Medical Forum / Diseases and Disorders / Prostate Cancer / May 2006
update on Steve
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juniper - 05 May 2006 06:25 GMT Well, Steve had--TRIED to have-- his 2nd chemo (Taxotere) today. He had a reaction to the first one 3 weeks ago--felt like his lungs were filling with fluid, red face. They gave him something, he stabilized, and they finished the chemo. Today they gave him the extra reaction meds before the chemo, but the second it hit his veins he had another reaction. Much worse than the first one. So we were still there for hours while they monitored him. Dr. Ondreyco told us they can usually manage the reaction and go on with the treatment but if he reacted again they would stop the Taxotere and try Taxol. Even thought they are related (Taxotere is a synthesized medicine based on Taxol, which comes from tree bark.)
Next week we're going back to try Taxol. It is still a taxene, but an older one, and can have nastier side effects. I guess I'll learn what....
The ADT II had his PSA instantly <.04. His testosterone is still around 260 or so. The doctor said it can take 2-3 months to get low. The Casodex is blocking the receptors, though. I haven't noticed any lowering of libido. Since he had RP, erections are not an issue right now and obviously we don't know if that would have been affected. My comment about the VED size was misplaced; I am obviously not as skilled as he is. If I just keep my hands off, it works fine.
We see the radiation oncologist next Wednesday, and are conflicted about that. The doctors seem to think it is the thing to do. We think its ridiculous for metastatic disease. But maybe thsi doc will convince us otherwise. That would be good in a way, but the thought of radiation is awful. His dad, his brother and his sister had colon cancer. I posted some studies about sexondary cancers from radiation but I suppose I better study them rather than scan them.
I wanted to share this, but a hard time about sharing where. I sometimes post in the [advanced] group but that would be like writing to stragners. Actually, there is a tendendy in those groups to have a 'grand woowoo' who basically tells it like it is. And it is like medical diagnosis and treatment recommendations from people who aren't physicians. This bugs me, and I did not want to have to tell someone they were full of sh.t. Because the minute they spouted some bullshit as fact, I would have been researching for hours in an effort to cut them off at the knees. I am in no mood for pseudo-medical advice nor for 'oh poor baby' stuff. Plus in those groups, the things they say. Seriously advising people to take minimal treatment as long as possible. I have started speaking up today to tell people that I think sequential treatments after failure just toughen that PCa up. It gets stronger; it is used to reacting to and overcoming what comes at it. Just doesn't sound like a good approach to me. Why give it a free personal trainer (you and your doctors)? Plus they say wait until some ridiculous situation (I'm going to try ADT when my PSA hits 35).
I am also on a Yahoo women's group for partners. That one seems pretty good, but I just joined. Maybe I'll (gasp) cross-post this. The thing about this group is that I imprinted. So here I am, home, following like a duckling.
The reluctance I had posting to *this* group is that you don't see so much about chemo and ADT as a first-line defence. Someone put somthing great in another group today. I won't get it perfect but it went something like this. When the PCa has escapted the capsule, then an RP is not a curative treatment, it is a debulking treatement (and I might add it is a staging vehicle). So the RP is not a failed primary treatment because it is not the primary treatment for what you have.
Anyway, ready or not, alt.support.cancer.prostate, here comes the chemo stuff. A lot of people are hitting hard and hitting fast with chemo, ADT, RT right out of the box.
