Medical Forum / Diseases and Disorders / Prostate Cancer / July 2006
It's been a while since I last posted
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Ray Walsh - 17 Jul 2006 09:25 GMT Hello everyone. It's been a while since I last posted -- mainly because I haven't had much to report. A quick scan through the postings revealed many names that I remember. I hope that means that things are going well for you.
It's getting close to 6 years since I was diagnosed, and I'm happy to report that the RRP just before Christmas 2000 has so far kept the beast at bay. A recent test showed PSA still less than 0.01.
I've recently had a friend diagnosed with PCa with a PSA of 12. He is in his 50s. He gets the biopsy results next week. His uro is confident from his initial exam that this is curable...but me, I'm cautious -- I'd like to see the biopsy readings first. I'm hopeful that he will eventually sign on to this group because my information on treatments and prospects is very dated.
I've told his wife that there have been many men on this group with higher PSAs on dx. When she asked for details I couldn't remember for sure. I confident that over the years I have seen figures in the hundreds.
If I recall correctly, Steve Kramer (Hi Steve!) kept a list of these PSAs. So Steve, if you're reading this, perhaps you might tell me if my recollection is correct.
Regards to all
Ray Walsh Perth, Australia
Justin Case - 17 Jul 2006 16:37 GMT Note: I have added a comment within your message.
Ken Bland
: Hello everyone. It's been a while since I last posted -- mainly because I : haven't had much to report. A quick scan through the postings revealed many [quoted text clipped - 13 lines] : PSAs on dx. When she asked for details I couldn't remember for sure. I : confident that over the years I have seen figures in the hundreds. My PSA was 28.4. This is hardly the highest that has been reported here but enough to cause immediate concern when diagnosed. Surgery (RRP), hormone treatment (Lupron twice), and external beam radiation followed in sequence. This was over four years ago. Most recent PSA test, about two months ago, shows level undetectable (meaning, in my case, <0.1). Surgeon is pleased and my only regret is ... well, you probably know what I'm alluding to.
: If I recall correctly, Steve Kramer (Hi Steve!) kept a list of these PSAs. : So Steve, if you're reading this, perhaps you might tell me if my [quoted text clipped - 4 lines] : Ray Walsh : Perth, Australia P.S. I'm glad to read of your personal results.
Steve Kramer - 18 Jul 2006 00:40 GMT > It's getting close to 6 years since I was diagnosed, and I'm happy to > report that the RRP just before Christmas 2000 has so far kept the beast > at bay. A recent test showed PSA still less than 0.01. Hi, Ray!! That's great news. Your RPP was one week after mine. I haven't seen .010 even in my dreams.
> I've recently had a friend diagnosed with PCa with a PSA of 12.
> I've told his wife that there have been many men on this group with higher > PSAs on dx. When she asked for details I couldn't remember for sure.
> If I recall correctly, Steve Kramer (Hi Steve!) kept a list of these PSAs. > So Steve, if you're reading this, perhaps you might tell me if my > recollection is correct. You are correct, sir! Since logging on, I've logged 664 members and 443 PSAs. Of those, 25% (103) have exceeded 12.0. 17% (77) exceeded 16.0 (which is where I checked in).
Of the 103 who started the journey over 12.0, 33% (34) were, at last report, at 0.10 or better. More than half (57) are still less than 7. 33% have not reported their current PSAs.
The treatment dates range from 1991 to April 2006.
As Leonard would tell you, my notes are not statistically significant. I.P. would tell you they are anecdotal and virtually useless. But, those are the stats for this NG over the last few years.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 Non Illegitimi Carborundum
Larry Wheat - 18 Jul 2006 00:53 GMT Update me Steve --- I had a PSA of 22.0 on 7/28/2003, robotic LRP on 10/13/2003 and 10 straight PSA's less than 0.1.
Larry
> > It's getting close to 6 years since I was diagnosed, and I'm happy to > > report that the RRP just before Christmas 2000 has so far kept the beast [quoted text clipped - 25 lines] > would tell you they are anecdotal and virtually useless. But, those are the > stats for this NG over the last few years. Steve Kramer - 18 Jul 2006 02:56 GMT > Update me Steve --- I had a PSA of 22.0 on 7/28/2003, robotic LRP on > 10/13/2003 and 10 straight PSA's less than 0.1. > > Larry Got it! And congrats on your success.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 Non Illegitimi Carborundum
Ray Walsh - 18 Jul 2006 15:08 GMT Hi Steve, and the others who have responded.
Those results should be encouraging when I pass them on. He had his biopsy and gets the results on Thursday. I'm hoping he will share, but at this time I feel it's unlikely. He heavily into denial now. Hopefully he will break through and come to realise that PCa isn't the end of everything -- some things, but definitely not anything.
Steve, I feel I must congratulate you on your perserverence. For six years you've hung in there with the ever-present threat of a rising PSA, and never once have you complained. On top of that, you've always been supportive. Hang in there friend. You are doing OK. ===============
>> It's getting close to 6 years since I was diagnosed, and I'm happy to >> report that the RRP just before Christmas 2000 has so far kept the beast [quoted text clipped - 26 lines] > I.P. would tell you they are anecdotal and virtually useless. But, those > are the stats for this NG over the last few years. Steve Kramer - 19 Jul 2006 01:22 GMT > Steve, I feel I must congratulate you on your perserverence. For six years > you've hung in there with the ever-present threat of a rising PSA, and > never once have you complained. On top of that, you've always been > supportive. Hang in there friend. You are doing OK. > =============== Thanks, Ray. I do complain, but only to God and only when I'm feeling sorry for myself. But, every once in awhile, he responds with deafening silence and I snap out of it. :-)
Here's hoping for PSAs down under 0.1 down under.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Casodex added daily 07/06 Non Illegitimi Carborundum
c palmer - 19 Jul 2006 08:23 GMT From: raywalsh@optusnet.com.au (Ray Walsh) Hello everyone. It's been a while since I last posted -- mainly because I haven't had much to report. A quick scan through the postings revealed many names that I remember. I hope that means that things are going well for you. It's getting close to 6 years since I was diagnosed, and I'm happy to report that the RRP just before Christmas 2000 has so far kept the beast at bay. A recent test showed PSA still less than 0.01. I've recently had a friend diagnosed with PCa with a PSA of 12. He is in his 50s. He gets the biopsy results next week. His uro is confident from his initial exam that this is curable...but me, I'm cautious -- I'd like to see the biopsy readings first. I'm hopeful that he will eventually sign on to this group because my information on treatments and prospects is very dated. I've told his wife that there have been many men on this group with higher PSAs on dx. When she asked for details I couldn't remember for sure. I confident that over the years I have seen figures in the hundreds. If I recall correctly, Steve Kramer (Hi Steve!) kept a list of these PSAs. So Steve, if you're reading this, perhaps you might tell me if my recollection is correct. Regards to all Ray Walsh Perth, Australia
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hi ray - i remember you. i'm glad you are doing well and have beaten the beast so far.
just to hit rewind and go back into a blast from the past........
dr. casey was just leaving the newsgroup to study for his board test.
robert young and berky were very active at the time.
beth was also reporting in with her husband's progress.
my dad had past away from prostate cancer in that time frame and i was not as active here as i have lately. i acquired this beast a couple of years later and i'm happy to report that at the 3 year mark, i'm still under .04.
here's a toast.......... of old friends and old survivors...... long live the low psa's.... clink....!!!
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
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