Medical Forum / Diseases and Disorders / Prostate Cancer / July 2006
Just diagnosed
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JohnHace - 15 Jul 2006 20:38 GMT I am 57 years old. I went in for a general physical a few weeks ago. I felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. The nurse was quite surprised that I take no medications. To say that I've been a health nut for 30 years is an understatement. I exercise five days a week, eat a low fat diet and take numerous vitamin and mineral supplements. I am very thin and muscular. My urine test showed everything was normal and my blood test showed the same. But, my PSA was 20.3.
The doctor suggested I see a urologist for an ultrasound and maybe a biopsy. I went to see the urologist the next week. He did a DRE and said everything felt normal but we should do the biopsy to be sure. The following week we did the ultrasound and biopsy. He said the ultrasound looked good. He said he thought I would have no problem, and if I did, it would be microscopic.
Last week we got the biopsy results. Of the 10 cores, six showed cancer cells. Four were Gleason 6 (3+3), one was Gleason 7 (3+4) and one was Gleason 7 (4+3). I have asked him to send these off for a second pathologist's opinion.
The urologist said I should get a bone scan and CAT scan next. This really scares me. Do most people get these scans? Is there any chance they will come back with a false positive?
Bob Anthony - 15 Jul 2006 20:49 GMT > The urologist said I should get a bone scan and CAT scan next. This > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? These tests are almost always run rather routinely, whether we need them or not. Your psa is kind of high, so I think it may be a good idea, although actually finding anything is pretty slim. (Remember that psa can rise for other reasons as well). But you do have pca unfortunately. Read and study as much as you can. Ask a lot of questions here and elsewhere. There are many curative treatments at your disposal.
B.A.
Lee O. - 15 Jul 2006 21:42 GMT John Hace wrote:
<snip>
>I exercise five days a week, eat a low fat > diet and take numerous vitamin and > mineral supplements. <snip>
John,
Those things will not make you live longer, it will only seem longer.
:-) Good luck.
Cheers Lee O.
Leonard Evens - 16 Jul 2006 16:24 GMT > John Hace wrote: > [quoted text clipped - 9 lines] > > Those things will not make you live longer, it will only seem longer. I must object. I've eaten a low fat diet for years, and I enjoy my food as much as the next man. When I do eat a high fat meal, I don't find it particularly appetizing, and I sometimes feel sick afterwards. It doesn't take very long for your body to adjust to a low fat diet, and once it has, you won't feel you are missing anything at all.
Whether or not a low fat diet extends life is an open question. It depends on a variety of factors. My mother survived colon cancer in her 50s and her brother died of it in his 60s. Everyone on my mother's side of my family had some degree of heart disease by their 60s. But they ate typical high fat diets. I've so far avoided colon cancer---and fat in the diet is, I believe, implicated in that---and so far at 73 I am free of heart disease. One single case doesn't prove anything, but given my family history, I think I am doing the prudent thing. And it doesn't affect my enjoyment of life.
> :-) > > Good luck. > > Cheers Lee O. Lee O. - 16 Jul 2006 18:08 GMT Leonard wrote:
>I must object. <snip>
Leonard, I was being facetious, hence the smiley face. :-) Just trying to add a bit of levity to a serious newsgroup. No offence intended.
Cheers Lee O.
RML - 15 Jul 2006 21:47 GMT I am in similar situation, diagnosed this week, same life style, age 54. My PSA was 5.4 with 1 of 10 samples cancerous, gleason of 3+3. I too was ordered a bone scan. Maybe it is a CYA thing for the docs. I am leaning toward robotic removal at this time.
>I am 57 years old. I went in for a general physical a few weeks ago. I >felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. [quoted text clipped - 20 lines] >really scares me. Do most people get these scans? Is there any chance >they will come back with a false positive? Steve Kramer - 15 Jul 2006 21:53 GMT > The urologist said I should get a bone scan and CAT scan next. This > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? Welcome to the club for which no one willingly applies.
