I posted earlier about a fast rising PSA.
I haven't talked to my internist yet about it, but I've made an appointment
with a urologist in Philadelphia for November 10th.
Just wondered if anyone had recomendations for urologists with a speciality
in PC in this area, or wherever (Hell, it's my life I"m willing to travel.)
PSA has gone from 1.6 in Jan 2004 to 5.4 about two weeks ago, and I know
enough to know this ain't good.
Thanks for any advice, info.
Ed
DominicM - 08 Oct 2005 02:43 GMT
you are close enough to Hopkins....they are the best. I'd go to your
local guys and get a biopsy. The procedure sucks but hopefully you'll
get a definitive read, then get 2nd opinion from Hopkins. My brother
an MD went to Hopkins for his RP.
I am in similar boat. Good luck to you. If you have it, I hope it's
contained.
James A. Honeychuck - 08 Oct 2005 08:58 GMT
The surgeons at Johns Hopkins know everything there is to know about
this disease.
jimhoney
RRP at J-H, age 52, cured, no significant aftereffects
Ed Kratz wrote:
> I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an appointment
[quoted text clipped - 6 lines]
>
> Ed
42n8-1 - 08 Oct 2005 15:20 GMT
hey ed '
johns hopkins was my first choice but they weren't in our insurance group so
i went with my second choice ,the university of pennsylvania .i got the
chief of urology ,Dr. Allen Wein .i am 3 and a half weeks out of surgury and
so far everything is ok. i go through not quite a half of a pad a day on
average and i get a little bit of a response from mr. winky.
good luck to you in wherever you go .
Harry
> I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an appointment
[quoted text clipped - 6 lines]
>
> Ed
JK@work - 08 Oct 2005 19:26 GMT
> I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an appointment
[quoted text clipped - 6 lines]
>
> Ed
Don't put the cart before the horse Ed. Look for a PCa specialist when
you find out you need one. Get to a urologist and get it checked out. Could
be several benign things also.

Signature
JK Sinrod
Sinrod Stained Glass Studios
http://www.sinrodstudios.com/
Coney Island Memories
www.sinrodstudios.com/coneymemories/
Sal - 11 Oct 2005 02:02 GMT
Ed :
Dr. Alan Wein or Dr. Bruce Malkowicz of the Hospital of the University of
Pennsylvania. The team there is terriffic.
http://pennhealth.com/WagForm/MainPage.aspx?config=provider&P=PP&ID=1398
Good luck.
>I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an
[quoted text clipped - 7 lines]
>
> Ed
Ed Kratz - 11 Oct 2005 10:58 GMT
Sal,
Thanks.
Internist is putting me on antibiotics and re-doing PSA after that.
Just in case, I have an appointement lined up November 10th at Penn.
Internist talked about possibly cancelling it if the PSA drops, but I'm
thinking it might be worth a second opinion no matter what happens.
Thanks again,
Ed
JK@work - 12 Oct 2005 18:17 GMT
> Sal,
> Thanks.
[quoted text clipped - 4 lines]
> Thanks again,
> Ed
The only way to know for sure is a biopsy, and even that is a crapshoot if
it's very small. All you can di is take it one step at a time, and don't
let it infuence your daily life.

Signature
JK Sinrod
Sinrod Stained Glass Studios
http://www.sinrodstudios.com/
Coney Island Memories
www.sinrodstudios.com/coneymemories/
Michael Kiely - 12 Oct 2005 18:36 GMT
Ed, I'm not sure you are at the point of looking for a surgeon yet. I
suspect you will want to find out if you have PCa or not, then read relevant
parts of books like that of Walsh and Strum, visit authoritative cancer
sites and post questions to this well-informed NG, then finally decide if
you want surgery or some other treatment.
If you do eventually elect surgery, I had a terrific experience with Dr. Ash
Tewari at Weil Cornell Columbia in NYC. (Is that close enough to Philly?)
He is head of Robotic Surgery and has performed well over a thousand RRPs. I
found him to be not only quite knowledgeable, but a kind, concerned and
modest human being who took time to answer questions and address concerns.
He has gathered a sharp team around him as well. Incidentally, his
statistics look quite good, but by his own admission, there is not enough
data yet on robotic surgery to compare outcomes definitively to those of
classical RP. His office number is 212 746-5638.
He did my surgery August 10, and I am down to a pad a day and beginning to
show erectile signs of life. (I'm 60 years young, Gleason 3+3=6, cancer in
both lobes, negative margins, 7-weeks post-op PSA 0.0).
Michael K
>I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an
[quoted text clipped - 7 lines]
>
> Ed
USC Gamecock - 12 Oct 2005 20:10 GMT
Ed -- you're doing the right thing to find out as much as you can about
the disease and who/where/how/when to treat it. From personal
experience, I agree with DominicM. Baltimore and Philly are close
enough I would strongly (again, based on MY experience) encourage at
least talking to folks at Hopkins.
I chose to travel from South Carolina to Hopkins and Dr. Partin (of the
Partin Tables fame) performed my RRP on August 12. Cancer in both
lobes (T2b prior to surgery); pathological Gleason 6 (3+3), confined to
the gland. No seminal vesicle or lymph node involvement. Using less
than a pad/day, only for extreme stress incontinence. Sexual
intercourse with my wife at 5 1/2 weeks with less than 25 mg of Viagra.
Praying for you best!
Lamentations 3:21-23
Ed Kratz - 12 Oct 2005 23:17 GMT
Thanks for your response.
I appreciate your prayers and assistance, and encouragement.
Johns Hopkins is definitley on my list.
Thanks again,
Ed
> Ed -- you're doing the right thing to find out as much as you can about
> the disease and who/where/how/when to treat it. From personal
[quoted text clipped - 12 lines]
>
> Lamentations 3:21-23
Ed Kratz - 12 Oct 2005 23:20 GMT
Michael,
Thanks for the comments.
As you said, I'm not at the stage of looking for a surgeon yet,but I want to
be ready.
I'm collecting info on surgeons.
Your comments on Tewari impressed me. I don't expect a surgeon to be my pal,
or hold my hand, but I'd like some empathy.
At any rate, thanks.
I'm on the antibiotics for now, approximately 18 days. I'll post again
with results, and more questions, one way or the other.
Ed
> Ed, I'm not sure you are at the point of looking for a surgeon yet. I
> suspect you will want to find out if you have PCa or not, then read
[quoted text clipped - 29 lines]
>>
>> Ed
Steve Kramer - 15 Oct 2005 16:57 GMT
Ed,
Relax!
Quickly increasing PSA is not ever good. But, "bad" is relative.
At this point, your chances of having cancer are, maybe, 50/50. Maybe less.
Maybe as little as 33%.
Your chances of dying from cancer, at this point, are maybe 10%.
You really don't know enough about your diagnosis to panic. Your doctor may
prescribe antibiotics and tell you to wait another three months for another
PSA.
So, relax. Worry a bit. Read a lot.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA .07 .05 .06 .05
non Illegitimi carborundum
> I posted earlier about a fast rising PSA.
> I haven't talked to my internist yet about it, but I've made an appointment
[quoted text clipped - 6 lines]
>
> Ed