I've posted a few times already but haven't really introduced us yet.
My husband Larry went for his annual PE in June and his PSA came back at
2.3, which was .7 higher than it had been. He has been getting yearly PSA's
for the past seven or eight years. He has a family history of prostate
cancer with his dad, one brother and possibly an uncle or two all afflicted.
Our family doc sent Larry to a urologist to make sure everything was okay.
The urologist said there are only three reasons for the PSA to be elevated
... an enlarged prostate, a urinary infection or cancer. Since the first
two were fine, the urologist suggested biopsies. Twelve were done and three
were positive ... one at 4-3 60%, one at 3-4 30% and the last at 3-3 40%.
The overall Gleason Score was 7.
The urologist recommended surgery but we decided to do a LOT of research and
get several other opinions. Our first visit was to the surgeon who
eventually did the surgery. He drew pictures, talked to us for an hour,
explained everything that would happen during and after the surgery, etc.
The cancer was hugging the right side of the prostate and the nerves on that
side were definitely involved. He also explained the different types of
surgery. We chose the DaVinci robotic laparoscopic method.
Our second visit was to a Radiology Oncologist at MD Anderson Cancer Center
in Houston. She was also very talkative and explained what would be
required for Photon Beam therapy. We were exploring the Proton Beam but it
was not indicated for Larry's cancer.
The radiologist said that during radiation the area surrounding the
prostate, and the prostate itself, basically turn to a gel-like substance.
If the cancer returns, and she said it usually will within 5 - 10 years,
that radiation can't be done again so the only option is removal, along with
removal of everything that has turned to gel. She explained that at that
point being incontinent forever was a certainty. Due to Larry's relatively
young age of 59, she suggested surgery rather than radiation.
So, we went back to the surgeon and talked to him again. He ordered a full
body scan and that was fine. We set the surgery date for Sept. 19. During
all Larry's pre-op stuff he was taught how to do the Kegel exercises
correctly. There is a machine with an anal probe and it pulses when the
correct muscles are squeezed. It really taught him to do them very well.
He was told then to do them twice daily until the surgery and then to
re-start them the day after the catheter is removed.
Larry was in surgery for approximately 6.5 hours. Not sure exactly how much
of that time was the actual surgery, but he was back there that long. The
surgeon did a bladder suspension and neuroplasty on the 30% of the nerves on
the right side that were compromised. He also removed a "handful" of lymph
nodes and thankfully they were all clear. (They were sent to the lab during
surgery.)
The recuperation in the hospital was fast and uneventful. He was released
less than 48 hours after surgery. Larry hit the recliner upon arriving home
and stayed pretty quiet the first day. He never had to take any pain meds.
after leaving the hospital. In fact, he only had one shot for pain and that
was about an hour after coming out of recovery.
Larry discovered the first night home that if he put several pillows behind
his back that he could sleep on his back quite well. He tried to turn over
during the night several times and the pull on the catheter and night bag
woke him up REAL quick. But honestly, he never had a problem sleeping with
the catheter in.
On day two of being home he started walking -- and walking -- and walking.
He's in great shape so the walking was fine. No pain.
The catheter was removed on day nine post-op. He had a very strong stream
at that point. The use of pads and diapers had been discussed prior to
this, and it was explained again that day. So, we did what had been advised
and took a pad to the doctor visit with us. If you've read any of my other
posts you will know that he never needed a pad or diaper. There has been no
incontinence - no leakage whatsoever. (In fact, he called me yesterday all
excited. He had to go pee when he left his office but it's only a 20 minute
drive so he knew he would be okay. Well, there was a lot of flooding in
Houston yesterday and the drive home took over an hour. He was thrilled to
know that he could hold it that long with no dripping. Since he hadn't done
that yet he wasn't sure if he could.)
Larry had been working from home during those nine days and he went back to
work full-time the day after having the catheter removed. No golf yet but
that will be back next weekend.
Larry is four weeks post-op today and is doing awesome. He said he feels
like he did before surgery except for the belly hair growing back and
itching. (I just laughed at that as he has NO clue what women have to go
through when they have babies!!) I said yeah -- I feel for ya honey!! :o}
He continues to do his Kegel exercises twice daily. He was taught to do
them laying on his side in bed and he does 20 of them at a time. He holds
each one for five seconds and rests for 10 seconds between each one. I
don't even wake up in the morning when he's doing them but at night I'll be
watching the news or Jay Leno and I'll say something to him and he doesn't
respond because he's counting.
