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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2006leaking
what is longest any 1 here has leaked i am still haveing to change pads every 2 hrs when awake i had surgery oct7 2005 > what is longest any 1 here has leaked i am still haveing to change pads > every 2 hrs when awake i had surgery oct7 2005 At Hopkins, they report that half the men have stopped using pads at 3 months and nearly all by one year. You are still well within the normal range. Your urologist may be able to give you some idea of how long it takes his patients to recover continence. > Your urologist may be able to give you some idea of how long it takes his > patients to recover continence. Or not. My uro surgeon was sure I'd be fairly dry in weeks and "going commando in khakis" within a few months. Naaaaah. At 14 months I'm just getting confident enough to switch from diapers to pads. I COULD skip pads and go straight to jockey shorts, but that would be risky and occasionally downright damp. I.P. I had Robotic removal on 12-2 05 at Stanford in Calif. Most of my leaking occurs when standing or walking. It is not alot of leaking but very annoying. I wear a #3 pamper and would like suggestions as to what may be better and more comfortable. >I had Robotic removal on 12-2 05 at Stanford in Calif. Most of my >leaking occurs when standing or walking. It is not alot of leaking but >very annoying. I wear a #3 pamper and would like suggestions as to >what may be better and more comfortable. I use the Depends Guards for men. My leak pattern is similar to yours in that it's more when standing or walking then when sitting or laying down. I don't leak at night. I leak more at the day goes on. I usually use 2 pads a day, not because they fill up but after a while the wetness gets to me and it's nice to put on a dry one when I get home from work. I don't wear any in bed. My cath came out the first day in Jan. > I don't wear any in bed. My cath came out the first > day in Jan. Holy cow! Now THAT gives me penis envy. My cath came out on Nov ... of '04 ... and I was still leaking a bit at night just weeks ago and last flooded my mattress pad just 4-5 months ago, despite my surgeon's surprise that I wasn't dry as a bone within many weeks. Good on ya! I.P. Hey Jim...when I.P. tells you that you're doing good... It's like getting a Gold Medal. You ARE doing good and I.P. IS good. Best of health to everyone, Ron B. Chicago >> I don't wear any in bed. My cath came out the first >> day in Jan. [quoted text clipped - 5 lines] > >I.P. I was really surprised that there was essentially no leaks at night after the first several days. Now maybe a quarter sized spot from "what's in the pipeline" after peeing sometimes. When I first got the cath out I wore depends diapers and there was a little leakage but nothing like I was expecting. And the damn things leaked themselves, I guess they are really designed for when you are standing/sitting, not laying down. Then I tried regular underwear with a pad. When I saw there wasn't much leaking I figured I might was well be as comfortable as possible and just went with the regular underwear. Yesterday I made it till about 3 in the afternoon with the quarter sized spots once in a while but then started to do a lot of up and down and squatting motions to fix some cat scratch posts and leaked a lot and had to change shorts and put a pad in. I think I read in one of the posts on here that recovery generally is in this progression.. 1 - dry at night 2 - dry when sitting 2 - dry when standing and/or walking. and that while the muscle is gaining strength you do better in the first part of the day and then the muscle gets fatigued and you leak more toward the end of the day. I seem to be following that general pattern. Jim noted: "I think I read in one of the posts on here that recovery generally is in this progression.. 1 - dry at night 2 - dry when sitting 3 - dry when standing and/or walking. and that while the muscle is gaining strength you do better in the first part of the day and then the muscle gets fatigued and you leak more toward the end of the day. I seem to be following that general pattern." That's the progression, and it's great that you're doing well. :-) ... > I think I read in one of the posts on here that recovery generally is > in this progression.. [quoted text clipped - 7 lines] > more toward the end of the day. I seem to be following that general > pattern. Can anything be done to increase the gain in muscle strength? Mary Mary I worked very hard on the kegels in the begining. I found there was the most trouble after coffee, and when lifting things. So I made a point of drinking coffee then lifting weights afterward with the idea that if I could hold on then, the rest of the day would be OK. Maybe I just got lucky, but I think it helped. Now I NEVER EVER leak, and I can get 9 hours of uninterupted sleep. I was totally incontinent at first, then down to a pad a day by a month. Then the leaks became less and less. Over the first few weeks I had to concentrate on "holding it" all the time. Over time it all became automatic again. I was dry for normal everyday activity at 3 months and dry when lifting weights and running by 3.5., but it was sometime in the 6-9 months before I stopped thinking about bladder control. My doctor told me it takes a variable period for the post op inflamation to go away, for the muscles to heal and build up, and for the nerves to recover. I think it is something like a stroke victim learning to do things all over again. Walking is a voluntary muscle activity, but overtime, people get away from having to think about every step. Steve U Hi Steve! I'm 3 weeks out from my RLRP and am generally dry at night, and while sitting up in bed reading. However when I get up, I have only slight control and sometimes feel my remaining sphincter twitching or spasming slightly, with the obvious 'sputtering' of urine. When standing I can slow it down, but not usually fully stop the flow. It clearly seems that my muscle tone needs significant improvement, and I was wondering: 1. Did you have a specific Kegel exercise routine? 