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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2005

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How long should an RRP take?

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WhiteSoxFan - 17 Dec 2005 13:41 GMT
Hello All,

This is my first post, so I'll give a little background. 52 yrs old,
PSA 5.79, Gleeson 4+4 and 4+3. T1c stage. I'm leaning toward surgery
over radiation. I'm still undecided about traditional radical vs. da
vinci. My question is a doc I am considering for traditional 'hands on'
SRP made a point about the time duration of his procedure as 1 hr.
Reason being the less you are under the better. Would you be suspicious
of his mention on the length of surgery as an accolade of his skill?

Thanks,

WhiteSoxFan
Bob Anthony - 17 Dec 2005 14:59 GMT
I would do a lot of research before choosing anything. You have some
time. Read, read, read! Then make a decision. (By the way, there was a
good article in Newsweek 12/12/05 on the use of the robot, not only on
the prostate, but on other types of surgeries too).
Get books written by the major authorities (doctors) of pca and read
them. There is some truth that it takes a bit longer to set up the
robot, but I would not base a decision on that alone. Also, the doctor
may not have the training, nor the means (they are expensive) to use the
robot.

B.A.
WhiteSoxFan - 17 Dec 2005 15:21 GMT
Let me simplify my question. How long does an RRP take under normal
circumstances? If a doc mentions that his RRP's take an hour would you
be suspicious?  Thanks for the advice concerning research on Da Vanci.
Bill - 17 Dec 2005 15:55 GMT
I suspect what he meant to convey was that he has the procedure down
well enough that he CAN do it in an hour. Frankly, I'd want the surgeon
to take his time, all day if necessary, to carefully dissect away the
nerves that determine my future erectile function.

Bill Denton
RP 2/12/02
PSA >.6
Memphis
Bob Anthony - 17 Dec 2005 16:23 GMT
I've read anywhere from 2 hours to about 4 hours or so. The robotic
procedure takes a bit more time than open surgery because of the set up
time involved. My robotic procedure took closer to 4 hours I am told, I
obviously do not remember any of it! A lot of time was spent on the prep
work. That combined with the actual surgery, you can get into the 4 hour
range with the robot. Times may be coming down a bit now, although I am
not sure. My particular surgeon had done about 1000+ open surgeries and
300+ robotic procedures and it still took around 4 hours or so.
Also, is your Gleason a 7 or an 8? I'm a bit confused buy your posting.
A Gleason 7 can be either a 3+4 or a 4+3.

B.A.
Bob Anthony - 17 Dec 2005 16:31 GMT
PS:

Also, the doc did a cystoscopy before (with a flexable scope) to make
sure no pc was in the bladder neck area.

B.A.
ron - 17 Dec 2005 16:26 GMT
Or perhaps the point he was trying to make was that the open surgery is
a lot shorter than robotic surgery.  Hence your time under anesthesia
would be much shorter with open RP.  Generally speaking, shorter times
on the table and shorter times under anesthesia are preferable in terms
of potential complications.  One other point, robotic RRP is "expected"
to have similar long-term outcomes, in terms of cancer control, as does
the traditional, open RP, but there is no published data to prove this
assumption at this time that I am aware of...Best wishes and good
health, Ron
DominicM - 17 Dec 2005 17:42 GMT
I just had my RPP done on Tuesday. Surgery took about 3 hours. Had my
surgery done at Sloan Kettering . I'm 49 yrs old, my jumped 2 pts in
about a  year to 4.2, 4 of 12 cores were positive, Gleason 8 (3+5),
mostly  on right side. Firmness on DRE.

Sloan is state of the art and they have access to robotics but my
surgeon didn't recommend it as he wanted to be able to have better
access and do what it necessary. He thought that out have that
flexibility out weighted any robotic benefits. My brother who is a
surgeon and a PCa survivor feels the same way (had his done at
Hopkins).

Dr. Eastham (GREAT MD & person)  was able to spare entire left nerve
and more than half of right so no grafting was done. Upon nerve
stimulation Junior stood at attention.
Surgeon believes everything contained. Pathology reports next week.

I was up the next morning (Wednesday) sitting at 6am and did 3 laps
around the floor.

They took me off iv's and morphine on Thursday morning. I was doing
well and they released me on Thursday afternoon. Im getting around ok.
I probably over did it (walking, getting up  & down etc) because I was
hurting yesterday. Cathether is is pain but  beats cancer. Surgeon it
could be removed as early as next Thursday. That make my Christmas
merrier,

Sloan Kettering and my surgeon were excellent. Only thing is I wish
they gave my donated blood back to me. Might of sped my recovery some.