We go back to the surgeon on Nov. 20 for his first post-op PSA and to get
the final cancer report. The surgeon did tell me when he came out of
surgery that there was more cancer than he expected and also that he was
surprised that a few lymph nodes weren't involved. He was so thrilled about
that he gave me a big hug!! And trust me, I gave one back to him!!
We were told no sex for eight weeks so we'll abide by that. The surgeon
has been great so far so we will respect what he said and just wait. We're
sure he's just wanting the neuroplasty to have time to heal.
Larry & I have said several times that if you have to have prostate cancer,
this is the way to do it. We truly are blessed for how well everything has
gone. It's unfortunate that it can't be like this for everyone.
That's our story. Thanks for reading.
Jean & Larry
Good write up but a couple points.
> The radiologist said that during radiation the area surrounding the
> prostate, and the prostate itself, basically turn to a gel-like substance.
> If the cancer returns, and she said it usually will within 5 - 10 years,
> that radiation can't be done again so the only option is removal, along with
> removal of everything that has turned to gel.
Want to make sure that we're getting the correct sense of the above
paragraph.
"she said it usually will within 5 - 10 years,"
Your phrase says that the cancer WILL return within 5-10 years.
It should say, in a small percentage of cases, the cancer may return.
*IF* it does, it will most likely return within 5 or 10 years.
My rad-doc's theory is that the cancer has already spread beyond the
prostate, although that is not known with certainty. The fact that the
failure for rad and surgery is "about" 10% suggests that the problem is
neither can reach cancer that's already spread, albeit to sites too
small to detect by the best technology.
It takes a few years for those sites to grow to detectable levels, 5 or
10.
Granted a roughly 10% recurrance rate isn't the best of odds but keep
your focus on the recovery, quality of life, and making each day count.
> We were told no sex for eight weeks so we'll abide by that. The surgeon
> has been great so far so we will respect what he said and just wait.
That's no sex using Willie. There are many other ways to entertain
yourselves. I'd detail them but I.P. would accuse me of writing a dime
novel.
I am reminded of a quote from Burt Reynolds during his break-up with
Loni Anderson about his long, wet, hairy tongue.
-kh
Jean - 18 Oct 2006 17:32 GMT
kh -- point taken. She said so many things that day it was hard to remember
every word. But just knowing that the cancer could come back ... and her
suggesting surgery rather than letting her do the Photon Beam therapy ...
impressed us. She basically turned away many thousands of dollars.
We are very aware of other ways to 'have fun'. ;o}
Jean
> Want to make sure that we're getting the correct sense of the above
> paragraph.
[quoted text clipped - 29 lines]
>
> -kh
I.P. Freely - 18 Oct 2006 20:42 GMT
> She said so many things that day it was hard to remember
> every word. But just knowing that the cancer could come back ... and her
> suggesting surgery rather than letting her do the Photon Beam therapy ...
> impressed us. She basically turned away many thousands of dollars.
The rad onc I consulted did the same thing, based largely on my disdain
for bowel SEs.
I.P.
tchtic@yahoo.com - 19 Oct 2006 03:33 GMT
> suggesting surgery rather than letting her do the Photon Beam therapy ...
That Photon Beam or PROTON Beam?
> We are very aware of other ways to 'have fun'. ;o}
Post the .JPGs and .WAV files!
Seriously, good luck to you both.
-kh
> I've posted a few times already but haven't really introduced us yet.
>
[quoted text clipped - 4 lines]
> were positive ... one at 4-3 60%, one at 3-4 30% and the last at 3-3 40%.
> The overall Gleason Score was 7.
Your husband was lucky that further testing was suggested. When my
husband was diagnosed (by accident) we were asked to produce records of
past psa tests but we couldn't find any. Apparently the doctors hadn;t
bothered to test him even tho he had a family history and was 53 at age
of dx. Some people call them doctors, i call them murderers.
> The urologist recommended surgery but we decided to do a LOT of research and
> get several other opinions. Our first visit was to the surgeon who
[quoted text clipped - 24 lines]
> He was told then to do them twice daily until the surgery and then to
> re-start them the day after the catheter is removed.
You really did your homework and it sound like it paid off. Kudos to
you both.
This kegel machine sound like a great idea. I think it is hard to
isolate those muscles.
