Medical Forum / Diseases and Disorders / Prostate Cancer / October 2003
Nighttime erection
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MH - 29 Oct 2003 13:26 GMT I awoke around 4 AM..... with a full erection. This had happened last week, and once about a month ago, but those times the erection was not as strong. Guess there's still reason for hope! At 11 months post-op, I find it hard to think things will change much from here on out... something like this reminds me that I might just be wrong!!
BTW, just wanted to mention a note I saw in the Sept. 2003 issue of Men's Health. This little blurb was actually hidden at the bottom of a page (page 166) in an article about erectile dysfunction:
"How Science May Salvage the Worst Cases of Erectile Dysfunction"
"As effective as Viagra and its chemical cousins can be, they often fall short when used by men with erectile dysfunction caused by severe nerve damage. Their best hope? New research from the University of Pittsburgh, which shows that injecting a certain virus into the penis can trigger a reaction that coaxes the nerves into regenerating. So far the therapy has been tested only in rats, says Michael Chancellor, M.D., the lead study author, but 'over the next decade, we hope to use this procedure to cure nerve-related erectile dysfunction.' " Lauren Russell
Has anyone here heard *anything* about this research???
Take care! MikeH
jimhoney - 29 Oct 2003 13:31 GMT Way to go Mike! Time for you to relax and stop worrying.
And maybe do a little less research.
jimhoney
> I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. [quoted text clipped - 21 lines] > Take care! > MikeH MH - 29 Oct 2003 22:39 GMT Hi, Jim.... Wish I could just let it go.... but there are just so many things to deal with. I'm really so tired of being depressed and worried about it... now, I'm almost certain I have Peyronie's... seems to have developped since the surgery. Don't know if there could be any connection or not... just know it's one more thing to think about. I need a job... so that's another worry.. but you don't need to know all that....LOL
My wife keeps saying *something will work out*.....
Take care....MikeH
> Way to go Mike! Time for you to relax and stop worrying. > [quoted text clipped - 30 lines] > > Take care! > > MikeH c palmer - 29 Oct 2003 23:56 GMT hi mike - the books do talk about peyronie's after RP surgery, but here's what interesting also.
it is a fact that men in the 50's, 60's and beyond without any kind of surgery also fall victum to this disease.
there are various reasons given as to they why it happens. there is also good news in that quite a few times, from the ones who get it from surgery, the problem will straighten itself out. sorry about the pun, but it's true. remember in the book, to make love again, and they had to deal with that issue.
bottom line, all is not lost and it is not without hope. i had this disease for many years and it finally went away. why? science doesn't know. so, far, i've had many things go wrong, but that isn't one them ---------- yet!!!!!
mike - hang in there. things will work themselves out. it's the waiting that is the problem.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
MH - 30 Oct 2003 00:50 GMT I need to go back and read that book again, Curtis. Thanks for the reminder.
MikeH
> hi mike - the books do talk about peyronie's after RP surgery, but > here's what interesting also. [quoted text clipped - 19 lines] > > knowledge is power - growing old is mandatory - growing wise is optional jimhoney - 30 Oct 2003 00:22 GMT Well I do already know all that. I think your impending unemployment is the root of your depression.
You need to get into the educational consulting business, write distance-learning courses, grade papers, teach adult education, teach literacy, teach English as a Second Language, do online or telephone tutoring, something like that. You've got what it takes.
jimhoney not a teacher, admirer of those who are
> Hi, Jim.... > Wish I could just let it go.... but there are just so many things to deal [quoted text clipped - 47 lines] > > > Take care! > > > MikeH Robert Austin - 30 Oct 2003 15:01 GMT <Snip>
>I'm really so tired of being depressed and worried about it... now, I'm >almost certain I have Peyronie's... seems to have developped since the >surgery. Don't know if there could be any connection or not. <Snip>
There is probably a definite connection. This might shed some light on about the Peyronies problem.
In my case willie bulges on one side and swings around slightly in the opposite direction. In addition to that, there is some discomfort.
I diagnosed the problem and my urologist agreed that this was because there is a marked leakeage of the blood supply that creates the erection on the side that causes this. This problem will probably get better, but has not gone away.
Viagra has not worked so I opted for the vaccum device. With this method the bulge and discomfort is non existant. I have no doubt that it is the only thing that will work for me.
Bob Austin
Age 74 PSA 7 Free PSA 12 1st round of biopsies clear, 2nd. 2 positives Gleason 9 Cryosurgery 03/11/03 Post Op PSA's .04 & .01 RobertBob.Austin@NoSpam.Att.Net
MH - 30 Oct 2003 23:34 GMT Hi, Robert....
I have a friend who is a urologist.... and I sent him a couple of photos to ask his opinion on the possible Peyronie's. The good news was that, in his opinion, it's *not* Peyronie's... the curve is due to the loss of urethra as a result of surgery. :( He suggested taking 1000 Units of Vitamin E daily... and using the vacuum pump for 15 minutes every day to stretch the tissues. I even asked if an implant would *straighten out the problem*... and he said he doubted it. Of course, all this is based on the few pics I sent. I see my urologist who did my surgery next Friday for my annual checkup... and I have LOTS of questions for him. I will also take the photos for him to see as well. It's not easy dealing with all this.... and I really wish I had been told more upfront about the problems with loss of urethra.... length and this possible problem. But it seems that the injections will not hurt... and will probably help the situation.. and the VED definitely needs to be used every single day for 15 minutes minimum.
