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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2006

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erectile dysfunction

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dave481 - 18 Apr 2006 21:28 GMT
I've always known that the first thing to come out of a penis upon
sexual arousal is the wrinkles. I had a very erotic dream last night,
and instead of sleeping through it, like I have been, I woke up. Well
grabbing around, trying to find it under my depends, I couldn't
definitively make anything out. So I flipped on the lamp, threw off the
covers, ripped off the depends and looked. Now, I'm sure not claiming
an erection, this whole "no more sex" thing has had me worried. So I've
tried to be very vigilante in watching for signs that I might be one of
the lucky ones. I've used my keenest observation skills in this regard.
One of my discoveries is, since my RP I normally have 6 wrinkles on my
penis. Last night though, in lamplight, the dream fading fast, I'm sure
I only counted three. I take this as HOPE and wanted to pass it on. If
it's working even a 3 wrinkle erection this soon, why in 6 months, who
knows?   Well, good luck to all, I'm going to take a nap.
God Bless and erect dreams!!!
David
judamd@aol.com - 18 Apr 2006 21:40 GMT
I've never heard of the wrinkle count scale but if it works ---?!  I've
had two or three unaided erections, all during/immediately after dreams
of the most erotic kind yet all efforts to get same when needed have
failed.  I have no idea why except there is most likely a mental
component.  Obviously the plumbing can work, just not when I need it.
So, I'm trying the shots now with promising results though no success
yet as I work my way up the dose scale.  "15" ought to do it.
Dave Perry
dave481 - 18 Apr 2006 22:02 GMT
Dave, How long has it been since your RP? I've heard of the post
glandin? shots? Is that it? I've always admired mechanical things (57
Chevys, Harleys, P-51 Mustangs, Dodge P/U with Hemis, Peterbilts, John
Deere etc....you get the picture) so thought the penile implant might
be for me. However, these bodily invasions haven't set well with me, so
I was turning my interest towards modern pharmacology. I regret reading
that after a total RP with nerve removal, most guys don't benefit from
Viagra, Levitra, or Cialis. These shots though, sound like something
Marcus Welby would use on Ward Cleaver in a hospital. I can just see
him turning to June now, with that smile of deep compassion on his
face, and say," don't worry Mrs. Cleaver, Ward will make it!!!:-))" Of,
June (secretly having fantasies of Eddie Haskell) will be delighted.
Kinda like that lady on the Enzyte commericials.(Say....anybody know
anything about that stuff??)  Whew......getting bored here,

Seriously, does anyone know if the shots work well?

David
42n8_1 - 18 Apr 2006 23:08 GMT
the shots work well for me but the only thing i can't figure out is after my
10 or 15 minutes of enjoyment , what do i do with the other 2 and a half
hours of erection :?

> Dave, How long has it been since your RP? I've heard of the post
> glandin? shots? Is that it? I've always admired mechanical things (57
[quoted text clipped - 14 lines]
>
> David
Steve Kramer - 19 Apr 2006 00:41 GMT
> the shots work well for me but the only thing i can't figure out is after
> my 10 or 15 minutes of enjoyment , what do i do with the other 2 and a
> half hours of erection :?

Did you ever consider charitable donations to needy women?

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

42n8_1 - 19 Apr 2006 01:31 GMT
it's usually a good stretch of time in between performances so my woman gets
pretty needy during that time. maybe the next time we may consider another
toss in the hey if at least she is up to it.

>> the shots work well for me but the only thing i can't figure out is after
>> my 10 or 15 minutes of enjoyment , what do i do with the other 2 and a
>> half hours of erection :?
>
> Did you ever consider charitable donations to needy women?
RR - 19 Apr 2006 08:44 GMT
Simply start again after one and a half hour from the first go :-))

>> the shots work well for me but the only thing i can't figure out is after
>> my 10 or 15 minutes of enjoyment , what do i do with the other 2 and a
>> half hours of erection :?
>
>Did you ever consider charitable donations to needy women?
judamd@aol.com - 19 Apr 2006 00:08 GMT
It's been 2 years, 9 months since surgery.  Both nerves spared although
who knows how much they were stretched, pulled, scraped, or otherwise
damaged.  There are members on this group who swear by the shots.  I'm
strongly leaning that way myself although total success still lies in
the future.  The three vitamins work only marginally and not good
enough.  The shots (Caverject) seem to work quite well although as I
mentioned earlier, I'm still working my way up to the appropriate dose.
My first effort was 2.5 micrograms with no effect plus the shot itself
was somewhat painful, maybe a 3 on a scale of 1 to 10 and a dull, mild
ache that lasted all day.  The second effort was 5 micrograms with some
effect followed about fifteen minutes later with a second shot of 5
micrograms which produced an almost usable erection, better than any of
the vitamins.  This time, both shots were not at all painful.  I can't
explain why the first one offered some discomfort and the next two
didn't.  The next time I'll go for 15 micrograms which will require two
shots again because the prescription I have has syringes of 10 max.
They make them up to 20 micrograms which I'll get next time.  Like
42n8_1 implied, the erection lasts longer than you need, plus there's
no downtime in case you or partner wants to go again, and you get the
erection with no fear of "losing it" or not getting it at all.  While
certainly not ideal, they seem to be the ticket for many guys.
Dave Perry
juniper - 19 Apr 2006 04:26 GMT
> Dave, How long has it been since your RP? I've heard of the post
> glandin? shots? Is that it? I've always admired mechanical things (57
[quoted text clipped - 14 lines]
>
> David

