Medical Forum / Diseases and Disorders / Prostate Cancer / February 2006
Happy update and public confession
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Stavros - 10 Feb 2006 20:44 GMT First the happy update: have just had some great news from my latest blood test--my levels continue to go down, even though at six months after radiation there is usually a surge (I think--or is it 18 months?. This could very well mean that, as my oncologist. thought was very possible in my case, the cancer has been completely obliterated and will not, has not spread. So I can really forget about it for a while. What a relief.
Now the public confession: I feel so ashamed of myself. In spite of all my bold words about facing reality etc., for the past month, probably in anticipation of the six-month post RT PSA test, I have been really edgy. (And maybe, too, because my energy level is still down.) I haven't been entirely away from this ng not that I submit many replies--because others do so much better and far more knowledgeably than I can), just an occasional lurking, but basically I found that I couldn't stand thinking about PCa any more. Or even not eating the foods I really want to and am used to and wondering if it really matters and do I really need all this curry and whether I'll turn yellow from it. Hard on my wife and a very bad example to one and all. After such a down month, I don't think I deserve the good news I have had today. There, I've said it, and it feels good to have done so. (And egotistic.)
 Signature July 2005 DX PCa, age 75; PSA 26.5 Gleason 7 (4+3) Stage T2a No evidence that the cancer was not confined to a single nodule in the prostate. August 2004 ADT First injection (2 drugs-Lupron + ?) Dec 2004 ADT Second injection PSA 4 April 2005 PSA 2.6 May 2005 HBRT 33 treatments August 2005 Six weeks after radiation PSA 2.9, went up instead of down, possibly because the effects of ADT are still there and the RT hasn't fully kicked in, and a somewhat elevated PSA is normal for me because of my BPH October 2005 PSA 2.63. February 2006 PSA 1.49
Justin Case - 10 Feb 2006 22:08 GMT : First the happy update: have just had some great news from my latest blood : test--my levels continue to go down, even though at six months after : radiation there is usually a surge (I think--or is it 18 months?. This : could very well mean that, as my oncologist. thought was very possible in my : case, the cancer has been completely obliterated and will not, has not : spread. So I can really forget about it for a while. What a relief. <Reminder snipped>
What great news! I am very happy for you. I didn't think there was anyone else of my age and with much the same PSA reports and treatments here in this group. I will be 76 in another month and was diagnosed with PCa when I was 71. My initial PSA was a smidgen higher than yours but the Gleason score was the same. Surgery was followed by Lupron (x2) and finally by radiation, then with undetectable PSA readings for nearly four years. Needless to say, both my oncologist-surgeon and I are quite pleased.
May goodness and mercy follow you for the rest of your life.
Ken Bland
Alan Meyer - 10 Feb 2006 23:58 GMT Great news Stavros! I hope the PSA never comes up again.
My own PSA has bounced around a lot for two years after radiation, but at the two year mark, it reached a new low value and I'm hoping it stays there.
> Now the public confession: I feel so ashamed of myself. In > spite of all my bold words about facing reality etc., for the > past month, probably in anticipation of the six-month post RT > PSA test, I have been really edgy. Your confession proves beyond a doubt that you are a normal human being.
I think that fear of death is something that we conquer one day at a time. When I am afraid I go over all the reasons in my mind why I shouldn't be afraid to die. It is a natural end of life. It is something we all know from childhood on. If I allow the fear of death to keep me from enjoying life - then I'm dying now, before it is time. And after I'm dead all the great things that I've known will continue to exist: great music will continue to be played, the people I love will continue to live, the progress of knowledge and of the human spirit will continue to develop, the wonderful parts of our lives are just as wonderful for having existed whether we live on or not. The task we are given to live our lives with some grace and some optimism is really not beyond our capability.
I tell myself all those things and I really do feel better. I really can face the future with more courage and equanimity.
But I have learned that, in spite of all that, there's no guarantee I won't wake up the next morning, or in the middle of the next night, with a renewed sense of dread.
It happens. Despair overtakes us from time to time. We're only human after all. So we have to renew our courage and our insight each day.
Judging from your postings to this group, I think you've done a pretty good job of that.
Alan
Stavros - 13 Feb 2006 17:09 GMT Thanks, Alan, for your kind words. I should say, I suppose, that the fear of death has not at all been a problem for me, at least not since my youth (and except for worrying about leaving my wife without me). What I was "confessing" was my shameful tiredness of dealing with PCa and thinking about it and possible future treatments, with attendant side-effects,especially fatigue, and edginess about upcoming tests--the whole bag. And especially when I see how the members of this ng cope so well, yes I am ashamed of myself for being so weak and for being so unworthy of the blessings that God has given me.