Be scared about the cancer. We all were (are). But, do not be scared of the CAT or bone scans. These are normal. It's all diagnostic and a clean bone scan and CAT scan are necessary to avail you of certain options; especially surgery.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Non Illegitimi Carborundum
Glowing in the Dark - 15 Jul 2006 22:31 GMT First let me say that I'm sorry to hear about your diagnosis. I'm afraid I don't feel qualified to give you much advice. On the other hand, you at least made me feel better:
> To say that I've been a health nut for 30 years is an understatement. I > exercise five days a week, eat a low fat diet and take numerous vitamin and > mineral supplements. I am very thin and muscular. I have been feeling somewhat guilty about my opposite life style. Now I don't feel so bad :-)
 Signature Glowing in the Dark
ron - 15 Jul 2006 23:04 GMT Hi John...Sorry to hear about your PCa diagnosis. I still remember mine, the biopsy doc said he was 95% sure I didn't have "it", then I get the results! It was like being kicked in the stomach. Once I got my wind back, I started learning about this disease. I found that, if you have to have cancer, this isn't a bad one to have.
That's a good idea on your part to get the biopsy slides reread. PCa slides are very difficult to read and grade properly, that's why an "artist" should do it. If you search this group for "second opinion, pathology" you'll find lists of such "artist" pathologists. The bone scan and CAT scan are overprescribed and often a waste of money, but for men with PSA>10 and GS>6, it's probably the right thing to do.
A few thoughts on others things you may choose to do... Your baseline PSA (PSA before treatment) is an important number in terms of nomograms that you might be using as you learn about this disease. Does your doc have your PSA's from previous years? Are you really at 20.3 now, or was it elevated by an infection, for example. After waiting a month or so for the effects of the biopsy on your prostate to subside, your doc could put you on cypro for a couple of weeks and then remeasure your PSA. Collect all of your medical records related to your PCa and start a file. Seek out a local PCa support group. Also, many men with PCa also suffer from osteoporosis as well. You may want to get a baseline bone density test run (QCT is generally more accurate than a DEXA scan, but the former involves more radiation than my endo was comfortable with). Take a couple of deep breaths, you have many more years in front of you...best wishes and good health, ron
> I am 57 years old. I went in for a general physical a few weeks ago. I > felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. [quoted text clipped - 20 lines] > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? dave perry - 15 Jul 2006 23:27 GMT These tests are done way more often than they need to be, especially for guys with PSA's down toward the lower end, around 5 for instance. In your case, it's probably wise to do the tests however they won't give any information that will make you better off than you are now. If positive, you go directly to hormone therapy of one kind of another, if negative you go directly to surgery or radiation. They will most likely show "hot spots" (false positives) which will scare the c**p out of you but these spots are almost always old bone bruises/injuries and they will be in places not likely to have cancer such as ribs, forearms, shins, etc.. When PCa spreads, it almost always goes first to the pelvis, lower spine and hip areas. It is very unlikely there will be anything definitive on them that will keep you from surgery or radiation and you will be destined for one kind or another depending on your preference.
The first thing to do is get yourself educated. Read, read, and read some more. Get second and third opinions. Go with a proven treatment performed by someone with a good track record. Take a good look at possible side effects of each treatment method. While you may not have any at all, your decision should reflect those side effects you can tolerate and those you can't. All the best of luck. Dave Perry
> I am 57 years old. I went in for a general physical a few weeks ago. I > felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. [quoted text clipped - 20 lines] > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? Steve Jordan - 16 Jul 2006 01:46 GMT On July 14, JohnHace wrote, in pertinent part:
(snip)
> Last week we got the biopsy results. Of the 10 cores, six showed cancer > cells. Four were Gleason 6 (3+3), one was Gleason 7 (3+4) and one was > Gleason 7 (4+3). I have asked him to send these off for a second > pathologist's opinion. > Excellent idea! A study from a specialist pathology lab such as Bostwick is the basis for everything that happens from here on....
> The urologist said I should get a bone scan and CAT scan next. This > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? > Usually, the bone scans and cat scans are a waste of time and money where the Gleason scores are relatively low, for example 3+3=6. Here, it seems to my inexpert eye that John is at worst borderline.
But: There is no such thing as a positive or a negative result. The numbers are what they are. They indicate a result that should be of concern, or they don't.
If John wishes to learn essential information about PCa, I recommend that he refer to the comprehensive and authoritative website of the Prostate Cancer Research Institute at: http://prostate-cancer.org/index.html
Special attention should be given to the section of Decision Aide entitled "Newly Diagnosed."
