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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2005

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vision problems

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Lorelei - 22 Nov 2005 15:15 GMT
Curt shared with me Saturday night that he has had a big decrease in
>> his vision.It's been going on for almost 4 weeks!!  He already had
>> pretty strong lens but he says his vision is really bad. I asked him
>> what the doctor said and his response was as usual." I haven't told him
>> yet. I see him the day after Thanksgiving"
>> He thinks it's from the Strontium 89 (since it was after that infusion
>> that he noticed the vision loss) but I didn't find any information on
>> those type of side effects. Now my mind is going 'tumor pressing on the
>> optic nerve?'  'damage from excessive pain medication?'
>> we are so different. I'd have been on the phone as soon as I noticed
>> the change. He waits until the next drs appt.
>>
>> Lori
Buttercup's Dad - 22 Nov 2005 16:58 GMT
Looks like not a happy holiday season coming up for you Lori.  I am saddened
by all that you have had to go through, and of course, I am sorry for Curt
having to suffer like this.  Your family is in my prayers.

David S.

> Curt shared with me Saturday night that he has had a big decrease in
> >> his vision.It's been going on for almost 4 weeks!!  He already had
[quoted text clipped - 9 lines]
> >>
> >> Lori
Steve Kramer - 22 Nov 2005 23:03 GMT
It might be optic nuritis, or something like that.  I don't know the word,
but I know the description.  It basically deals with an affected immune
system.  Usually, it is caused by a childhood disease of some sort that
reprograms your immune system into thinking that the optic nerves are
foreign to the body and therefore should be attacked.  Then, later in life,
you get a virus or something and your immune system attacks the virus and
the optic nerves.

Lord knows, Curt has been through some immunological stresses, so maybe that
is all that it is.  Fortunately, it that is what it is (and the depends on
what the definition of "is" is), then it is termporary.  Unfortunately,
temporary may mean six months and it is also likely to recur when next he
gets a virus.

> Curt shared with me Saturday night that he has had a big decrease in
>>> his vision.It's been going on for almost 4 weeks!!  He already had
[quoted text clipped - 9 lines]
>>>
>>> Lori
dale.j. - 26 Nov 2005 00:59 GMT
>  Curt shared with me Saturday night that he has had a big decrease in
> >> his vision.It's been going on for almost 4 weeks!!  He already had
[quoted text clipped - 9 lines]
> >>
> >> Lori

Macular degeneration happens fast.  Get to a eye doc quick.

Signature

Email:  dalej2@mac.com

Lorelei - 29 Nov 2005 04:50 GMT
$wf.3296@newsread3.news.atl.earthlink.net>,

>>  Curt shared with me Saturday night that he has had a big decrease in
>> >> his vision.It's been going on for almost 4 weeks!!  He already had
[quoted text clipped - 11 lines]
>> >>
>> >> Lori

Got a call from Curt Friday AM. I couldn't make out what he was saying, I
spoke with him and he told me that he had been throwing up since 0300. I was
about 3 hrs away so I called his brother to drive him. his mother ended up
doing it. I met them at the clinic. The doc said he was actively dying and
where did he want to die and sent for an ambulance to take him to North
Memorial Medical center,  by the time I got things organized so I could go
stay with him they had gotten his pain pretty much under control. they were
using Dilaudid cont drip and a PCA. MRI results came back this morning.
Walnut sized tumor in his right side of his brain and cancer in his CSF
fluid, he is also paralyzed on the right side of his face/. they are going
to try to radiate to see if that alleviates the paralysis. otherwise the
tumor is malignant.
He was discharged this morning on methadone and fentanly. He has to be back
Thursday AM to be readmitted. for who knows how long. decsions have to be
made . the end is coming.  he says he will fight death until the very end
and that is will be ugly.
Sam is still in Hazelden and doing well.

will update as I can

last psa 562

Signature

Lori
Devoted wife of Curtis Prostate Cancer mets to bone at age 40

TW - 29 Nov 2005 04:58 GMT
Lori,

God bless you and your family. My thoughts and prayers are with you.

Tom
I. P. Freely - 29 Nov 2005 06:56 GMT
Dammit, Lori . . . this is supposed to happen to OLD people, not youngsters
like you guys. You know now that the brain tumor explains a lot, but I doubt
that's comforting. We are all so very sorry, and wish we could actually DO
something besides pray for you two.

I.P.
Steve Kramer - 29 Nov 2005 11:18 GMT
That is just terrible news, Lori.

He will be in my prayers.