> Great news Stavros! I hope the PSA never comes up again. > [quoted text clipped - 39 lines] > > Alan Steve Kramer - 11 Feb 2006 00:49 GMT That's great, Stravros!
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05 PSA .07 .05 .06 .05 .08 Non Illegitimi Carborundum
> First the happy update: have just had some great news from my latest > blood test--my levels continue to go down, even though at six months after [quoted text clipped - 16 lines] > the good news I have had today. There, I've said it, and it feels good to > have done so. (And egotistic.) I.P. Freely - 11 Feb 2006 03:04 GMT > (And maybe, too, because my energy level is still down. The cure for low energy level is expending more energy. i.e., Unless there's some other health thing that precludes exercise, the best path to greater energy both short term (the next day) and long term (the rest of your life) is heavy exercise, including play, the gym, or ditchdigging. You have up to three things that sap one's energy: cancer, low T, and radation. Exercise should improve your vigor with any of those, but none of them will allow a LOT of exercise. Balancing rest and exercise is probably a challenging project. (You can be checked for lingering low T, of course).
> I couldn't stand ... not eating the foods I really want and am used to > and wondering if it really matters and do I really need all this curry > and whether I'll turn yellow from it. Eating to fight our existing cancer probably matters most to your psyche, since essentally none of these foods or supplements has been PROVEN to help. Some have never been tested, some failed their tests, some had neutral outcomes, maybe one or two showed enough promise to warrant further testing. One can 1) ignore supplementation because it's unproven, 2) live on supplements and special foods in case they help, or 3) anything in between. The only answer I feel fairly strongly about is to do what you want, because nobody knows for sure (except about some that failed pretty solid tests. No, I don't recall which those may be.) whether any of it helps.
1. That seems short-sighted. If something tastes good, is not suspected of harming us, isn't expensive, and isn't ridiculed by the medical community, what the heck?
2. The guy whose pages of 16-hours-a-day of weighing and grinding and blending and staggering and timing (to the minute with some concoctions) an incredible list of chemicals and jungle growths has chosen to abandon LIFE in the hopes he may add a week or 30 years -- of weighing and grinding and blending and staggering and timing -- to his time on the planet. I hope he finds time to catch a movie somewhere in there. OTOH ... he is solving his psychological problem, and maybe that's his top priority.
3. I LIKE marinara sauce, so I put various versions of spaghetti sauce on some of my food; it's good on amost anything. I also like stewed tomatoes, so there's more lycopene. And curry and cinnamon good, too, so I put those on my food when appropriate. Whether the heavy salt in the tomato items hurts us more than the lycopene helps -- if it does -- I don't know. Beyond that, I have a life to live, and have better things to do with my precious time than devote much of it to grasping at straws. Hell, if a mainstream PC tx like *A*D*T* adds only months to our lives, what should we really expect from crapola off the internet?
If the foods you want are sat fats, heavy odds say you're just adding a significant threat to your longevity and vigor if you succumb to them. In the slim chance that I may hold my cancers at bay for another decade, there's no way I'm compromising my health just for some friggin' bacon. In fact, I'm eating even healthier now (healthier desserts, primarily) and recently began something I've never done before: busting my a.s at the gym for 2-4 hours three days a week. I'm going to go down feeling like a 30-something athlete, not live the rest of my life feeling 60-something. (I can out-athlete the majority of 20-somethings right now, including most of the weekend warriors I play among all summer.)
I don't even WANT many of the foods I gave up 20 years ago ... but I must admit that I will dive right back into some of them the minute Harvard, Stanford, the Mayo Clinic, Michael Jacobsen, and most of the other 100 top medical sources agree that Atkins was right (or when I'm suffering with advanced cancer). So far not one of them does. I would be PISSED if I went back on that crap and died of a heart attack, cancer-free, a decade from now. My wife and I eat like (smart) KINGS on very low sat- and trans-fat foods; I don't NEED no steenkin' lard.
I.P.
Stavros - 11 Feb 2006 15:37 GMT Thanks, IP--and all the rest of you. I am really following your advice on this--I just like to grumble, I guess--and have also started some time ago an exercise program, which is working, though so very slowly. I have learned that it is essential for me to build up very slowly and not get ambitious and overdo things or I get set right back where I started. A little goes a long way for me right now, with small, but steady increases. .Took me some time to learn that, but having done so, my energy levels are definitely improving.
>> (And maybe, too, because my energy level is still down. > [quoted text clipped - 67 lines] > > I.P.
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