Back to robotics...... regardless of what you do make sure your going
to someone who has done this hundreds or thousands of times.

I hope hear my experieince helps you. Good luck, good health, Merry
Christmas/Happy Holidays....

ps......
One thing I really screwed up on is requesting that Santa bring me a
recliner our family furniture is low and it's a challenge getting up.

I am very grateful for my friends, access to excellent medical care and
the fact that I caught this early. I have a friend battling pancreatic
cancer so this is a walk in the park.

pss.. 49 yrs old (former Chicagoian living with wife and daughter who
are Cubs fans, they did cheer for ChiSox though. :)
Steve Kramer - 17 Dec 2005 18:40 GMT
Holy CRAP!!!  No RRP takes an hour.

RUN, RUN, RUN AS FAST AS YOU CAN!!!!

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

> Let me simplify my question. How long does an RRP take under normal
> circumstances? If a doc mentions that his RRP's take an hour would you
> be suspicious?  Thanks for the advice concerning research on Da Vanci.
Sandy K. - 19 Dec 2005 17:34 GMT
> Let me simplify my question. How long does an RRP take under normal
> circumstances? If a doc mentions that his RRP's take an hour would you
> be suspicious?  Thanks for the advice concerning research on Da Vanci.

My RRP was done by Dr. Scardino at Sloane in NYC - I went into the operating
room and came out 6 hours later.  One hour??  Yikes!!  I'd rather they take
their time than rush through things.

Sandy K.
Alien - 25 Dec 2005 22:38 GMT
> > Let me simplify my question. How long does an RRP take under normal
> > circumstances? If a doc mentions that his RRP's take an hour would you
[quoted text clipped - 5 lines]
>
> Sandy K.

3 to 3.5 hours if the doc is careful and knows what he/she is doing.
Wayne - 20 Dec 2005 16:37 GMT
>Let me simplify my question. How long does an RRP take under normal
>circumstances? If a doc mentions that his RRP's take an hour would you
>be suspicious?  Thanks for the advice concerning research on Da Vanci.

My "conventional, hands-on" RRP (May 2005) only took an hour.  Perhaps a
few minutes less, because the doctor was down talking to my wife in 60
minutes.
DominicM - 17 Dec 2005 17:59 GMT
I just had my RPP done on Tuesday. Surgery took about 3 hours. Had my
surgery done at Sloan Kettering . I'm 49 yrs old, my jumped 2 pts in
about a  year to 4.2, 4 of 12 cores were positive, Gleason 8 (3+5),
mostly  on right side. Firmness on DRE.

Sloan is state of the art and they have access to robotics but my
surgeon didn't recommend it as he wanted to be able to have better
access and to do whatever is necessary. My brother who is a
surgeon and a PCa survivor feels the same way (had his done at
Hopkins).

Dr. Eastham (GREAT MD & person)  was able to spare entire left nerve
and more than half of right so no grafting was done. Upon nerve
stimulation Junior stood at attention. Surgeon believes everything
contained.
Pathology reports next week.

As for recovery,,,,I was up the next morning (Wednesday) sitting at 6am
and did 3 laps
around the floor.. Pain was tolerable.

They took me off iv's and morphine on Thursday morning. I was doing
well and they released me on Thursday afternoon. Im getting around ok.
I probably over did it (walking, getting up  & down etc) because I was
hurting yesterday. Cath is is pain but sure beats cancer. Surgeon it
could be removed as early as next Thursday. That make my Christmas
merrier,

I''ve been getting around house ok. Climbling stairs as needed.
Changing cath. Showered on my own. I cut out the Vicadin yesterday as I
want to gets tmy bowels back in order (pain meds & iron supplements
bind you up)..

Sloan Kettering and my surgeon were excellent. Only thing is I wish
they gave my donated blood back to me. Might has sped my recovery some.

Back to robotics...... regardless of what you do make sure your going
to someone who has done this hundreds or thousands of times. Understand
outcomes.  Do your research. But my local urologist and Sloan gave me
the same choices "young guy" with a Gleason 8 you treat
aggressively....combo (hormones, scan radiation & seeds) vs surgery. I
want to know that I got it taking it out using nerve sparing made sense
for me.

I hope hear my experieince helps you. Good luck, good health, Merry
Christmas/Happy Holidays....

ps......
One thing I really screwed up on is requesting that Santa bring me a
recliner... our family room  furniture is low and it's a challenge
getting up.

