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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2006

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For Mary

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MAS - 29 Jan 2006 21:26 GMT
A PSA above 10.0 is abnormal.
A PSA of 10.0 could be associated with the following: BHP, PCa, Prostratis,
Infection.
A PSA of 10.0 is suspicious of PCa.
A PSA of 15.0 is suggestive of PCa.
A PSA is 15.0 is PCa 70% of the time.
In the USA usually a free PSA (PSA-f) test is taken before a biopsy.
A free PSA test over 25% is suggestive of BHP.
Most men with a free PSA below 15% have PCa.
A free PSA test under 7% is likelihood of PCa is high.

A bad experience ten years ago? from a Prostate biopsy? If so, sounds like
there was suspicion of PCa ten years ago.
Mary Fisher - 29 Jan 2006 21:58 GMT
>A PSA above 10.0 is abnormal.

We knew that in advance, he was told that by the urologist - who said that
the whole PSA thing is a mystery (with much more detail).

> A PSA of 10.0 could be associated with the following: BHP, PCa,
> Prostratis, Infection.

Yes, we know that.

> A PSA of 10.0 is suspicious of PCa.
> A PSA of 15.0 is suggestive of PCa.
> A PSA is 15.0 is PCa 70% of the time.

There are no certainties.

> In the USA usually a free PSA (PSA-f) test is taken before a biopsy.
> A free PSA test over 25% is suggestive of BHP.
> Most men with a free PSA below 15% have PCa.
> A free PSA test under 7% is likelihood of PCa is high.

You see, I'm sure you're wanting to be helpful but I don't understand all
these abbreviations, it was asking about one which engendered a hostile
response from one poster. We have different terminology in UK.

> A bad experience ten years ago? from a Prostate biopsy? If so, sounds like
> there was suspicion of PCa ten years ago.

Not at all, he suffered from an acute condition (which developed in hours)
which affected the whole of his lower body and caused great pain and other
unusual feelings (not just pain) from his toes upwards. At first it was
suspected that he had spinal damage but that was shown not to be so after an
emergency scan (at 1am). A prostate biopsy  was undertaken only as one of
many other procedures to eliminate possible causes. He also had a very bad
reaction from some of his lumbar punctures, he was acutely sensitive to all
pain in that area.

After two weeks in an orthopaedic ward in a large university hospital and
very many tests he was moved to the neurological ward in the same hospital
where he spent another two weeks in great discomfort and causing puzzlement
to many experts. Believe me, he had tests on every possibly linked part of
his body (i.e.not just prostate), ALL of which were negative. The cause of
his condition was never found, eventually he was given relief by a huge
intravenous administration of steroids which were obviously unsustainable
but which gave respite and the opportunity for discharge and self
administered pain management of various kinds - under medical supervision of
course. That continues.

Not everything is known even by experts, his case was the subject of
interest in the medical press.

We're lucky that in UK we don't pay for any such procedures and they're not
dependent on medical insurance..

We are confident that he is in good hands and that the process will continue
until a proper professional diagnosis is made and then whatever treatment is
considered necessary will be given.

I came to this group to learn more about all prostate conditions in advance.
We're not nervous about the future, we don't expect Life to be perfect, it's
been very good to date despite everything which has been thrown at us!

It's all fascinating experience :-)

Mary
Mary Fisher - 29 Jan 2006 22:07 GMT
> I came to this group to learn more about all prostate conditions in
> advance. We're not nervous about the future, we don't expect Life to be
> perfect, it's been very good to date despite everything which has been
> thrown at us!

Forgot to say that we talked about this earlier, over dinner. He said that
if he's going to die there are a lot of jobs he'd better be getting on with.

Mary
Tom - 30 Jan 2006 05:54 GMT
Mary,

You are indeed what we in the US refer to as a "class act". Things
sometimes get lost in the intercourse (pun intended, those of us with
PCa (prostate cancer) take it where we can get it) between different
cultures that share a common language. For example, no one here wants
you to hit your husband on the head with a book, although if the spirit
moves you, feel free. I'm new here and I'm still not up on all the
acronyms. Please remember that PCa survivors tend to be, from time to
time, GOMs (grumpy old men, myself included). I look forward to your
posts here and God Bless you, fellow survivor.