> $wf.3296@newsread3.news.atl.earthlink.net>,
>>
[quoted text clipped - 37 lines]
>
> last psa 562
c palmer - 29 Nov 2005 14:21 GMT
lori - you have a strong fighter for a husband.  he has my respect.  

please make written notes along the way while this is still fresh in
your mind and when someone says that prostate cancer doesn't hurt -
remind them.....

my thoughts and prayers are with you.....

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Buttercup's Dad - 29 Nov 2005 14:36 GMT
I am really sorry Lori.  God bless you all.

> $wf.3296@newsread3.news.atl.earthlink.net>,
> >
[quoted text clipped - 35 lines]
>
> last psa 562
Steve U - 29 Nov 2005 20:20 GMT
Lori,
That is really terrible. You are in my prayers for the strength you
need to keep going.
Steve U
MH - 29 Nov 2005 23:17 GMT
So very sorry to read this, Lori.
You and your family are in my thoughts and prayers!
Please remember to take care of *you*, too!

MikeH

> $wf.3296@newsread3.news.atl.earthlink.net>,
>>
[quoted text clipped - 37 lines]
>
> last psa 562
c palmer - 30 Nov 2005 09:21 GMT
hi lori - i've had this in my files and saved it.  i hope you can find
some comfort in it.

~ curtis

==================

Two men, both seriously ill, occupied the same hospital room.

One man was allowed to sit up in his bed for an hour each afternoon to
help drain the fluid from his lungs. His bed was next to the room's only
window. The other man had to spend all his time flat on his back.
The men talked for hours on end. They spoke of their wives and families,
their homes, their jobs, their involvement in the military service,
where they had been on vacation.

  Every afternoon when the man in the bed by the window could sit
up, he would pass the time by describing to his roommate all the things
he could see outside the window.

  The man in the other bed began to live for those one hour periods
where
his world would be broadened and enlivened by all the activity and color
of the world outside.

  The window overlooked a park with a lovely lake. Ducks and swans
played on the water while children sailed their model boats. Young
lovers walked arm in arm amidst flowers of every color and a fine view
of the city skyline could be seen in the distance.

  As the man by the window described all this in exquisite detail,
the man on the other side of the room would close his eyes and imagine
the picturesque scene.

  One warm afternoon the man by the window described a parade
passing by.

  Although the other man couldn't hear the band - he could see it in
his mind's eye as the gentleman by the window portrayed it with
descriptive words. Days and weeks passed.

  One morning, the day nurse arrived to bring water for their baths
only to find the lifeless body of the man by the window, who had died
peacefully in his sleep. She was saddened and called the hospital
attendants to take the body away.

  As soon as it seemed appropriate, the other man asked if he could
be moved next to the window. The nurse was happy to make the switch, and
after making sure he was comfortable, she left him alone.

  Slowly, painfully, he propped himself up on one elbow to take his
first look at the real world outside.

  He strained to slowly turn to look out the window beside the bed.

  It faced a blank wall. The man asked the nurse what could have
compelled his deceased roommate who had described such wonderful things
outside this window.

  The nurse responded that the man was blind and could not even see
the wall.

She said, "Perhaps he just wanted to encourage you."

Epilogue:

  There is tremendous happiness in making others happy, despite our
own situations.

  Shared grief is half the sorrow, but happiness when shared, is
doubled.

  If you want to feel rich, just count all the things you have that
money can't buy.

"Today is a gift, that's why it is called the present."

The greatest happiness in life is
the conviction that we are loved
- loved for ourselves, or rather,
loved in spite of ourselves.
- Victor Hugo
 

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Buttercup's Dad - 30 Nov 2005 21:12 GMT
That is a good one Curtis.

hi lori - i've had this in my files and saved it.  i hope you can find
some comfort in it.

~ curtis

==================

Two men, both seriously ill, occupied the same hospital room.

One man was allowed to sit up in his bed for an hour each afternoon to
help drain the fluid from his lungs. His bed was next to the room's only
window. The other man had to spend all his time flat on his back.
The men talked for hours on end. They spoke of their wives and families,
their homes, their jobs, their involvement in the military service,
where they had been on vacation.

Every afternoon when the man in the bed by the window could sit
up, he would pass the time by describing to his roommate all the things
he could see outside the window.

The man in the other bed began to live for those one hour periods
where
his world would be broadened and enlivened by all the activity and color
of the world outside.

The window overlooked a park with a lovely lake. Ducks and swans
played on the water while children sailed their model boats. Young
lovers walked arm in arm amidst flowers of every color and a fine view
of the city skyline could be seen in the distance.

