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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2006

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3 years 6months

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joisey@mindspring.com - 17 Apr 2006 04:00 GMT
Hi everyone:
I have not posted in a long time, and only visit the group occasionally now.

Just got my latest blood tests, 3 years and 6 months after prostatectomy:
PSA  undetectable <.1
After my surgery, the minor incontinence which was inconvenient the first
few months was well controlled by the Male Sling operation I had the
following year.
The impotence has continued, which the surgeon had predicted, but I am
evaluating devices for "assistance".

My next challenge is to control my blood pressure,cholesterol and sugar
levels. The doctor says that if i can diet and exercise off about 60 lb. I
may be able to control with lower  doses of my prescriptions.

3 years later.....joisey
KenA - 17 Apr 2006 04:27 GMT
Congratulations!
It's good to hear of people's successes.
KenA
====
> Hi everyone:
> I have not posted in a long time, and only visit the group occasionally now.
[quoted text clipped - 11 lines]
>
> 3 years later.....joisey
DonC - 17 Apr 2006 04:39 GMT
> Hi everyone:
> I have not posted in a long time, and only visit the group occasionally
[quoted text clipped - 13 lines]
>
> 3 years later.....joisey

Hi Joisey,

Great to hear your PSA is still undetectable after 3 1/2 years!

Also want to thank you  for the information you provided me over the past
year or so re the Sling.  I had it installed in early November and was
immediately dry. Now and then a tiny squirt but nothing significant enough
to need a pad.

While wintering over here in Arizona I met a guy who had an RRP a year ago
but was still leaking 2 to 3 man pads a day. I told him about the Sling and
to make a long story short he had it  installed 4 weeks ago.  He's  now dry
but still sore. Told him that'll  that takes 6 or 8 weeks to get over.  He's
a happy man!

Don


I.P. Freely - 17 Apr 2006 04:58 GMT
> My next challenge is to control my blood pressure,cholesterol and sugar
> levels. The doctor says that if i can diet and exercise off about 60 lb. I
> may be able to control with lower  doses of my prescriptions.

Absolutely. And have you been tested for sleep apnea? It's common among
men our age, particularly overweight ones; it often clobbers our weight
and our blood pressure; it's simple to diagnose and fix; its SEs are
GOOD ones; and if left untreated it will do lasting harm and can kill.

I found out last week I have it, and get it fixed next week before it
does any harm.

I.P.
Claude - 17 Apr 2006 13:30 GMT
>> My next challenge is to control my blood pressure,cholesterol and sugar
>> levels. The doctor says that if i can diet and exercise off about 60 lb.
[quoted text clipped - 9 lines]
>
> I.P.

Good luck with the treatment.  I was diagnosed with mild apnea about two
years ago.  The cpap machine was prescribed.  Lots of people have had
success with that, but I could not accomodate to it.  For one thing, I am a
mouth breather when I sleep.  But everytime I started breathing through my
mouth, the machine started roaring and air was forced into the back of the
mouth.  I tried switching to a full face mask, but still encountered the
same problem.  I was waking up and getting worse sleep using it than not. In
addition when I would open my mouth and get the roar, it would wake up my
wife.  So, I had to sleep in a separate bedroom.  Finally, after using it
for the requisite month, I decided to live with the apnea, especially since
the doc said mine was not health threatening.  However, all that said, many
people have had good success with the cpap machine.  There are some other
options---surgery, mouth piece, etc---but according to my doc, these have
not had as much success as the machine.  I'm just sharing this for
information purposes.
I.P. Freely - 17 Apr 2006 21:46 GMT
> Good luck with the treatment.  I was diagnosed with mild apnea about two
> years ago.  The cpap machine was prescribed.  Lots of people have had
[quoted text clipped - 10 lines]
> options---surgery, mouth piece, etc---but according to my doc, these have
> not had as much success as the machine.

I'm also not yet to a serious point with my apnea, but I do see two
changes coming on that need reversing: a narrower range of head angle at
which my bedtime breathing is unobstructed, and increasing blood
pressure. I, also, don't see how the paraphernalia and sleep are
compatible, but I'll give it a try. People are supposed to sleep on
their sides, not their backs, and strapping a SCUBA hose to one cheek
doesn't seem compatible with that. My wife is a new person now that
she's gotten use to her CPAP.

I.P.
Claude - 18 Apr 2006 02:41 GMT
"I.P. Freely" <fuhgheddaboutit@noway.nohow> wrote in message

> I'm also not yet to a serious point with my apnea, but I do see two
> changes coming on that need reversing: a narrower range of head angle at
> which my bedtime breathing is unobstructed, and increasing blood pressure.
> I, also, don't see how the paraphernalia and sleep are compatible, but
> I'll give it a try. People are supposed to sleep on their sides, not their
> backs,

The first thing the doc suggested was pinning a tennis ball to the back of
the tee shirt I sleep in.  I found that another sleep interferance.

and strapping a SCUBA hose to one cheek
> doesn't seem compatible with that. My wife is a new person now that she's
> gotten use to her CPAP.
>
> I.P.

My big problem was sleepiness during the day and early evening.  Now that
I'm retired, I can take naps.  That helps, as long as they are not too long
and don't interfere with the night's sleep.  Another aspect of this problem
is that as one gets older one sleeps less soundly.  That could be in play
here too.  Then, since RP, I don't trust my "holding" capacity, so I'm up
several times during the night to go to the bathroom.  But, hey, maybe all
that activity at night keeps my weight down. (How different from 45 years
ago when I could sleep for 9 hours straight through, and then pee a gallon.)
Steve Kramer - 17 Apr 2006 17:28 GMT
Glad to hear from you, Joisey, after so long.  What great news!  3½ years!
Fantastic.

How's your wife?  (sorry, but I've forgotten her name)

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

> Hi everyone:
> I have not posted in a long time, and only visit the group occasionally
[quoted text clipped - 13 lines]
>
> 3 years later.....joisey
Ron B - 17 Apr 2006 20:25 GMT
Great to meet you and great news Joisey.

:-)

Super!

Continued success,

Ron B.

Chicago
joisey@mindspring.com - 18 Apr 2006 04:16 GMT
She is doing great. In good health.
Still working on her PhD degree at night. (It's been 8 years now)
....joisey

> Glad to hear from you, Joisey, after so long.  What great news!  3½ years!
> Fantastic.
[quoted text clipped - 18 lines]
>>
>> 3 years later.....joisey
 
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