> Larry was in surgery for approximately 6.5 hours. Not sure exactly how much
> of that time was the actual surgery, but he was back there that long. The
> surgeon did a bladder suspension and neuroplasty on the 30% of the nerves on
> the right side that were compromised. He also removed a "handful" of lymph
> nodes and thankfully they were all clear. (They were sent to the lab during
> surgery.)
My husband was in less than 3 hours and the doctor said the surg. was
more complicated than he expected, he found more stuff. It sounds to
me that your husb's doc was being very conscientious and not rushing
and that's great for the patient (unless the extra time was due to some
medical complication but it doesn't sound like it.)
> The recuperation in the hospital was fast and uneventful. He was released two of being home he started walking -- and walking -- and walking.
> He's in great shape so the walking was fine. No pain.
Thanks for mentioning the walking. It is really important. I just saw
a post advising a man about to undergo surgery to basically lie in bed
and not lift a finger afterwards. I actually think that impedes
recovery. My husband started walking a lot and his bladder cramps
abated, his leakage diminished and most of all his mood really
improved.
> > We go back to the surgeon on Nov. 20 for his first post-op PSA and to get
> the final cancer report. The surgeon did tell me when he came out of
> surgery that there was more cancer than he expected and also that he was
> surprised that a few lymph nodes weren't involved. He was so thrilled about
> that he gave me a big hug!! And trust me, I gave one back to him!!
I would like to give him a hug too and please get his name out on a
marquee somewhere.I 'm sure people would be lining up to see him.
> We were told no sex for eight weeks so we'll abide by that. The surgeon
> has been great so far so we will respect what he said and just wait. We're
> sure he's just wanting the neuroplasty to have time to heal.
My advice as someone who has been thru this is DONT jump him anytime
before 8 wks if that's what the doctor says. No matter how tempted you
are. Take a cold shower or something!
I don't know what some peoplehere were are thinking when they say did
it right away but believe me you won't want to. (Baggy sweatpants are
not sexy, they really don't show off my husb. body to his advantage;
and neither is urine leakage an aphrodisiac.) I don't know if he's
still got a drain in him but i'm sure he has a few incisions that have
to heal and the main thing is keeping that area sterile.
Besides, you want to give his parts a little time to heal. Dr.
Scardino says in the Prostate Book that their genital area goes through
a "concussion" of sorts and they need time to recover from this trauma.
It's like when your head is hit by a baseball bat or something you're
not going to be out playing the next day. And the head has a pretty
hard shell for a cover, a fortiori don't push it with the penis.
However, as far as "penile rehab" I've done a little research on this
and to give yourself the best chances for good erectile function in the
long term you should probably start on injections right away and maybe
pills. My husband started injections 10 mos. after surg. and we're
sorry for the lost time. There is good data about injections so please
follow up with your doctor.
> Larry & I have said several times that if you have to have prostate cancer,
> this is the way to do it. We truly are blessed for how well everything has
[quoted text clipped - 3 lines]
>
> Jean & Larry
It's great that everything went so well and you did your job so
responsibly. I'm sure your post will encourage a lot of people and I
suggest. if you're able, keep on posting here and elsewhere and letting
people know of your good outcome. They would really appreciate it.
All the best,
Leah
Jean - 19 Oct 2006 00:46 GMT
Thanks for the kind words to all who replied. They mean a lot. And I'll
certainly keep posting as we go along this path we're on right now.
I would love to tell everyone the surgeon's name but I don't know if that is
allowed on here?? I am also on the arthritis support group and we're not
supposed to mention the names of docs on the group.
Jean
callalily - 19 Oct 2006 01:43 GMT
> Thanks for the kind words to all who replied. They mean a lot. And I'll
> certainly keep posting as we go along this path we're on right now.
[quoted text clipped - 4 lines]
>
> Jean
Jean--
I've seen a lot of docs mentioned here (and groups) and I don't think
there's anything illegal about it. I think people out west in houston
area would be very interested.
leah
Jean - 19 Oct 2006 15:08 GMT
> I've seen a lot of docs mentioned here (and groups) and I don't think
> there's anything illegal about it. I think people out west in houston
> area would be very interested.
>
> leah
Okay. Hubby's surgeon is Dr. Brian Miles and he is associated with Baylor
College of Medicine. He does surgery at Methodist Hospital and St. Luke's
Hospital in the Texas Medical Center in Houston. His number is
713-798-5137.
Thanks,
Jean
callalily - 31 Oct 2006 23:52 GMT
> > I've seen a lot of docs mentioned here (and groups) and I don't think
> > there's anything illegal about it. I think people out west in houston
[quoted text clipped - 10 lines]
>
> Jean
Just wanted you to know how much good already came out of this post.