laurel
Bob C - 05 May 2006 03:09 GMT Laurel, I for one do hope that you continue to post here and do not go off somewhere else. I have followed posts on this site for about 5 1/2 years now and take great comfort in seeing the research and digging for facts being done by many educated and intelligent persons, such as yourself. About the only time I post is when I have something of personal interest to share with someone who might be in about the same situation as my own. My bleak beginnings with a psa of 55 at age 55, gleason 3+4 and 3+4 with SVI, very positive margins, and a gland 90% involved in the worst quadrant and 20% in the best, cancer visible on the surface of the bladder, but clear lymph nodes. The main reason the surgeon removed the gland was because, in his words, that ugly thing had tocome out. It was a rock hard mass. He also scraped off as much of the canacer on the bladder as he could, and cleaned up as much as he could. I am thankful for the debulking, as they now refer to it. And I am thankful that I went with the full pelvic radiation later to not only rid me of the cancer known to be on the bladder surface, but to hopefully wipe out who knows how many other cells. A year on Lupron, a year or so of off time until a fast rise was documented and then immediately back on for another two years brings us up to today. I rely on you, and many others here like you, in addition to my doctors, to guide me through this thing. I believe that this is a really educated group and I can benefit far more than I can contribute. We all have down times but this is a mostly upbeat group and that's another type of support I come here for. The SE's from the surgery, the radiation, the Lupron, do affect my QOL but each of the treatments from which they resulted MIGHT have prolonged my life. A lot? A little? Or maybe very little? Many differing opinions here. In any event, down the road, I do not want to look back and see that I goofed by not fighting this thing with any treatment deemed appropriate or by being too cautious. I have recently had a (new to me) Dr. lean over and look me right in the eye and ask if I REALLY knew how good I was doing. She did that twice! You jumped right into this group full of energy and fire and you have shared a lot with us and have drawn a lot of opinions and facts out into the open for some of us to see for the first time. We can all benefit from and draw support from your contributions and hopefully you will receive the same from many of us. It would not be nice of you to leave this group now. There are several of us here who are soon going to be looking at the next step, chemo of one type or another. Sorry for being so wordy------I guess that's just something I do. Not as bad as I.P. though. Anyway, there's my $.02 in regards to you going somewhere else to post. Thanks for being here.
> I wanted to share this, but a hard time about sharing where. I > sometimes post in the [advanced] group but that would be like writing > to stragners. Actually, there is a tendendy in those groups to have a > > juniper - 05 May 2006 16:31 GMT Bob, thank you. This was a very powerful piece of writing. I REALLY appreciate what you have to say. Everything you said.
> to it. And I am thankful that I went with the full pelvic radiation later to > not only rid me of the cancer known to be on the bladder surface, but to > hopefully wipe out who knows how many other cells. Bob, this is what we're looking at. Meeting with the rad onc on Wednesday. What kind of radiation did you have? IMRT? Did they do the lymph nodes? How long was it? 5 weeks? What SEs did you have? Could you tell if it fixed any numbers? I guess the Lupron would mask that. What did the doctor tell you when you were setting this up? Did you happen to ask him about secondary cancers caused by the RT? Anything you have to share about the whole thing would be helpful to us.
> or so of off time until a fast rise was documented and then immediately > back on for another two years brings us up to today. I rely on you, and many What is it today?
> thing. I believe that this is a really educated group and I can benefit far > more than I can contribute. doubtful.
> The SE's from the surgery, the radiation, the Lupron, do affect my QOL > but each of the treatments from which they resulted MIGHT have prolonged my > life. A lot? A little? Or maybe very little? Many differing opinions here. > In any event, down the road, I do not want to look back and see that I > goofed by not fighting this thing with any treatment deemed appropriate or > by being too cautious. I have recently had a (new to me) Dr. lean over and I think this is a key, heretofore unspoken (or at least, not as well spoken) part of most people's decision matrix.
Maybe that's why IP is so angry. He is not willing to ruin his current life with the SEs of ADT, but there's this attitude that if you don't do absolutely everything that is on the menu, you are killing yourself. That is an understandable conflict. But I think something we should question.
No doubt, for most people, the thing to do is everything 'deemed appropriate' (when, where, how, and what have to be figured out individually). Oh, we give lip service to balancing SEs vs. expected benefit, but overall, its a "do everything possible in the good ol' American Way!" mentality. So then someone like IP, who doesn't fit the mold, has a big conflict.
You know, my mom had colon cancer. Blood in her stool for years, and she's a nurse. Was. Retired. Anyway, she ignored it until it became un-ignorable. Then she got a diagnosis, went with graviola and other natural remedies for several years. Finally had the cancer cut out and a bag put in, still doing her alternative approaches. Refused chemo period, all along. Now, I support her as do all her kids. Its her life. And she would be just miserable with the SEs of conventional treatment. Its her style and her belief system. Conventional treatment would kill her faster than alternative treatment. Her alternative stuff is working, but that's not what I'm talking about. If she had chemo, her spirit would be broken. From there, it is not a far step to losing the will to live. So she would be miserable then die (however long it took) if she did that. No one wants that.
> look me right in the eye and ask if I REALLY knew how good I was doing. She > did that twice!
>little happy dance<
> draw support from your contributions and hopefully you will receive the same oh, I do, I do.