Tom
Mary Fisher - 30 Jan 2006 20:22 GMT
> Mary,
>
> You are indeed what we in the US refer to as a "class act".

Um. I've heard the expression but never understood it ... our youngest son
despairs of what he calls his aged parents*, who don't talk the talk.

> Things
> sometimes get lost in the intercourse (pun intended, those of us with
> PCa (prostate cancer) take it where we can get it

Hurrah!)

> between different
> cultures that share a common language.

The trouble is that I don't think we do have a common language any more :-).

It becomes a problem when we think that we ARE sharing one - which is what I
did. What else am I to do?

What else are you to do? I might be saying something which is diametrically
opposite to how you interpret it :-)

Perhaps the solution is not to use idiosyncratic terms, the vernacular can
be troublesome even within a culture. Or we could use classical Latin.

> For example, no one here wants
> you to hit your husband on the head with a book, although if the spirit
> moves you, feel free.

It doesn't. I'm opposed to all physical violence and it has never happened
in our marriage. Why should I use an out of body weapon when I have a
tongue?

> I'm new here and I'm still not up on all the
> acronyms. Please remember that PCa survivors tend to be, from time to
> time, GOMs (grumpy old men, myself included).

I'm quite fond of GOMs, they're a challenge:-) And the norm ...

On theBreast Cancer ng we refer to bc (occasionally BC) as the abbreviation
for breast cancer. I assumed that pc (or perhaps PC) was the one for
prostate cancer. It will be hard for me to remember the little 'a'. It seems
a trifle superfluous ... but it has cleared up a bit of a mystery so I
appreciate your bringing it to my attention.

> I look forward to your
> posts here and God Bless you, fellow survivor.

Well, I'm not a survivor yet, but who knows?

Thanks for your thoughtful post.

Mary
* our children began addressing us as aged parents when they first came
across the phrase and thought it would be a wizard wheeze. They might have
been as old as eight ... I have a home made Christmas card from No 2 dated
1970.  Now of course they know how it feels ... <chortle>

> Tom
I.P. Freely - 31 Jan 2006 03:21 GMT
>> For example, no one here wants
>> you to hit your husband on the head with a book, although if the spirit
[quoted text clipped - 3 lines]
> in our marriage. Why should I use an out of body weapon when I have a
> tongue?

Tongues (speech) often fail to get a stubborn man's attention. When
attention is necessary, we then resort to hitting them over the head --  
figuratively, of course -- with something solid. The classic American form
of that idiom is "hitting someone over the head with a 2X4" (a big piece of
lumber.)

I.P.
juniper - 30 Jan 2006 14:14 GMT
> You see, I'm sure you're wanting to be helpful but I don't understand all
> these abbreviations, it was asking about one which engendered a hostile
> response from one poster. We have different terminology in UK.

here is a link to a glossary of terms and acronyms w/prostate cancer,
very helpful.  we found one yesterday that wasn't in it
IMRP  Intensity Modulated Radiation Therapy

http://www.prostate-cancer.org/resource/glossary.html
Mary Fisher - 30 Jan 2006 17:07 GMT
>> You see, I'm sure you're wanting to be helpful but I don't understand all
>> these abbreviations, it was asking about one which engendered a hostile
[quoted text clipped - 5 lines]
>
> http://www.prostate-cancer.org/resource/glossary.html

That's unbelievably helpful, thank you very much. Saved for reference.

Mary
Steve Kramer - 30 Jan 2006 23:13 GMT
> You see, I'm sure you're wanting to be helpful but I don't understand all
> these abbreviations, it was asking about one which engendered a hostile
> response from one poster. We have different terminology in UK.

While I disagree with your characterization, you may wish to visit
www.phoenix5.org.  It is an excellent website, albeit slightly dated, and
has a good glossary of PCa (Prostate Cancer) terms.

SRK

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