In a different newsgroup somebody in houston area was seeking a doctor
and I recommended dr. miles. It turned out there were 2 other people
on that list who were scheduled to meet with him already and were
reassured by the nice things you said about him. Told them about this
group and to have a look at the actual post but also to respect your
privacy.
Leah
Steve Kramer - 19 Oct 2006 10:38 GMT
No just restriction here. I've mentioned mine. Many have mentioned theirs.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
Non Illegitimi Carborundum
> Thanks for the kind words to all who replied. They mean a lot. And I'll
> certainly keep posting as we go along this path we're on right now.
[quoted text clipped - 4 lines]
>
> Jean
> I've posted a few times already but haven't really introduced us yet.
Welcome Jean. Larry is lucky to have such a supportive person as you. That's
a tremendous help.
It's been a while since I've posted. As you can see by my stats below, I was
about the same age, and had no symptoms other than a UTI that took me to
the urologist.
Three years after the prostatectomy I feel pretty normal in most ways,
including continence and potency. I've been a textbook success story, I
guess. I think being in good physical shape helps the outcome.
Best of luck to you both in this journey.

Signature
Wake
PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
PSA - Apr '04: <0.1
Mostly Dry - July '04
PSA - Oct '04: <0.1
PSA - Apr '05: <0.1
PSA - Oct '05: <0.1
PSA - Apr '06: <0.1
PSA - Oct '06: <0.1
Steve Kramer - 19 Oct 2006 10:40 GMT
Hi, Wake!!
See you tried to sneak another undetectable by us. No such luck.
Congratulations!

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
Non Illegitimi Carborundum
>> I've posted a few times already but haven't really introduced us yet.
>
[quoted text clipped - 12 lines]
>
> Best of luck to you both in this journey.
Wake - 04 Nov 2006 05:28 GMT
> Hi, Wake!!
>
> See you tried to sneak another undetectable by us. No such luck.
>
> Congratulations!
Thanks. And a big WOW! for you and the latest big drop on your
roller-coaster ride through life :).

Signature
Wake
PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
PSA - Apr '04: <0.1
Mostly Dry - July '04
PSA - Oct '04: <0.1
PSA - Apr '05: <0.1
PSA - Oct '05: <0.1
PSA - Apr '06: <0.1
PSA - Oct '06: <0.1
Beverley - 19 Oct 2006 13:30 GMT
Hi Wake,
Congratulations on another undetectable!
Bev
> > I've posted a few times already but haven't really introduced us yet.
>
[quoted text clipped - 10 lines]
>
> Best of luck to you both in this journey.
Wake - 04 Nov 2006 05:33 GMT
> Hi Wake,
> Congratulations on another undetectable!
> Bev
Thanks, Bev. It's a good feeling to come back every now and then and share
the news with the good folks in this group - it's like family, maybe
better.

Signature
Wake
PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
PSA - Apr '04: <0.1
Mostly Dry - July '04
PSA - Oct '04: <0.1
PSA - Apr '05: <0.1
PSA - Oct '05: <0.1
PSA - Apr '06: <0.1
PSA - Oct '06: <0.1
> I've posted a few times already but haven't really introduced us yet.
Jean, your story is very similar to ours in many ways but different in
others. Of course there ARE many differences in people and in cancers and in
approaches to treatment, that's why I'm disconcerted by hard liners. Also,
we're in England, where things are very different and not just in that
treatment is free. It's interesting to compare your case and ours though.
> My husband Larry went for his annual PE in June and his PSA came back at
> 2.3, which was .7 higher than it had been. He has been getting yearly
> PSA's for the past seven or eight years. He has a family history of
> prostate cancer with his dad, one brother and possibly an uncle or two all
> afflicted.
There's no history of prostate cancer in my husband's family, he went to a
urologist because of a hydrocele. As a matter of course his PSA was read, it
was high but that in itself isn't a matter of concern.
> Our family doc sent Larry to a urologist to make sure everything was okay.
> The urologist said there are only three reasons for the PSA to be elevated
> ... an enlarged prostate, a urinary infection or cancer. Since the first
> two were fine, the urologist suggested biopsies. Twelve were done and
> three were positive ... one at 4-3 60%, one at 3-4 30% and the last at 3-3
> 40%. The overall Gleason Score was 7.
