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Medical Forum / Diseases and Disorders / Prostate Cancer / May 2006

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updated my blog re my battle with prostate cancer (Gleason 9)

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JoeC - 05 Apr 2006 03:20 GMT
details found here:
http://prostate-cancer-log.blogspot.com/

I had the major surgery on 1/17/06 and now PSA is undetectable (it was
3.15). Cancer was found all over my prostate, some portions of my
bladder and nearby lymph glands (MRI, CAT Scan and Bone Scan felt it
was confined to prostate - wrong!). Surgery removed all observed
cancer. The above blog describes in greater detail and I welcome
comments.

Joe
juniper - 05 Apr 2006 03:46 GMT
> details found here:
> http://prostate-cancer-log.blogspot.com/
[quoted text clipped - 7 lines]
>
> Joe

Joe, I still think this is a great service.  Since you asked for
comments:
1.  Can you put the most recent posts to the top?
2.  There is no need to start a new topic every time you update.  If
you keep replying to this topic, everyone will see the new posting and
know there is new information there.  Even though the topic will be
old, the posting will be new so it will show up.

Best regards,
laurel
colophony - 05 Apr 2006 09:49 GMT
Joe, I sent you a private e mail why you do not answer?

>> details found here:
>> http://prostate-cancer-log.blogspot.com/
[quoted text clipped - 18 lines]
> Best regards,
> laurel
Steve Kramer - 06 Apr 2006 23:11 GMT
> details found here:
> http://prostate-cancer-log.blogspot.com/
[quoted text clipped - 7 lines]
>
> Joe

> The Digital Rectal Exam is how they found it -
> Men - please do NOT rely solely on the PSA test!!

Sage advice given re DREs and PSAs.  However, I wonder if you had been
getting PSAs annually and what the results were.  Quite possibly, if there
was a pattern, you could have been dx'd sooner.

The fact that he told you prior to surgery that you would have to undergo
hormone therapy indicates to me that he did not expect organ confined
disease.

I did not read every word of your diary, but I am concerned that while you
got a heck of a lot of input from medical personnel, you might still be
somewhat less read up on it than you should be.

Please consider reading prostate cancer books by Walsh, Scardino and Strum.
You have an extremely aggressive and absolutely terminal (unless you live to
when a cure comes out) cancer and you're still talking in terms of hormone
destruction of cancer cells.  It aint going to cure your cancer.  However, a
smart approach can save you many years.  It sounds like your docs are
treating it aggressively, but you need to know what they are doing and what
your side effects are likely to be....  IMHO
Anonymous - 01 May 2006 20:17 GMT
I was reading your blog and gosh I sure hope you survive this.  My PSA test was point 7 last week but now I know that I should get a DRE too.

Some people posted in one of these newsgroups that they saw success with other types of cancer by loading up on welches red grape juice (colorectal cancer) and a large amount of ginger (ovarian cancer).  I don't see why you shouldn't play with that stuff too.
Steve Kramer - 01 May 2006 23:57 GMT
>I was reading your blog and gosh I sure hope you survive this.  My PSA test
>was point 7 last week but now I know that I should get a DRE too.
[quoted text clipped - 3 lines]
> cancer) and a large amount of ginger (ovarian cancer).  I don't see why
> you shouldn't play with that stuff too.

Anonymous,

If you're a serious lurker, besides a DRE, you should get annual DREs and
annual PSAs.  Then, keep track of them.  There was a time when medicine
considered 0.7 good as gold.  But, Joe (joewbl@worldnet.net) was diagnosed
with 0.06, less than 1/10th of yours.  Richard Stanton, KenS, PHD1993,
Temporary 452, and USCGamecock were all diagnosed with 0.7 or less.

This is not a scare tactic.  To be honest, the average PSA of men here when
diagnosed was 56.3 (80 times your PSA).  But, you and all other lurkers must
inculcate the new fact that it is the quickness of the rise of PSA, not any
arbitrary point along the spectrum, that points to cancer.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05,
2/06
PSA  .07 .05 .06 .09 .08 .132
Non Illegitimi Carborundum

juniper - 02 May 2006 01:33 GMT
> I was reading your blog and gosh I sure hope you survive this.  My PSA test was point 7 last week but now I know that I should get a DRE too.

Yeah, once you get a couple of annual PSA tests, use one of the online
tools to calculate your doubling time.  That will tell you more than an
absolute PSA value.
I.P. Freely - 02 May 2006 20:18 GMT
> I was reading your blog and gosh I sure hope you survive this.  My PSA test was point 7 last week but now I know that I should get a DRE too.
>
> Some people posted in one of these newsgroups that they saw success with other types of cancer by loading up on welches red grape juice (colorectal cancer) and a large amount of ginger (ovarian cancer).  I don't see why you shouldn't play with that stuff too.

Key word: "play".

I.P.
 
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