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Medical Forum / Diseases and Disorders / Prostate Cancer / October 2003update
Thought i would take time to update you all. My husband John 48yrs dx april 03 psa 639.5 gleason 7, stage T4, mets to most of bones. John has been on Zolodex since april, psa down to 14(last week} been getting a lot of pain and restricted movement in shoulder had a one off blast of radiotherapy with little effect, and was given Strontium 89 last week. Been referred to oncologist and paliative pain consultant and it is those who have given him the new treatments. The oncologist says that John has had a partial response to the hormone treatment, i'm not sure what that means exactly just that the hormones are not quite doing as good a job as they could be. We are waiting to see the effect of strontium 89, although we have read that a good sign is an intial flare up of pain and then it calms down, so far John has had no extra pain. Have lots of appointments coming up over the next couple of months, however we are doing ok, just been on a motorbike weekend with friends and really let our hair down. We are also having a big party with around 100 of our friends helping to celebrate our wedding anniversary in three weeks. Theres nothing like cancer to make you pull your socks up and make the most of things is there? Take care and sending love to you all from the UK Carolyn Our prayers are with you both Carolyn. It is important to hear of cases like John's to keep this all in perspective and remind those of us who got off easy what this prostate cancer is all about. I sincerely hope the treatments help. I also hope that we here can be of some comfort to you. God bless you both. Thank you. David S. > Thought i would take time to update you all. My husband John 48yrs dx april > 03 psa 639.5 gleason 7, stage T4, mets to most of bones. [quoted text clipped - 17 lines] > Take care and sending love to you all from the UK > Carolyn Hi Carolyn. I've thought about you and your husband's case so many times, and I was afraid you had dropped off the list entirely. I'm certainly glad to see that the NHS did not write off his case, and that you're fighting this! Thanks for the update. jimhoney > Thought i would take time to update you all. My husband John 48yrs dx april > 03 psa 639.5 gleason 7, stage T4, mets to most of bones. [quoted text clipped - 17 lines] > Take care and sending love to you all from the UK > Carolyn > Hi Carolyn. I've thought about you and your husband's case so many times, > and I was afraid you had dropped off the list entirely. Nah, we are still around and read this list everyday without fail. I have picked up so much usefull info from you all. I would not let the NHS write off my Johnny i want him around as long as possible. He's my babe!!! love Carolyn UK The "partial response" to hormone treatment means that the PSA dropped from the 600s down to 14, indicating that the tumor cells have slowed down. Radiation does kill prostate cancer, after a while. But only the cancer that was radiated. The bone will eventually feel better for a while because some of the cancer there will be dead. My ride down that road is inevitable, but I hope it can be slowed. OH, we pray for a cure that will actually get rid of it! Well Happy Anniversay to you and hubby. May you have many many more too. Prayers sent for the both of you. Good luck, enjoy that party, and what ever you do? Have a Hell of a good time. janers I am hopeful you find a pain free alternative, and seems like you have, to such an intolerable disease. You also seem very up-beat and are fighting a battle.... I do wish you the best, and make sure you give your husband big hugs, all the time! I do hope Strontium 89, will give the cancer a real shakeup..... Keep us posted, and my wishes are for comfort, happiness, and long life. John Loomis, cancer survivor.... > Thought i would take time to update you all. My husband John 48yrs dx april > 03 psa 639.5 gleason 7, stage T4, mets to most of bones. [quoted text clipped - 17 lines] > Take care and sending love to you all from the UK > Carolyn hi carolyn - it's great that you are able to get out and do things. what the doctor meant about partially working is that it dropped the psa down but didn't take it to less than .1 so, since it didn't do what they wanted it to do, it only worked part way. with the strontium 89, he should start getting relief this week. it usually takes a week or so for it to kick in. ain't it the truth about how cancer makes you look at life differently. you want to go out, you want to do things. i'll take myself for example today. my daughter in law was going to walk about a block to get some food. she was surprised that i was going to walk with her. i don't miss a chance now and i'm glad that i can. love the motorcycle rides. you make me want to get the cycle back out again. :) ~ curtis knowledge is power - growing old is mandatory - growing wise is optional > hi carolyn - it's great that you are able to get out and do things. > > love the motorcycle rides. you make me want to get the cycle back out > again. :) mmmmmm bikes Ours is just like this one... http://www.gsx1400.org/images/davep/gsx1400_1.jpg Would like another harley - had a FXS 80 Lowrider (proper one with a kickstart) about 20 years ago but it would have to be a second bike as Carolyn doesn't like them =:-O -- John GSX1400 Just never understood those "lean forward until your arms get tired" bikes. I had a Honda 750SS most of my adult life. Road it to Cleveland and Akron and Toledo as well as 50,000 miles just around my own county. Never lost my arms. Never got off with a back ache. Never got off with a neck ache. And never dumped it (of couse anyone can dump any bike).  