Do not rely upon the medic, especially a urologist (who after all is a surgeon, nothing more) to have detailed knowledge of PCa tx. The patient (pt) must rely upon himself.
The pt, in order to protect himself, must do his homework and empower himself.
Regards,
Steve J
"What are the facts? Again and again and again -- what are the facts? Shun wishful thinking, ignore divine revelation, forget 'what the stars foretell,' avoid opinion, care not what the neighbors think, never mind the unguessable 'verdict of history' -- what are the facts, and to how many decimal places? You pilot always into an unknown future; facts are your single clue. Get the facts!" --Lazarus Long
Leonard Evens - 16 Jul 2006 16:46 GMT > On July 14, JohnHace wrote, in pertinent part: > [quoted text clipped - 26 lines] > Prostate Cancer Research Institute at: > http://prostate-cancer.org/index.html I don't suggest that he not look at that site. But he should be aware that Dr. Strum is an outlier in the community of people who treat prostate cancer. The site does cover the basics, and he may in fact be correct about areas where he differs from the consensus, But I think it is better to start with a mainstream source such as Peter Scardino's "Prostate Book". I found it in paperback at Borders for about $16, and it should be available at most public libraries. Scardino is world recognized both for his research, published in peer reviewed journals, and for his skill in treating prostate cancer. It is true that he is a surgeon, but he also is quite balanced in his treatment of all the different treatment modalities. His book is a good place to start. Depending on the course of John's disease, he may at some point need to go to other sources who are expert in specific aspects of the disease.
> Special attention should be given to the section of Decision Aide > entitled "Newly Diagnosed." > > Do not rely upon the medic, especially a urologist (who after all is a > surgeon, nothing more) to have detailed knowledge of PCa tx. The patient > (pt) must rely upon himself. Urology is a surgical specialty as opposed to being a medical specialty. But that distinction grossly oversimplifies things. To suggest that a urologist is "nothing more" is highly misleading. Urologists treat a host of different conditions related to the urinary system in both sexes and to the male reproductive system. Most such treatments don't involve surgery, and require extensive knowledge of medicine. Although it is true that one would be better off being treated for advanced metastatic disease by a medical oncologist, it is still true that it makes sense to start with a urologist for diagnosis and a view of possible treatment regimes.
Of course not all urologists are equal. One should always examine the qualifications of one's doctors and try to find those whose training and experience seem most relevant for one's condition.
> The pt, in order to protect himself, must do his homework and empower > himself. [quoted text clipped - 10 lines] > your single clue. Get the facts!" > --Lazarus Long JohnHace - 16 Jul 2006 17:42 GMT Thank you all for the encouragement. It really helps.
John
NickySantoro - 17 Jul 2006 00:32 GMT >Thank you all for the encouragement. It really helps. > >John Last January my best friend of 40 years was where you are now. He decided on robotic and it seems to have worked out well. He was out of the hospital the next day and was pretty much continent when the cath was removed 6 days later. At this point he is virtually 100% continent except for a bit of a squirt if he tries to hold too much for too long then has to strain. He says he gets about a 50% woody if he thinks about the ladies. Not too shabby for only 6 months post-op.
Steve Jordan - 16 Jul 2006 17:55 GMT On July 16, Leonard Evens responded to me, in pertinent part: (snip)
>> If John wishes to learn essential information about PCa, I recommend >> that he refer to the comprehensive and authoritative website of the >> Prostate Cancer Research Institute at: >> http://prostate-cancer.org/index.html Leonard replied:
> I don't suggest that he not look at that site. But he should be aware > that Dr. Strum is an outlier in the community of people who treat > prostate cancer. The site does cover the basics, and he may in fact > be correct about areas where he differs from the consensus, Leonard's opinions are always interesting, well-founded or not. His belief that Strum is an "outlier" is one of them. But to avoid misunderstanding caused by this one, all should be aware that Dr. Strum is not responsible for the site, though he is often quoted -- along with many other medics. Including Scardino.
(snip)
>> Special attention should be given to the section of Decision Aide >> entitled "Newly Diagnosed." [quoted text clipped - 6 lines] > specialty. But that distinction grossly oversimplifies things. To > suggest that a urologist is "nothing more" is highly misleading. (snip)
Leonard has misconstrued what I wrote. Perhaps I should have made it clearer that I was referring to what a uro does in the context of prostate cancer, not in his/her practice as a whole.
