> Hello again all you RP Pussies!
you mean me? maybe Mary? oh, she's not RP. but i've heard that word
applied to me (in Jest! Smile when you say that!)
hello again CC! where were you?
> Doncha just luv it when some newbie pops up and says "I was a
> perfectly healthy 78 yr old athlete and fully sexually active when I
> was stricken by PCa.................................
> blah
> blah
> Only prob I ever had was a quadruple bypass, blah blah!"
lol
> So I'm still here with all my multiple SEs from RAD & ADT, but then
> you cannot throw that at an SK Nomogram, can you?
> My PCa's undetectable but the rest of me is objecting strongly!
OW! Where's the "Happy Ever After" part?
> Happy Nappies you lot!
Mary Fisher - 20 Apr 2006 10:06 GMT
>> Hello again all you RP Pussies!
>
> you mean me? maybe Mary? oh, she's not RP. but i've heard that word
> applied to me (in Jest! Smile when you say that!)
What's RP?
Mary
dave481 - 20 Apr 2006 13:30 GMT
What's RP?
Mary
I'm a newbie myself, and no one has said for sure, but I think it means
"Ripped out Parts of him"
juniper - 20 Apr 2006 14:32 GMT
Mary wrote:
> What's RP?
> Mary
> I'm a newbie myself, and no one has said for sure, but I think it means
> "Ripped out Parts of him"
Exactly. On the actual reports they put "Radical Prostatectomy" but
that's just a euphemism.
Mary Fisher - 20 Apr 2006 15:21 GMT
> What's RP?
> Mary
>
> I'm a newbie myself, and no one has said for sure, but I think it means
> "Ripped out Parts of him"
Ah - thanks. And to Juniper.
That's probably going to happen to me but they call it a hysterectomy.
Perhaps women don't need euphemisms :-)
Mary
Steve Kramer - 20 Apr 2006 23:40 GMT
> That's probably going to happen to me but they call it a hysterectomy.
> Perhaps women don't need euphemisms :-)
Really? And what is the origin of the word "hysterectomy"?
Heather - 21 Apr 2006 02:32 GMT
>> That's probably going to happen to me but they call it a
>> hysterectomy. Perhaps women don't need euphemisms :-)
>
> Really? And what is the origin of the word "hysterectomy"?
Says the guy who was the originator of the word "Chauvinism".....heh
heh!!
Steve Kramer - 21 Apr 2006 11:28 GMT
>>> That's probably going to happen to me but they call it a hysterectomy.
>>> Perhaps women don't need euphemisms :-)
>>
>> Really? And what is the origin of the word "hysterectomy"?
> Says the guy who was the originator of the word "Chauvinism".....heh heh!!
Another word origin issue! If I were chauvinistic, I would be fanatically
patriotic or devoted to my race. Interestingly, the movement that
originally misused the word as a fanatic devotion to one's sex ended up
being the first ones (and are still the only ones) where the new definition
actually applies.
From: crow@perch.biz (Clarence Crow)
Hello again all you RP Pussies!
=========
why clarence, you old S.O.B. :))
glad you are doing so well.
fantastic news that the quad bypass is doing great. sure makes you look
at life a lot different - doesn't it?
i understand that you pissed off the grim reaper again. i'm very happy
that he did.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
> ...
> So I'm still here with all my multiple SEs from RAD & ADT, but then
> you cannot throw that at an SK Nomogram, can you?
> My PCa's undetectable but the rest of me is objecting strongly!
> ...
Bitch, bitch, bitch.
Throw the man a life preserver and haul him in and he says,
Why'd you throw me this nasty old life preserver? There's a
much nicer looking one under that pile over there!
Actually, my treatment was very much like yours. I was scheduled
for another year of ADT after the two injections that I had, but
my liver acted up and the docs feared I was in more danger
from the ADT killing my liver than from the PCa. So they
relented.
So far (knocking furiously on wood) I seem to be okay without
it, and I'm glad I didn't have to go further. As with you, I think
the side effects of the ADT were worse than the radiation.
Alan
> My PCa's undetectable but the rest of me is objecting strongly!
So, in retrospect, was ADT the right choice for you?
Can't you cut the ADT and run naked through the gauntlet?
I.P.
To ALL:
Curtis: It was the hypothetical newbie with the quadruple bypass (not
me.)
Mary: RP (or RRP) means the "Gold Standard" Surgery option most of the
guys here bought and some are living to regret their choice.
Alan: My side effects, mostly not in the flyers they hand out:
Lymphoedema (swelling of the legs, ankles & feet, plus scaly red
patches) definitely caused by over-zealous EBRT and HDRB Radiation,
destroying the pelvic Lymph nodes. Therapy massage is expensive and
ongoing if you decide you need it for "cosmetic" purposes. Compression
stockings help, but the fluid is always there and gravity puts it back
where it was. i.e. it's permanent.
Sciatica in the pelvis and L leg caused by rough handling whilst I was
under Epidural having HDRB, when they managed to dislodge a Spinal
vertebrae L4/L5.
Cartilage damage to the L knee caused by the same team of "rock-apes".
Severe Urinary stricture since July last, definitely caused by
over-radiating an enlarged Prostate, (72cc), already classified BPH,
and outside the recommended range. Nocturia intervals - hourly on bad
nights - 2 hourly on good nights.
I'm "auditioning" for a TURP, but won't have it unless the Uro can
convince me he won't stuff it up, causing me to be incontinent for the
rest of my miserable life.
Exacerbation of Dry Eye Syndrome, (a spin off from Diabetes Type 2),
with suspicion of it turning into Sjogren's Syndrome. My Auto-Immune
system is going crazy due to my lack of sleep from the Nocturia.
