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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2006

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HIFU transmogrification

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HIFUMike - 16 Mar 2006 20:12 GMT
Hello HIFU respondees. Please note that me, who was Mike, am now
HIFUMike and have answered all the posts with this name under the
original thread: "Hi Ho I'm for HIFU + content".

Thanks.
Clarence Crow - 17 Mar 2006 01:49 GMT
>Hello HIFU respondees. Please note that me, who was Mike, am now
>HIFUMike and have answered all the posts with this name under the
>original thread: "Hi Ho I'm for HIFU + content".
>
>Thanks.
Let's know how you go AFTER the HIFU!

BTW, are you being sponsored to push it?

;)

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
HIFUMike - 17 Mar 2006 14:38 GMT
Dear Crow

Hi Clarence Crow

You ask,>BTW, are you being sponsored to push it?
> (HIFU))

I hope you don't live in a state of constant cynicism. It must be
painful. Sour cornflakes everyday. I can understand the basis of your
question; it is necessary to stay alert in newsgroups. But your
question seems designed to wound. Your punishment is to read through
this.

I'm not entirely surprised. I've experienced this kind of question
before. Once upon a time I was very much younger. I had three children
at school. There came a powerful political drive towards social
engineering with schools, including our kids'. The teachers in "elite"
(=good) schools were under attack and their pupils were caught up in
the turmoil. Ours came home from school tired and depressed.

My wife and I became incensed (correctly as it turns out, the
standards of education in England have dropped to third-world levels).
We organised a Parents' Association and held public meetings at which
I spoke. It was then I found that there was often one in the audience
who would ask, "Why are you doing this? What's in it for you?"

When I first heard the question, I could scarcely speak I was choked
with anger. That's rather how I feel now. But I got used to it. They
are always out there.

What's in it for me, Clarence, is belief. Cynics don't think that's
possible. And when I believe, enough, I become enthused and active. I
go for it wholeheartedly.  Sorry, but I can't help it, it's something
to do with genes, apparently.

Far from being sponsored I am a patient in the English National Health
Service. I cannot afford private treatment, and too old and problems
too serious to get insurance (which I had all through my younger
healthy life). NHS is excellent in that it means getting the treatment
eventually. But we wait in line. We are sometimes treated as a human
being, other times as a number. Next please. My wife and I have both
often been to see our specialists and found instead a doctor we've
never met before, who knows nothing about the case, and can't find the
X-ray, scan, whatever results you've been waiting for with bated
breath . The system suffers from creaking bureaucracy stifling doctors
and patients alike.

Sponsored/privileged? Hardly. I was diagnosed in June 2005.  I started
Casodex and was heading for radiation and started anti-androgens. In
September however my urologist  managed to get me into the HIFU
treatment line -because he was involved in it, knew it from first
hand, and I liked the sound of it.  It's going to be May this year
before I am treated.

I started researching the HIFU systems. I started asking questions of
the members of the HIFU team at UCLH.  

I have become an enthusiast for what I have learned.

I am an enthusiast for the technology. I am an enthusiast for my
urologist, because of his record and experience, and because uniquely
he has always been available at any time to answer questions or
worries at the end of an email line. That has sometimes picked me out
of depression. I have become an enthusiast for the UCL HIFU team not
least because I am convinced, from what I've picked up, that the
trials of the system they are using has been highly successful.  

I could be dead wrong - indeed, dead. Or clobbered in some way that
nobody yet knows, because I am number one.  I will find out - and so
will you and this ng.  So much for sponsorship, if it shouldn't work.

I make no apologies that my slip is showing when posting. Because, as
of today, I believe strongly that my information -and eventually my
experiences - could help others. And I know I am posting to an
experienced bunch, experts at weighing it all up, making up our own
minds, and taking enthusiasts with a pinch of salt.

Salt yes. Questions, yes. Wounding cynicism, no, please.

I hope sincerely Clarence you will have a highly successful conclusion
to your own treatment.

Regards
HFMike

>>Hello HIFU respondees. Please note that me, who was Mike, am now
>>HIFUMike and have answered all the posts with this name under the
[quoted text clipped - 13 lines]
>
>-- CC
Clarence Crow - 17 Mar 2006 20:43 GMT
>Dear Crow
>
>Hi Clarence Crow
>
>You ask,>BTW, are you being sponsored to push it?
>> (HIFU))
<snip> (a whole raft of anecdotal stuff)
>I hope you don't live in a state of constant cynicism.
<snip>
>I hope sincerely Clarence you will have a highly successful conclusion
>to your own treatment.

Mike

Every Saturday I treat myself to a "Happy Pill", so on that day I'm
reasonably nice to know.

Seems like you've found a stash of them ;)

Label me a cynic, a pragmatist, a doomsday man, a grump ---- whatever,
but I'm not doing it so easy after having signed off on an 18mth
Clinical Trial involving ADT, EBRT and HDRB.

I must've run over a China-man somewhere along the line in my
mis-spent youth getting me to where I am now at nearly 71.

As for optimism and enthusiasm, I've BTDT, jumping up and down,
beating my chest whilst bellowing assertive catch lines and songs. I
actually used to SELL motivation programs as part of my checkered
career, until my conscience wouldn't allow me to live with all the
lies I was telling myself and others. So I reverted to carving out a
tedious, but steady means of earning a crust. which has left me
financially comfortable, but by no means a Millionaire .

Good luck from here on in and go easy on the "Go-Lytely" LOL

 

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
MikeHi - 18 Mar 2006 10:36 GMT
Clarence

Hi grumpy old man (an honest :)). It takes one to recognise one! But
what the hell, never mind anything else, when we've stepped over the
70 mark, we're entitled.  And I'm so sorry you've had a tough tough
time last 18 months and I will be thinking about you Clarence for much
better days, and doing a bit of hard willing too. What are the
results?

I haven't actually beaten my chest yet. Anyway my tits areas are
tender from the Casodex. I've never liked 'motivation'. I just look at
the whole image. It's about the 50/50, 60/40, 70/30 gamble our band
all have to take. So 40 or even 30 is a stark undeniable truth, isn't
it? We gotta roll; got no choice. But we're definitely going to win
sometimes.  The mob and god alike have gotta allow it otherwise nobody
would ever enter the casino/read church.

We're offered a little choice only with what side effects we would
like to be afflicted with. I'm not as brave as you will have had to be
this last 18 months. So at this moment I sleep better with a lovely
big image of HIFU. And yep, I really believe.

You sound like a winner, Clarence. I'll keep a good look out to read
your progress.

Best regards, thoughts,  and wishes
MikeHi

>Mike
>
[quoted text clipped - 28 lines]
>
>-- CC
 
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