SignatureSteve Kramer PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 Begin Lupron 07/21/2003 @ 48 PSA .1 > > > hi carolyn - it's great that you are able to get out and do things. [quoted text clipped - 16 lines] > John > GSX1400 > Just never understood those "lean forward until your arms get tired" bikes. > I had a Honda 750SS most of my adult life. Road it to Cleveland and Akron [quoted text clipped - 21 lines] > > John > > GSX1400 I had a 750 for several years and rode it everywhere including Jasper Alberta, a fun trip in 77. No riding for me now, although I still maintain the endorsement I don't ride just because of the law of averages. Can't understand the crotch rockets and noisy harleys. My wish list would be a BMW, a great road bike. Dale SignatureEmail: dalej2@mac.com hi john - i love my goldwing w/air ride suspension. but here was the deal of the century. the year - 1972 - i was in the military and was in the process of getting transferred. it was in florida where wild things happen anyway. the person was leaving the area and selling his rides. he custom makes them. this one was a 1/2 completed harley trike. it had a chrome rear axle w/ wide auto tires on the back. a springer wheel on the stock front end. had a '52 knuckle buster pan head w/suicide shift. the shell was removed and had a 3/4 plywood floor with a tuck and rolled seat already made for it. he has just rebuilt the jugs and it had straight pipes all the way back just past where the shell would sit and spit and pop flames as it idled. it had one sweet sound. the price - $350.00 that's it and i was leaving and couldn't buy it. :( sitting next to it was something i've never seen before or since. another harley trike. he had taken two 55 barrels and fiberglass around them. removed the barrels and sawed out a place for you to sit inside. the insides was completely finished with big stereo speakers suspended near the top and the outside was air brushed to look just like a busch beer can. had mirrors to see behind and chrome, chrome, chrome. chrome wheels, chrome on the engine, full springer front end and he wanted $1700.00 for it. it was completely finished. boy what would those be worth at today's prices. ~ curtis knowledge is power - growing old is mandatory - growing wise is optional > the year - 1972 - i was in the military and was in the process of I got discharged from the USAF in 1965 and bought a Sears Allstate 250cc used. In 1971 I purchased a 1970 BMW R60/5 that I still have and it still runs. In 1980 I purchased a 1973 BMW R75/5 that I still ride. It has a Pop Dreyer faring, bags and a trunk. It also has a toaster tank. Curtis, I think you said you live in Scottsdale? I'm in Glendale. Vern hi vern - i live in southern indiana. my dad had a place in scottsdale, but my brother got the property when he died. beautiful area. boy, you sure hit my heart strings on that sears bike. that was my second bike and for those who are not into bikes what made this engine on this bike different, it is the only engine i ever saw that had two cylinders but one compression chamber. i had the head gasket go bad and when i changed it, that is how i find out. the engine was made by pugh. it worked off of a leading/sagging cylinders. the first cylinder would fire, then the second cylinder would be at top dead center by the time the flame got into that chamber. i remember it had tons of torque for a bike of its size. the BMW's are really nice and were known back then as the high end of bikes, but usually were out of the price range of most folks in the military. who knows, by next summer, someone might put together a motorcycle ride for a "ride for the prostate cure". ~ curtis knowledge is power - growing old is mandatory - growing wise is optional Thanks for being in touch, Carolyn. You and John have been in my prayers! John's case is certainly sobering to those of us who deal with smaller numbers and bemoan our fate. I wish you a happy anniversary!! Make some wonderful memories! Glad to know you are still reading. Please lean on us if we can ever be of help!! MikeH > Thought i would take time to update you all. My husband John 48yrs dx april > 03 psa 639.5 gleason 7, stage T4, mets to most of bones. [quoted text clipped - 17 lines] > Take care and sending love to you all from the UK > Carolyn Thanks for they update. Seems to me a couple of months ago he was just over 14 PSA, so at least he's keeping it level. Convey our best wishes, please. And congrats on your anniversary. SignatureSteve Kramer PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 Begin Lupron 07/21/2003 @ 48 PSA .1 > Thought i would take time to update you all. My husband John 48yrs dx april > 03 psa 639.5 gleason 7, stage T4, mets to most of bones. [quoted text clipped - 17 lines] > Take care and sending love to you all from the UK > Carolyn |
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