Again: once the uro has performed the PCa surgery, his job is finished. Anything further should be done by a cancer specialist.
Regards,
Steve J
"Digressions, objections, delight in mockery, carefree mistrust are signs of health; everything unconditional belongs in pathology." --Friedrich Nietzsche
Alex - 16 Jul 2006 22:45 GMT "Leonard Evens" <len@math.northwestern.edu> wrote in message [ snip ]
> But he should be aware that Dr. Strum is an outlier in the community of > people who treat prostate cancer. The site does cover the basics, and he > may in fact be correct about areas where he differs from the consensus, > But I think it is better to start with a mainstream source such as Peter > Scardino's "Prostate Book". I'm not sure why you consider Strum an outlier. Is it because he considers watchful waiting/active surveillance a legitimate option for certain patients?
Alex
Steve Jordan - 16 Jul 2006 23:46 GMT On July 16, Alex responded to Leonard:
> "Leonard Evens" <len@math.northwestern.edu> wrote in message > [ snip ] [quoted text clipped - 10 lines] > patients? > A number of people, many of them medics, are contemptuous of Dr. Strum.
I suppose each has his/her own reasons; but I suspect that there is a large component of jealousy, fear of discovery (uros, mainly), and just plain resentment that anyone -- especially another medic! -- has the impiety; is such a heretic, such a pagan (shudder!) as to criticize their sanctified practices.
My impression FWIW is that Dr. Strum pulls no punches, states his case plainly, and returns the contempt with interest up to date. And he backs his contentions with science, notwithstanding those who claim that he does not publish, which is a falsehood. He certainly is not invited to the Medical Establishment's periodic hootenannies/conferences. I suspect that that's because he is his own man.
All I know is that he and co-author Donna Pogliano saved me much suffering and probably preserved my very life via their book, _A Primer on Prostate Cancer_, subtitled "The Empowered Patient's Guide." I certainly could not rely upon my (then) medic to do so.
The rant could continue, but I'll stop here.
Regards,
Steve J
"'MD' does not mean 'Medical Deity.'" -- Stephen B. Strum, MD
(Just the sort of Strum statement that upsets other MDs)
I.P. Freely - 17 Jul 2006 00:53 GMT FWIW, the reason my teaching university/VA/research oncs gave for Strum's widespread respect gap is that he can't back up his claims. This does give me reason for pause, considering the weight his tomes carry in the ADT choice so many of us face.
I.P.
Steve Jordan - 17 Jul 2006 01:10 GMT > FWIW, the reason my teaching university/VA/research oncs gave for > Strum's widespread respect gap is that he can't back up his claims. > This does give me reason for pause, considering the weight his tomes > carry in the ADT choice so many of us face. A falsehood. Snore.
Regards,
Steve J
"I am under no obligation to respect your beliefs. Respect is earned; it is not an entitlement..." -- Lionel Shriver
I.P. Freely - 17 Jul 2006 03:23 GMT >> FWIW, the reason my teaching university/VA/research oncs gave for >> Strum's widespread respect gap is that he can't back up his claims. >> This does give me reason for pause, considering the weight his tomes >> carry in the ADT choice so many of us face.
> A falsehood. Snore. Let me get this straight: Some internet w.nker like myself is saying an entire university and teaching hospital oncology dept, a major VA cancer treatment and research center, the people who wrote "P.C. for Dummies", and whole bodies of the oncologists who organize and lecture at medical symposia and get big grants for PC research . . . are making it up.
We each have two basic choices in selecting treatments: choose our sources carefully, draw our own conclusions, and press on with our decisions . . . or put our choices in our docs' hands . . . then live until we die with the outcome knowing we did the best we could.
FWIW, I used Strum and his cohorts in my ADT decision, but tried to find other data, opinions, and oncologists to support it, too, including those I listed above.
I.P.
Bill - 17 Jul 2006 15:48 GMT Steve (Jordan), Strum is absolutely an outlier, if you will. Maverick might be a better word. He has theories about PCa Dx, progression, and Tx that are out of the mainstream; he is the only MD I know of who comes right and and indicts other MDs for expensive and unnecessary tests, sloppy pathology, inept hormone Tx, etc., etc. He claims that his theories pan out w/ his Pts but his results are not peer-reviewed and the mainstream medical community rejects him primarily for that reason. And you don't have to, indeed should not, defend him because he is proud of it!
