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Medical Forum / Diseases and Disorders / Prostate Cancer / October 2003

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Three Years and ....

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Steve Kramer - 15 Oct 2003 01:32 GMT
It's been three years since I was diagnosed.  Some of you newer users might
be interested in how it has affected my life.

Introduction:    I was, at the time of my diagnosis, an overweight but
active 46-year-old American male with no medical history other than one bout
of Diverticulitis.  I never went to the doctor.  During October 2000, I
decided to get an overhaul:  skin tags, optometrist, dentist, podiatrist,
and PSA.  My PSA came back 16 and biopsy came back G7, T2c.

Marriage:    My marriage was not all that great before.  PCa didn't help.
But Roman Catholicism prevents consideration of anything but continued
status quo.  So, we stay together.  In reality, even if I could leave, I
would not.  She suffers from depression and I take care of her.  It's as
simple as that.

Sex:    She doesn't believe in anything but the Missionary Position.  I
haven't bothered to look for a woman who enjoys an adulterous,
completely-oral relationship.  In May, I actually experienced an erection
sufficient for intercourse.  But, now I'm on Lupron, so even that is a
memory.

Depression:    I sometimes got depressed, but I think I'm over it.

Wife:    My wife's depression has gotten much worse.  She has a father that
has Alzheimer's, a sister suffering from Borderline Disorder, another sister
suffering from radiation-induced dementia, a mother suffering from 50 years
of sitting on her butt watching T.V., and three children who left the nest
in the three years surrounding my PCa.  So, PCa is not her only stressor.
But the prospect of having a husband who may not make it to 55 weighs very
heavily on her.  She has since retired (psych) from the job she worked since
she was 19.

Family:    My kids and mother have been on a roller coaster since 2000.  My
wife's husband died of PCa and two of my children remember their grandfather
and his death.  I tried very hard to keep them from going through what I
went through when my father died, but it seems that idea was never really a
practical one.  We have a close family and my aunts, uncle, and a few
cousins call or email a few times a year to see how I am doing.

Work:    I love my work and I'm good at it.  I went back to work 6 weeks
after RRP and haven't taken off a day sick since.  When I had EBRT, I left
work at 9 a.m. and returned before 10:30 a.m. usually.  I have worked more
hours each years since the RRP than at any other time in my career.  The
people at work ask me occasionally, but usually it's a non-issue.

Fear:    Off and on.  What can I say?  I think I would qualify as a "brave"
by most scales, but I do get scared now and then.  It bothers me sometimes
that I might not be here for my grandchildren or to attend retired men's
association parties, etc.  But, living too long bothers me too.

Strength:  I was a Hoss.  One of my bosses nicknamed me "Ultimate Warrior"
many years ago.  I've lost some of that.  I can walk for several miles
without a problem.  But, I find I can't lift and carry what I used to
without getting fatigued.  I don't mean the rear of a car like I used to.  I
just mean a triple dresser or slate from a pool table.  But, I do what I
can.

Mental Acuity:    I'm a right smart guy with an exceptionally high IQ.  But,
I cannot, for the life of me, remember all the words I want to use in many
of my conversations.  I used to rattle off phone numbers like and Idiot
Savant.  But not any more.  I think that's the Lupron.  But, it could be cuz
I'm 49.  I also find that I get a little looped after 3 or 4 beers.  I never
got looped with less than 6 or 7 before.

In summary, I have a potentially terminal disease, but other than sex, it
hasn't been all that devastating.

Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA  .1

David S. - 15 Oct 2003 03:01 GMT
   You forgot to mention one other change.  Now you talk about highly
personal subjects with complete strangers, and do not feel one bit of
embarrassment about having done so.

   Okay, in many ways we are really "family" here, not "total
strangers"....

> It's been three years since I was diagnosed.  Some of you newer users might
> be interested in how it has affected my life.
[quoted text clipped - 62 lines]
> In summary, I have a potentially terminal disease, but other than sex, it
> hasn't been all that devastating.
Steve Kramer - 15 Oct 2003 11:40 GMT
Absolutely!  I did not forget it, but I did not consider mentioning it.
But, you are definitely on the mark.  I was thinking that very same thing as
I pushed the ENTER button.  Actually, I reconsidered a couple of times
before pushing ENTER.  But decided, "dammit, this is what newer patients
really need to know."