Man, Dave, you are what?  3 weeks post-RP?  LOL.  We're doing 25
mg/Viagara a night.  It *might* help the tissues keep in shape.  We
hear the shots work for almost everyone.  Can't try them right now
because of chemo.  Also getting a VED for exercise if not for fun.
(Who knows.)   The general consensus seems to be go for it all.  What
you don't use, you lose.  My personal theory is make sure it knows you
still care.

Do you know that nerves try to find each other again?  They have 2
different chemicals on the two cut ends, and they try to repair
themselves.  So they could very well do so even if both were cut.
Although I'm reading two to three years (for spontaneous erection) for
a lot of men.  I just mention it so that if your 3-wrinkle guy doesn't
become a <snip> this month, you won't feel hopeless.

Okay, this is your secret weapon:  One time I broke a toe and went to
my naturopath because *nothing* worked on the pain (well I only got as
high as vicoden or maybe percodan). He gave me Hypericum, an herbal
extract. He said it helped nerves heal, and I was having nerve pain.
It was magic.  Really.  So that was my bright idea for Steve's erectile
nerves.  Hypercium is the active ingredient in St Johns Wort.  However,
we can't do it either because of the chemo.  For many months....  But,
depending on what your current treatment is, *you* can take St John's
Wort.  Buy it at a health food store and read the labels, get the best
brand you can.

Also, don't be shy.  (Joke.)   Go ahead and get those health food store
gals into long conversations about vitamins for nerves.  I know
B-complex vitamins, lecithin.  I'm really not up on it all.  You could
get the old but trusty book, Earl Mindell's Vitamin Bible.  It is
purely research based, not weebie-jeebie.

Good luck!

laurel
ps a note.  you can hurt that stitching inside the urethra by having
too much fun.  no pulling as far as it will go.
pps I got lost about eddie haskell.  who is that?  what is enzyte?
dave481 - 19 Apr 2006 04:41 GMT
Laurel, thanks for the info.  Ward and June Cleaver were Beavers
parents on the 50's and 60's sitcom "Leave it to Beaver". Beavers older
brother "Wally" had a best friend named "Eddie Haskell" Eddie was a
real jerk and 50's thug, but used fake, albeit impeccable manners
around Mrs. Cleaver (June). I just threw in the fantasy stuff. The
whole post was a rather weak attempt at humor, but did get a little
discussion going, that maybe will help. I am going to check into the
nerve repairing vitamins. I'm so sorry you guys have to do the chemo.
But it's not forever.
God Bless You
David
juniper - 19 Apr 2006 05:19 GMT
> Laurel, thanks for the info.  Ward and June Cleaver were Beavers
> parents on the 50's and 60's sitcom "Leave it to Beaver". Beavers older
> brother "Wally" had a best friend named "Eddie Haskell" Eddie was a
> real jerk and 50's thug, but used fake, albeit impeccable manners
> around Mrs. Cleaver (June). I just threw in the fantasy stuff. The
> whole post was a rather weak attempt at humor, but did get a little

Oh, it *was* funny.  Perhaps more so because I couldn't really follow
it except as an entertaining stream-of-consciousness thing.  I had
heard of the Cleavers but didn't recall enough of the show to get the
supporting characters.  Perfectly described, though.  I can picture him
now.  Kind of like The Fonz except as a scumbag.

> nerve repairing vitamins. I'm so sorry you guys have to do the chemo.
> But it's not forever.

We are actually not sorry about the chemo, Dave.

After I wrote that sentence, I went and asked Steve.  Just to check, to
be sure I wasn't assuming.  He said, "I'd rather have chemo than
radiation.  With a Gleason 9, its systemic.  Chemo is a no-brainer.  If
surgery would have cured it, Great!  But since it didn't, chemo is the
thing.  And if that doesn't so it, down the road we'll see if radiation
might be the thing."