I've no idea what Spouse's Gleason score is, we don't go in for all those
figures in Britain so they're meaningless. Eventually he had a core biopsy
and treatable cancer was found (just one sample was taken) so he had x-rays
and an MRI.
> The urologist recommended surgery but we decided to do a LOT of research
> and get several other opinions. Our first visit was to the surgeon who
[quoted text clipped - 3 lines]
> that side were definitely involved. He also explained the different types
> of surgery. We chose the DaVinci robotic laparoscopic method.
The surgeon spent well over an hour with us, giving details of every option
for treatment, he said that if he were Spouse, at his age (67) and with his
general healthy, active life and physical condition he'd opt for surgery.
Radio and chemo couldn't be repeated but if they were needed after surgery
that would be possible. Since I had radiotherapy after breast cancer surgery
we were au fait with that. And his word was good enough for us, we trusted
him and felt confident enough not to look for other information. He was the
expert, we're not. On examination he said that Spouse's prostate was very
large. He would try to spare nerves and explained that there might be some
incontinence and impotence but that pads would be provided for the former.
For the latter they could prescribe things. "Viagra?" I asked. "No, we have
something far better than that, Viagra only lasts for about 12 hours." He
said. Then there was a pump. I thought that sounded like fun, sex toys on
the National Health Service! Spouse wasn't so sure.
> So, we went back to the surgeon and talked to him again. He ordered a
> full body scan and that was fine. We set the surgery date for Sept. 19.
We were offered 5 September but we were going to be away that weekend so he
suggested 12 September. Spouse would go in the evening before to be
prepared, Mr P. started early on Monday. Spouse was wheeled to the theatre
at 8 am and became aware again at 4 pm. He had a retropubic radical
prostatectomy.
> Larry was in surgery for approximately 6.5 hours. Not sure exactly how
> much of that time was the actual surgery, but he was back there that long.
> The surgeon did a bladder suspension and neuroplasty on the 30% of the
> nerves on the right side that were compromised. He also removed a
> "handful" of lymph nodes and thankfully they were all clear. (They were
> sent to the lab during surgery.)
Mr P had to remove some of the nerves too for histology but no lymph nodes.
I think there can't be a problem because he hasn't heard anything apart from
the routine follow-up appointment in November.
> The recuperation in the hospital was fast and uneventful. He was released
> less than 48 hours after surgery.
Gosh! It's normal to stay for much longer here. The first few days he had an
epidural so felt no pain, as well as having saline drips and paracetamol
drips because his temperature was slightly elevated. After that was removed
he was given oramorph and diclophenac. He was discharged the following
Monday, with his catheter.
> Larry discovered the first night home that if he put several pillows
> behind his back that he could sleep on his back quite well. He tried to
> turn over during the night several times and the pull on the catheter and
> night bag woke him up REAL quick. But honestly, he never had a problem
> sleeping with the catheter in.
Spouse slept on the day bed downstairs at first so that he wouldn't disturb
me if he needed to get up for any reason. We both slept well :-)
> On day two of being home he started walking -- and walking -- and walking.
> He's in great shape so the walking was fine. No pain.
While in hospital Spouse was taken for a walk by the physiotherapist, who
did other exercises with him and made sure he could walk up and down stairs.
There was no problem.
> The catheter was removed on day nine post-op. He had a very strong stream
> at that point.
The catheter was removed a couple of days after discharge, day 9 again I
suppose, and he was tested to see if he could manage without it. He could.
He was given a small pad and told that the District Nurse would provide
anything he needed. The district nurse gave him a huge pack of small pads
but he's only dribbled 3gm in 24 hours at the most (he weighed a dry one and
the worn ones). I don't think he's bothering with them now.
> Larry had been working from home during those nine days and he went back
> to work full-time the day after having the catheter removed. No golf yet
> but that will be back next weekend.
Spouse doesn't play golf but he's been working since he got home - when I
let him. I couldn't hold him back for long so he's back to full production
(we make historical replicas and a lot of his work is physical metal and
woodwork).
> Larry is four weeks post-op today and is doing awesome. He said he feels
> like he did before surgery except for the belly hair growing back and
> itching. (I just laughed at that as he has NO clue what women have to go
> through when they have babies!!) I said yeah -- I feel for ya honey!!
> :o}
Spouse is five weeks past now and also complains about the belly hair
itching - he's a very hairy man and doesn't shave anywhere normally, even
his face. But surely women aren't shaved any more for childbirth? I wasn't
when I had my last three in 1963,6 and 8! It's regarded as a source of
infection.