> Sorry for being so wordy------I guess that's just something I do. Not as > bad as I.P. though. Anyway, there's my $.02 in regards to you going I wrote you personally that word count isn't the issue, every single word you wrote is very powerful and communicates something. Thank you for taking the time.
regards, laurel
I.P. Freely - 05 May 2006 21:01 GMT > Maybe that's why IP is so angry. Laurel, I was initially very impressed with you, but every time you attribute my adherence to and insistence on facts to "being angry" diminishes that respect. Calling me a bigot, without basis, is far worse yet. Most people here avoid ad hominem; I wish you would, too; it reflects poorly on you.
> He is not willing to ruin his current life with the SEs of ADT, You're omitting the vital numerator in the therapeutic ratio that drove my decision 16 months ago, the limited benefit of ADT with zero post-op PSA.
> but there's this attitude that if you don't > do absolutely everything that is on the menu, you are killing yourself. [quoted text clipped - 3 lines] > American Way!" mentality. So then someone like IP, who doesn't fit the > mold, has a big conflict. So now I'm in conflict, is it? Laurel, your puzzling psychoanalysis is disillusioning.
>> Sorry for being so wordy------I guess that's just something I do. Not as
>> bad as I.P. though. Look again, Laurel. Your posting rate has increased to twice mine in both number and size.
"Just the facts, Ma'am", as Jack Webb would say.
I.P.
juniper - 06 May 2006 08:46 GMT > > Maybe that's why IP is so angry. >> yet. Most people here avoid ad hominem; I wish you would, too; it > reflects poorly on you. I am sorry you are upset about my post, IP. To me, someone being angry is not the same as them being a bad person. Not in any way. I am sure you know how maddening it is to be perfectly fine one day then to be assaulted without end until you are living with SEs for a disease you didn't even feel. As my husband said today, he used to be the archer but now he is the target. All in four months. Yesterday he knew he was dying, for the 2nd time in three weeks. I don't know what it feels like to not be able to breathe (he actually could, but I am talking about the feeling.) But I was there, it was me he was looking at in terror while they injected him with epinephrine and whatever else. If you think that my energy is in thinking about IP and his problems, you are sadly mistaken. However, I do find you interesting if that is any consulation.
> > He is not willing to ruin his current life with the SEs of ADT, > You're omitting the vital numerator in the therapeutic ratio that drove > my decision 16 months ago, the limited benefit of ADT with zero post-op > PSA. IP, I have said over and over that I support (not that it matters) your HT decision. You are the one who has to beat it into our heads over and over why you don't. We think it is a rational decision and no one questions your decision. It makes sense. No one is disagreeing with it.
> So now I'm in conflict, is it? Laurel, your puzzling psychoanalysis is > disillusioning. Your turmoil seems self-evident. I apologize for disillusioning you, and I could very well be wrong about your internal conflict. However, I don't see any reason to apologise for a (possible) personal error that does not attack anyone. It's just how I see it.
> >> Sorry for being so wordy------I guess that's just something I > do. Not as > >> bad as I.P. though. > > Look again, Laurel. Your posting rate has increased to twice mine in > both number and size. IP, I didn't say that. Count your quote levels again, okay?
laurel
PS. I am amazed at how a deeply powerful thread (thanks mostly to Bob's post, but also to my willingness to put my self out there and describe my personal experience of prostate cancer) has turned into a petty situation of counting posts to this newsgroup. This feels unreal. *Counting posts?* Does anyone believe this? I wonder, is 10 better than or worse than 5? Which way is up? What is good, what is bad? Would someone care to put everyone's posts in a big word document, and maybe count sentence length? Or perhaps word length? Again, is bigger better, or worse? How very strange.
I.P. Freely - 06 May 2006 16:40 GMT > IP, I have said over and over that I support (not that it matters) your > HT decision. You are the one who has to beat it into our heads over > and over why you don't. We think it is a rational decision and no one > questions your decision. It makes sense. No one is disagreeing with > it. My point, again, is that you're distorting my rationale and thus misleading others facing the same dilemma.
>> Sorry for being so wordy------I guess that's just something I >> do. Not as bad as I.P. though. > > IP, I didn't say that. Direct quote.
I.P.
juniper - 07 May 2006 01:38 GMT > Direct quote. I suggest, again, that you count the quote levels. I was quoting, that is why there are so many ">" symbols there.
Bob C - 07 May 2006 13:33 GMT Wow, sorry I.P. I made that crack/dig insinuating that you composed wordy posts. Me, Bob C. But you do! And I for one read most of your posts. You often have a lot to say, usually seem to know what you are talking about, and I want to see what it is. I do not always get online often enough to keep up on what all is being said, and when I get behind I just skim through most of the posts to catch up. There are several specific individuals who I almost always read. You are one of them. I do not always agree with you, but then, does not that make whay you say all the more valuable to me? I do not know you from Adam, but I have paid attention to your posts long enough to remember a lot of the things you have said, to understand your very valid reasons for avoiding HT, and to see your anger regarding this whole cancer thing, quack doctors, and many other injustices. You are not one to mince words.