My perspective is a little different.  We didn't know, until the
surgery, that we had G9.  Our biopsies were 2/10, miniscule
percentages, G7.  So the path report was a big shock.  And I think we
were lucky that one of the lymph nodes showed a "tiny focus of
metastatized adenocarcinoma."  For once, we had unequivocal staging.
At least, when you know, you can make informed decisions.

We are glad that chemo is available, and also ADT.  We have hope for a
cure.  Dying of prostate cancer is forever.  Even if his dad had not
had PCa that metastatized to his bones and brain, I am sure, knowing
what we know now, that we would have done the same thing.  Chemo and
ADT are not forever.  We are very glad to have an oncologist who knows
enough to give us choices.

What would we have done without that positive lymph node and positive
margin?  I don't know.  Possibly radiation.  But....   Adjvunct RT
works best on the G6 people.  Not so helpful for the higher Gs.  So
maybe not.

There are worse things than chemo.  Of course, its probably easier to
say that now (after only one treatment.)  

Good luck to us all!

laurel
MikeHi - 19 Apr 2006 08:49 GMT
Hi Juniper

I had no idea what you'd been through until I read this post. There
are some good tough guys out there, and you're one of them. For me,
your post is the sum of all the miniscule calculations that laypersons
with Pca are expected to make before they finally tell their onc-uros,
with fingers crossed,  which treatment they'll take.

The very best of good luck Juniper- and here's everything crossed for
the magic bullet, which seems to be looming a bit closer on the
horizon, even for systemic stuff, to fly your way!

And, as you write,  good luck to us all.
MikeHi

>We are actually not sorry about the chemo, Dave.
>
[quoted text clipped - 30 lines]
>
>laurel
juniper - 20 Apr 2006 03:01 GMT
> Hi Juniper
>
> I had no idea what you'd been through until I read this post. There

Thanks, Mike.  That's why I'm so curious about your friend who is just
finishing up the whole 9 yards, what his path was like.

There's much more.  We had a PSA of 24 (20.1-26.7), neg bone scan, neg
CT, neg endorectal MRI w/spectroscopy.  Oppenheimer 2nd biopsy path.
Lots of normal DREs.  Finding a good doctor was part of what went on,
and knowing we had PCa and had *no* doctor (after the Mayo fiasco) was
tough.  We did find a good one and she got the appropriate testing.
Besides the high PSA, it looked good.  I suppose I could set up a
signature that would summarize it.  The handiness and readability of
using Google groups far outweighs the ease of setting a signature on
the listserv, wherever it is.  (I did try it that way.)

> are some good tough guys out there, and you're one of them. For me,
> your post is the sum of all the miniscule calculations that laypersons
> with Pca are expected to make before they finally tell their onc-uros,
> with fingers crossed,  which treatment they'll take.

Of course the uro was for surgery, but so was the onc, by the end of
all the testing.  Which was good, since that was what we decided.  (I'm
scared of her.  hehe.)  And its a good thing.  We traded the RP side
effects for a debulking (has to be valuable) but mostly what we got was
a real staging.  As far as RP, though.  How terrible is it for a guy to
voluntarily get his sexual experience so dramatically and permanently
altered?  I'll never really know.  I have a lot of respect for the
courage it takes.

> The very best of good luck Juniper- and here's everything crossed for
> the magic bullet, which seems to be looming a bit closer on the
> horizon, even for systemic stuff, to fly your way!

Thanks, I hope so!  

> And, as you write,  good luck to us all.
judamd@aol.com - 19 Apr 2006 15:57 GMT
I became disenchanted with this show when I discovered how abusive Ward
was to his wife.  How many times did we hear her complain "Ward, you
were pretty rough on the beaver last night". :)
Dave Perry
juniper - 20 Apr 2006 03:09 GMT
> I became disenchanted with this show when I discovered how abusive Ward
> was to his wife.  How many times did we hear her complain "Ward, you
> were pretty rough on the beaver last night". :)
> Dave Perry

ROFLMAO

you got me, Dave.
dave481 - 19 Apr 2006 04:43 GMT
enzyte is a funny commercial on tv about "natural male enhancement".
don't know how effective, but FUNNY
Steve Kramer - 19 Apr 2006 11:10 GMT
> enzyte is a funny commercial on tv about "natural male enhancement".
> don't know how effective, but FUNNY

The company (Burke Manufacturing?) that produced and sold Enzyte was raided
by law enforcement, mostly feds, and has since agreed to pay significant
fines for the false advertising of Enzyte and other wonder cures.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

juniper - 20 Apr 2006 03:07 GMT
I found them online.
https://www.asseenontvnetwork.com/vcc/berkeley/enzytetrial/186909/

> enzyte is a funny commercial on tv about "natural male enhancement".
> don't know how effective, but FUNNY
Steve Kramer - 18 Apr 2006 22:35 GMT
> One of my discoveries is, since my RP I normally have 6 wrinkles on my
> penis. Last night though, in lamplight, the dream fading fast, I'm sure
> I only counted three. I take this as HOPE and wanted to pass it on. If
> it's working even a 3 wrinkle erection this soon, why in 6 months, who
> knows?   Well, good luck to all, I'm going to take a nap.

