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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2006

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Nerve Grafting/ Nerve Repair After Radical Prostatectomy??

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pcrider - 03 Jan 2006 03:11 GMT
I've had a Radical Prostectomy about 5 years ago (I think been a while). I
was wondering if there is any hope of repairing the nerve damage these
days?

I've tried shots pills, and pumps with no success. Even the slightest
chance of repairing the damage to the nerves, or somehow stimulating an
"normal" erection would be  worth pursuing at this point.

I have of course heard of implants in the penis, and I'm simply not
interested in that. Unless they have developed a method of restricting
blood flow in order to achieve an erection that I don't know of, the
inflatable implants I've seen are out of the question.

Thanks Mike B.
Steve Kramer - 03 Jan 2006 11:16 GMT
The only way to stimulate those nerves, as I understand it, is to ...
well... stimulate those nerves.  As my doc says, "use it or lose it."

While shots, pills and pumps may not bring you to a satisfactory stiffness
(though I find that hard to believe), your penis can still be manipulated to
a fairly satisfactory climax.  Have that done a 100 times in three months
and I'll bet you get some nerve response.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

> I've had a Radical Prostectomy about 5 years ago (I think been a while). I
> was wondering if there is any hope of repairing the nerve damage these
[quoted text clipped - 10 lines]
>
> Thanks Mike B.
Brian - 04 Jan 2006 02:00 GMT
> The only way to stimulate those nerves, as I understand it, is to ...
> well... stimulate those nerves.  As my doc says, "use it or lose it."
[quoted text clipped - 3 lines]
> to a fairly satisfactory climax.  Have that done a 100 times in three
> months and I'll bet you get some nerve response.

Since the lupron shot, the hard-drive is a micro-floppy.
pcrider - 04 Jan 2006 02:47 GMT
> Since the lupron shot, the hard-drive is a micro-floppy.

Lupron? I have no idea what you are talking about.
Steve Kramer - 05 Jan 2006 00:25 GMT
>> The only way to stimulate those nerves, as I understand it, is to ...
>> well... stimulate those nerves.  As my doc says, "use it or lose it."
[quoted text clipped - 6 lines]
>
> Since the lupron shot, the hard-drive is a micro-floppy.

It sounded as if he was interested in sex.  I therefore assumed he was not
on Lupron  :(
Brian - 05 Jan 2006 02:06 GMT
>>> The only way to stimulate those nerves, as I understand it, is to ...
>>> well... stimulate those nerves.  As my doc says, "use it or lose it."
[quoted text clipped - 9 lines]
> It sounded as if he was interested in sex.  I therefore assumed he was not
> on Lupron  :(

We both are (interested), thus my lamentation :(
pcrider - 04 Jan 2006 02:44 GMT
> The only way to stimulate those nerves, as I understand it, is to ...
> well... stimulate those nerves.  As my doc says, "use it or lose it."
[quoted text clipped - 3 lines]
> be manipulated to a fairly satisfactory climax.  Have that done a 100
> times in three months and I'll bet you get some nerve response.

I am a little confused by your response. I am asking about repairing the
nerves that are responsible for an erection. These nerves were severed
during the operation to remove the prostate. Having orgasms, no matter how
many, is not going to repair the nerves, nor will it stimulate an erection.
Steve Kramer - 05 Jan 2006 00:39 GMT
>> The only way to stimulate those nerves, as I understand it, is to ...
>> well... stimulate those nerves.  As my doc says, "use it or lose it."
[quoted text clipped - 9 lines]
> many, is not going to repair the nerves, nor will it stimulate an
> erection.

Okay, let me expound....

Modern medicine has discovered that the nerves most likely involved in an
erection, or maybe most involved in an erection, are attached like a spider
web to the outside of the prostate.

During your surgery, if your doctor did not practice nerve-sparing surgery,
or if  you were not a candidate for nerve sparing surgery, he took the
prostate whole, nerves and all.  During 2000, I had mine completely removed
and I was not a candidate for nerve sparing.

However, if you do your exercises, you can regrow your nerves, or other
nerves that were secondarily involved in erections become more involved.  In
any case, you can begin to retrain some nerves somewhere to give you
erections again.  I didn't have an erection for almost 2½ years and pretty
much gave up -- then bam!  For no apparent reason, there it was.
Unfortunately, 2 months later I had radiation -- the bam!  no more erections
for a long time.

There is also something called a surral nerve transplant (I hope that I am
spelling that right).  They take a nerve from your ankle and attach it in
place of the nerve you just lost.  However, I don't think that can be done
after the fact.

In short, having orgasms may repair nerves and stimulate an erection.  If
not, please don't tell my penis.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

pcrider - 05 Jan 2006 03:05 GMT
>>> The only way to stimulate those nerves, as I understand it, is to
>>> ... well... stimulate those nerves.  As my doc says, "use it or lose
[quoted text clipped - 37 lines]
> In short, having orgasms may repair nerves and stimulate an erection.
> If not, please don't tell my penis.

Sounds like you had a good surgeon. I'm afraid I had a bad one (very
bad, but I won't go into that) He must have at least made an effort to
avoid damaging those nerves, or I doubt you would have any response. I
haven't seen any myself, and I haven't heard anything but bad news, so
far, from others in my shoes. Except your case.

The problem with the sural nerve graft-after the fact- as I understand
it, is locating the nerves in the belly, they get lost. I just keep
hoping someone might have found a way to do it, or at least something
that would produce a "normal" erection.

Thanks for the replies :)
Mike B.
DominicM - 05 Jan 2006 01:27 GMT
Mike just had a RPP at Sloan Kettering 3 weeks ago. My surgeon had a
Plastic Surgeon on standby if he wasn't able to spare or get good
response after nerve stimulation. So Sloan does these grafts I just
don't know if they do 5 yr post RPP. Now my Uro surgeon was Dr. Eastham
and he does salvage work so it might be worth a call. He was stellar.

Good luck to you.

ps....Plastic Surgeon was Joseph Disa.
pcrider - 05 Jan 2006 02:21 GMT
"DominicM" <dmarrese@gmail.com> wrote in news:1136424428.917256.175790
@g44g2000cwa.googlegroups.com:

> Mike just had a RPP at Sloan Kettering 3 weeks ago. My surgeon had a
> Plastic Surgeon on standby if he wasn't able to spare or get good
[quoted text clipped - 5 lines]
>
> ps....Plastic Surgeon was Joseph Disa.

Thanks for the info I will call. Five years is a long time, every lead
I've tracked so far says no, but you never know, it won't hurt to ask.
Someone somewhere has to realise the need for this for people like me.
If you think of, or hear of anyone/anything else let me know.

Thanks again, Mike B.
 
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