Bill Denton RP 2/12/02 PSA .93 Memphis
Leonard Evens - 17 Jul 2006 21:46 GMT > Steve (Jordan), Strum is absolutely an outlier, if you will. Maverick > might be a better word. He has theories about PCa Dx, progression, and [quoted text clipped - 5 lines] > reason. And you don't have to, indeed should not, defend him because he > is proud of it! Outliers and mavericks are sometimes right. It is sometimes worthwhile paying attention to what they say. But often they prove to be wrong. I wish there were certainties about the treatment of prostate cancer, but unfortunately there aren't any. My inclination is to go with the consensus, but others may differ.
> Bill Denton > RP 2/12/02 > PSA .93 > Memphis Steve Jordan - 18 Jul 2006 00:06 GMT > Steve (Jordan), Strum is absolutely an outlier, if you will. Maverick > might be a better word. He has theories about PCa Dx, progression, and > Tx that are out of the mainstream Specifics, please.
> .........he is the only MD I know of who > comes right and and indicts other MDs for expensive and unnecessary > tests, sloppy pathology, inept hormone Tx, etc., etc. And this is bad? This criticism is of the practices of some medics is undeserved? Or is it actually just impolitic?
> He claims that his theories pan out w/ his Pts but his results are not peer-reviewed > I'd like to see peer-reviewed critiques of, frex, The Sainted Walsh's results. BTW, Strum has great respect for Walsh.
> and the mainstream medical community rejects him primarily for that reason. How does Bill know that? Where is his documentation, his evidence? I know, as stated upthread, that he is held in contempt by some, but I have no evidence of the reason. I have speculated, but such speculation is not based upon evidence other than what I've seen written by some folks on PCa online support groups.
> And you don't have to, indeed should not, defend him because he is proud of it! > I am not qualified to defend Dr. Strum to any greater extent than Bill is qualified to criticize him.
Regards,
Steve J
"I will accept any rules that you feel necessary to your freedom. I am free, no matter what rules surround me. If I find them tolerable, I tolerate them; if I find them too obnoxious, I break them. I am free because I know that I alone am morally responsible for everything I do." --Professor Bernardo de la Paz
Leonard Evens - 17 Jul 2006 16:39 GMT > "Leonard Evens" <len@math.northwestern.edu> wrote in message > [ snip ] [quoted text clipped - 8 lines] > watchful waiting/active surveillance a legitimate option for certain > patients? Everyone considers watchful waiting/active/surveillance a legitimate option for certain patients. The issue is which patients this is appropriate for. I just reread what Strum and his colleagues say about it at their website, and their recommendations may not be significantly different from what others such as Scardino and Walsh recommend, but I find them rather vague compared to the latter authors.
I think the major way in which Strum and his colleagues differ from other experts, as illustrated at the website, is their apparent belief that hormone suppressing therapy is an appropriate choice for some cases of localized prostate cancer, where there is no clear evidence of spread. Personally, I believe that, with the exception of some men with guarded prospects for life expectancy, hormone therapy as an initial choice is a mistake for mem diagnosed with early prostate cancer. I could be wrong, but I think this is the general consensus. Most men diagnosed with prostate cancer, and I think that includes John, to whom the advice was offered, should not be considering hormone therapy at this point, although they should be aware of it as a possible future option.
I think Strum and colleagues may also may weigh the possibility of spread more seriously in deciding on treatment than a typical urologist might. For an older man, this may be the right choice with watchful waiting followed by hormone therapy when necessary. Some urologists may dive into surgery even for such men, and Strum's advice can be a counterbalance to such tendencies. But for younger men, even if there is evidence of spread, surgery may still be the best option.
All these are complex issues and how they apply to any given man is not clear. I think that a typical man with T1C, Gleason 6, and PSA less than 10, has little to learn from Strum's website. For men with more chancy diagnoses, they may find it useful to look there, but they certainly shouldn't take what they find there as gospel. I still say they are better off starting with Scardino's book. For men who likely have metastatic disease, Strum as an oncologist may be worth listening to, but I don't believe his opinions should take precdence over oather oncologists, or even figures like Scardino and Walsh who, with their colleagues have been engaged in research in these areas for years. Of course, any man in such a position---and some day I may be---should find the best oncologist he can, explore everything he can find on the subject and discuss it with his doctor.