I am very grateful for my friends, access to excellent medical care and
the fact that I caught this early. I have a friend battling pancreatic
cancer so this is a walk in the park.

pss.. 49 yrs old (former Chicagoian living with wife and daughter who
are Cubs fans, they did cheer for ChiSox though. :)
DominicM - 17 Dec 2005 18:04 GMT
8. DominicM
    Dec 17, 12:59 pm   show options
Newsgroups: alt.support.cancer.prostate
From: "DominicM" <dmarr...@gmail.com> - Find messages by this author
Date: 17 Dec 2005 09:59:22 -0800
Local: Sat, Dec 17 2005 12:59 pm
Subject: Re: How long should an RRP take?
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I just had my RPP done on Tuesday. Surgery took about 3 hours. Had my
surgery done at Sloan Kettering . I'm 49 yrs old, my jumped 2 pts in
about a  year to 4.2, 4 of 12 cores were positive, Gleason 8 (3+5),
mostly  on right side. Firmness on DRE.

Sloan is state of the art and they have access to robotics but my
surgeon didn't recommend it as he wanted to be able to have better
access and to do whatever is necessary. My brother who is a
surgeon and a PCa survivor feels the same way (had his done at
Hopkins).

Dr. Eastham (GREAT MD & person)  was able to spare entire left nerve
and more than half of right so no grafting was done. Upon nerve
stimulation Junior stood at attention. Surgeon believes everything
contained.
Pathology reports next week.

As for recovery,,,,I was up the next morning (Wednesday) sitting at 6am
and did 3 laps
around the floor.. Pain was tolerable.

They took me off iv's and morphine on Thursday morning. I was doing
well and they released me on Thursday afternoon. Im getting around ok.
I probably over did it (walking, getting up  & down etc) because I was
hurting yesterday. Cath is is pain but sure beats cancer. Surgeon it
could be removed as early as next Thursday. That make my Christmas
merrier,

I''ve been getting around house ok. Climbling stairs as needed.
Changing cath. Showered on my own. I cut out the Vicadin yesterday as I
want to gets my bowels back in order (pain meds & iron supplements
bind you up). Just taking Aleve for pain when needed.

Sloan Kettering and my surgeon were excellent. Only thing is I wish
they gave my donated blood back to me. My brother thinks that could
speed my recovery some ....increase energy. .

Back to robotics...... regardless of what you do make sure your going
to someone who has done this hundreds or thousands of times. Understand
outcomes.  Do your research. But my local urologist and Sloan gave me
the same choices "young guy" with a Gleason 8 you treat
aggressively....combo (hormones, scan radiation & seeds) vs surgery. I
want to know that I got it taking it out using nerve sparing made sense
for me.

I hope hear my experieince helps you. Good luck, good health, Merry
Christmas/Happy Holidays....

ps......
One thing I really screwed up on is requesting that Santa bring me a
recliner... our family room  furniture is low and it's a challenge
getting up.

I am very grateful for my friends, access to excellent medical care and
the fact that I caught this early. I have a friend battling pancreatic
cancer so this is a walk in the park.

pss.. 49 yrs old (former Chicagoian living with wife and daughter who
are Cubs fans, they did cheer for ChiSox though. :)
Steve U - 17 Dec 2005 18:19 GMT
WhiteSoxFan,
Sorry to hear of your misfortune. Only you can decide what is best for
you. Take your time and read all you can. Most of the guys here did
that, and we came to different conclusions. Most sound happy with their
decisions, and you probably will be too. I had a Robotic Laparoscopic
RP in February of 2004. The surgeon was Dr.Joseph Wagner. He has done
hundreds of robotic procedures.I'm very pleased with him. You could
look at the Hartford Hospitals website www.harthosp.org for information
about the procedure. They have a video of one of the operations that
you can watch on your computer, and the doctors explain everything. I
went there and I am very happy with my results. The operation took
about 3 hours, but seemed like seconds to me. I was able to go home 20
hours later, and back to work day 6. Now I never leak, and a most of my
erection ability has returned. The worst part was waiting between the
diagnosis and the surgery. I picked surgery because I think it offers
the best chance of a complete cure. PSA is expected to drop to nothing.
You can have the pathologist go over the whole gland, nor just tiny
pieces of it. Also, I wanted to take the hit on erection and continence
at the start and get it over with. If you get good results from
surgery, it lasts. I wanted the robot technique because I like having
the doctor be able to see as well as possible, and the post op misery
is less. All the treatments have potential benefit and risks. Check
them all out.
My PCa stuff is:
age 50 PSA 4.5
Bx showed High Grade PIN
5 months later PSA 5.6
repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c
RLRP 2-11-04 at age 50
Favorable path, 5 small foci of 3+3, organ contained
Post op PSAs  <0.1
Steve U
Steve Kramer - 17 Dec 2005 18:38 GMT
> Hello All,
>
> This is my first post.

