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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2006Feedback? Online Prostate Cancer Chat?
Hello all.. I was wondering what the interest level would be in a moderated informal online chat session, like an online prostate cancer support group? At the beginning, I would moderate, along with a friend of mine who is a surgeon on the east coast. We both primarily perform the daVinci robotic laparoscopic prostatectomy (dVP), but I would eventually like to invite guest moderators from radiation oncology, medical oncology, nutrition experts, etc.. Any suggestions as to format, days of week, times, topics would be appreciated. I will keep you posted. === http://www.DrYew.com http://www.SanDiegoRoboticProstatectomy.com *IMPORTANT* Any comments by me are for general informational purposes only, and should never be used to diagnose or recommend treatments for any condition without face-to-face consultation with a qualified health-care provider. Thank you. === On August 24, Dr. Yew wrote: > I was wondering what the interest level would be in a moderated > informal online [quoted text clipped - 3 lines] > east coast. > Seems to me to be a fine idea. Dr.Yew should know that there are other PCa chats. One is that of the self-styled guru of PCa, Don Cooley, of whom the less said the better. Another is the UK-based Forum for Free chat at http://www.forumforfree.com/chat/ It is based upon the UK-based Prostate Action Forum at: http://p4.forumforfree.com/index.php?mforum=prostateaction There is an international chat on Saturdays (western hemisphere) at 2000 GMT, 2100 BDT. There is also the Association of Cancer Online Resources Prostate Problems Mailing List (PPML), which despite its often-dictatorial moderators can include useful information. If they permit it. I would be delighted to participate in a chat on PCa, especially one that provides an opportunity for a free and unfettered exchange of ideas. Although Dr. Yew is a surgeon and urologist, I'm pleased to see that he would invite other specialties to participate. Lastly, I recommend that Dr. Yew look into the prospect of participating on the UsToo! site, Patient to Physician (P2P). Presently, it is almost singlehandedly supported by medical oncologist Stephen B. Strum. He needs help. The patient website is: http://www.prostatepointers.org/p2p/ I'm unsure how Dr. Yew, if he is interested, could arrange to be a medic-participant, but I would be delighted to help. Regards, Steve J "He is the best physician who is the most ingenious inspirer of hope." -- Samuel Taylor Coleridge Steve Jordan wrote...snip... > Dr.Yew should know that there are other PCa chats. > > One is that of the self-styled guru of PCa, Don Cooley, of whom the less > said the better. We all have our quirks and shortcomings. Through my own experience and reading comments from others partipating on his discussion list (of well over 1,000 men and women) Don has done more to help those with PCa than most. > There is also the Association of Cancer Online Resources Prostate > Problems Mailing List (PPML), which despite its often-dictatorial > moderators can include useful information. If they permit it. This chat is the same as Don's. I am one of the facilitators on this list. 99+% of the posters pass their messages directly to the list with absolutely no intervention; the posts of a few people are reviewed by the facilitators. Steve, your judgements about others serve no purpose. Such personal issues are rarely as absolute as you make them out to be. You often bring valuable information about PCa to this group. Why not leave it at that and omit the personal commentary...ron On August 24, ron, who did not disclose that he is one of the "moderators" on Cooley's PHML, wrote: > We all have our quirks and shortcomings. Through my own experience and > reading comments from others partipating on his discussion list (of > well over 1,000 men and women) Don has done more to help those with PCa > than most. > Cooley pretends to give medical advice. For that reason alone he is dangerous. > This chat is the same as Don's. Untrue. > I am one of the facilitators on this list. 99+% of the posters pass their messages directly to the list with absolutely no intervention; the posts of a few people are reviewed by the facilitators. > Oh? Recently, as Ron well knows, I tried to post an homage on PHML to my dear friend and mentor Ralph Valle. It was censored and did not appear. What is Ron's excuse for that? > Steve, your judgements about others serve no purpose. Yes, they do. They serve to warn others about the Posting-Nazis on some of the sites. > Such personal issues are rarely as absolute as you make them out to be. Rarely, perhaps. But in this case well-taken. > You often bring valuable information about PCa to this group. Right. That is the ultimate purpose of whatever remains of my life. > Why not leave it at that and omit the personal commentary. Because I have been censored due to the fact that I will not submit to the dictates of such as Ron and his twin, Charles Clausen. Steve J "Everyone is in favor of free speech. Hardly a day passes without its being extolled, but some people's idea of it is that they are free to say what they like, but if anyone says anything back, that is an outrage." --Sir Winston L. S. Churchill Does Ron (or Charles) have any idea what this means? Correction. I replied to Ron Levin: > Oh? Recently, as Ron well knows, I tried to post an homage on PHML to > my dear friend and mentor Ralph Valle. It was censored and did not > appear. What is Ron's excuse for that? My aborted attempt to compliment Ralph on his survival achievement was on PPML, not PHML. Steve J I'd be glad to participate in such a group, Dr. Yew.... and I appreciate you offering to lead it! MikeH > Hello all.. > I was wondering what the interest level would be in a moderated [quoted text clipped - 10 lines] > format, days of > week, times, topics would be appreciated. I will keep you posted. I would check some of the other chats out first and see what they are doing and how well they operate. Evenings would probably be best but then you'd have to find a time that is early on the west coast but not too late on the east coast. You could try an evening and then try a Saturday or Sunday morning. Do it on Tuesday one time and Wednesday the next. There is no perfect time for everyone! Also you might want to consider if this is going to be a man to man group. I'm accepted out here because I've been here for about 5 years but a female presence might make a few men clam up. OTOH there are women who are trying hard to find information for their husbands/partners and this would be an excellent opportunity for them. Bev > Hello all.. > I was wondering what the interest level would be in a moderated [quoted text clipped - 19 lines] > health-care provider. Thank you. > === I think it is a good idea. I am new to this site and my husband is scheduled for biopsy on Sept. 7th. I am willing to learn all I can. Lisa > Hello all.. > I was wondering what the interest level would be in a moderated [quoted text clipped - 19 lines] > health-care provider. Thank you. > === I said I was new..I guess 3 months is not too new any more. It is hard to beleive we have been dealing with this that long and still don't know anything. The waiting is taking its toll. Anyway, as I said I would be glad to participate and I guess evenings would be best for us. Lisa > I think it is a good idea. I am new to this site and my husband is > scheduled for biopsy on Sept. 7th. I am willing to learn all I can. [quoted text clipped - 24 lines] > > health-care provider. Thank you. > > === |
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