> He continues to do his Kegel exercises twice daily. He was taught to do
> them laying on his side in bed and he does 20 of them at a time. He holds
> each one for five seconds and rests for 10 seconds between each one. I
> don't even wake up in the morning when he's doing them but at night I'll
> be watching the news or Jay Leno and I'll say something to him and he
> doesn't respond because he's counting.
I assume you mean pelvic floor exercises, Spouse does them all through the
day - when he remembers. Lying down, sitting, standing - any position.
> We go back to the surgeon on Nov. 20 for his first post-op PSA and to get
> the final cancer report. The surgeon did tell me when he came out of
> surgery that there was more cancer than he expected and also that he was
> surprised that a few lymph nodes weren't involved. He was so thrilled
> about that he gave me a big hug!! And trust me, I gave one back to him!!
Our surgeon visited Spouse most days after the surgery, when he didn't come
personally his partner consultant did. They were both very pleased with
everything.
> We were told no sex for eight weeks so we'll abide by that.
We weren't told anything like that! Except that Mr P said that Spouse should
go by his own instincts for every activity and that he'd know if something
wasn't doing him any good. So we have made love twice this last week, Spouse
has been so thrilled to have any kind of erection!
> Larry & I have said several times that if you have to have prostate
> cancer, this is the way to do it.
Well, as I said at the beginning, there are different types of prostate
cancers and different conditions of the cancers and of patients. We're very
happy with how ours has worked out - so far (we're not counting chickens) -
but three weeks ago one of our neighbours, a lovely man who we've known for
forty years, died from prostate cancer even though he had the same surgery
and another one is having a different treatment for his. We're not
complacent.
> We truly are blessed for how well everything has gone. It's unfortunate
> that it can't be like this for everyone.
Yes, we think the same - and yet ...
It's Diwhali, we're going to watch the fireworks!
Keep happy!
Mary
callalily - 21 Oct 2006 22:40 GMT
> The surgeon spent well over an hour with us, giving details of every option
> for treatment,. And his word was good enough for us, we trusted
[quoted text clipped - 3 lines]
> > So, we went back to the surgeon and talked to him again. He ordered a
> > full body scan and that was fine. We set the surgery date for Sept. 19.
It's nice that you had such a caring, thorough and knowledgeable dr. We
don't often hear about the good side of the British NHS. (Just happen
to be an Anglophile.)
> Mr P had to remove some of the nerves too for histology but no lymph nodes.
> I think there can't be a problem because he hasn't heard anything apart from
> the routine follow-up appointment in November.
I am just dying of curiosity. I assume "mr P." is a physician. Do you
all call doctors out there "Mr."? The reason I ask is that I recently
saw a british movie, "vera drake", about a brit. housewife who
performed abortions as a "second career" and there were some scenes
involving a surgeon who was also routinely called "Mr." I think doctors
out here would have a fit if people did that. Just wondering.
> >> > On day two of being home he started walking -- and walking -- and walking.
> > He's in great shape so the walking was fine. No pain.
I'm sure the walking helped a lot. It's important to mention this
because some men think that they really need to be sedentary after
surg. and not lift a finger. Walking really helped my husb. mentally
and physically.
> Our surgeon visited Spouse most days after the surgery, when he didn't come
> personally his partner consultant did. They were both very pleased with
> everything.
Do you actually mean HOUSE CALLS? (I thought those were extinct). We
were glad because our surg. CALLED the day after he arrived home. He
also gave us his personal cellphone number. However, home visits, No.
>> We weren't told anything like that! Except that Mr P said that Spouse should
> go by his own instincts for every activity and that he'd know if something
> wasn't doing him any good. So we have made love twice this last week, Spouse
> has been so thrilled to have any kind of erection!
You go girl!!
>It's Diwhali, we're going to watch the fireworks!
Diwahli? (Going to look it up). Enjoy.
Keep happy!
> Mary
Thank you for sharing such a good story. I hope it's the beginning of a
trend.
Continued good luck,
Leah
tchtic@yahoo.com - 21 Oct 2006 23:07 GMT
> I am just dying of curiosity. I assume "mr P." is a physician. Do you
> all call doctors out there "Mr."? The reason I ask is that I recently
> saw a british movie, "vera drake", about a brit. housewife who
> performed abortions as a "second career" and there were some scenes
> involving a surgeon who was also routinely called "Mr." I think doctors
> out here would have a fit if people did that. Just wondering.