I could end up seeing every Specialist Medic on this, except a
Gynaecologist (because I believe I'm not a woman - lol.)
Some of the other SEs are the "usual" ones, but I've never had a hot
flush!
I'm tapering off on my 2 days/week work, so there!
Most of my other symptoms
-- Reader to complete...
-- Please reply to this ng as my email adress is fake:
-- Regards
-- CC
c palmer - 20 Apr 2006 21:52 GMT
hi clarence - after i typed that post, i was wondering if you would take
it the right way.
the S.O.B. doesn't stand for what people think. we use to play will
people's minds when i was in service and call them that.
S.O.B. meant Swell Old Buddy.......
have a great one.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Clarence Crow - 20 Apr 2006 23:35 GMT
>hi clarence - after i typed that post, i was wondering if you would take
>it the right way.
[quoted text clipped - 3 lines]
>
>S.O.B. meant Swell Old Buddy.......
Curtis
Never said or implied anything about the "S.O.B." - was referring to
the 4x bypass.
I'm also only a 70 yr old puppy (not 78 like the hypo superman I
created.)
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-- CC
Mary Fisher - 20 Apr 2006 22:14 GMT
I must go to bed now but I've saved the post to answer later. If I don't, a
reminder would be nice.
Mary
I.P. Freely - 20 Apr 2006 22:54 GMT
> I could end up seeing every Specialist Medic on this, except a
> Gynaecologist (because I believe I'm not a woman - lol.)
Have you checked lately? With gynecomastia, shrinkage, pads, and
emotional swings, maybe you're closer than you think. ;-)
I.P.
Clarence Crow - 20 Apr 2006 23:43 GMT
>> I could end up seeing every Specialist Medic on this, except a
>> Gynaecologist (because I believe I'm not a woman - lol.)
>
>Have you checked lately? With gynecomastia, shrinkage, pads, and
>emotional swings, maybe you're closer than you think. ;-)
Somethin's still there I.P., if you can imagine a semi-blind man with
eyes full of gooey gel, straddling a bowl on 2 dodgy legs, with the
fear of wifey beating up on me if I drop a dribble on the mat ;(
I believe "BAH!" could be an emotional swing which may become
"bi-polar" as it's the new buzz-word for "manic-depressive".
I don't do pads tho'.
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Mary Fisher - 22 Apr 2006 11:42 GMT
> Mary: RP (or RRP) means the "Gold Standard" Surgery option most of the
> guys here bought and some are living to regret their choice.
Thanks for all the replies.
> Alan: My side effects, mostly not in the flyers they hand out:
That's a shame, disgraceful even. All side effects of all processes are
explained here. In fact you sign to say that you understand what's been
explained to you, which is written on the form you sign.
> Lymphoedema (swelling of the legs, ankles & feet, plus scaly red
> patches) definitely caused by over-zealous EBRT and HDRB Radiation,
> destroying the pelvic Lymph nodes. Therapy massage is expensive and
> ongoing if you decide you need it for "cosmetic" purposes. Compression
> stockings help, but the fluid is always there and gravity puts it back
> where it was. i.e. it's permanent.
I developed lympho after all the lymph nodes in one axilla were removed
after breast surgery.
The scaly red patches are not lympho in itself but will develop if proper
skin care is not practised. Dry skin is a possible side effect of lympho and
can allow other conditions, the lack of protection from lymph exacerbates
it.
You can do your own massage - I do. It's simple and effective but must be
done regularly and after proper instruction. In my city - and many other UK
ones - there is a lympho service which runs clinics. It's part of the NHS
cancer service and isn't charged for. Trained practitioners give
instruction, advice on all aspects, demonstrations, comfort and support and
are very successful. I'm surprised that the movement hasn't reached USA.
And before you say that leg lympho is more difficult than arm lympho I know
that it is, but it is not an insoluble problem. It takes time to see an
improvement and you mustn't give up - but you don't give up on meals just
because you satisfy your hunger at one :-) A few minutes a day is better
than hours of suffering. I've had to learn to do as I'm told or I suffer -
even eight years after surgery..
Compression sleeves or stockings are, I think extremely uncomfortable, even
painful. I wouldn't use them although they are available for us.
If just one or two of you learned how to do the manual lymph drainage you
could start a circle of other sufferers and spread the skill. It's well
worthwhile!
> Exacerbation of Dry Eye Syndrome, (a spin off from Diabetes Type 2),
> with suspicion of it turning into Sjogren's Syndrome. My Auto-Immune
> system is going crazy due to my lack of sleep from the Nocturia.
> I could end up seeing every Specialist Medic on this, except a
> Gynaecologist (because I believe I'm not a woman - lol.)
When did you last look?
:-)
Mary
Clarence -- I might have forgot to ask if you have access to Interstim
-- involves the electronic module that stimulates your sacral nerve and
has done great things for many with urinary problems. I have one
installed right now on a trial basis and it seems (said with great
caution) that it might be helping my retention after these ten long
months of hell!! It also at the same time helps with the pelvic floor
muscles and therefore bowel issues as well.
Interstim is made by Medtronics here in the US. Lots of info about it
on the Internet.
Clarence Crow - 21 Apr 2006 02:59 GMT
>Clarence -- I might have forgot to ask if you have access to Interstim
>-- involves the electronic module that stimulates your sacral nerve and
[quoted text clipped - 6 lines]
>Interstim is made by Medtronics here in the US. Lots of info about it
>on the Internet.
doc
I know you've got one, but I don't think everyone needs one.
My issues have variable priorities.
Next stop for me is an Ophthalmologist, to help me put the grit from
my eyes back into my teeth.
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