Hi all
Again, I'll try and be as detailed as I can.
Recapping, it's two months earliest before the docs can measure me
for the results of the procedure.
HIFU took place April 10th. All the nerve ends in the usual suspect
areas down below were subject to some super-loud audio.The "normal"
after-effects could continue up to three months. Some patients more,
some less. Mine seem to have settled down as follows:
Pain: As I've already reported, I had none of what I would have
expected as post-surgery type pains.
Back. Fairly constant left-hand side where my waist 'connectedto da
hip bone' as I think the song has it. But medium level only, not a
big problem. Historically I've had similar, so don't know it it's a
genuine after - effect at all.
Groin. Very occasionally - two/three times daily maybe, a
sharp but very short electric-like shock in groin.
Pe.ing (what the gentry, and me sometimes, call 'voiding'). This has
most affected me in two ways. I haven't had the blocking which was
forecast. My voiding is sometimes OK, if not over-strong, sometimes
sporadic. But it hasn't been blocked.
No, the first problem is frequency. If I go three times during the
night, I've done well. Four is fairly normal. Result, I am really very
shagged (US-translation -'fatigued'). (Note: this was the original
meaning of the word. It seems to have another one right now). A good
night's sleep is a distant dream. However, like MacArthur, it will
return.
To deviate, totally beside the point for a moment. Sometimes when I've
got up at night yet again I have been strongly reminded of when I was
a boy during the German blitz on London. During the "normal" air raids
the warning siren would sound, followed short or longer hours later by
an "all-clear". But when the Germans started peppering us with their
unexpected V1 and V2 'miracle weapons', the authorities weren't quite
sure what was going on, and at night the 'warning' and 'all-clear'
signals seemed to be falling over each other. As a result I can
remember getting up as in a dream several times, quite unable to
remember why I was up, but remembering it was the thing to do! At
least this time it's the bladder -not the noises-off, which remind me!
The second pee problem has shown itself in the past couple of weeks.
That is "Urge Incontinence". From the moment I feel I want to go, to
the time I simply have to let go, can be about two or three minutes.
Say, three times during the day. The rest of my 'going' is of the
normal kind. I'm advised this can be another short-term passing
effect. My solution if I go out is a) to make sure I void first; b) If
I go out walking it's generally only to the local shops with my wife
-so I know there's a shop toilet in reach. But my wife walks very very
slowly. So I carry an incontinence pad for stuffing down my trousers
quickly if I'm caught out. Haven't had to so do yet. c) If I go
further afield, it will be in the car, where my faithful water bottle
is always in attendance ready for a quick stop at the side of the
road.
I'm looking forward to June 7 when I'll be seeing my surgeon and
(hopefully) learning more.
That's it for now, except thanks to Steve J and Steve K and Rosbif for
their comments two weeks ago re my wife. I told her about their good
wishes for a bounce-back, and sure enough a week ago she started to
feel OK, and has generally been much better since. A little bit of
support works in wondrous ways! And for Steve Jordan -I've now made a
first contribution to the UK site you mentioned.
rosbif - 23 May 2006 19:48 GMT
Good to hear from you Mike and pleased about your wife. Amused by the
description of loud Audio - who'd have thought it?
Hope your sleeping improves.
r
Alan Meyer - 25 May 2006 00:19 GMT
It sounds like your recovery is proceeding well.
Frequent urination is often caused by inflammation in the prostate.
Radiation patients have that problem and it's not surprising that
HIFU patients also do. The swollen tissue squeezes the urethra
which makes it difficult to pass urine until the pressure builds up
quite a bit. Then the patient may only be able to urinate enough
to reduce the pressure below the squeezing threshold. There's
lots of urine left in the bladder but pressure is not high enough to
force it out. That's why you have to urinate often, you don't
completely empty the bladder so it fills up again quickly.
Anti-inflammatory drugs like aspirin or ibuprofen may help. Or
they may not be enough. More powerful prescription drugs like
Flowmax can help a lot.
I used to keep a bottle next to the bed. I'd wake up, pee, and
go back to sleep with only a two minute interruption in my sleep.
In my case it took about 5-6 months after radiation for things to
settle back to somewhere around the normal pre-radiation level.
Now I usually only get up once at night.
Thanks for the report. Let us know when you get your first PSA
test back.
Alan
MikeHi - 25 May 2006 05:16 GMT
Alan
Re my frequency: I'd understood as a concept that the prostate and
nerve ends down there were messed about. But I found your brief
detailed explanation very reassuring in understanding why the symptom
really should be short-term only. If the phrase "squeezing theshold"
is your own, rather than a known medical term then for this simple
patient may I say it is a touch of genius in revealing all, as (well,
almost) E=MCsquared was for physicists! Everything is clear! Very many
thanks. Note also your drug comments. And will of course ontinue
posting.
Thanks too to Rosbif and Steve.
>It sounds like your recovery is proceeding well.
>
[quoted text clipped - 23 lines]
>
> Alan
Steve Kramer - 25 May 2006 01:05 GMT
Your post is long and detailed -- just what we need for newbies considering
HIFU.
Glad to hear your wife is doing better.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum
> Hi all
>
[quoted text clipped - 63 lines]
> support works in wondrous ways! And for Steve Jordan -I've now made a
> first contribution to the UK site you mentioned.