As a White Sox fan, or in general?  :-)

> 52 yrs old,
> PSA 5.79, Gleeson 4+4 and 4+3. T1c stage. I'm leaning toward surgery
[quoted text clipped - 3 lines]
> Reason being the less you are under the better. Would you be suspicious
> of his mention on the length of surgery as an accolade of his skill?

At 52, you are just crossing over into the age range where your options are
completely open.  However, a vast majority of 52-yr-olds get surgery for
various reasons -- if they can.  That Gleason 8 might be a small problem,
though the T1c and 5.79 are moderating data.  I think I would continue to
lean toward surgery.

HOWEVER, you should research this decision to the extreme.  There may never
be a bigger decision in your life and your doctor is not in a position to
make it for you.  Read prostate cancer books by Walsh and Strum; check out
www.phoenix5.org; and research the Internet.  And, above all, when you have
questions, bring them to us and/or your doctor.  I can't speak for your
doctor, but we will be thrilled to provide our opinions.

Finally, don't settle on a doctor, yet.  The one who just diagnosed you may
be a good diagnostician (or may have missed the bastard's obvious signals
over the last couple of years).  However, that does not make him or anyone
he recommends a good or poor surgeon.  You want a good surgeon; one with a
lot of nerve-sparing experience.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

WhiteSoxFan - 17 Dec 2005 22:17 GMT
Nice group!!! Thanks for all your support and advice and vents are
important too. The pathology for the biopsies that came back positive
were 4+4=8 ( I still don't know what's the difference between the first
number and the second number in the gleason score and the significance
being in the first position vs the second position. Why is a 4+3
different from a 3+4?) and the other positive biopsy taken was a 4+3=7.

BTW I had an interesting conversation with a Radiologist doc that chose
surgery.

Till later,

WhiteSoxFan (go Bears!)
Bob Anthony - 17 Dec 2005 22:33 GMT
The x + x being the first x is the predominant or most found cancer
cells in the prostate and aggressiveness of the cancer cells ranging
from mild (1) to poorly differentiated (5). Thus a person with a Gleason
3+4 would be a Gleason sum of 7, but the cancer cells that were found to
be the majority in the prostate would be a Gleason 3. (Hope I made some
sense).

B.A.
Steve Kramer - 17 Dec 2005 23:08 GMT
> Nice group!!! Thanks for all your support and advice and vents are
> important too. The pathology for the biopsies that came back positive
> were 4+4=8 ( I still don't know what's the difference between the first
> number and the second number in the gleason score and the significance
> being in the first position vs the second position. Why is a 4+3
> different from a 3+4?) and the other positive biopsy taken was a 4+3=7.

The Gleason Score is a combination of two ratings.  Each rating is on a
scale from 1 to 5.  The better the differentiation, the lower the number.
An evaluator looks at the samples and rates them 1 to 5.  He then selects
the most prevelant sample and the second most prevalent sample.  Those two
combined are the Gleason score.

No one gets a 1+1=2.  The lowest I've seen here is a 2+3=5.  Most of the
people (43%) have a Gleason of 6.  38% have a Gleason 7.  Those who have
3+4=7 greatly outnumber those at 4+3=7.

Both types have an amount of 3 cancer and an amount of 4 cancer.  However,
the 4+3=7 Gleasons have more 4 cancer than 3 cancer.  Neither is good.  4+3
is the worse of the two.  5+5=10 is the worst of all.

> WhiteSoxFan (go Bears!)
tim - 18 Dec 2005 09:44 GMT
Nice explanation of the Gleason score, Steve. I never really did understand
mine but I now realise it was actually quite good (1+5=6) even though the
consultant wasn't very positive about it - probably because my PSA was
pretty high at the time (24). The chart he consulted only had total Gleason
(i.e. 6) on one axis and PSA on the other and took no account of the
individual components. I've always felt more positive about my prognosis
than the Docs, maybe that is way they've always erred the other way - to
keep me down to earth. But I prefer a PMA...(Positive Mental Attitude,
better spell it out given our last conversation 8^).