You can see your penis?  You lucky bastard.  I couldn't see mine for months.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

John Loomis - 19 Apr 2006 02:14 GMT
I would use an Iron to get rid of the wrinkles......
I think that is what many do?
Just make sure it is not too hot.

I have to admit.  It took 2 years for me, to get anything that resembled and
erection.  After that, I stoked the fire.......
Needless to say, use it lose it, and don't bother counting wrinkles...
Sounds like you are doing fine.......
John Loomis
RP @ 49 in 1999
0.01 or less     so far........Wish me luck too.
> I've always known that the first thing to come out of a penis upon
> sexual arousal is the wrinkles. I had a very erotic dream last night,
[quoted text clipped - 12 lines]
> God Bless and erect dreams!!!
> David
David S. - 19 Apr 2006 12:33 GMT
Not what you want to hear I am sure, but there is life after impotence.
Near to three years for me, and no sign of life down there.  Injections did
not work for me, nor did the pump.  Came close to doing the AMS 700, but
decided to back off from another surgery.  But you have a lot of time for
the big comeback.  Don't give up hope, but I know the wait is a bitch.  Are
you using the pump to get blood moving?  A lot of guys use it just for that
purpose.  No proof that works of course, but there is some logic to getting
the tissues streched and enriched with blood.  If you are rich you can also
try taking some Viagra every day.  Some guys to that, and some uro's suggest
doing that for therapeutic reasons.  Again, no proof that I know of that it
actually works, but maybe it is worth the try.

Now, tell us more about that erotic dream....

> I've always known that the first thing to come out of a penis upon
> sexual arousal is the wrinkles. I had a very erotic dream last night,
[quoted text clipped - 12 lines]
> God Bless and erect dreams!!!
> David
Mary Fisher - 19 Apr 2006 16:11 GMT
> Not what you want to hear I am sure, but there is life after impotence.
> Near to three years for me, and no sign of life down there.  Injections
[quoted text clipped - 9 lines]
>
> Now, tell us more about that erotic dream....

I've followed this thread with interest. I'd like to know how old you all
are.

Mary
dave481 - 19 Apr 2006 18:37 GMT
42n8_1 - 19 Apr 2006 22:15 GMT
51 yesterday (18th)
good posting everybody

>> Not what you want to hear I am sure, but there is life after impotence.
>> Near to three years for me, and no sign of life down there.  Injections
[quoted text clipped - 15 lines]
>
> Mary
Steve Kramer - 20 Apr 2006 00:41 GMT
Happy Birthday, Harry!

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

> 51 yesterday (18th)
> good posting everybody
[quoted text clipped - 18 lines]
>>
>> Mary
42n8_1 - 20 Apr 2006 23:32 GMT
why thank you, thank you very much

> Happy Birthday, Harry!
>
[quoted text clipped - 20 lines]
>>>
>>> Mary
judamd@aol.com - 19 Apr 2006 22:27 GMT
I would guess we're all between late 40s through mid to late 60s,
rather typical of most guys in this newsgroup.  Do I detect a hint of
amusement in your question - finding it difficult to imagine us old
f**ts having erotic dreams?  That's where the nocturnal erections come
from whether we remember the dreams or not (usually not -
unfortunately).  We can't help it.  That's the way we're made.
Dave Perry
Steve Kramer - 20 Apr 2006 00:45 GMT
Actually, we "all" started our journey here at age 58.17.  Of the 600+ who
have stopped by here in the last 4+ years, 89 have been around more than 5
years.  The one with the longest tenure was dx'd in 1993.

So, I guess the average age now is well into the 60s.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

>I would guess we're all between late 40s through mid to late 60s,
> rather typical of most guys in this newsgroup.  Do I detect a hint of
[quoted text clipped - 3 lines]
> unfortunately).  We can't help it.  That's the way we're made.
> Dave Perry
juniper - 20 Apr 2006 03:15 GMT
> Actually, we "all" started our journey here at age 58.17.  Of the 600+ who
> have stopped by here in the last 4+ years, 89 have been around more than 5
> years.  The one with the longest tenure was dx'd in 1993.
>
> So, I guess the average age now is well into the 60s.