Over there, surgeons are called "Mr." Just a difference in the
language, Boot, Bonnet, Trunk, Hood.
I don't get the wigs on the lawyers though.
-kh
Heather - 21 Oct 2006 23:23 GMT
Hi Leah....I will sort of "translate" between British and American
English.....see below
>> Mr P had to remove some of the nerves too for histology but no lymph
>> nodes.
[quoted text clipped - 3 lines]
> I am just dying of curiosity. I assume "mr P." is a physician. Do you
> all call doctors out there "Mr."?
Yes, doctors go by "Mr." As to why, I am not sure. Often the
differences between British English and American English is sort of the
way we speak. We do use a lot of English expressions (and French as
well).
Our doctors go by their full title...Doctor...and all the initials after
as well. FRCS, etc. (Fellow of the Royal College of Surgeons, I
believe)
She meant visits in the hospital stay (7 days)....not house calls.
Those are practically extinct, but my dad's doctor did them when Dad got
older.
Diwali is the East Indian Festival of Lights.
Cheers.....Heather
Jean - 21 Oct 2006 23:38 GMT
Hi Mary,
Sounds like our husbands had much the same experience, except mine had
robotic surgery and yours had open surgery. Hence the seven days in
hospital and my hubby's less than 48 hours.
Hope all continues to go well for you and your husband!!
Jean
Mary Fisher - 22 Oct 2006 10:45 GMT
> Hi Mary,
>
> Sounds like our husbands had much the same experience, except mine had
> robotic surgery and yours had open surgery. Hence the seven days in
> hospital and my hubby's less than 48 hours.
Yes, and Spouse has a beautiful neat but long scar, from belly button to
pubes. It looks like a very fine weld - glued instead of stitched or
stapled.
Laparoscip surgery is done by some surgeons but it's more common for other
conditions.
Sadly, there's an increasing trend for short stays in hospital here. I
prefer to have more, rather than less, time to rest. I was horrified when I
learned that lumpectomies and the like were done as day surgery in USA.
But we're not paying directly for time - although I would be prepared to. In
fact in our case we're granted a certain amount for each night's stay. It's
not a huge amount but it more than covers costs of travel, parking and the
like.
> Hope all continues to go well for you and your husband!!
I'm makiing sure of that!
Mary
Mary Fisher - 22 Oct 2006 10:36 GMT
> She meant visits in the hospital stay (7 days)....not house calls. Those
> are practically extinct,
They're not!
Mary
Heather - 22 Oct 2006 18:07 GMT
>> She meant visits in the hospital stay (7 days)....not house calls.
>> Those are practically extinct,
>
> They're not!
They are in Canada and the US!! And as I live in Canada, I was
referring to our Country.
Heather
> Mary
Mary Fisher - 22 Oct 2006 20:19 GMT
>>> She meant visits in the hospital stay (7 days)....not house calls.
>>> Those are practically extinct,
[quoted text clipped - 3 lines]
> They are in Canada and the US!! And as I live in Canada, I was
> referring to our Country.
Sorry, I thought you were referring to my mail! House calls aren't extinct
here.
Mary
Mary Fisher - 22 Oct 2006 10:35 GMT
> It's nice that you had such a caring, thorough and knowledgeable dr. We
> don't often hear about the good side of the British NHS.
You don't? Nothing is perfect but we've had marvellous treatment all through
our lives.
> I am just dying of curiosity. I assume "mr P." is a physician. Do you
> all call doctors out there "Mr."?
No, surgeons are Mr. It's a very high ranking in the medical heirarchy! >
The reason I ask is that I recently
> saw a british movie, "vera drake", about a brit. housewife who
> performed abortions as a "second career" and there were some scenes
> involving a surgeon who was also routinely called "Mr." I think doctors
> out here would have a fit if people did that. Just wondering.
They work hard to get beyond 'Dr'.
>> Our surgeon visited Spouse most days after the surgery, when he didn't
>> come
>> personally his partner consultant did. They were both very pleased with
>> everything.
>
> Do you actually mean HOUSE CALLS? (I thought those were extinct).
They're certainly not extinct! (Where do you get your information?)
But no, Mr P visited Spouse in the ward.
>>It's Diwhali, we're going to watch the fireworks!
>
> Diwahli? (Going to look it up).