I've recently found out that I only had a very small proportion of cancerous
cells so the probability of containment is looking better and better,
despite those cells being rated a 5.

This group is great. Two things to make me feel better and I've only been
here a couple of days 8^). I should have joined long ago.

>> Nice group!!! Thanks for all your support and advice and vents are
>> important too. The pathology for the biopsies that came back positive
[quoted text clipped - 18 lines]
>
>> WhiteSoxFan (go Bears!)
ron - 18 Dec 2005 14:08 GMT
tim wrote...snip...
> Nice explanation of the Gleason score, Steve. I never really did understand
> mine but I now realise it was actually quite good (1+5=6) even though the
> consultant wasn't very positive about it - probably because my PSA was
> pretty high at the time (24).

Hi Tim...I think in another thread you said your PCa was found during
biopsy.  A Gleason score of 1 is very rare and usually reserved for PCa
tumors from the central zone found during a TURP (a procedure to remove
prostatic tissue around the urethra).  Even in this case 2's are much
more common than 1's; in fact, I don't think I've ever seen a 1
reported.  A 1+5 is an even stranger mix.  Since you've already had
treatment, this may be water over the bridge, but you may want to have
your biopsy slides sent out to an expert PCa pathologist for
re-reading.  A list of such experts can be found at

http://diagnosis.prostate-help.org/pcgleas.htm

Actually, such information might prove useful down the road, should
secondary treatment ever be required...Best wishes and good health, Ron
tim - 18 Dec 2005 17:21 GMT
> Hi Tim...I think in another thread you said your PCa was found during
> biopsy.  A Gleason score of 1 is very rare and usually reserved for PCa

Yes, it was a biopsy.

> tumors from the central zone found during a TURP (a procedure to remove
> prostatic tissue around the urethra).  Even in this case 2's are much
> more common than 1's; in fact, I don't think I've ever seen a 1
> reported.  A 1+5 is an even stranger mix.  Since you've already had
> treatment, this may be water over the bridge, but you may want to have

The consultant I had was pretty vague and I guess I wasn't in quite the best
frame of mind to remember details so I could have got it wrong.

> your biopsy slides sent out to an expert PCa pathologist for
> re-reading.  A list of such experts can be found at
>
> http://diagnosis.prostate-help.org/pcgleas.htm

This is a good reference - I'll be reading it through in more detail. I'm in
the UK, though, so the experts list is not necessarily relevant. UK vs. USA
might explain some difference in policy in the grading too, though its more
likely I just mis-remembered.

From that page there is a reference to grading tiny foci by just doubling
the primary grade so it may just be that I really had 3+3=6 to give me the
total I remember and I made the rest up based on my then incorrect
understanding to fit the observation that most of the samples were "clear".
Actually, the more I think about it the more I think this is it.

As you say this is "water under the bridge" so I will check it out but I'll
wait until my next check-up. I'd be a lot more worried if my pathology
results hadn't been so good (margins etc. clear, less than 1% of the removed
cells cancerous).

Thanks for the info.
Brian - 18 Dec 2005 14:17 GMT
> Nice explanation of the Gleason score, Steve. I never really did
> understand mine but I now realise it was actually quite good (1+5=6) even
> though the consultant wasn't very positive about it -

This is a Big Red Flag that something was screwy in the analysis of the
biopsy samples themselves, or in recording/reporting the results of the
analysis.

1: Gleason Grades of 1 & 2 are *almost* *never* issued as a policy of both
Epstein and Bostwick, two of the biggest names in PC biopsy work.  I will
wager you a dozen donuts that the number '1' was NOT in the report as it
came from the pathologists work. (I have not queried ALL the Big Names in
PCA biopsy analysis, but I have both of these on record that 1 & 2 are
never seen except from tissue samples taken in a TURP (roto-rooter for
BHP), and as TURPs are at best rarely done anymore, 1 & 2 will almost
never be issued anymore)
2: Gleason grades number "how different from normal" the various tissues
are. The least differentiated (most similar to normal healthy tissue)
would get a 1, the most highly differentiated (closer in appearance to
martian brain tissue than human prostate tissue) would get a 5.  The odds
are a million to one against you being the 1-in-a-million that had Gleason
grade 5 cells in the biopsy tissue, but no grade 4, or 3, or 2, but lots
of grade 1.  