Finally, let me address the issue of expertise. A medline/Pubmed search of the peer reviewed medical literature shows 6 publications by Strum. A similar search shows 284 articles by Scardino. One for Walsh shows 417 publications. Strum has only published findings about aspects of hormone therapy. The others, in collaboration with other authors, some of whom are oncologists, have published studies in every aspect of prostate cancer.
> Alex Steve Jordan - 17 Jul 2006 18:56 GMT On July 17, Leonard Evens wrote, in pertinent part:
> Everyone considers watchful waiting/active/surveillance a legitimate > option for certain patients. The issue is which patients this is > appropriate for. I just reread what Strum and his colleagues say > about it at their website...... (snip)
What website is that? If Leonard refers to the PCRI website, he is mistaken. It does not belong to Strum nor to any other medic.
> I think the major way in which Strum and his colleagues differ from > other experts, as illustrated at the website, is their apparent belief > that hormone suppressing therapy is an appropriate choice for some > cases of localized prostate cancer, where there is no clear evidence > of spread. (snip)
Assuming Leonard's analysis is correct, and I can find no evidence that it is, in what manner are Strum and colleagues mistaken? I postulate that Leonard claims that they advocate ADT as monotherapy.
(snip)
> All these are complex issues and how they apply to any given man is > not clear. I think that a typical man with T1C, Gleason 6, and PSA > less than 10, has little to learn from Strum's website. What is "Strum's website?" See above.
Leonard is evidently unfamiliar with the PCRI website, if that's what he refers to, and therefore risks misleading the newly-diagnosed into missing a golden opportunity to learn.
> For men with more chancy diagnoses, they may find it useful to look > there, but they certainly shouldn't take what they find there as > gospel. I still say they are better off starting with Scardino's book. And I say that patients are better off starting with the Strum and Pogliano book, _A Primer on Prostate Cancer_. As well as obtaining an excellent overview of PCa in all its aspects on the PCRI website.
Scardino may also be useful. The more information fed into into the brain, the better.
(snip)
> Finally, let me address the issue of expertise. A medline/Pubmed > search of the peer reviewed medical literature shows 6 publications by > Strum. Odd. I just checked PubMed and found thirty articles in which Strum was listed as an author.
(snip)
> Strum has only published findings about aspects of hormone therapy. Incorrect.
But even if that were true, so what?
Has Walsh published any articles on ADT? Whatever the answer, it proves nothing.
Seems to me that Strum spends most of his time caring for patients, not writing articles, though he does find time for some of that, too. BTW, he is an author of an article on IADT published in the May 2006 issue of The Journal of Urology. That makes four since 2000, three of them on topics *other than* ADT. Again, so what?
Perhaps he said most of what he has to say in his and Pogliano's book, which BTW was just updated a few months ago.
And it is a shame and disgrace that he is just about the only medic to carry the load of posting replies on P2P.
Regards,
Steve J
"What are the facts? Again and again and again -- what are the facts? Shun wishful thinking, ignore divine revelation, forget 'what the stars foretell,' avoid opinion, care not what the neighbors think, never mind the unguessable 'verdict of history' -- what are the facts, and to how many decimal places? You pilot always into an unknown future; facts are your single clue. Get the facts!" --Lazarus Long
Leonard Evens - 17 Jul 2006 21:41 GMT > On July 17, Leonard Evens wrote, in pertinent part: > [quoted text clipped - 7 lines] > What website is that? If Leonard refers to the PCRI website, he is > mistaken. It does not belong to Strum nor to any other medic. This quote is taken directly from the site.
"The Prostate Cancer Research Institute (PCRI) was founded in 1996 by medical oncologists Stephen B. Strum and Mark C. Scholz, with support from the Daniel Freeman Hospital Foundation in Southern California. Dr. Strum and Dr. Scholz are internationally recognized prostate cancer specialists."
Steve Jordan - 17 Jul 2006 22:17 GMT On July 17, Leonard Evens replied to me:
>> On July 17, Leonard Evens wrote, in pertinent part: >> [quoted text clipped - 15 lines] > Dr. Strum and Dr. Scholz are internationally recognized prostate > cancer specialists." Yes. Ten years ago. Not news. Proves nothing.
