My server no longer supports news groups and I am trying here on Google
It is hard for me to figure out--hope I can read any replies. My
email is voyager100@sympatico.ca is anyone wishes to send a reply to me
there. And I am lost without a spell-checker.
My PSA has gone to 1.1, probably the lowest it can go because of my
BPH. I was really pleased and told myself I would not think about PCa
for another six months, as I have for the past six. But then i saw my
oncologist and he has really confused me. Didn't think fast enough to
ask him the right question, tried to call him, but his nurse called
back and said he is busy, that he is very pleased with how I am, and
he'll see me in six months. I like him very much, but right now I am
disappointed in him.
I was discussing with him my urologist's wish to treat me with Proscar
for my BPH, but that I was afraid since it brings the PSA down it might
confuse the correct interpretation of future PSA tests. He said that
the PSA was not significant in my case since my PCA had been confined
and has probabaly been wiped out in the prostsate. Of course, he
added, rather off-handedly, that doesn't mean the cancer hasn't spread
elsewhere in the body. The PSA will not detect that.
I was astounded because I always thought that the PSA level would
indicate the spread of the cancer, if any. And I thought all of his
reassurances about ADT taking care of the PCA (although not forever of
course) if it recurred referred not just to recurrence in the prostate
but also to elsewhere in the body.
Does that mean if the PSA is very low but there are "indications" that
the PCA has spread it is chimotherapy time? And what would those
indications or symptoms be? How can I know if it has spread?
I am really disappointed in him. He has been reassuring me that he has
people on ADT for ten years etc and I will probably die of something
else, etc. I think he has always confused--and I have told him
this--my wish to be informed and know as much as I can with "worrying."
I am really uncomfortable with a doctor who feels all that is needed
is for him to know and that I should just "not worry."
Sorry for being so long-winded, but iy is comforting knowing that I can
get some clarification here. Hope I can get used to Google--I have
missed so many postings. Thanks for your replies.
July 2005 DX PCa, age 75; PSA 26.5 Gleason 7 (4+3) Stage T2a
No evidence that the cancer was not confined to a single nodule in
the prostate.
August 2004 ADT First injection (2 drugs-Lupron + ?)
Dec 2004 ADT Second injection PSA 4
April 2005 PSA 2.6
May 2005 HBRT 33 treatments
August 2005 Six weeks after radiation PSA 2.9, went up instead of
down, possibly because the effects of ADT are still there and the RT
hasn't fully kicked in, and a somewhat elevated PSA is normal for me
because of my BPH
October 2005 PSA 2.63.
February 2006 PSA 1.49
August 2006 PSA 1.10
Steve Jordan - 28 Aug 2006 00:27 GMT
> My server no longer supports news groups and I am trying here on Google
> It is hard for me to figure out--hope I can read any replies. My
> email is voyager100@sympatico.ca is anyone wishes to send a reply to me
> there. And I am lost without a spell-checker.
>
Check out Mozilla Thunderbird. It is very much like the Windoze system,
but safer. Also it's free.
> My PSA has gone to 1.1, probably the lowest it can go because of my
> BPH. I was really pleased and told myself I would not think about PCa
[quoted text clipped - 5 lines]
> disappointed in him.
>
I recommend sending him a letter telling him exactly that.
> I was discussing with him my urologist's wish to treat me with Proscar
> for my BPH, but that I was afraid since it brings the PSA down it might
> confuse the correct interpretation of future PSA tests.
Not when the PCa has been treated. Then, the PSA is what it is.
Reduction of PSA while on a 5-AR inhibitor such as Proscar is an
artifact of reduction in gland volume, not of the fictitious "masking
effect." Merck, manufacturer of Proscar (finasteride) *for tx of BPH,
not PCa* (it is not FDA-approved for that purpose) wanted to avoid legal
liability by encouraging patients to undergo a biopsy if their PSA rose
to more than 2.0 ng/mL while on Proscar. It has caused mass confusion
among PCa patients and their medics.
> He said that the PSA was not significant in my case since my PCA had been confinedand has probabaly been wiped out in the prostsate. Of course, he added, rather off-handedly, that doesn't mean the cancer hasn't spread elsewhere in the body. The PSA will not detect that.