Urgent suggestion: get a second opinion on the biopsy.  Have it re-read by
another lab. This is a common normal thing.  My first lab (U.S. Labs in
California) graded me 4+3=7; the second (Bostwick) graded me 3+4=7.  This
will require you calling the lab that did the first biopsy, and get a
release form (Yeah, HIPA!) to send the block and slides (not just slides)
to the second opinion lab.  Execute the release form (Yeah, HIPA!) with
the second opinion lab to get their report as well.

> probably because my PSA was pretty high at the time (24).

This is  not high, but not near any records.

> The chart he consulted only had total Gleason (i.e. 6) on one axis and
> PSA on the other and took no account of the individual components.

This is a bold brain-fart on somebody's part.  Get the name of the lab and
the phone number to them, and call them directly.  Get them to fax you the
release form (Yeah, HIPA!) and fax it back: you want a copy of the
pathologists report showing dominant and secondary Gleason grades.

> I've recently found out that I only had a very small proportion of
> cancerous cells so the probability of containment is looking better and
> better, despite those cells being rated a 5.

The only thing past 5 is them developing their own identity, breaking out
of your abdomen like an Alien, and joining the May Day Parade.  Grade 5 is
close to immune to treatment, and, the younger you are the more active ==
dangerous this (probably) is.

> This group is great. Two things to make me feel better and I've only
> been here a couple of days 8^). I should have joined long ago.

*sigh* if you had this "long ago" you're in a heap of trouble now!

I have not written to pull a Stephen King/Edgar Allen Poe on you...
rather, this is untrustworthy news (1+5) and it is horrible news (5).

Please get things re-examined.

>>> Nice group!!! Thanks for all your support and advice and vents are
>>> important too. The pathology for the biopsies that came back positive
[quoted text clipped - 17 lines]
>> However, the 4+3=7 Gleasons have more 4 cancer than 3 cancer.  Neither
>> is good. 4+3 is the worse of the two.  5+5=10 is the worst of all.

anything with '5' in it is properly thought of as 'seriously bad news'.
tim - 18 Dec 2005 17:41 GMT
> This is a Big Red Flag that something was screwy in the analysis of the
> biopsy samples themselves, or in recording/reporting the results of the
> analysis.

I replied to an earlier post that I suspect I got mixed up with my imperfect
understanding of the Gleason score, the fact that nearly all the samples
were "clear" and that the total was 6. I think my real score was 3+3
obtained by doubling the primary grade of a small focus.

> This is a bold brain-fart on somebody's part.  Get the name of the lab and

Me, I think.

> The only thing past 5 is them developing their own identity, breaking out
> of your abdomen like an Alien, and joining the May Day Parade.

I like the image (in an uncomfortable feeling way) 8^).

> *sigh* if you had this "long ago" you're in a heap of trouble now!

I've had a radical prostatectomy since with v. good pathology results so I
don't *think* I am in trouble (except for getting my Gleason score wrong).
Very few cancerous cells found and none in the margins etc.

> I have not written to pull a Stephen King/Edgar Allen Poe on you...
> rather, this is untrustworthy news (1+5) and it is horrible news (5).

No, I appreciate the warning but I think the untrustworthy part is correct
(with me being the untrustworthy one). I misinterpreted some things when I
didn't understand the significance of the individual components in the score
and not realising that my total of 6 could have been a 3+3 if the focus was
localised. I got the "1" from the consultant telling me that the majority of
the biopsies were clear and the 5 by subtracting that from the total but the
reality is that I only *knew* the total score and that it was confined to
one sample.

I really, really appreciate your concern so I'm sorry that I got confused
and gave incorrect info.

Cheers
Tim
Brian - 20 Dec 2005 01:12 GMT
> I think my real score was
> 3+3 obtained by doubling the primary grade of a small focus.

Hmmm... reasonable explanation.

> I've had a radical prostatectomy since with v. good pathology results so I
> don't *think* I am in trouble (except for getting my Gleason score wrong).
> Very few cancerous cells found and none in the margins etc.

HOPEHopehopehope and then a little hope!

>> I have not written to pull a Stephen King/Edgar Allen Poe on you...
>> rather, this is untrustworthy news (1+5) and it is horrible news (5).
[quoted text clipped - 10 lines]
> I really, really appreciate your concern so I'm sorry that I got confused
> and gave incorrect info.