Oh, and by the way, it was my mother's husband who died of PCa.  My wife's
husband is still alive and kicking.

Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA  .1

>     You forgot to mention one other change.  Now you talk about highly
> personal subjects with complete strangers, and do not feel one bit of
[quoted text clipped - 83 lines]
> > In summary, I have a potentially terminal disease, but other than sex, it
> > hasn't been all that devastating.
c palmer - 15 Oct 2003 12:37 GMT
hi steve - i had a good chuckle on the wife's husband is still kicking.  

kick away - but don't kick no buckets - it ain't healthy to do that i
hear.  :)

i know, i know, i used gooder english. :))

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
BillyBob@nowhere.com - 18 Oct 2003 02:25 GMT
>hi steve - i had a good chuckle on the wife's husband is still kicking.  
>
[quoted text clipped - 6 lines]
>
>knowledge is power - growing old is mandatory - growing wise is optional

eanglish -ain't that there what they talk in that ther  cuntry wit a
quen and them guys in red uniforms an big brown hats.

BilyBobb


Jim (AKA BillyBob, but only to newsgroups!)  
jjoy_DONT_USE_THIS_PART@austin_DONT_USE_THIS_PART.rr.com

Pre-op. PSA: 5.1 11-2000. Age 56
Biopsy 1-3-2001: 3+3=6, only 10% difused cells, left side only
RRP: 3-12-01, 20%  difused cells, 20% capsular penetration, neg lymph & Sem. ves.
Erection - 6 weeks and earier; 6wk; first decent one
PSA's - .5,1.1,.5,.3,.4,.7,.7,.6,.7,.7.,.9
NO ONE, not even my med school Pathology Prof. Step-Sister
EVER said "radiation" - "Wait until it gets to 2.0, i.e. serious."
(Last - Quote of urologist who did RRP!)

Can't beat that deal at ANY price! AND I have a 30 year old car with only
26,000 miles on it that a little old lady only used to drive to church on
Sundays. Want to buy that as well?


ron - 15 Oct 2003 14:54 GMT
...snip...
> Oh, and by the way, it was my mother's husband who died of PCa.  My wife's
> husband is still alive and kicking.

Hey Steve...Glad to hear it wasn't your wife's husband!  When I read
your first post I thought some ISP had really come up with a money
maker - being able to communicate with all those souls on the other
side :) ...Ron
chuck@oldtimer.com - 15 Oct 2003 12:50 GMT
Yep we are definitely not strangers.  Hang in Steve, you have a very
large cheering section here who want to see you succeed.  

Did you notice all the new names in this NG?  I feel like an old timer
here and only started in May.

Best regards,

Chuck H.
Steve Kramer - 15 Oct 2003 17:01 GMT
Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA  .1

> Yep we are definitely not strangers.  Hang in Steve, you have a very
> large cheering section here who want to see you succeed.
[quoted text clipped - 5 lines]
>
> Chuck H.
Steve Kramer - 15 Oct 2003 17:03 GMT
I try to keep track of new names and treatment dates.  Based on what I have,
there almost 40 treated after May 5.

Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA  .1

> Yep we are definitely not strangers.  Hang in Steve, you have a very
> large cheering section here who want to see you succeed.
[quoted text clipped - 5 lines]
>
> Chuck H.
MH - 15 Oct 2003 20:32 GMT
> Yep we are definitely not strangers.  Hang in Steve, you have a very
> large cheering section here who want to see you succeed.

Here! Here!
Your positive attitude is an inspiration, Steve!
It means a lot to read of others who are riding this train with me and are
doing well!  And it's good to know that others struggle with some of the
issues you mentioned!  It helps to know that we are not alone!

Take care... all the best!
MikeH :)
GP - 16 Oct 2003 03:05 GMT
Thanks for the very frank summary, Steve.  These kinds of things
are very helpful to newcomers and oldtimers alike.  Hang in there!

Gerry

> It's been three years since I was diagnosed.  Some of you newer users might
> be interested in how it has affected my life.
[quoted text clipped - 62 lines]
> In summary, I have a potentially terminal disease, but other than sex, it
> hasn't been all that devastating.
 
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