Do you keep a database, Steve?  What a cool service.  Kind of like The
Fonz, but cooler.
Steve Kramer - 20 Apr 2006 23:27 GMT
>> Actually, we "all" started our journey here at age 58.17.  Of the 600+
>> who
[quoted text clipped - 6 lines]
> Do you keep a database, Steve?  What a cool service.  Kind of like The
> Fonz, but cooler.

Not a database, per se.  Just a spreadsheet.  I cannot commit to the kind of
research that others here do (I still work 40 to 60 hours a week).  But, I
am anal.  So, I can provide a service of listing visitors and some of their
data and provide trivia occasionally.

It started more as a list to aid my failing memory.  I once considered
posting on a website somewhere, but realized that a significant percentage
would be less forthcoming about themselves if I were to do so.

So, if you wanna know who's the oldest, who had cancer the longest, what the
average PSA was at dx and where most patients reside, I have it -- so long
as you're satisfied with the results coming from a mere 600+ people --  
which, Professor Evens would tell you is not nearly statistically
significant.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

JerryW - 21 Apr 2006 13:49 GMT
"Steve Kramer" <skramer@cinci.rr.com> wrote...

> So, if you wanna know who's the oldest, who had cancer the longest, what
> the average PSA was at dx and where most patients reside, ...

Steve, don't know if you have this. I am in the Dallas, Texas metroplex.

JerryW
Steve Kramer - 21 Apr 2006 16:03 GMT
Noted

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

> "Steve Kramer" <skramer@cinci.rr.com> wrote...
>
[quoted text clipped - 4 lines]
>
> JerryW
colophony - 21 Apr 2006 17:42 GMT
        Steve,you can add colophony from Rome, Italy
61 years old
RP jan, 2006
Colophony

> "Steve Kramer" <skramer@cinci.rr.com> wrote...
>
[quoted text clipped - 4 lines]
>
> JerryW
Steve Kramer - 21 Apr 2006 20:03 GMT
Noted.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

>         Steve,you can add colophony from Rome, Italy
> 61 years old
[quoted text clipped - 9 lines]
>>
>> JerryW
Joe Price - 22 Apr 2006 06:48 GMT
Maybe I should give you some more data for the sake of your spreadsheet -

Last summer I underwent EBRT but there was no benefit (worth a shot though
as I experienced no notable side effects)
Diagnosed at 50 PSA 9.6 (my first ever PSA) mid 2001
LRP (1 nerve spared) - lousy pathology (+ SVs)
Post op PSAs
0.06, 0.09, 0.11, 0.18, 0.20, 0.24, 0.19, 0.35 repeat 0.34
at that point I underwent EBRT (36 sessions)
3 months later PSA = 0.59 and 4 months after that (7 months post EBRT) 0.74
(end March 2006)

Next step will likely be some variant of hormone therapy but will hold off
likely 3 - 6 months (S.E.'s)
I have perfect quality of life right now.  No incontinence, minor ED.

There, update your stats!

> Noted.
>
[quoted text clipped - 11 lines]
>>>
>>> JerryW
Steve Kramer - 22 Apr 2006 12:46 GMT
Had it, Joe, except the last PSA.  Damned sorry to see it's still swinging
up.

Never had your Stage or Gleason though.  Do you know those?

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

> Maybe I should give you some more data for the sake of your spreadsheet -
>
[quoted text clipped - 30 lines]
>>>>
>>>> JerryW
Joe Price - 22 Apr 2006 16:34 GMT
Gleason: 6 (post Op)  compared with 7 (3 + 4) by biopsy
Stage: Both lobes, + SV's - I guess that would make it T3something

> Had it, Joe, except the last PSA.  Damned sorry to see it's still swinging
> up.
[quoted text clipped - 35 lines]
>>>>>
>>>>> JerryW
Steve Kramer - 22 Apr 2006 17:39 GMT
> Gleason: 6 (post Op)  compared with 7 (3 + 4) by biopsy
> Stage: Both lobes, + SV's - I guess that would make it T3something

You are correct, sir, T3c.  Same as mine.
Mary Fisher - 20 Apr 2006 10:29 GMT
>I would guess we're all between late 40s through mid to late 60s,
> rather typical of most guys in this newsgroup.  Do I detect a hint of
> amusement in your question - finding it difficult to imagine us old
> f**ts having erotic dreams?

Heavens! Not at all - although Spouse is 67 like me and he rarely has erotic
dreams. Doesn't need them... nor do I ...

:-)

No, I imagined that you were mostly older and pleased that you weren't
crumbling into atrophy, as in popular imagination. Our children used to
think that parents didn't 'do it' after thirty, now that the youngest is
almost forty I think they've changed their minds. The grandchildren, however
... LOL!