Well, I'm glad I can put the Alarm Siren away!  My hopes now are that

1: This bastard got the message and won't show up in your body ever
    again! Not after the way you treated it the first time!  *humph*!
    (sound of offended cancer sulking down the street)
2: Incontinence is at worst temporary, and full control of hydraulics
    is achieved.
3: Erectile functions are undiminished.
tim - 20 Dec 2005 22:50 GMT
> Well, I'm glad I can put the Alarm Siren away!  My hopes now are that

Phew, me too! 8^).

> 1: This bastard got the message and won't show up in your body ever
> again! Not after the way you treated it the first time!  *humph*!
> (sound of offended cancer sulking down the street)

Check, so far.

> 2: Incontinence is at worst temporary,

Continence is adequate, if not *quite* complete. So I'm putting a check in
this box, too.

> 3: Erectile functions are undiminished.

I'm working on this one. I'm working my way through the available drugs to
find the right balance between side effects and function. Viagra and Levitra
give me vile headaches ("Not tonight, I'm going to have a headache
tomorrow") so I'm experimenting (under GP supervision, of course) with
Cialis ATM. Some promising results but not yet complete success.

Cheers
Tim
Brian - 21 Dec 2005 06:32 GMT
>> 3: Erectile functions are undiminished.
>
[quoted text clipped - 6 lines]
> Cheers
> Tim

Hmmmmm...... Screw the head-ache, c'mere m'love!

If the head-ache is from the vaso-dialation effect of the
viagra/levitra/cialis, then try a vaso-constrictor right afterwords: Mt
Dew/Pepsi/No-Doz/askyerMDfor sumtin!
tim - 21 Dec 2005 10:10 GMT
>> find the right balance between side effects and function. Viagra and
>> Levitra give me vile headaches ("Not tonight, I'm going to have a
>> headache
>> tomorrow") so I'm experimenting (under GP supervision, of course) with
>> Cialis ATM. Some promising results but not yet complete success.

> Hmmmmm...... Screw the head-ache, c'mere m'love!

LOL. But you don't know how bad the headaches were! Like the worst hangover
for the whole of the following day, plus the drugs weren't really working
that well (no matter how long it's been I can't do much with an erection
that lasts 10 seconds 8^).

> If the head-ache is from the vaso-dialation effect of the
> viagra/levitra/cialis, then try a vaso-constrictor right afterwords: Mt
> Dew/Pepsi/No-Doz/askyerMDfor sumtin!

So far I getting results as good, if not better, from the Cialis, and with
no side-effects. But I'll bear that in mind as there is a possibility I may
go back to the Levitra again - it's the only one which has allowed for any
"spontaneous activity". OTOH, the Cialis provides more sustainability and is
still working the next day or two - a definite plus given NHS only allows
for 1-2 tablets a week 8^). Of course, once I find something that works I
won't necessarily stick with the NHS 8^) - though a couple of Cialis a week
may be enough once I get the dose right...free erections from the NHS for
the rest of my life, now that's something I thought I'd never type 8^).

Cheers
Tim
Ron B - 21 Dec 2005 19:09 GMT
I'm not gonna start a thread about the holidays...but I'll use this post
to thank everyone for their help in a very tough year and to wish
everyone the very best.

It struck me that the last few threads show the phenomenal
"coming-together" power that this group aways shows.

OK...NOW...

I'm about 9 months (actually EXACTLY 9 months today) out of the open RRP
surgery.

I'm 57 and...my doc likes using Cialis starting one month after surgery
to help increase blood flow.

I've been using it almost every other day with a pump and manual
stimulation and though I have orgasms and increased size (which is
better than a turtlehead)...no spontaneous erections yet.

Though guys here have said that sometimes...they just return 'all of a
sudden.'

It's also been mentioned by the guys here that Cialis is 'weaker' than
the other 2 drugs.

But...as Tim mentions...the 36 hour usage period helps at the start.

When...(I prefer that over 'if') some erections begin...I'll try the
Viagra and Levitra for better results.

I had samples of both...didn't have bad effects...but they didn't help.

But it was early on...so I'll go with Cialis until I see some
activity...and then try the others again and see what's what.

Steve U. is our expert on injections...and they are ALWAYS a
possibility...down the road a bit.  :-)

Some guys have their erections coming back early...some late...we'll
see.

Again, the best to all,

Ron B.

Chicago


Thomas Traub - 18 Dec 2005 12:50 GMT
I had the RRP at Northwestern last August.  It took about three hours.  My
Gleason was 3 + 3 and the grade was T2a.  I had a follow-up PSA last week
and the results were less than 0.1.  My urologist told me to see him again
in 6 months.

