i was at a social function last night and met a man and his wife. the
conversation turned to prostate cancer.
i was told that he had prostate cancer and it was the least of their
worries. it seems that both of the daughters - which are in their 30's
have breast cancer and this couple is having to deal with that.
anyway, the conservation returned back to pca and i ask him about his
treatment. he's a veteran and told me that his psa had jumped from 5,
then 7, then 9, and finally 12. they told him that he had pca and put
him on casodex and lupron shots. and that's it. he's been on this
treatment for 18 months now.
he has no idea where he stands. he didn't understand the different
types of treatment available to him. so, i made time to explain what's
going on in his body and what his options are. and that since he opted
for the hormone treatment, it is usually reserved for advanced prostate
stage. this bothered him. he doesn't know what his stage is, other
than they found a lump on one lobe and told him that he was stage 2.
he doesn't know what his gleason score is and he did ask, but wasn't
told. and he doesn't know what his psa level is at the present time.
add to this mix, the fact that they are changing doctors on him and he
sees a different doctor almost each time he goes over there.
later than night, met a maintenance worker and told me that he just
turned 60 and had prostate cancer. i ask if they did a biopsy and he
said, "no, they went up through the penis" i ask again if they told him
if he was sure he has prostate cancer and again, he said yes, in fact,
he had chemo for a year. but he had no knowledge of what his psa level
was or is, he doesn't know what staging is, nor a gleason score. and to
top it off, he hasn't been back for over 6 months and had no appts with
the uro.
his fellow maintenance partner, who was 50 had never had a psa test and
is aware of what his buddy is going through, because they work together,
but didn't feel that it applied to him.
so, you see, it's not all one world in the treatment of prostate cancer.
i'm finding this out more and more as i talk to men about it.
just thought i would pass this experience on.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Mary Fisher - 06 Apr 2006 09:47 GMT
<snip>
> so, you see, it's not all one world in the treatment of prostate cancer.
No. Spouse is, as I type, having a pre-assessment for his biopsy which will
be with a ga. We have no idea what will happen after that, simply because
there are so many variables.
I think it's important to realise that there are very many approaches to the
problem - as well as different types of all cancers. I discovered that when
I was treated for breast cancer.
There's no point in worrying in advance :-)
Mary
John Loomis - 06 Apr 2006 17:36 GMT
Hello Mary,
Worrying is definately not going to solve any of the decisions that need
to be made with prostate cancer and diagnosis.
By having a biopsy and coming up with some definate record of the type of
cancer, the amount of cancer, the spread of cancer can help with treatment
options.
There are really not that many variables.
Age is one.
Cancer spread is another.
If cancer is spread, Surgeory is not practical.
Radiation and Hormone treatments can be more practical.
It is best to take the findings of the biopsy to a "Prostate Cancer
Specialist".
He or she can then help you evaluate a treatment option.
John Loomis
> <snip>
>>
[quoted text clipped - 11 lines]
>
> Mary
Steve Jordan - 06 Apr 2006 18:53 GMT
On April 6, Curtis Palmer wrote:
> i was at a social function last night and met a man and his wife. the
> conversation turned to prostate cancer.
>
(Snip horror stories.)
Here is where I find great frustration in my work to be of use to my
brothers and sisters in the PCa context. So many of my brothers and
sisters, by far the majority, have no idea of what is available to them.
And some are simply not interested -- until the sky falls.
The failure of some medics to understand their patients and to
understand thoroughly their disease is a continual source of
frustration. If *I* know, frex, the Casodex should be used as a
preparatory tx before starting ADT, why doesn't the Chief of Urology at
a very prestigious hospital near me?
I'm afraid that I have a pretty good idea of the reason, and it is not a
pretty picture.
OTOH, I met a man at an UsToo group recently who had gone to Duke Bahn
in Ventura, California for a color doppler exam. Dr. Bahn sat down with
him for *two hours* and went over the results and their implications in
detail. So there is the occasional glimmer of light.....
Regards,
Steve J
I.P. Freely - 06 Apr 2006 19:12 GMT
snip snap snup
> so, you see, it's not all one world in the treatment of prostate cancer.
> i'm finding this out more and more as i talk to men about it.
You were in Zamboolistan, right, over by the Kazackilagian border? When
did you learn to speak Swahebinuit?
That's one sad tale. I have very hard time comprehending that people
don't even look up "hangnail" -- let alone cancer -- in the dictionary
or a TV Guide glossary before getting it treated.
Next time, ask these people how much time they spent selecting their
last new car or TV.
OTOH, is there any solid proof that our life span -- minus the time we
spend reading and typing about cancer -- any longer than theirs?
I.P.
c palmer - 06 Apr 2006 22:18 GMT
From: fuhgheddaboutit@noway.nohow (I.P. Freely)
c palmer wrote:
snip snap snup
so, you see, it's not all one world in the treatment of prostate cancer.
i'm finding this out more and more as i talk to men about it.
You were in Zamboolistan, right, over by the Kazackilagian border? When
did you learn to speak Swahebinuit?
==========
hi I.P. i didn't know that i was so talented..... i didn't even know
how to spell Swahebinuit and now i'm an expert in it. see, what
happens when you get edumukat'd...... :))
it was strange to hear the vietnam vet talk about his treatment from the
VA hospital that he went to. i'm finding out that it's not all one
world even when they treat the vets and it's suppose to be on the same
page.
the other two guys were age 50 and 61. neither one was a vet,
but as a follow up to talking with men about this, i've met the
following people.
a black vietnam vet who was in the jungle, and felt the agent orange
sprayed on him as the choppers went over head. he was 56 years old at
the time and didn't know about the prostate cancer and agent orange
connection, nor did he know that he was at a higher risk because of his
ethnic background. he also didn't know that he could go to the VA
clinic for medical treatment.
my own brother is another candidate for the darwin awards. his father
had pca, his brother had pca (me), and he's at high risk of pca because
of family history. it was after i had talked to him harshly about this
subject that i finally got him to react and get a psa test. he was 65
at the time and never had a psa test. guess he just wanted to bury his
head in the sand and hope that pca wouldn't strike him.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Alan Meyer - 07 Apr 2006 06:45 GMT
A lot of people don't want to hear anything about
ill health of any kind.
A cousin of mine who is an oncologist told me that
a lot of his patients explicitly tell him - "Do whatever
you have to do, but I don't really want to know
anything about it."
I guess part of this is a mature version of the childish
attempt to escape bad news by closing your eyes
and covering your ears. Another part might be an
almost as childish belief that "I can't understand this
stuff anyway, so there's no sense telling me."
I.P. asked:
> OTOH, is there any solid proof that our life span -- minus the time we
> spend reading and typing about cancer -- any longer than theirs?
I don't have any solid proof, but the poor sap put on
HT for early stage PCa doesn't sound to me like he's
going to live as long as he should, or with as good a
life as he could have.
As for the reading and typing about cancer, maybe it's
as valid a way to spend our time as reading and talking
to people about sports, or politics, or TV.
I've gotten a new interest in biology, partly stimulated
by all this, and have been reading biology and chemistry
books. I'm enjoying that side of the reading and typing,
and it makes me feel good if I manage to say something
to someone in this group that is a bit helpful.
Alan
Dick Smith - 06 Apr 2006 19:47 GMT
Don't forget us younger guys. I'm 38 and because of the Internet and
sites like this, I got tested a couple years ago and continue get
tested once a year. It's too bad some men don't know their options. All
it takes is 10 minutes a day for several weeks to get the information
to seep in, thanks to sites like this.