Strum has not been associated with PCRI for years. and even if he were, to repeat myself, so what? That would not make the site "his."
BTW, he isn't on the Advisory Board, either. See, http://www.prostate-cancer.org/aboutus/med_advisory_board.html But many well-known medics are. Does Leonard mean to imply that this makes the PCRI "theirs?"
This is meaningless trivia. I'm sure the readers, if any are left, are bored to distraction by it.
Regards,
Steve J
"Do not compute the totality of your poultry population until all the manifestations of incubation have been entirely completed." -- William Jennings Bryan
Leonard Evens - 16 Jul 2006 16:13 GMT > I am 57 years old. I went in for a general physical a few weeks ago. I > felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. [quoted text clipped - 20 lines] > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? Bone scans can produce ambiguous results. It would be very surprising in a case like yours for these tests to detect any metastatic cancer, even if it were present. I suspect the reason your urologist ordered the extra tests was the high PSA and the one Gleason 7=4+3. I believe the odds are still that your cancer can be cured and won't recur, but if there were clear evidence of metastatic disease, your u rologist clearly wouldn't want to proceed. I think you should let the experts evaluate the results and not worry about subtleties. It is highly likely that they will decide to procede with treatment.
The main factor affecting your diagnosis, I think, is the high PSA. But this might very well be due to something else such as prostatitis and not indicative of the true state of your cancer. The fact that the DRE is normal and that only two cores showed the Gleason component grades of 4 are good signs.
I know it is difficult, but there is no point in assuming the worst. You can't prepare in advance for it, and most likely it won't happen. Try to be optimistic.
Your good physical condition means that you will get through the treatment well and you may do better than average with respect to side effects.
Good luck.
dale.j. - 18 Jul 2006 01:13 GMT > I am 57 years old. I went in for a general physical a few weeks ago. I > felt great. Everything was fine. My BP ws 120/76 and my pulse was 48. [quoted text clipped - 20 lines] > really scares me. Do most people get these scans? Is there any chance > they will come back with a false positive? At your age and health I would get it treated, forget any watchful waiting. My doc asked me right out front if I expected to live another 10 years and I said I sure hope so. The rest is history, I got it treated with surgery and I'm doing just fine at age 63, still jogging.
Dale j.
 Signature Email: dalej2@mac.com
Bill - 18 Jul 2006 16:14 GMT Steve J., please point out where in my post I was critical of Strum. Where did I say or imply that his theories or Tx protocols were wrong? Actually, I am more respectful of him than you because you needlessly defend him by denying that he is an "outlier" while I say that he revels in his status. Such denial implies that there is something inherently bad about being an outsider. I fundamentally reject that notion. If you keep up w/ him on his P2P site, you know that the guy is obviously brilliant, opinionated, and confident in his beliefs. I also think he is obsessed and overwhelmed w/ minutiae to the extent he may not see the forest for the trees. The sad part of it is that some of his theories may someday be proven - but it will be by someone else who will get the credit. In my own case I always keep his theory of disease progression in the back of my mind.
As to what the mainstream thinks of him, I only distilled what I have read over the last 4 1/2 years and what every one of my doctors has told me when I asked about him. When I ask about so-and-so results Srum says he gets, they essentially say that he does not document his results, they are not peer-reviewed, and, therefore, in no way can override or even call into question peer-reviewed clnical trials and studies.
Bill Denton RP 2/12/02 PSA .93 Memphis
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Steve Jordan - 19 Jul 2006 01:07 GMT > Steve J., please point out where in my post I was critical of Strum. > Bill, it would be helpful to cite exactly what I wrote is being referred to.
> Where did I say or imply that his theories or Tx protocols were wrong? > This is impossible. What, exactly, does Bill refer to? Cites, please.
> Actually, I am more respectful of him than you because you needlessly > defend him by denying that he is an "outlier" I did NOT deny that he is an "outlier." Citation please.
> while I say that he revels in his status. As to that, I cannot deny it. Neither can I confirm it. Reason: I cannot read his mind. Can Bill?
> Such denial implies that there is something inherently bad about being an outsider. Well, since I've been an outsider all my life, I don't agree.
> I fundamentally reject that notion. Swell!
> If you keep up w/ him on his P2P site, you know that the guy is > obviously brilliant, opinionated, and confident in his beliefs. Agreed.