> Nice group!!! Thanks for all your support and advice and vents are
> important too. The pathology for the biopsies that came back positive
[quoted text clipped - 9 lines]
>
> WhiteSoxFan (go Bears!)
Steve Kramer - 18 Dec 2005 18:06 GMT
That's great, Thomas.  It's gotta be good do hear that magical phrase, "I
don't need to see you for six months."

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

>I had the RRP at Northwestern last August.  It took about three hours.  My
>Gleason was 3 + 3 and the grade was T2a.  I had a follow-up PSA last week
[quoted text clipped - 14 lines]
>>
>> WhiteSoxFan (go Bears!)
KenA - 18 Dec 2005 22:30 GMT
My robotic surgery is scheduled for 12/27. When discussing this with the  appointment
desk, they said when my surgeon first stated doing robotics, it took 4-5 hours. They
said he has become so proficient/skilled/experienced that his average robotic is now
about 3-4 hours.

I'll let you know at the end of the month....

HTH,
Ken
> Hello All,
>
[quoted text clipped - 9 lines]
>
> WhiteSoxFan
Alan Meyer - 19 Dec 2005 16:23 GMT
> ... My question is a doc I am considering for traditional 'hands on'
> SRP made a point about the time duration of his procedure as 1 hr.
> Reason being the less you are under the better. Would you be suspicious
> of his mention on the length of surgery as an accolade of his skill?

I'm not a doctor, but my understanding is that, indeed, less
time under a general anaesthetic is better than more time.  There
is less likelihood of complications and side effects from anaesthesia,
though problems with anaesthesia are probably not the main
dangers during the operation.  I think it bears on the decision but
may not be the main consideration in choosing which procedure to
have.  Success rate may be the most imortant issue, rates of
complications next, and recovery time third.

In theory, the outcome of RRP and LRP should be identical.  In both
cases they remove the prostate.  The question is, can the surgeon
get all of the tissue at risk equally well with each procedure, and
spare all of the tissue that should be spared with each procedure.
The answer is, it probabably depends more on the skill of the
surgeon than on the specific procedure.  But that's just my surmise.

As for the one hour claim, that seems very low to me.  I had
radiation, not surgery, and can't speak from personal experience,
but I thought that RRP patients were typically spending 3 hours
or so under anaesthesia and LRP (robotic) patients were closer
to double that.

I find the one hour claim a little disturbing.  If it's true, then
perhaps this guy is very fast - maybe too fast and not sufficiently
careful and accurate.  If it's false, then the guy is potentially a
liar and may not be trustworthy in other areas either.

Or maybe he just meant that the actual removal of the prostate
is one hour and the prep, going in, coming out and sewing up
are not included.  But if so, he's still making an, at best,
misleading statement.

Or maybe I'm all wrong and it can be done well in an hour.
I'm no surgeon.  Who am I to know?

I suggest getting a second opinion from another surgeon.  Ask
him how long it takes and how long you're under anaesthesia,
and what he thinks about the relative merits of RRP and LRP.

   Alan
KenA - 29 Dec 2005 07:08 GMT
Having just returned home about 3 hours ago from a daVinci RRP, mine took 4 hours. In
and out of the hospital in 29 hours. The guy before me took a little longer as my
surgeon also fixed his hernia "while he was in there"...
Truly amazing there's so little pain. My catheter has been the most annoying part of
post-op.
Ken
BTW, both nerves were able to be spared.. Yippee!
Get the biopsy report and cath comes out in 7 days...

WSF,
If you have questions, let know.
===============================
> Hello All,
>
[quoted text clipped - 9 lines]
>
> WhiteSoxFan
Steve Kramer - 29 Dec 2005 11:17 GMT
Yup.  Been hearing (reading) the same thing from surgery patients for almost
four years now...  "surgery went great, want to strangle the guy who
invented the catheter."

Glad to hear things are going well for you.  Looking forward to the post
biopsy report.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05, 5/05, 10/05
PSA  .07 .05 .06 .05 .08
Non Illegitimi Carborundum

> Having just returned home about 3 hours ago from a daVinci RRP, mine took
> 4 hours. In and out of the hospital in 29 hours. The guy before me took a
[quoted text clipped - 22 lines]
>>
>> WhiteSoxFan
Steve U - 29 Dec 2005 22:39 GMT
KenA,
Welcome home. Enjoy the "vacation" from usual responsibilities.
SteveU
 
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