Spouse rarely has a spontaneous erection these days either but when he does
he doesn't waste it.

We don't make love as often as we used to because we're usually too tired
when we go to bed so mornings are the only opportunity.

I'm being serious and truthful here.

I told him about this thread, he was amused and he said that if he has
treatment which makes him impotent so be it. Life is even more important.

We said something similar when I was diagnosed with breast cancer. We'd
rather I lived with no breasts than die with them. In the event I kept my
breasts but not for pleasure reasons.

I'm now possibly in line for an hysterectomy, that will no doubt affect my
overactive oestrogen production (which is keeping me lively but causing
endometrial problems). That will be a shame but life is more important.

Heck, we've had far more intimate pleasure in our forty seven years of
marriage than the average couple, if  it doesn't continue it won't be the
end of our world.

By the way, as well as being 67 I'm fat -12 stones at 5' 3". He's skinny - 8
1/2 stones at 5' 5". He's always been able to see his penis :-)  I've always
wondered about fat men though - some have such big bellies that I think they
can't even reach it to hold it. Do they sit down to pee?

Mary
juniper - 20 Apr 2006 14:36 GMT
> By the way, as well as being 67 I'm fat -12 stones at 5' 3". He's skinny - 8
> 1/2 stones at 5' 5". He's always been able to see his penis :-)  I've always
> wondered about fat men though - some have such big bellies that I think they
> can't even reach it to hold it. Do they sit down to pee?

My aunt used to give the men in her house a choice to either sit when
peeing or clean the toilets.  I think she instilled a lifelong habit in
them.  I don't think reaching the penis is an issue, its whether or not
you can tie your own shoes.
Mary Fisher - 20 Apr 2006 15:22 GMT
>> By the way, as well as being 67 I'm fat -12 stones at 5' 3". He's
>> skinny - 8
[quoted text clipped - 8 lines]
> them.  I don't think reaching the penis is an issue, its whether or not
> you can tie your own shoes.

I can still bite my toe nails.

But only the big ones.

Spouse can't even touch his toes -never could.

Mary
judamd@aol.com - 20 Apr 2006 15:47 GMT
Sign on a urinal:

We aim to please,
You aim too, please.

Dave Perry
Mary Fisher - 20 Apr 2006 16:36 GMT
> Sign on a urinal:
>
> We aim to please,
> You aim too, please.

:-)

I have a note on the cistern: Men, please wipe the rim after use.

(I realise that it has a different meaning in USA ...

A friend stuck another next to it:

Women clean the rest of the house.

I never understood if it was a request or a statement of fact.

Mary

> Dave Perry
juniper - 21 Apr 2006 02:46 GMT
> Sign on a urinal:
>
> We aim to please,
> You aim too, please.
>
> Dave Perry

I never get mad at a toilet seat left up, because I have short legs and
I always forget to move the car seat back for normal people.  I figure
its a fair trade.
Mary Fisher - 21 Apr 2006 09:57 GMT
>> Sign on a urinal:
>>
[quoted text clipped - 5 lines]
> I never get mad at a toilet seat left up, because I have short legs and
> I always forget to move the car seat back for normal people.

No -WE'RE the normal ones. The others are, well unnecessarily long legged.

Mary
judamd@aol.com - 20 Apr 2006 15:44 GMT
Not only can some guys not reach it, the thing doesn't even stick out
beyond the fat.  Kind of looks like another "bellybutton".  These guys
have to sit otherwise it dribbles down the front, and even sitting
there's a lot of cleanup after.  
Dave Perry
Mary Fisher - 20 Apr 2006 16:37 GMT
> Not only can some guys not reach it, the thing doesn't even stick out
> beyond the fat.  Kind of looks like another "bellybutton".

How do you know?

Mary
judamd@aol.com - 20 Apr 2006 16:43 GMT
Spouse told me.  She works in a nursing facility which tends to
patients too sick to go home but not sick enough to stay in the
hospital.  She's seen everything many times over.  So there!
Dave Perry
Mary Fisher - 20 Apr 2006 17:55 GMT
> Spouse told me.  She works in a nursing facility which tends to
> patients too sick to go home but not sick enough to stay in the
> hospital.  She's seen everything many times over.  So there!
> Dave Perry

Ah!

What else do you talk about over dinner?

:-)

Mary
c palmer - 20 Apr 2006 19:45 GMT
Not only can some guys not reach it, the thing doesn't even stick out
beyond the fat. Kind of looks like another "bellybutton".