I again apologize. I should have used your :-) signal denoting humor when I said what I said. I apologize to your Dad also. Again.
"I.P. Freely" <fuhgheddaboutit@noway.nohow> wrote in message .
>>> Sorry for being so wordy------I guess that's just something I >>> do. Not as bad as I.P. though. [quoted text clipped - 4 lines] > > I.P. I.P. Freely - 08 May 2006 23:47 GMT > I again apologize. I should have used your :-) signal denoting humor when I > said what I said. Unnerstood, now . . . and accepted. Sorry for the brusque response, but a couple of people here have become focused more on ME than on what I say or don't say, and it gets old.
> I apologize to your Dad also. Again. And NOW I recognize your name! ;-)
I.P.
Bob C - 07 May 2006 14:32 GMT Sorry for the late reply, but fishing with my son these past three days put us far from any computer.
> Bob, thank you. This was a very powerful piece of writing. I REALLY > appreciate what you have to say. Everything you said. [quoted text clipped - 12 lines] > Anything you have to share about the whole thing would be helpful to > us. Lots of questions! This is a good thing though. As brief as I can; 1. EBRT with a larger than normal pattern, less shielding of "body parts." 2. Did full pelvic area. 3. Duration normal 34 treatments. 4. SE's the usual during radiation with loose bowels and irritation, but led normal life with help from Imodium AD. Had major hip joint problems off and on for about two + years. SE's progressed with time to very sensitive bladder and colon neither of which like to expand and desire to be empty always. Again, Imodium AD a daily necessisty to this day, and meds to keep bladder happy as well, keep spasms down to a minimum. Urinary incontinence minimal after RRP, increased each year after radiation, finally had AMS800 installed a year ago and it works good. Have not yet quit work/retired, but plan to soon. 5. Yes, numbers were masked by Lupron. Cancer had been observed on bladder surface, was pretty much assumed to be scattered all over the pelvic cavity, therefore went the route I went based on that rather than waiting for numbers. 6. Radiation Oncologist left it up to me, but said that he has had men in my situation who went with the standard EBRT (with shielding the bladder, colon) and with time the cancer showed up in the cavity (I do not know where). He said that as long as it was not within the bones, they could pretty well get it with more extensive radiation of the pelvic cavity. They even let the heavier portions of the pattern extend out the back of the pelvis. He said that yes, secondary cancers might be a concern down the road.
I wish I had some words of wisdom to share, but I don't. The SE's from the various treatments to date do not impact my QOL too terribly bad. The weight gain and fatigue from the Lupron probably are the single most difficult to handle and had I been more educated/informed/motivated, maybe I would not have gained so much. I.P., that wonderful happy go lucky guy who I would never never poke fun at, responded to a post of mine some time back where I was asking the group about weight gain and Lupron. Reading between the lines, he sort of said that I had to get off my dead butt and get active again, fatigue or not, JUST DO IT. A doctor I spoke with a week later said get back with the treadmill routine I had been following, but do a minimum of a full hour every day. Not 30 minutes a day several days a week, an hour. Every day. Watch calories if I want, or not, but do the hour. Much the same thing IP said and he said it much the same way, JUST DO IT. And I have been doing it, and do feel much much better. The weight has only dropped a few pounds in these several months, but it normally would have climbed a few pounds instead.
>> or so of off time until a fast rise was documented and then immediately >> back on for another two years brings us up to today. I rely on you, and >> many > > What is it today? My psa was .12 four months ago, still on Lupron. I think it was .08 four months prior. It might be starting to climb. I'll find out this Tuesday, May 9th, 9:31 in the morning, but who is counting. May Steve be stuck at .132 for the next 10 years, and me at .12. It's getting wordy again, thanks for listening.
