, and near as I remember the drug was
called Amarlilux. I think it's function was to bring down the
testosterone levels to castrate levels and shrink the prostate. It
must have as I sure went through 'Change of Life' symptoms with hot
flashes and zero libido. When those weekly treatments stopped after
about three months, the radiation began. 45 days of getting
radiation, three times a week, went by quickly and with only minor
problems. I continued to work until the final month when I was
feeling pretty wore out so took six weeks off under long care sick
leave. The bowels and urine containment were a bit difficult for the
next six months or so, but not too bad to manage. Since then, it's
been smooth sailing. Can't say the sexual functions have been even
close to what they were, but I'm 71, so don't really expect what was
there seven years ago.
What I did outside of the official strategy was to eat tomatoes and
products containing them, in unusually large amounts, starting with
when I was diagnosed. I started taking tomato enzymes (Lycopene)
daily (there are numerous outfits out there selling that so I won't
suggest one). Additionally I added garlic and fish oil daily to my
diet. Also made sure I got plenty of Vitamin C every day. Maybe
this helped, maybe not. As a minimum, it made me feel like I was
contributing towards kicking this beast and not leaving everything out
of my hands.
In retrospect, I wouldn't have done anything different. I complained
about the hot flashes while in the testing phase of the Amarlilux (or
what ever it was/is called), but sure don't have any complaints about
that now.
There's tons of hope fella's. Don't give up. It's like a mighty kick
in the crotch to take the news of your diagnosis but you need to see
through the fog, look around, and see who else has dealt with this and
how they coped.
If you wish to correspond, I can probably be found at ron
the 'at' sign
landr, next comes, enterprises, (no space or commas between them)
followed by the dot
then com
Blasted spam makes me defensive.
MAS - 18 Oct 2006 06:06 GMT
I believe that this is what was used:
Luteinizing hormone-releasing hormone (LHRH) antagonists: A newer drug,
abarelix (Plenaxis), is an LHRH antagonist. It is thought to work like LHRH
agonists, but it appears to reduce testosterone levels more quickly and does
not cause tumor flare like the LHRH agonists do.
In clinical trials, a small percentage of men (fewer than 5%) had serious
allergic reactions to the drug. Because of this, it is only approved for use
in men who have serious symptoms from advanced prostate cancer and who
cannot or refuse to take other forms of hormone therapy.
The possible side effects are similar to those with orchiectomy (see above)
or LHRH agonists.
Abarelix is given only in qualified doctors?offices. It is injected into the
buttocks every 2 weeks for the first month, then every 4 weeks. You will be
asked to remain in the office for 30 minutes after the injection to make
sure you are not having an allergic reaction.
Gourd Dancer
> It has been close to seven years since I've posted here. When I first
> came here for support and suggestions, I had been diagnosed and came
[quoted text clipped - 61 lines]
>
> Blasted spam makes me defensive.
Alan Meyer - 18 Oct 2006 06:35 GMT
> It has been close to seven years since I've posted here. When I first
> came here for support and suggestions, I had been diagnosed and came
> back with a Gleason score of 7. Today, I had a checkup and things
> look good. My PSA has been holding at 0.2 for the past four years, up
> from 0.0-0.1, five-six years ago. My doctor has said that it looks
> like I may have beaten this.
Congratulations on the successful treatment. Here's wishing you
seven more years, then seven after that, and then another seven.
Alan
Beverley - 19 Oct 2006 13:20 GMT
Thank you for coming back and posting your progress. It sounds as if you are
doing well and that is wonderful news. Wishing you many more years of stable
PSA's.
Bev
> It has been close to seven years since I've posted here. When I first
> came here for support and suggestions, I had been diagnosed and came
[quoted text clipped - 61 lines]
>
> Blasted spam makes me defensive.