How do you know?
Mary

===========
i remember reading about this condition known as "micro penis" many
years ago, so i did some research and found some articles on this.  this
one is from the BBC.

http://news.bbc.co.uk/2/hi/health/4071657.stm

Op can boost size of micro-penis
Surgeons are perfecting a way to build up the size of very small
penises, enabling proper urination, and a full sex life.  
It is estimated that about one in 200 men is born with what is known as
a micro-penis.
Whereas the average size of the human penis is around 12.5cm (5 inches),
a micro-penis spans less than 7cm.
University College London surgeons will present their work to the
European Society for Sexual Medicine.
The technique has been carried out on nine men. Click below to see
images.
WARNING: These images show male genitals in close-up.
In pictures

A micro-penis can develop from inadequate levels of the male sex hormone
testosterone during the second and third trimesters of pregnancy, or
from an inability to respond to testosterone in the normal way.
In the past doctors have recommended gender reassignment, so the child
was brought up as a girl, but this is a practice which has ceased in
recent years.
However, there are a number of treatments available.
The UCL team has been refining a technique called phalloplasty, or
penile enlargement.
This involves cutting a flap of skin from the patient's forearm and
shaping it into a penis four or five inches long.
To maintain erogenous sensation, the original penis is incorporated into
the surface of the transplanted skin.
Patients receive a urethra to enable them to urinate, and an inflatable
penile prosthesis to allow an erection to engage in sexual intercourse.
Successful surgery
UCL surgeons performed the operation on nine men aged 19 to 43 with a
range of medical backgrounds, including three hermaphrodites and two men
who had problems with androgen (the group of hormones which includes
testosterone), one of whom became deficient in androgen after
chemotherapy.
Following surgery, all patients were found to be satisfied with the
cosmetic appearance of their penis, with four patients able to urinate
standing up and four able to have regular sexual intercourse.
However, in several cases multiple complications arose, such as an
infection or a shift in the prosthesis position, with subsequent
revision operations needed.
Dr David Ralph, of UCL's Institute of Urology, said: "This operation can
change the life of young men, improving their self-esteem and quality of
life and allowing many of them to have sexual intercourse, sometimes for
the first time in their life.
"However, patients should be aware of the high risk of complications
from this procedure."

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
USC Gamecock - 20 Apr 2006 20:15 GMT
Someone asked how old everyone is and Steve K (a wealth of info --
THANKS STEVE), responded that at one time the avg age was just over 58.
I'm on of those stats that get thrown out....because I'm 38 (37 at Dx
and surgery).

For those recently out of RP that are concerned....don't worry about it
(I know, easier said than done).  Take some of the pressure off
yourself and hopefully you (and your wife) will be as blessed as me and
my wife.  Got my first erection (viagra assisted) about 4-5 weeks
post-RP.  I started enjoying (and they've gotten even better)
unmedicated erections by Thanksgiving (we had SO MUCH to be thankful
for!) -- my RRP was August 12, 2005.

Keep your chin up!!  God bless y'all!

Age at Dx -- 37 (June 22, 2005)
Assymetric DRE despite PSA of .7 (yes, POINT seven)
Gleason 3+3=6, T2b tumor
RRP with Alan Partin, MD (Johns Hopkins) on August 12, 2005
Post-surgical report -- no seminal vesicle involvement, margins clear,
no lymph node involvement --- fully contained to prostate.  Nerves
spared.
3 month PSA = <.1
6 month PSA = <.1
Lamentations 3:21-23
dave481 - 20 Apr 2006 20:35 GMT
OK, first thing I'm gonna do is validate my source. A friend of mine
has a cousin who says he knows a man who has a friend named "Dickie
Do". He got that name because his belly sticks out further than his
"dickie do". I have no idea who first visuall y verified this.

Hey Ron B!!!! Good to see you posting, Either you have been and I've
missed it. Or you've been quiet. In any case good to see you. I heard
through the grapevine you had some great news recently. Congrats and
God Bless you.
David
Steve Kramer - 20 Apr 2006 23:31 GMT
> By the way, as well as being 67 I'm fat -12 stones at 5' 3". He's skinny -
> 8 1/2 stones at 5' 5". He's always been able to see his penis :-)  I've
> always wondered about fat men though - some have such big bellies that I
> think they can't even reach it to hold it. Do they sit down to pee?

No, God gave us long arms and a keen sense of direction.

24 stones at 6'6"
dave481 - 21 Apr 2006 03:17 GMT
How much is a stone? In lbs. I used to think 20. But Steve that'd make
you 480lbs?
Heather - 21 Apr 2006 03:32 GMT
14 lbs....which makes him about 336 lbs. and you don't want to mess with
him, right??  (VBG)

> How much is a stone? In lbs. I used to think 20. But Steve that'd make
> you 480lbs?
dave481 - 21 Apr 2006 04:04 GMT
Steve Kramer - 21 Apr 2006 11:34 GMT
> 14 lbs....which makes him about 336 lbs. and you don't want to mess with
> him, right??  (VBG)
>
>> How much is a stone? In lbs. I used to think 20. But Steve that'd make
>> you 480lbs?

