I wanted to let you all know the follow-up to this post ...
http://groups.google.com/group/alt.support.cancer.prostate/browse_thread/thread/
4cc0995961199a99
I had been very busy getting Tom into see other docs, including an
oncologist, and doing much more research.
His PSA was taken on 8/2 by one of those docs and we got the results
... drumroll, please ...
0.016 !!!
He goes in on Fri. for his 6-week follow-up to the robotic surgery and
will have his PSA taken again.
I don't think we are done with this yet, but at least we can breathe
for a while - right?
The doc wants to take his PSA every 6 weeks for the first year to watch
it. I feel more comfortable with that, rather than the 3 month check
the other doc wanted to do.
There is an interesting article that was emailed to me in regards to
aggressive PCa not having a family history link. You can read it here:
http://www.fightprostatecancer.org/site/News2?page=NewsArticle&id=7143&JServSess
ionIdr005=8sguog5ml1.app14b
I also wanted to thank you all for your advice, emails, and phone
calls. You are a great group of people and I truly appreciate finding
this group! I will be reading your posts and admiring your attitudes
and strength as I have been doing :)
Catherine
> His PSA was taken on 8/2 by one of those docs and we got the results
> ... drumroll, please ...
>
> 0.016 !!!
That's fantastic, Catherine. You were due for some good news.
John
catherine - 09 Aug 2006 16:57 GMT
Hey John -- I was hoping you would see this. We know we have to watch,
but we do feel we at least have some time now!
I do feel that the precision of the robotics enabled this to happen.
Such an up-down-up-down thing we are all dealing with!
Keep me posted on your surgery, will you?
Catherine
"catherine" <catherine@colorwashcreations.com> wrote in message
> The doc wants to take his PSA every 6 weeks for the first year to watch
> it.
Every 6 weeks seems very extreme considering how slow moving this thing
is.

Signature
JK Sinrod
www.SinrodStudios.com
www.MyConeyIslandMemories.com
catherine - 09 Aug 2006 17:05 GMT
Extreme, maybe, but we will take it. Three doctors suggested 3
different things:
Uro - every 6 weeks for 1st year
Onco - every month for 1st year (he even said this was a bit excessive,
but given the areas in which is was located, he suggested this often)
Surgeon - every 3 months for 1st year
We are going with the one in the middle :)
Catherine
> "catherine" <catherine@colorwashcreations.com> wrote in message
> > The doc wants to take his PSA every 6 weeks for the first year to watch
[quoted text clipped - 7 lines]
> www.SinrodStudios.com
> www.MyConeyIslandMemories.com
Steve Kramer - 10 Aug 2006 11:40 GMT
> "catherine" <catherine@colorwashcreations.com> wrote in message
>> The doc wants to take his PSA every 6 weeks for the first year to watch
>> it.
>
> Every 6 weeks seems very extreme considering how slow moving this thing
> is.
I think, Glass, that her doc is concerned for the SVI, vas diference and
positive margins.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
Non Illegitimi Carborundum
> I wanted to let you all know the follow-up to this post ...
> http://groups.google.com/group/alt.support.cancer.prostate/browse_thread/thread/
4cc0995961199a99
In that thread I said: "I am thinking positive thoughts for low and
declining PSA tests - don't make a liar of me now!"
> 0.016 !!!
It's nice to see someone taking my advice! :-) Keep that trend
downwards, you hear!

Signature
Peter Headland
catherine - 09 Aug 2006 18:49 GMT
....and do we ever "thank you!" for those positive thoughts, Peter!
Here's to Tom following downward forever :)
Catherine
> > I wanted to let you all know the follow-up to this post ...
> > http://groups.google.com/group/alt.support.cancer.prostate/browse_thread/thread/
4cc0995961199a99
[quoted text clipped - 6 lines]
> It's nice to see someone taking my advice! :-) Keep that trend
> downwards, you hear!
> His PSA was taken on 8/2 by one of those docs and we got the results
> ... drumroll, please ...
>
> 0.016 !!!
That's fantastic, Catherine.
> I don't think we are done with this yet, but at least we can breathe
> for a while - right?
You are certainly not done with us. It seems none of us ever are. And,
Tom's SVI and margins do not make for fairy tale endings, but 0.016
certainly complicate decisions. Your next step appeared to be radiation,
but now you have a decision to make. Do you watch and see what the PSA does
or zap now what might be left over? It's a tough one. I was there once. I
chose to wait and watch.
> The doc wants to take his PSA every 6 weeks for the first year to watch
> it. I feel more comfortable with that, rather than the 3 month check
> the other doc wanted to do.
Immediately following my RRP, my PSAs were quarterly. I think, under the
circumstances, your doc is very wise to watch it with less time intervals.
Remember, however, that it generally takes three to show a pattern. If you
have one bump, don't panic.
> There is an interesting article that was emailed to me in regards to
> aggressive PCa not having a family history link. You can read it here:
Current thinking is that if one's father got PCa in his 40s, you are at a
greater risk for PCa in your 40s. If a father is older when getting PCa or
a son is older, then the PCa is probably coincidental. But, I'll read your
article.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06, 6/06
PSA .07 .05 .06 .09 .08 .132 .145
Casodex added daily 07/06
Non Illegitimi Carborundum