On December 30, 2005, Thomas Michael Witte, Lt Cdr USN (retd) lost at
last his struggle with prostate cancer.
I did not have the honor of knowing him, but some folks here may have
been acquainted with Tom Witte.
His posts on PPML were an inspiration to me. He worked devotedly to help
his brothers and sisters in adversity, including trudging the halls of
Congress trying to secure adequate funding for PCa research.
I have pasted below a 2002 post by Tom that should give some insight
into this extraordinary man.
Regards,
Steve J
**********************************************
> Dear Listserv Members:
>
> My father, age 56, was diagnosed one month ago with Stage IV
> prostate cancer.
>
> (PSA 24, Gleason 8, several positive lymph nodes)
Me too. I was diagnosed with Stage IV prostate cancer (PSA 27,
Gleason 8, one bone met) but I was 47 back in 96.
I am not sure if I was depressed, but being categorized as a terminal
patient sure made an impact. I think I just became more numb. I am
not sure if the was the words or the way medical people would look at
me after they looked at my records.
Back then I listened to Doctors, they told me there was nothing I
could do but to enjoy the time I had left. I later figured out what
they meant was there was nothing 'they' could do.
They also told me to save 'hormones' for when the pain got bad. THIS
IS/WAS REALLY BAD ADVICE.
I stayed in this 'walking dead man' mode for about two years. I lived
the comment "He has little motivation to go beyond his comfort
zone...". I shrunk my world.
What changed me. Pain.
By the summer of 98 pain and fatigue, drove me back for them
'hormones'. In Aug 98 with a PSA of 413.x and lots of bone mets I
started Flutamide and Lupron, only to find while they stopped
progression and put things to sleep, I still hurt.
This drove me to look for better/ more information and I arrived here
and on to Dr Strum.
Dr Strum and some of the people here were the first to offer hope. To
offer things I COULD DO. And you know what - It is working. I am
still here. I was 'suppose to' die a year or so ago.
So what can I offer to your father.
#1. There is hope.
There are new things every month. And even if no new happens, if he
works it, he can have MANY GOOD years with what is already here (I am
proof of that!). See Dr Strums stuff for things to do.
#2. Think differently.
When he thinks "why bother", Instead of thinking, 'I may be dead by
then'. Think "I may be alive."
Start a new game - look for the joy in the moment.
Accept his/your mortality. Accept we are all going to die. Then
discuss what you want to achieve between now and then.
Remind him we may not have much say about when we die, but we have
LOTS of choices until then. Choose wisely.
[I am reminded of TAG line used by one of our brothers. It was
something like this:]
[A man asked God how much time he had left. God answered, "Time
enough to make a difference."]
Spend quite time with him and listen. I, who NEVER Listened, did this
as my father ended his final days and found my father, who never
talked, wanted to talk of his youth. Wow what a gift.
You may have to prime the pump with the right questions from now to
now but otherwise keep quite.
Maybe a way to start this is to grab those old family photos we all
have, and ask Dad to help id all the people in them.
#3. Exercise.
The only thing I do these days is walk. Part of me hates it. It
screams I got a car, I don't have time, etc. But I always find once I
get out the door and past the corner, the path is easy. And fun. I
always feel better after a walk. Everything is better after a walk.
Walk with him. Stop and look at the flower (things) you see on your
way. Find the joy in them.
#4 Pray/meditate
I find this really helps. It helps put all into a better context. And
another way to get better.
Someone said "We pray not to change God, but to change ourselves."
Hope this helps.
Tom Witte
Brian - 04 Jan 2006 23:21 GMT
> On December 30, 2005, Thomas Michael Witte, Lt Cdr USN (retd)
*salutes*
> lost at last his struggle with prostate cancer.
Negative copy that. He just got a transfer.
> I have pasted below a 2002 post by Tom that should give some insight into
> this extraordinary man.
> Steve J
Thanks, Steve.
> So what can I offer to your father.
>
[quoted text clipped - 4 lines]
> Accept his/your mortality. Accept we are all going to die. Then discuss
> what you want to achieve between now and then.
Also consider what you expect The Welcoming Committee to say upon your
arrival. Will it be like a Welcome Home, or like a prisoner transfer, or
just one more moving body at the bus station.
> #3. Exercise.
>
> I don't have time
Just the same 24 hours/day as the rest of us.
> #4 Pray/meditate
> Someone said "We pray not to change God, but to change ourselves."
I thank you (and Tom) for everything you posted here.
Steve Jordan - 05 Jan 2006 00:00 GMT
On January 4, Brian replied to me, in pertinent part:
>
>> On December 30, 2005, Thomas Michael Witte, Lt Cdr USN (retd)
[quoted text clipped - 8 lines]
> Negative copy that. He just got a transfer.
>
Brian is absolutely correct.
Gentlemen, charge your glasses!
I give you Commander Witte, not many of his kind remain. Long may his
memory live!
<<crash>>
Regards,
Steve J
"I want to be young again
I want to have my hopes again
and I want not to feel time."
-- Unknown
Steve U - 04 Jan 2006 23:53 GMT
Steve J,
Thanks for bringing Tom Witte's wisdom to the current group. He must
have been a really good guy. May he rest in peace.
Steve U
Pops - 05 Jan 2006 14:49 GMT
Steve,
My thoughts go out to Tom's family. I am sure he is in peace - prolly
walkin' a lot!
Perhaps he continues to help some of us, me in particular, after his
departure.
Two questions (I feel stupid):
1) What is PPML?
2) What is the Strumm reference?
Inquiring (but stupid) minds want to know!!
Steve Jordan - 05 Jan 2006 17:23 GMT
> My thoughts go out to Tom's family. I am sure he is in peace - prolly
> walkin' a lot!
>
> Perhaps he continues to help some of us, me in particular, after his
> departure.
>
I reckon that some of us are still alive due indirectly to his efforts
to encourage the politicians to enhance PCa research funding.
> Two questions (I feel stupid):
>
> 1) What is PPML?
>
The Prostate Problems Mailing List, an excellent resource. Info at:
http://listserv.acor.org/archives/prostate.html
> 2) What is the Strumm reference?
>
Tom was very grateful to Stephen B. Strum, MD, oncologist and PCa
specialist, for Strum's wise guidance. So am I.
Dr. Strum is co-author with PCa warrior Donna Pogliano of _A Primer on
Prostate Cancer_ subtitled "The Empowered Patient's Guide." It is now in
its second edition.
Its publisher is Life Extension Foundation, which was chosen by the
authors because LEF was willing to publish a first-class product, with
costly heavy paper and full-color illustrations, which the mainstream
publishers were unwilling to do.
There are many contributions by Dr. Strum on the website of the Prostate
Cancer Research Institute at: http://prostate-cancer.org/index.html
> Inquiring (but stupid) minds want to know!!
>
There is no such thing as a stupid question.
Regards,
Steve J