Okay, then it's 24 stones.  At least two of which since starting Lupron. (of
course, eating whole pigs and cows hasn't helped either).

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

Mary Fisher - 21 Apr 2006 09:58 GMT
> How much is a stone? In lbs. I used to think 20. But Steve that'd make
> you 480lbs?

Sorry, 14 pounds to the stone.

Mary
Steve Kramer - 21 Apr 2006 11:34 GMT
> How much is a stone? In lbs. I used to think 20. But Steve that'd make
> you 480lbs?

Damned Internet conversion programs!

I guess it's closer to 16 then.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

Mary Fisher - 21 Apr 2006 09:58 GMT
>> By the way, as well as being 67 I'm fat -12 stones at 5' 3". He's
>> skinny - 8 1/2 stones at 5' 5". He's always been able to see his penis
[quoted text clipped - 3 lines]
>
> No, God gave us long arms and a keen sense of direction.

So why don't you use the latter?

Mary
Steve Kramer - 20 Apr 2006 00:36 GMT
51

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

>> Not what you want to hear I am sure, but there is life after impotence.
>> Near to three years for me, and no sign of life down there.  Injections
[quoted text clipped - 15 lines]
>
> Mary
juniper - 20 Apr 2006 03:12 GMT
> I've followed this thread with interest. I'd like to know how old you all
> are.

Steve is 49 and I, his wife, am 48.
colophony - 20 Apr 2006 14:56 GMT
Mary
I am 61 and my wife 53; life without a bit of sex is not the same.
Colophony

>> I've followed this thread with interest. I'd like to know how old you all
>> are.
>
> Steve is 49 and I, his wife, am 48.
Mary Fisher - 20 Apr 2006 15:24 GMT
> Mary
> I am 61 and my wife 53; life without a bit of sex is not the same.

It's certainly not the same as with a lot. But I imagine that as I get older
if the urge or ability goes I'll find other things to do. In my experience
something always comes along to fill a hole.

Oops ...

Mary
Ron B - 20 Apr 2006 17:52 GMT
When

Mary Fisher wrote:

"I've followed this thread with interest. I'd like to know how old you
all are."

I thought that she was joking also.

I was gonna say that I was 16 with a much older prostate...but Mary's a
bright lady and it makes sense that she was asking a REAL question.

I'm gonna be 58.

My mental age...12   :-)

Best to all,

Ron B.

Chicago
Mary Fisher - 20 Apr 2006 18:08 GMT
> I'm gonna be 58.

Ah, but when?

Mary
KenA - 21 Apr 2006 02:48 GMT
>> I'm gonna be 58.
>
> Ah, but when?
>
> Mary

On his birthday... <vbg>
Mary Fisher - 21 Apr 2006 09:59 GMT
>>> I'm gonna be 58.
>>
[quoted text clipped - 3 lines]
>
> On his birthday... <vbg>

And which birthday?

Let me guess - his 58th :-)

Mary
David S. - 22 Apr 2006 19:27 GMT
I am 58, 59 in September.  The RRP was in 2003.

>> Not what you want to hear I am sure, but there is life after impotence.
>> Near to three years for me, and no sign of life down there.  Injections
[quoted text clipped - 15 lines]
>
> Mary
JK@work - 21 Apr 2006 20:50 GMT
> I've always known that the first thing to come out of a penis upon
> sexual arousal is the wrinkles. I had a very erotic dream last night,
[quoted text clipped - 12 lines]
> God Bless and erect dreams!!!
> David

 My take on this, from my experience,  is that when you need to go potty
while asleep, you get slightly erect, (we used to call it  a "piss hardon").
which thus fakes you into having an erotic dream of sorts. So instead of the
perceived sexual arousal casuing the slight woody, it was the firmness that
caused the dream. Chicken or the egg... who cares as long as the wrinkled go
away.  If I were you I'd get busy with the porn. Strike while the iron is
firm, errr I mean hot.

--
JK Sinrod
www.sinrodstudios.com
www.MyConeyIslandMemories
David S. - 22 Apr 2006 19:32 GMT
Just an observation.  This one rivals "Catholics and masturbation" for
length of the thread.

Has anyone ever tried to do any stats on the longest thread on this ng?

>> I've always known that the first thing to come out of a penis upon
>> sexual arousal is the wrinkles. I had a very erotic dream last night,
[quoted text clipped - 29 lines]
> www.sinrodstudios.com
> www.MyConeyIslandMemories
 
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