As the man by the window described all this in exquisite detail,
the man on the other side of the room would close his eyes and imagine
the picturesque scene.

One warm afternoon the man by the window described a parade
passing by.

Although the other man couldn't hear the band - he could see it in
his mind's eye as the gentleman by the window portrayed it with
descriptive words. Days and weeks passed.

One morning, the day nurse arrived to bring water for their baths
only to find the lifeless body of the man by the window, who had died
peacefully in his sleep. She was saddened and called the hospital
attendants to take the body away.

As soon as it seemed appropriate, the other man asked if he could
be moved next to the window. The nurse was happy to make the switch, and
after making sure he was comfortable, she left him alone.

Slowly, painfully, he propped himself up on one elbow to take his
first look at the real world outside.

He strained to slowly turn to look out the window beside the bed.

It faced a blank wall. The man asked the nurse what could have
compelled his deceased roommate who had described such wonderful things
outside this window.

The nurse responded that the man was blind and could not even see
the wall.

She said, "Perhaps he just wanted to encourage you."

Epilogue:

There is tremendous happiness in making others happy, despite our
own situations.

Shared grief is half the sorrow, but happiness when shared, is
doubled.

If you want to feel rich, just count all the things you have that
money can't buy.

"Today is a gift, that's why it is called the present."

The greatest happiness in life is
the conviction that we are loved
- loved for ourselves, or rather,
loved in spite of ourselves.
- Victor Hugo

knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Lorelei - 04 Dec 2005 00:14 GMT
hi lori - i've had this in my files and saved it.  i hope you can find
some comfort in it.

~ curtis

==================

Two men, both seriously ill, occupied the same hospital room.

One man was allowed to sit up in his bed for an hour each afternoon to
help drain the fluid from his lungs. His bed was next to the room's only
window. The other man had to spend all his time flat on his back.
The men talked for hours on end. They spoke of their wives and families,
their homes, their jobs, their involvement in the military service,
where they had been on vacation.

Every afternoon when the man in the bed by the window could sit
up, he would pass the time by describing to his roommate all the things
he could see outside the window.

The man in the other bed began to live for those one hour periods
where
his world would be broadened and enlivened by all the activity and color
of the world outside.

The window overlooked a park with a lovely lake. Ducks and swans
played on the water while children sailed their model boats. Young
lovers walked arm in arm amidst flowers of every color and a fine view
of the city skyline could be seen in the distance.

As the man by the window described all this in exquisite detail,
the man on the other side of the room would close his eyes and imagine
the picturesque scene.

One warm afternoon the man by the window described a parade
passing by.

Although the other man couldn't hear the band - he could see it in
his mind's eye as the gentleman by the window portrayed it with
descriptive words. Days and weeks passed.

One morning, the day nurse arrived to bring water for their baths
only to find the lifeless body of the man by the window, who had died
peacefully in his sleep. She was saddened and called the hospital
attendants to take the body away.

As soon as it seemed appropriate, the other man asked if he could
be moved next to the window. The nurse was happy to make the switch, and
after making sure he was comfortable, she left him alone.

Slowly, painfully, he propped himself up on one elbow to take his
first look at the real world outside.

He strained to slowly turn to look out the window beside the bed.

It faced a blank wall. The man asked the nurse what could have
compelled his deceased roommate who had described such wonderful things
outside this window.

The nurse responded that the man was blind and could not even see
the wall.

She said, "Perhaps he just wanted to encourage you."

Epilogue:

There is tremendous happiness in making others happy, despite our
own situations.

Shared grief is half the sorrow, but happiness when shared, is
doubled.

If you want to feel rich, just count all the things you have that
money can't buy.

"Today is a gift, that's why it is called the present."

The greatest happiness in life is
the conviction that we are loved
- loved for ourselves, or rather,
loved in spite of ourselves.
- Victor Hugo

knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc

beautiful. thank you curtis

Lori
Justin Case - 30 Nov 2005 22:10 GMT
<Much snipped>

: Thursday AM to be readmitted. for who knows how long. decsions have to be
: made . the end is coming.  he says he will fight death until the very end
[quoted text clipped - 4 lines]
:
: last psa 562

I've written you before here, Lori, and I'm still reading.  Let me add my
prayers for you, your husband, and your loved ones to those already offered.

Ken Bland
gourd_dancer - 02 Dec 2005 04:49 GMT
My Prayers are with ya'll.......Take Care

> $wf.3296@newsread3.news.atl.earthlink.net>,
>>
[quoted text clipped - 37 lines]
>
> last psa 562
 
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