You don't know? I don't know where you are but I thought it was celebrated
universally. It's originally the Hindu festival of lights but round here
everyone uses the occasion to have a firework party, even the local Sikh
Temple has its own display. Many of the houses are lit with candles,
including those of Muslims and Sikhs, and ours.
> Enjoy.
We did. We were surrounded by spectacular arial displays! When we went to
bed we couldn't see the lights but we could hear the explosions. It must be
like that in Basrah :-(
> Thank you for sharing such a good story. I hope it's the beginning of a
> trend.
I can't see why it shouldn't be. But something's going to get us eventually,
whether cancer or not. My oncologist said that I had a good ten year
prognosis after my breast cancer treatment in 1998. I asked if that included
buses but it doesn't ...
Mary
Justin Case - 23 Oct 2006 17:31 GMT
Two reflections, if I may, at the end.
: > It's nice that you had such a caring, thorough and knowledgeable dr. We
: > don't often hear about the good side of the British NHS.
[quoted text clipped - 50 lines]
:
: Mary
We just read the latest book by Dick Francis in which the main character
speaks with a doctor who explains that he (the doctor) was first a Mr. then
a Dr. and now a Mr. again. The "rank" or authority progresses in this
manner in the UK.
We have a grandson presently on assignment in Mumbai (formerly Bombay) and
his e-mail messages are full of the celebrations taking place right now. He
said that there were some individuals who were attempting to construct a
string of firecrackers that would explode in sequence for two hours without
interruption, setting a World Book record.
Ken Bland
Mary Fisher - 23 Oct 2006 20:39 GMT
> We just read the latest book by Dick Francis in which the main character
> speaks with a doctor who explains that he (the doctor) was first a Mr.
> then
> a Dr. and now a Mr. again. The "rank" or authority progresses in this
> manner in the UK.
Only in medicine :-)
> We have a grandson presently on assignment in Mumbai (formerly Bombay) and
> his e-mail messages are full of the celebrations taking place right now.
[quoted text clipped - 3 lines]
> without
> interruption, setting a World Book record.
We had marvellous displays - but when I think of the cost of all that smoke
... :-(
Mary
> Ken Bland
Mary Fisher - 22 Oct 2006 10:47 GMT
>>> We weren't told anything like that! Except that Mr P said that Spouse
>>> should
[quoted text clipped - 5 lines]
>
> You go girl!!
Hardly a girl, I'm older than Spouse :-) We've been married for 47 years ...
Mary
Jean & Larry,
You guys were mentioned to me on another discussion group, so I wanted
to hop over and say hello......BUT-TTTT! Now I am worried......Ii have
surgery scheduled for November 20th with Dr. Brian Miles and I see that
Larry has an appointment too on the same day. So I hope we don't have
the same scheduled time to see our doctor:)
But seriously, like you guys I too visited M.D. Anderson in Houston and
probably saw the same doctors you did. I was impressed with M.D.
Anderson and their staff. I didn't like my options for the Proton
Therapy for the same reasons you listed.
But I was still seaching and found Brian Miles because he was the lead
person for HIFU clinical trials in the area. To make a long story
short, Miles walked into the room and my wife and I immediately loved
his personality. Ethel, his nurse is also great and she helped to keep
me relaxed during the appointment. Miles is going to do a bladder
suspension, but please don't ask me about it because I don't remember a
thing the man said to me, other than those two words.
Even though I haven't had my surgery, I feel most comfortable knowing
that Miles is doing the surgery. Well enough said.....good luck!
> I've posted a few times already but haven't really introduced us yet.
>
[quoted text clipped - 106 lines]
>
> Jean & Larry
Jean - 01 Nov 2006 04:10 GMT
Hey, another Dr. Miles patient!!! Larry & I had the same feeling about him
as you when he walked into the room. His personality is very calming and
very reassuring. The man is certainly good at what he does.
Yes, Ethel is great and so is Jan.
The bladder suspension is great and I know that's what saved Larry from
having any incontinence. Dr. Miles is the one who invented/perfected that
procedure for men.
When you go for your pre-op stuff you will probably have the same Kegel
instruction that Larry did. Be prepared!! It's quite an interesting
experience. But pay attention and learn to do them right as they will help
you after surgery.
We know being in Dr. Miles' hands everything will turn out just fine for
you. Come back and let us know how it all went!!
Jean
> Jean & Larry,
>
[quoted text clipped - 19 lines]
> Even though I haven't had my surgery, I feel most comfortable knowing
> that Miles is doing the surgery. Well enough said.....good luck!