Medical Forum / Diseases and Disorders / Prostate Cancer / July 2006
One more anniversary...and the beat goes on!
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ralphv - 29 Jun 2006 20:31 GMT It was June 29, 1992 and at this very time of the day I was undergoing radical prostatectomy at University Medical Center in Tucson, Arizona. Little did I know that I was going to be fighting for my life after this surgery that lasted over 5 hours.
Fast forward to 23 days later and as a birthday present I was released from the hospital and came home to Phoenix. Given the locally advanced cancer, I was told to settle my affairs and prepare myself for the inevitable. That I did. Resigned from my 34 year work span at Revlon and applied myself as much as I could to learn about prostate cancer.
Fast forward now to June 29, 2006 and you know what? I am still here. Fourteen years later! Probably ten more years than projected and who knows why...
On this day, I wish you all surviving prostate cancer the very best in your fight with the dragon.
RalphV azustoo.org
Ron B - 29 Jun 2006 21:43 GMT Bless you Ralph.
It is no wonder why Steve Jordan holds you in such high esteem.
Keep it up buddy...you're doing SOMETHING right. :-)
Best wishes to you and all,
Ron B.
Chicago
judamd@aol.com - 29 Jun 2006 22:07 GMT Wow, Ralph, that's great news. We often hear of those who were given only a few months/years and who beat the odds. It's terrific to actually "meet" one. Keep up the good work. Whatever it is, it's working. You're an inspiration to us all. Dave Perry
> It was June 29, 1992 and at this very time of the day I was undergoing > radical prostatectomy at University Medical Center in Tucson, Arizona. [quoted text clipped - 16 lines] > RalphV > azustoo.org Steve Jordan - 29 Jun 2006 22:23 GMT On the fourteenth anniversary of his RP, Ralph Valle, after a brief review of his courageous dance with the bear wrote:
> On this day, I wish you all surviving prostate cancer the very best in > your fight with the dragon. I know that Ralph does far more to help us than posting on newsgroups, but won't embarrass him with a listing.
I also know that he helped me when I desperately needed it.
Thank you my brother (hope you don't mind) for all that you do. And for your shining example.
Live forever. Or for as long as you wish....
Steve J
"Never -- never -- never give up! Never go gently. There will be plenty of gentle after we die, so until then -- fight -- control the rhythms and tempo of the dance, even when you have to let the PCa dancing bear lead for awhile -- even when you have to wear the lead suit as you dance -- never let the bear set the rhythm and tempo of your dance with life -- when the bear finally takes control, it will be a very hollow feeling for him, because I will be gone -- dancing in a better place." --E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate Problems Mailing List Thank you, Burns. Live long and prosper.
John Loomis - 30 Jun 2006 03:46 GMT Hey Ralphv, Great story. I was 49 when dx'd. 1999. Seems so long ago. We do have some history....... I want to send this part to all out there that are undergoing or fighting.. Not an easy battle, but one well earned..... John Loomis
> It was June 29, 1992 and at this very time of the day I was undergoing > radical prostatectomy at University Medical Center in Tucson, Arizona. [quoted text clipped - 16 lines] > RalphV > azustoo.org Naaman - 30 Jun 2006 05:22 GMT > It was June 29, 1992 and at this very time of the day I was undergoing > radical prostatectomy at University Medical Center in Tucson, Arizona. [quoted text clipped - 16 lines] > RalphV > azustoo.org What a wonderful story, Ralph! And a comforting one for someone still trying to sort out all decisions yet to be confronted.
OT: Thanks for the referral to the Tucson ustoo groups. Being new to the Tucson area left me groping in the dark a bit.
Naaman
Alan Meyer - 30 Jun 2006 19:08 GMT Ralph,
Can you give us some info on the intervening years?
Have you been on HT the whole time since '92?
Any chemo or other treatment?
What's your current PSA?
Have you got known mets or symptoms?
How are you feeling?
Best of luck.
Alan
ralphv - 30 Jun 2006 22:00 GMT Alan, In April 1992, I was like most of my male contemporaries, totally oblivious of prostate cancer or its significance. I had just experienced an episode of frequent nocturnal urination, which I attributed to an infection. Then out of the blue, I was tested for PSA and scheduled for a biopsy when this result came back abnormally high. The positive diagnostic result hit me hard as all these events developed rapidly and I was dreadfully unprepared to deal with the disease. What follows is my "prostate cancer digest":
Dx: 5/92 at age 58, PSA 13.6 ng/ml(first PSA ever), Gleason 5 (3,2), 6 out of 6 positive biopsy cores, T2c, DRE +, Neg. Bone scan, Neg. CT scan, Neg. bladder pyelogram, Neg. chest x-ray,
Tx: RP 6/92, Gleason 6 (4,2), T4, Bilateral SV +, positive margins, tumor attached to rectum wall, Bilateral orchiectomy 9/92, PSA <0.2 ng/ml since 9/92, Last PSA 9/05, <0.03 ng/ml, DPC assay
I am doing well considering the alternative. Prolonged androgen deprivation has taken its toll with many of the side effects that we all know and detest. I have lymphedema on both legs from the removal of LN during surgery. Worse on the right leg than the left. I have wrapped them for years, but during AZ summers it is difficult to endure.
In all my surviving years and prostate cancer advocacy, I have known many good men who prematurely died of prostate cancer. I often ask myself -given the fact that I was told to get my things in order (and I did)-, why am I still here? How lucky can I be? And that Alan is the rest of the story about my prostate cancer situation.
BTW, I was very active on ascp and smpc newsgroups early after their creation by Dr. Brad Hennenfent and others, but after getting hit with tons of spam moved to other venues. Just recently I started reading posts here and have posted a couple of times. There are some names here that I recognize from my earlier participation. I was very glad to see them again.
My very best regards, RalphV azustoo.org
> Ralph, > [quoted text clipped - 13 lines] > > Alan Beverley - 03 Jul 2006 13:15 GMT What a wonderful story! I really don't think any of us know why we are here. Bev
> Alan, > In April 1992, I was like most of my male contemporaries, totally [quoted text clipped - 54 lines] > > > > Alan Steve Kramer - 03 Jul 2006 19:08 GMT > What a wonderful story! > I really don't think any of us know why we are here. > Bev I think it was the 2nd question in the Catholic Catechism (or at least in 1962). Why are we here? To know, love and serve the Lord.
It may be the only one I remember. I'll have to dust off the old book and get some more answers.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Non Illegitimi Carborundum
Beverley - 04 Jul 2006 02:52 GMT Let's see ..... 1962 that would be after the Ecumenical Council? Better take this discussion off the NG; you know how much trouble is caused when we start chatting about religion. Probably as much trouble as politics can cause! LOL Bev
> > What a wonderful story! > > I really don't think any of us know why we are here. [quoted text clipped - 5 lines] > It may be the only one I remember. I'll have to dust off the old book and > get some more answers. Steve Kramer - 01 Jul 2006 01:17 GMT That's a great run, Ralph. Ever second-guess retiring?
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06, 6/06 PSA .07 .05 .06 .09 .08 .132 .145 Non Illegitimi Carborundum
> It was June 29, 1992 and at this very time of the day I was undergoing > radical prostatectomy at University Medical Center in Tucson, Arizona. [quoted text clipped - 16 lines] > RalphV > azustoo.org
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