Take care, MikeH
> <Snip> > >I'm really so tired of being depressed and worried about it... now, I'm [quoted text clipped - 26 lines] > Post Op PSA's .04 & .01 > RobertBob.Austin@NoSpam.Att.Net Dale J. - 29 Oct 2003 14:57 GMT > I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. [quoted text clipped - 21 lines] > Take care! > MikeH Hello Mike,
We're coming up on the first anniversary......time to break out that special bottle of cognac.
My doctor told me that the healing process will go on for up to three years so I bet you're not done yet.
Dale J.
 Signature Email: dalej2@mac.com
MH - 29 Oct 2003 22:42 GMT > Hello Mike, > [quoted text clipped - 5 lines] > > Dale J. Hi, Dale..... Yep! Will soon be one year!! I seem my urologist in a couple of weeks for a yearly checkup..... Sorry, I can't do cognac.... :)) But I'll be glad to have a brew to celebrate!
Take care, guy.... MikeH
John Loomis - 29 Oct 2003 15:49 GMT Hey Man! Up telescope! Good news. It took me over 2 years and I had one set of nerves spared. You keep working at it and you will be surprised. John Loomis
> I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. [quoted text clipped - 21 lines] > Take care! > MikeH jk - 29 Oct 2003 23:48 GMT > I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. > Guess there's still reason for hope! At 11 months post-op, I find it hard > to think things will change much from here on out... something like this > reminds me that I might just be wrong!! Sounds very encouraging. Did you have to urinate? I have few erectile probs after 14 months post op, but have yet to have a spontaneous or nocturnal erection.... so in some ways you are ahead of me! Enjoy it..
 Signature JK Sinrod NY Sinrod Stained Glass www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories
MH - 30 Oct 2003 00:04 GMT > Sounds very encouraging. Did you have to urinate? I have few erectile > probs after 14 months post op, but have yet to have a spontaneous or > nocturnal erection.... so in some ways you are ahead of me! Enjoy it.. Good questin, JK.... no, didn't have to urinate. In the past, waking with an erection often seemed to be associated with full bladder, but that was not the case this time.
MikeH
Tom Sanford - 30 Oct 2003 00:58 GMT > I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. > Guess there's still reason for hope! At 11 months post-op, I find it hard > to think things will change much from here on out... something like this > reminds me that I might just be wrong!! Great news, Mike ...... congrats!! I had my RRP a couple weeks after you, and I hope I can keep "up" with your schedule.
Tom
David S. - 30 Oct 2003 02:08 GMT Mike: Congratulations. That gives me something to hope for. Thank you. David S.
> I awoke around 4 AM..... with a full erection. This had happened last week, > and once about a month ago, but those times the erection was not as strong. [quoted text clipped - 21 lines] > Take care! > MikeH Bill Denton - 30 Oct 2003 16:42 GMT Logically, that would appear to be a very good sign. I had one of those before I started getting any response so it may indeed be meaningful. The one thing that perplexes me about post-RP ED is that apparently the best we can hope for is an erection w/ direct stimulation - I haven't seen any doctors claiming their patients can get erections from visual or fantasy stimulation. It would seem that, if the nerves are truly spared and have recovered from the trauma that spontaneous erections would be possible. Even in the "success" cases there seems to be some break in the brain-penis connection. Anyone know why that is?
Bill Denton RP 2/12/02 Memphis
c palmer - 30 Oct 2003 19:52 GMT hi bill - i asked my surgeon almost word for word those type of questions.
his answer - when we go into the body to remove the cancer. i told you that we know where the nerve bundles are and i told you that there were micro nerves that we can not see. the cutting reeks havoc with the body and who's to say what micro nerves are cut. each case is different because we have to go in the direction the cancer has grown, which is why the different results. work on the erections, take the 100mg at bed time.
question doc, you only give me two pills a month and the directions say cut them in cut?
yeah, 50 mg is not going to do it. you need to take the whole 100mg to get the full effect.
ok, doc. like i said, you only write the script for 2 pills a month, that leaves 28 more days left.
that is all the gov't will allow us to write the script for - 2 pills.
am i missing something here doc? you're telling me to take 100mg every night before bed and give me 2 pills a month to do the job. it doesn't make any sense.
yes, i know. it's the gov't for you.
end of discussion.
bill, the surgeon indicated that in the cutting of those micro nerves that has to do with the fantasy erection process, because if you look in dr. walsh's book, not only do you have the micro nerves going around inside the body of where the surgeon cut, but according to dr. walsh's book, the pictures show nerve bundles going into the prostate that are cut and tied off and i'm sure there are micro nerves as well that are cut.. we got a lot of feedback from the prostate gland itself, in different levels of excitement and the surgeon did say that the prostate is the orgasm center for the male as far as feedback.
as to dr. walsh's comments, he states that direct contact is what is needed and you need to 'talk' to the penis directly, indicating no fantasy. so, we can only assume that those nerve pathways are cut and may or may not grow back.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
jk - 30 Oct 2003 23:37 GMT > Logically, that would appear to be a very good sign. I had one of > those before I started getting any response so it may indeed be [quoted text clipped - 10 lines] > RP 2/12/02 > Memphis I've been told that it does keep geting better.... I am hoping for return to normalcy in another year or so but..... if it stays this way forever, it's still better than having cancer!
 Signature JK Sinrod NY Sinrod Stained Glass www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories
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