Bob C
>> thing. I believe that this is a really educated group and I can benefit >> far [quoted text clipped - 65 lines] > regards, > laurel I.P. Freely - 09 May 2006 00:26 GMT > I.P., that wonderful happy go lucky guy who I would > never never poke fun at, responded to a post of mine some time back where I [quoted text clipped - 6 lines] > of a full hour every day. Not 30 minutes a day several days a week, > an hour. Every day. Realize two things, however. First: 1. I'm talking where I've never personally tread. For all I know, it's virtually impossible for some people to push through the congealed molasses of ADT-induced fatigue. I often PLAY through extreme fatigue, but play provides its own intrinsic and immediate motivation even when one is bone tired; people who can power through extreme fatigue for EXTRINSIC rewards like weight control or training for a marathon are a whole 'nuther, special kind of animal. If you can muster an hour a day on a freaking TREADMILL to burn off four ounces of love handle a day, my hat's off to you big time!
OTOH, I first tried aerobic machines this past winter, and found some ways to make it more tolerable: 1. The fancier the machine, the less mind-numbing it can be. I'm still having fun (OK, less anguish) playing with my pulse rate and level of effort as I vary the pace and heart rate and relative arm and leg effort and exercise programs on the gym's fanciest cardio machine. 2. TV. 3. iPod. 4. Varied objectives. Our bodies respond very differently to exercise performed at different pulse rates. Long, slow exercise, at about 50-60% or our individual max heart rate, burns fat and trains our cells to run on fat rather than sugar (carb starvation will FORCE that process, but at a cost). More rapid exercise, around 85-90% of individual max (with your doc's approval!) will improve circulation, helping guard against heart attacks at every level from heart muscle to microscopic capillaries . . . unless angiogenesis is being thwarted by anti-cancer drugs. 5. And whenever you feel like you flat can NOT do your hour that day, just do 10 minutes. TEN MINUTES. Three benefits will ensue: a. 10 minutes beats no minutes. b. You're sweaty now, and need a shower anyway. May as well crank out the other 50 minutes and EARN that shower. c. Most surprisingly, most importantly, and most beneficially, by the time you've done the obligatory 10, you FEEL like exercising. Your systems are revved up, you're in the groove mentally and physically, and a good hard workout often follows almost effortlessly.
Second: Your check's in the mail for the kind comments. A few of those trump pages of ad hominem.
I.P.
Steve Kramer - 05 May 2006 12:05 GMT > Well, Steve had--TRIED to have-- his 2nd chemo (Taxotere) today. He > had a reaction to the first one 3 weeks ago--felt like his lungs were > filling with fluid, red face. They gave him something, he stabilized, > and they finished the chemo. Today they gave him the extra reaction > meds before the chemo, but the second it hit his veins he had another > reaction. Much worse than the first one. I never before heard (read) it discussed, but does Steve have any known allergies or has he ever reacted to any substance in the past? I know many poeple react to chemo -- maybe universally, but I wonder if those who have a greater reaction also react to other substances.
My curiosity is purley persomal, of course. I've never had a reaction to anything and hope to continue the record when (probably not "if") I have to take chemo.
> His dad, his brother and his sister had colon > cancer. I posted some studies about sexondary cancers from radiation > but I suppose I better study them rather than scan them. Decision Making 101. So very often, we make decisions almost without a thought. It's time to get up. I have to go the bathroom. Should we buy gold or pay down on the mortgage?
Life rarely prepares us for making decisions that will have bad consequences either way.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06 PSA .07 .05 .06 .09 .08 .132 Non Illegitimi Carborundum
juniper - 05 May 2006 14:54 GMT > I never before heard (read) it discussed, but does Steve have any known > allergies or has he ever reacted to any substance in the past? I know many > poeple react to chemo -- maybe universally, but I wonder if those who have a > greater reaction also react to other substances. He's never had an allergic reaction in his life. Well, he has sensitive skin, uses mild clothes detergents, but that's it. The doctors didn't ask anything unusual besides normal "any allergies?" questions, and didn't comment when I mentioned that he's never before been allergic. So if there's anything to that, I don't think its been documented.
> My curiosity is purley persomal, of course. I've never had a reaction to > anything and hope to continue the record when (probably not "if") I have to > take chemo. Well, the doctor said something like 20% react but for 90% of those they can adjust the medications and take care of it. So a real small percent get stopped in their tracks like us. On the reassuring side, the chemotherapy place is full of people all the time, maybe 30 lounge chairs, and all of them are full of people doing just fine with it. I don't think they've seen a reaction.
Steve, I am so very very grateful that we went to a good place. The first time we went, while Steve was getting his pre-meds, our neighbor was talking about the different places she'd had chemo (four), and how good Palo Verde was. She said one time she was gasping and red and they just watched her, didn't stop the chemo or treat her. Then, moments later, the Taxotere hit and Steve had a reaction. Withing 4 seconds someone was there, his chemo was turned off, the saline was turned on, he was getting a shot of epinephrine. There were two nurses (the other one doing blood pressure etc) and an aide bringing an oxygen tank. Within maybe 30 seconds the PA was there examining him. Very very well cared for. That time he finished the chemo, they restarted it about a half hour after the reaction was stopped.