> I also think he is obsessed and overwhelmed w/ minutiae to the extent he may > not see the forest for the trees. Bill is certainly entitled to his opinion, well-founded or not.
> The sad part of it is that some of his theories may someday be proven - but it will be by someone else who will get the credit. In my own case I always keep his theory of disease progression in the back of my mind. > Maybe. I don't a crystal ball.
> As to what the mainstream thinks of him, I only distilled what I have > read over the last 4 1/2 years and what every one of my doctors has [quoted text clipped - 4 lines] > studies. > Which does not mean that he is wrong. I'm still awaiting peer-reviewed articles by The Sainted Walsh.
Regards,
Steve J
"Do not go where the path may lead, go instead where there is no path and leave a trail." -- Ralph Waldo Emerson
Steve Jordan - 19 Jul 2006 01:37 GMT In my July 18 response to Bill, I failed to note this:
> If you keep up w/ him on his P2P site..... WHAT? *HIS* P2P site????
P2P is an UsToo! site.
Does Bill claim that UsToo! is owned and operated by Strum?
Bill says that he is a lawyer. But I wonder whether he is familiar with the concept of *evidence*.
Regards,
Steve J
"Do not go where the path may lead, go instead where there is no path and leave a trail." -- Ralph Waldo Emerson
Bill - 19 Jul 2006 15:38 GMT Steve (Jordan), I apologize - you quoted Alex w/o attribution in one of your posts and I did not realize it. If >>> are supposed to indicate a quote, I was not aware of that; I always use quotation marks to clearly indicate when I am quoting someone else. Nevertheless, it seems that you did take some issue w/ my reply to [Alex] so I responded. Strum is practically the only doctor who participates in the www.prostatepointers.org P2P so I refer to it as "his" w/o any implication of ownership. I don't care who owns it and that is irrelevant to this discussion. I read each and every response by Strum and I think I have some feel for the guy. If I have stated anything you think is innaccurate - by all means, set me straight.
Bill Denton RP 2/12/02 PSA .93 Memphis
Steve Jordan - 19 Jul 2006 17:47 GMT > Steve (Jordan), I apologize - you quoted Alex w/o attribution in one of > your posts and I did not realize it. If >>> are supposed to indicate a > quote, I was not aware of that; I always use quotation marks to clearly > indicate when I am quoting someone else. One of the confusing things about confusers and their programs is that e-mail servers indicate quotations in different manners. Frex, Bill's post, as I see it now in this reply format has a vertical blue line on the left and the right. this tells me that the text within those lines is quoted. Different levels of quotes have different-colored lines. Other servers indicate quotes by other means. Evidently, Bill's does so using the ">" symbol, with the number of >'s indicating the quote level. Such symbols are automatically inserted by the server. Confusing enough, I think.
(snip)
> If I have stated anything you think is innaccurate - by all means, set me straight. > OK, here's what I think, FWIW: We both respect Dr. Strum, I especially so because he helped me, directly and personally, when I needed it in December, 2004. I have many flaws, but ingratitude is not one of them.
This discussion has devolved into something like how many angels can dance on the head of a pin, for which I bear a substantial responsibility. Just cranky, I guess.
Regarding crankiness, what I posted about Bill's profession and evidence was a "cheap shot" and was unworthy. I apologize.
Regards,
Steve J
"Well, I've wrestled with reality for thirty-five years, Doctor, and I'm happy to state I finally won out over it." -- James Stewart as Elwood P. Dowd in "Harvey"
Bob Anthony - 18 Jul 2006 17:16 GMT > I've been a health nut for 30 years is an understatement. I exercise > five days a week, eat a low fat diet and take numerous vitamin and > mineral supplements. I am very thin and muscular. I know how you feel. I have kept myself very active and healthy most of my life as well. I have a brother in law that is 5'10 and weighs in at 366 lbs. They had to weigh him at a location that weighs stones because the doctor's office had a scale that just goes to 350 lbs. (NO kidding about this). His LDL, HDL, Triglycerides and his PSA at 64 years of age are all excellent!! He has had two hip replacements though because of the effect that gravity has on his joints. He huffs and puffs around like an old locomotive just to get out of a chair and walk a few feet. Go figure!! I go nuts over stuff like this.
B.A.
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