2. What type of weight lifting exercises you did that you felt were helpful? 3. Other suggestions? Thanks! KenA ==== > Mary > I worked very hard on the kegels in the begining. I found there was [quoted text clipped - 16 lines] > every step. > Steve U > I'm 3 weeks out from my RLRP and am generally dry at night, and while > sitting up in bed reading. However when I get up, I have only slight [quoted text clipped - 3 lines] > muscle tone needs significant improvement, and I was wondering: > 1. Did you have a specific Kegel exercise routine? There are many regimens; each book and urologist seems to have his/her own magic program. I have no idea which may be best. Some pts feel Kegels don't help them, but research shows it helps the average pt. Since you can't stop your > 2. What type of weight lifting exercises you did that you felt were > helpful? [quoted text clipped - 22 lines] >> every step. >> Steve U KenA and IP, The wt lifting routine was just a bunch off routine free weight exercises. It was very hard to minimize the leaking while I was doing them. But, the effort struggling against the p-mails seemed to make the rest of the day seem easier by comparison. Plus it helped me get in better shape in general. I think it made the remaining bladder sphincter muscle get its act together sooner by challenging it more. It probably does nothing for some guys, but if you don't try it, you never know. Steve U > I'm 3 weeks out from my RLRP and am generally dry at night, and while > sitting up in bed reading. However when I get up, I have only slight [quoted text clipped - 3 lines] > muscle tone needs significant improvement, and I was wondering: > 1. Did you have a specific Kegel exercise routine? There are many regimens; each book and urologist seems to have his/her own magic program. I have no idea which may be best, so I'll leave that to others. Some pts feel Kegels don't help them, but research shows it helps the average pt. Since you can't stop your flow, I'd bet you're a good candidate for benefiting from Kegels. > 2. What type of weight lifting exercises you did that you felt were > helpful? Weights? I can't think of anything more likely to make you squirt than the stress of lifting weights. Your "weight lifting" is your Kegels. > 3. Other suggestions? Time, patience, diapers, and a good sense of humor. This, too, shall pass. I.P. Hi I.P. - Thanks. In the weeks prior to my surgery, I started Kegels, but in my over zealousness, I believe one of my muscles became strained and would spasm quite painfully. My surgeon stated I should stop doing Kegels and let it all relax/heal, which it seems to have done. So, now post-op, I'm starting over again, but more cautiously and less aggressively by only stopping/starting the urine flow. I'll read up some more on other Kegel exercise schedules as well. Thanks again. KenA ==== >> I'm 3 weeks out from my RLRP and am generally dry at night, and while >> sitting up in bed reading. However when I get up, I have only slight [quoted text clipped - 20 lines] > > I.P. > Mary > I worked very hard on the kegels Kegels? > in the begining. I found there was > the most trouble after coffee, and when lifting things. So I made a > point of drinking coffee then lifting weights afterward with the idea > that if I could hold on then, the rest of the day would be OK. Maybe I > just got lucky, but I think it helped. Now I NEVER EVER leak, and I can > get 9 hours of uninterupted sleep. That's encouraging, it's noted in case it's needed. > I was totally incontinent at first, then down to a pad a day by a > month. Then the leaks became less and less. Over the first few weeks I [quoted text clipped - 9 lines] > every step. > Steve U Thank you very much. Mary >> Mary >> I worked very hard on the kegels > > Kegels? I've discovered that what you call Kegels is what we call pelvic floor exercises! Mary D4, I am not familiar with the ole Pamper #3. But, if it is a pull-up diaper, when possible, you may want to graduate to "J-pads". These are like slightly extended pads and the extension has folds that snuggle under your testicles. When I tossed my last diaper, I found J-pads handled my leaking for the entire 8 hours I was at work.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05 PSA .07 .05 .06 .05 .08 Non Illegitimi Carborundum >I had Robotic removal on 12-2 05 at Stanford in Calif. Most of my > leaking occurs when standing or walking. It is not alot of leaking but > very annoying. I wear a #3 pamper and would like suggestions as to > what may be better and more comfortable. And, D4, after the Depends and Guards...I liked the Serenity line of pads. Reason? They are comfortable against the penis and they have about TWELVE different absorbancies and sizes. You can change from one to another as you feel ready. All the best, Ron B. Chicago thanks guys for the info maybe when i get a feeling in my bladder i will be able to stop some of the leaking I had RRP 10/5/2005 and was one of the VERY fortunate. I was 90% dry when the cath came out. I found that starting and stopping (or slowing) the stream was by far the most helpful exercise. It's a perfect biofeedback loop because you know without doubt when you're using the correct muscles. There is no feedback when doing Kegels while watching TV so it's impossible to know if you're using the correct muscles. Maybe the best solution would be a TV in the bathroom... |
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