>
WHAT?? PCa mets are still PCa cells wherever they are in the body. They
still express PSA. If *I* know that, he should, too. That medic needs
retraining.
> I was astounded because I always thought that the PSA level would
> indicate the spread of the cancer, if any. And I thought all of his
> reassurances about ADT taking care of the PCA (although not forever of
> course) if it recurred referred not just to recurrence in the prostate
> but also to elsewhere in the body.
>
I believe that Stavros was/is correct, though of course I am not a medic.
> Does that mean if the PSA is very low but there are "indications" that
> the PCA has spread it is chimotherapy time? And what would those
[quoted text clipped - 7 lines]
> is for him to know and that I should just "not worry."
>
Stavros's instinct is, I believe, well-founded. I don't know about him,
but I absolutely loath being patronized.
If a Canadian is permitted to do so, I recommend that he fire this medic
and seek another. One who is educated about tx of PCa.
I also recommend that he explore the authoritative website of the
Prostate Cancer Research Institute at: http://prostate-cancer.org/index.html
There, he will find trustworthy answers to his questions.
If Stavros educates himself and becomes empowered, he will be able to
take command of his tx. Then, his medic will be his adviser but Stavros
will make the decisions. IMO, that is as it should be.
My mantra: Study, Learn, Take Charge!
Regards,
Steve J
"Empowerment: taking responsibility for, and authority over, one's own
outcomes based on education and knowledge of the consequences and
contingencies involved in one's own decisions."
--Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled
"The Empowered Patient's Guide."
I.P. Freely - 28 Aug 2006 01:08 GMT
> I am really uncomfortable with a doctor who feels all that is needed
> is for him to know and that I should just "not worry."
I wouldn't accept that approach from a team comprising Walsh, Scardino,
Catalano, Strum, Lange, and whatever oncs and uros THOSE guys worship.
Why? Because they don't know ME and MY PRIORITIES as well as I do.
I.P.
I.P. Freely - 28 Aug 2006 01:18 GMT
> My server no longer supports news groups and I am trying here on Google
I tried and abandoned several ISPs before finding one that provides
good, thorough newsgroup service. Problems ranged from absolutely
ignoring my complaints (AOL, Earthlink) to newsgroup servers that
provided limited newsgroups or showed me only a small fraction of the
available posts and threads (several local ISPs). One was just a couple
of miles away and let me bring my CPU to them to fine tune my computer
-- free -- to their service, but I left them when I decided to go with
cable broadband and they couldn't provide it to my area.
I.P.
Heather - 28 Aug 2006 01:45 GMT
Stavros and I were both using Sympatico which is hi-speed DSL....and I
went back to cable. However, both of them have discontinued Usenet
unless one wants to pay $10/month for Giga News or the like.
Thanks to 2 other Toronto computer geeks on my antivirus ng, I have been
able to at least read the news groups normally....and now have hooked up
with a free news server as of yesterday where I can post as well. The
other posting one (aioe.org) is down.
So this is my first post with "Motzarella News" (I kid you not,
grin).....and I will forward your replies to Stavros just in case he
can't find them in Google.....then I will get him set up with this one
if it behaves as it should.
Thanks for the answers for him.....he was quite worried. And that
doctor is at one of the premiere cancer hospitals in Toronto....he
should be put out to pasture!!
Cheers.....Heather
>> My server no longer supports news groups and I am trying here on
>> Google
[quoted text clipped - 9 lines]
>
> I.P.
Heather - 28 Aug 2006 01:46 GMT
Yahoo!! It came thru in milliseconds.....this one is a keeper!!
HF
> So this is my first post with "Motzarella News" (I kid you not,
> grin).....and I will forward your replies to Stavros just in case he
> can't find them in Google.....then I will get him set up with this one
> if it behaves as it should.
>
> Cheers.....Heather
Steve Kramer - 28 Aug 2006 01:36 GMT
> My server no longer supports news groups and I am trying here on Google
> It is hard for me to figure out--hope I can read any replies. My
[quoted text clipped - 11 lines]
> added, rather off-handedly, that doesn't mean the cancer hasn't spread
> elsewhere in the body. The PSA will not detect that.
Fr. Steve,
I have no idea what he's talking about. DOWN is always good.
And, of course PSA increases as prostate cancer increases in the body.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
Non Illegitimi Carborundum