> Decision Making 101. So very often, we make decisions almost without a > thought. It's time to get up. I have to go the bathroom. Should we buy > gold or pay down on the mortgage? > > Life rarely prepares us for making decisions that will have bad consequences > either way. Yes, about the RT. Also about the Taxo. This one he's going to try next week has some worse SEs. Trouble with SEs is you don't know what you're going to get until its too late. The SE you're hoping for--killing cancer--isn't even a given.
Steve Kramer - 05 May 2006 16:40 GMT > Yes, about the RT. Also about the Taxo. This one he's going to try > next week has some worse SEs. Trouble with SEs is you don't know what > you're going to get until its too late. The SE you're hoping > for--killing cancer--isn't even a given. I've heard it explained as "just enough to kill the cancer but to only almost kill the patient." In my dad's day, that was very true. He seemed to have almost died every treatment. If it were that way today, I would not go through it.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06 PSA .07 .05 .06 .09 .08 .132 Non Illegitimi Carborundum
J - 05 May 2006 20:47 GMT > Yes, about the RT. Also about the Taxo. This one he's going to try > next week has some worse SEs. Trouble with SEs is you don't know what > you're going to get until its too late. The SE you're hoping > for--killing cancer--isn't even a given. Here's Taxol http://www.bccancer.bc.ca/HPI/DrugDatabase/DrugIndexPro/Paclitaxel.htm
amd Taxotere <http://www.bccancer.bc.ca/HPI/DrugDatabase/DrugIndexPro/Docetaxel1of2/default.htm>
Clinically important side effects are in bold, italics I = immediate (onset in hours to days); E = early (days to weeks); D = delayed (weeks to months); L = late (months to years) J
juniper - 06 May 2006 09:00 GMT > Well, the doctor said something like 20% react but for 90% of those The references J posted have much more accurate information about this.
ron - 05 May 2006 17:28 GMT Laurel...Sounds like a difficult beginning, but I'm sure you and Steve will work your way through this. Here are a couple of tips I've picked up from others that may be helpful once you get beyond this acute reaction...Ron
Weekly Taxotere can cause permanent tear duct damage. The use of artificial tears (day of and 3 days after chemotherapy) will help. Any sign of watery eyes should prompt a visit to the opthalmologist who may be able to place a stent or do periodic dilations
To prevent loss of taste, it seems that sucking on some ice during chemotherapy seems to help; also, ice on your fingertips to protect the nails and prevent neuropathy
juniper - 07 May 2006 03:31 GMT Interestingly, it appears that this part of my earlier post struck some people as being about this newsgroup. It definitely isn't. It is about some other prostate cancer support groups. I had to bite my tongue not to name names, but of those names I didn't name, none were on this group. I love this group. I was only feeling weird about posting about chemo on it, at the time.
> I wanted to share this, but a hard time about sharing where. I > sometimes post in the [advanced] group but that would be like writing [quoted text clipped - 13 lines] > personal trainer (you and your doctors)? Plus they say wait until some > ridiculous situation (I'm going to try ADT when my PSA hits 35). Steve Kramer - 07 May 2006 12:16 GMT > Interestingly, it appears that this part of my earlier post struck some > people as being about this newsgroup. It definitely isn't. It is > about some other prostate cancer support groups. I had to bite my > tongue not to name names, but of those names I didn't name, none were > on this group. I love this group. I was only feeling weird about > posting about chemo on it, at the time. Iknewdat!
However, I did wonder why you came here to complain about then and, simultaneously, wonder if posting about chemo here was a faux pax.
I suspect most of us don't care what happens on other groups. Many of us have been elsewhere and settled here.
Chemotherapy, as well as any treatment of prostate cancer, from diagnosis to death, is a welcome topic.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05, 2/06 PSA .07 .05 .06 .09 .08 .132 Non Illegitimi Carborundum
juniper - 08 May 2006 02:23 GMT > However, I did wonder why you came here to complain about then and, > simultaneously, wonder if posting about chemo here was a faux pax. my insecurity, just disregard.
> I suspect most of us don't care what happens on other groups. Many of us > have been elsewhere and settled here. exactly. thanks for putting it so well.
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